Guest guest Posted July 2, 2001 Report Share Posted July 2, 2001 Maureen, I have a question. Since Jim is listed and on beeper - do you have to tell (or ask) tx team your going out of the country? I guess I'm surprised they would let you go. I always picture them like the KGB or CIA! Also, I don't know when O'Brien is going to be home from his travels - but he could be a great resource for you. Plus how often would he be able to meet an American with PSC, or Jim an Irishman with PSC? Something that makes you go hmmmm! Barb in Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2001 Report Share Posted July 11, 2001 Maureen, What a coincidence, and I have been married 26 years today as well. July the 12th 1975. We meet in Hawaii in 1972 when her father was stationed in the Air Force and I was in the Navy at Pearl Harbor. She had been there for 4 years and I had been there for almost three years. We meet in May and I got out of the Navy in Aug. They got reassigned to Ft. Meade, Md. in July so I followed her out here instead of going back to Pleasanton, Calif. And the rest is history. I hope you and Jim have a wonderful anniversary. and I are going to the ocean for three days. Fun, fun, fun!!!!!! Take care. Larry, Baltimore, almost 52, UC 95 PSC 96, married to the same woman for 26 years today. I am hoping for another 26 years. God bless. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2001 Report Share Posted July 21, 2001 -Maureen, The procedure you're talking about I think is blood salvaging. Suctioning out the blood in the body cavity and directing it back into the body thru machine. We would be willing do to this. What we could not agree to is using stored blood for India, hers or anyone elses. This is one of the reasons the Dr's really are directing us to Living Donor transplants, they can transplant India while her blood supply is still good. They can determine when the best time is for this and not when a liver becomes available and she's in very poor health. More and more people are requesting this type of surgery, in the past it was usually for religious reasons, now people are concerned with the often associated complications with blood transfusions. In fact there are a number of bloodless units around the country. But we have found none who specializes in transplants yet. The organ transplant itself (the liver) we feel comfortable giving to her. We have talked personally to both Dr.'s And although the surgeons would have to take special care with this kind of surgery it can and has been done successfully. We would hope they would take care with ALL the surgeries they perform. But we have found that with the so readily available blood supply that they can pump into a person the surgeons sometimes tend to lean on this backup instead of taking there time with the surgery itself. Point in case, Marks father just had his bladder and prostrate out due to cancer. He found a Dr. in NY who would be willing to do it with out blood. Usually this is a very bloody surgery. Marks father lost 2 cups of blood during the procedure. The Dr. was a very skilled surgeon. So we are very positive about the transplant when the time comes. We know we are putting our precious little daughters life into the hands of the surgeon and then asking him to take more than the normal care of her. But both of the Dr.'s we've talked to have a record of successful transplants and when any of us or our loved ones goes under the knive so to speak we all are putting our lives in their hands. Hope this didn't confuse you more. I'll be happy to answer any questions. Mark isn't home right now. He has to finish up a couple jobs before we fly out on Mon. But we might take you up on the offer to have someone watch India. I'll have to ask Mark and let you know one way or enother tonight. He is very protective of India. We don't leave her often. But I'll check. The offer was much appreciated. Take Care Lori E Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2001 Report Share Posted August 14, 2001 Hey Welcome back.... Just to let you know that I have been talking with Lori privately and will continue to...It was great that you were able to be with her in the ER...I am sure that Lori appreciated it.....even though you had never met...this computer really does bring people close together.... Your trip sounded like it was all that it was cracked up to be....Glad that you both had such a great time....and I think those bathes that Jim was taking sound really good too.....and the naps.... It was nice that you got to meet up with .....and I think really good for Jim to meet...and nice for you too....seems like Jim might be more open in the future on his thoughts....which would be great.... Ty is feeling better...and back at work and tooling around in his jeep...Although the other day we had to go and rescue him and the baby...He got stuck in a very large puddle...more like a small pond....luckily I have an Izuzu Trooper and we were able to pull him out with that.... I think the name in MJ...like they all have model numbers...CJ...TJ...Well he heard the Jane and decided he liked that name so I think she is MJ...we call him PB...PuddleBoy...for now anyways....He took me out off roading a couple of days before the Puddle incident...and we had a good time.... Everyone here does enjoy music...The guys are the true musicians....My husband plays the guitar, piano, sax, banjo, bass, you name it he can play it.... the 23 yr old plays...sax,.trumpet, melaphone, guitar,bass,keyboard.....Tyler plays all the same as Trav but the sax....le my daughter is a dancer....she did take piano and played the clarinet in grammer school..but switched to dancing ....Trav also can dance...he took lessons the same time as Dani....they both were in the marching band in HS..really all 3 of them did that...the boys in the band and Dani in the guard.....then Dani and Trav went on to do Drum Corp..both doing color guard...which is flag, rifle, and saber with dancing.....which he is now writing and teaching for....he also teaching at the high school level during the school year....he is in Atlanta now to teach there....then he will be going to Japan to write and teach and then back to Atlanta....in the spring he will be going to London to write and teach for another Drum corp...then back to Atlanta.... Bob my husband plays in a couple of differnet bands... I had taken piano when I ws a kid and can still read music so I can do alittle... Well one thing I can say is that you energy level is still up there...With all your traveling and then to come home and catch up in NO TIME....WOW......it takes me forever to catch up when I have been away.... Glad you are back.... Tell Jim Hi... Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2001 Report Share Posted August 14, 2001 Hey Welcome back.... Just to let you know that I have been talking with Lori privately and will continue to...It was great that you were able to be with her in the ER...I am sure that Lori appreciated it.....even though you had never met...this computer really does bring people close together.... Your trip sounded like it was all that it was cracked up to be....Glad that you both had such a great time....and I think those bathes that Jim was taking sound really good too.....and the naps.... It was nice that you got to meet up with .....and I think really good for Jim to meet...and nice for you too....seems like Jim might be more open in the future on his thoughts....which would be great.... Ty is feeling better...and back at work and tooling around in his jeep...Although the other day we had to go and rescue him and the baby...He got stuck in a very large puddle...more like a small pond....luckily I have an Izuzu Trooper and we were able to pull him out with that.... I think the name in MJ...like they all have model numbers...CJ...TJ...Well he heard the Jane and decided he liked that name so I think she is MJ...we call him PB...PuddleBoy...for now anyways....He took me out off roading a couple of days before the Puddle incident...and we had a good time.... Everyone here does enjoy music...The guys are the true musicians....My husband plays the guitar, piano, sax, banjo, bass, you name it he can play it.... the 23 yr old plays...sax,.trumpet, melaphone, guitar,bass,keyboard.....Tyler plays all the same as Trav but the sax....le my daughter is a dancer....she did take piano and played the clarinet in grammer school..but switched to dancing ....Trav also can dance...he took lessons the same time as Dani....they both were in the marching band in HS..really all 3 of them did that...the boys in the band and Dani in the guard.....then Dani and Trav went on to do Drum Corp..both doing color guard...which is flag, rifle, and saber with dancing.....which he is now writing and teaching for....he also teaching at the high school level during the school year....he is in Atlanta now to teach there....then he will be going to Japan to write and teach and then back to Atlanta....in the spring he will be going to London to write and teach for another Drum corp...then back to Atlanta.... Bob my husband plays in a couple of differnet bands... I had taken piano when I ws a kid and can still read music so I can do alittle... Well one thing I can say is that you energy level is still up there...With all your traveling and then to come home and catch up in NO TIME....WOW......it takes me forever to catch up when I have been away.... Glad you are back.... Tell Jim Hi... Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2001 Report Share Posted August 15, 2001 Maureen, Sounds absolutely beautiful. Someday we'll get there. I'm having an AWFUL time researching my family though. I know they came from Cork during the famine in the 1840s and they settled in land. My grandfather somehow ended up in MA where he met my grandmother. I would love to visit there someday when I figure out who their parents were and exactly where they lived. It would be wonderful to visit the place where they once stood. Thanks for the visuals! Gracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2001 Report Share Posted August 15, 2001 Maureen, Sounds absolutely beautiful. Someday we'll get there. I'm having an AWFUL time researching my family though. I know they came from Cork during the famine in the 1840s and they settled in land. My grandfather somehow ended up in MA where he met my grandmother. I would love to visit there someday when I figure out who their parents were and exactly where they lived. It would be wonderful to visit the place where they once stood. Thanks for the visuals! Gracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2001 Report Share Posted October 18, 2001 Hi...how are you both doing today.... On the college front I am going to get notes from his doctors and make copies and give them to each prof...nurse...disabilities dept...etc...cover every base I can...and then hope for the best.... Ty has talked to some of his professors..and they seemed to be understanding...but then again they are looking at someone at this time looks good...so not sure how seriously they are taking this whole thing.... As far as pooring over the insurance...well I literally was sitting with every type of medical...insurance...you name it...to learn as much as I could....all afternnon...In the am I went to the cardiologist with my mom....She needed clearance from them to do her vascular surgery...Well now she needs to go get a stress test....Just heard from them that will be )ct 30th...the day after we spend the day in Philly in HUP for Tys evaluation meeting....Of course I don't want to put Moms testing off...so looks like the beginning of a wild week...Also just learned from my son that he will be going back to Japan the first week of Nov....this time just for a week....but I wish he wasn't flying so much and especially out of the country.....but he is 23 and he has to make his own decisions...I am glad to see that he is not afraid....On the other hand...My daughter in Chicago...never liked flying in the first place....and usually would rather drive home....says its because she is bringing the dog...but I know it is because she really hates to fly...especially alone....If Vic..her boyfriend is with her she does better....They just got back from Vegas in the beginning of Sept.... Anyways...got off track there....going over so many different types of insurance for so many different things......so many phone calls.....for my mom and Ty.....and trying to be so organized...by the end of the night...I was not sure what my name was... I think I am still ........ Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2001 Report Share Posted October 18, 2001 Hi...how are you both doing today.... On the college front I am going to get notes from his doctors and make copies and give them to each prof...nurse...disabilities dept...etc...cover every base I can...and then hope for the best.... Ty has talked to some of his professors..and they seemed to be understanding...but then again they are looking at someone at this time looks good...so not sure how seriously they are taking this whole thing.... As far as pooring over the insurance...well I literally was sitting with every type of medical...insurance...you name it...to learn as much as I could....all afternnon...In the am I went to the cardiologist with my mom....She needed clearance from them to do her vascular surgery...Well now she needs to go get a stress test....Just heard from them that will be )ct 30th...the day after we spend the day in Philly in HUP for Tys evaluation meeting....Of course I don't want to put Moms testing off...so looks like the beginning of a wild week...Also just learned from my son that he will be going back to Japan the first week of Nov....this time just for a week....but I wish he wasn't flying so much and especially out of the country.....but he is 23 and he has to make his own decisions...I am glad to see that he is not afraid....On the other hand...My daughter in Chicago...never liked flying in the first place....and usually would rather drive home....says its because she is bringing the dog...but I know it is because she really hates to fly...especially alone....If Vic..her boyfriend is with her she does better....They just got back from Vegas in the beginning of Sept.... Anyways...got off track there....going over so many different types of insurance for so many different things......so many phone calls.....for my mom and Ty.....and trying to be so organized...by the end of the night...I was not sure what my name was... I think I am still ........ Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2001 Report Share Posted October 18, 2001 It is funny you mentioned the drs moving " away " when discussing sensitive topics. When the surgeon began telling us about the potential cancer and " outlook " , he tried to avoid eye contact with me and instead looked at my wife. I guess he thought I couldn't handle the news and was about to break down. As soon as my wife started to tear up, he diverted his eyes back to me. Strange how people will act. Shows they are only human. It must be tough to tell people regularly of devastating news and not become desensitized to it. Darin Quote Link to comment Share on other sites More sharing options...
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