Re: new member - McGlothlin

[Guest guest]

Hi Laurie

All the doctors remain non-commital when it comes to giving me a time frame

for receiving the transplant. When i was listed with UCLA (after going

through evaluation) on 10/31/99, i asked the Tx co-ordinator there and she

didn't want to give me a date. I asked her for a " ball park " estimate and

she said about a year. Then in December, I asked my Tx co-ordinator at

Kaiser and she said I should be looking towards the beginning of 2001. Then

in January, 2000, i asked again and my Tx doctor at Kaiser said that he

didn't know. And he probably doesn't. I think it depends upon if i get

sicker and my LFT's get worse. Right now, my bilirubin is 5.9 and my alk.

phos. is 173 (down from 204 last month). So it's a long, frustrating,

waiting/guessing game as to when i'll get it.

As far as getting a beeper, it will probably be 6 months or more till i get

one. UCLA waits till you get close to the top of the list until they give

you one.

Thank you Laurie, and all of you for keeping me in your prayers.

I will survive - I'm totally optimistic.

Hugs

McGlothlin

<< McG--

Did they give you any idea how long of a wait you would have? I assume you

have a beeper?

My prayers are with you

Laurie

>>

[Guest guest]

,

I spoke with Jacquelyn this evening and she was real surprised that you didn't

have a beeper. She was also surprised that they didn't have you hospitalized

with the high bili you have. Just what is Dr. Donovan doing about that? Phil

takes a higher dose of actigall than you. He takes 1200 mg. I think the yellow

stool is bad too. Hey someone with more knowledge is it? Jacquelyn said that

when she went into liver failure her stool was white.

Peg

Oceandrmer@... wrote:

> McG--

> Did they give you any idea how long of a wait you would have? I assume you

> have a beeper?

>

> My prayers are with you

>

> Laurie

>

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[Guest guest]

,

I spoke with Jacquelyn this evening and she was real surprised that you didn't

have a beeper. She was also surprised that they didn't have you hospitalized

with the high bili you have. Just what is Dr. Donovan doing about that? Phil

takes a higher dose of actigall than you. He takes 1200 mg. I think the yellow

stool is bad too. Hey someone with more knowledge is it? Jacquelyn said that

when she went into liver failure her stool was white.

Peg

Oceandrmer@... wrote:

> McG--

> Did they give you any idea how long of a wait you would have? I assume you

> have a beeper?

>

> My prayers are with you

>

> Laurie

>

> ------------------------------------------------------------------------

> Want to send money instantly to anyone, anywhere, anytime?

>

> You can today at X.com - and we'll give you $20 to try it! Sign

>

> up today at X.com. It's quick, free, & there's no obligation!

> http://click./1/332/4/_/24674/_/949109587/

>

> -- 20 megs of disk space in your group's Document Vault

> -- /docvault//?m=1