Guest guest Posted November 29, 2011 Report Share Posted November 29, 2011 Hello, and welcome to the group! I'm sort of new to the group myself, and find this site to be very helpful, just to read what other people are going through. I can imagine school is very challenging for him right now??? To: Soundsensitivity Sent: Tue, November 29, 2011 12:46:49 PMSubject: New to group Hello all, I am new to the group today. My 14 year old son suffers from misophonia, and I am trying to find ways to help him however I can. Thanks for "being there." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2011 Report Share Posted December 11, 2011 Just joined a few days ago and have been reading many interesting posts from other group members and find them remarkebly familiar to me. While I have never been formally diagnosed with any sound sensitivity disorder, I can tell you I began hating certain noises at a young age (around 9 is my best guess). My biggest triggers are smacking lips while eating, sniffling, tapping on keyboards, mouse, pens etc, and of course gum chewing. I have been dealing with this for 27 of my 36 years on this planet and everyday it is a challenge to not becomew angry with people. Those who are in my immediate family know my triggers so they do their best to not do the things that set me off. Like others have stated, if noises get to bad I go to a different room or where earplugs. It was a challenge for me to get through school and college (not academically) more so getting through the classes with all the various noises. One thing I would do to cope with noise in public is mimic the sound that annoys me, sometimes that helped to ease the anxiety a little bit. Now I just wear ear phoness at work and listen to constant white noise or music. My wife actually saw something about misophonia(sp?) on the today show and I began my research which led me here. To those with children just try to be accomidating as possible (understanding there are limits) and be supportive. My family always thought I had some sort of psychological issue or told me I was crazy. You can live with these issues it just takes perparation and perserverance and the hope that treatment options may be available someday. I would give anything not to have to subject the people I love to my varying moods based on my hatred of certain sounds. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2011 Report Share Posted December 29, 2011 Not sure about artifcical sugars as I avoid them because they trigger migraines. But I did read somewhere that they suspect seretonin levals as a possible cause. I believe this because low seretonin has caused me all kinds of problems. You can google seretonin and find natural ways to raise your levels. This way you can avoid adding anti-deppresents and their side effects into your life. Sent from my Samsung Interceptâ„¢ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2011 Report Share Posted December 29, 2011 Not sure about artifcical sugars as I avoid them because they trigger migraines. But I did read somewhere that they suspect seretonin levals as a possible cause. I believe this because low seretonin has caused me all kinds of problems. You can google seretonin and find natural ways to raise your levels. This way you can avoid adding anti-deppresents and their side effects into your life. Sent from my Samsung Interceptâ„¢ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2011 Report Share Posted December 29, 2011 My mother used to call it "exercising my ankle". Her foot went around, and around, and around. It was pure torture for me. ooh, yes, husband's feet crossed, socks scraping together, back and forth, back and forth, urgh! visual and noise. and, if anoyone has velcro involved in this process, if it is not my husband (I can ask him to stop), I would just have to leave the room. so, this is all about more than just noises, isn't it? lighting, yes, that affects me too. i am learning so much already! > > > > > > Hi! I'm Lori and I'm delighted to have found this group, especially since I just discovered that misophonia is a real medical condition and not that I'm just being "too sensitive" about certain sounds. I always wondered why the sound of someone popping or chomping their gum, cracking their joints, whistling or jingling coins in their pants pockets always made me want to go postal. It's good to know that I'm not alone in this affliction and it will be nice to communicate with people who understand. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2011 Report Share Posted December 29, 2011 My mother used to call it "exercising my ankle". Her foot went around, and around, and around. It was pure torture for me. ooh, yes, husband's feet crossed, socks scraping together, back and forth, back and forth, urgh! visual and noise. and, if anoyone has velcro involved in this process, if it is not my husband (I can ask him to stop), I would just have to leave the room. so, this is all about more than just noises, isn't it? lighting, yes, that affects me too. i am learning so much already! > > > > > > Hi! I'm Lori and I'm delighted to have found this group, especially since I just discovered that misophonia is a real medical condition and not that I'm just being "too sensitive" about certain sounds. I always wondered why the sound of someone popping or chomping their gum, cracking their joints, whistling or jingling coins in their pants pockets always made me want to go postal. It's good to know that I'm not alone in this affliction and it will be nice to communicate with people who understand. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2011 Report Share Posted December 29, 2011 Has anyone tried hynposis or hypnotherapy to deal with misophonia? I bought a CD with subliminal messages to combat sound sensitivity which I'm going to try. I feel a little silly resorting to something like this but I figure it's worth a try. > > Not sure about artifcical sugars as I avoid them because they trigger migraines. But I did read somewhere that they suspect seretonin levals as a possible cause. I believe this because low seretonin has caused me all kinds of problems. You can google seretonin and find natural ways to raise your levels. This way you can avoid adding anti-deppresents and their side effects into your life. > > Sent from my Samsung Interceptâ„¢ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2011 Report Share Posted December 29, 2011 Has anyone tried hynposis or hypnotherapy to deal with misophonia? I bought a CD with subliminal messages to combat sound sensitivity which I'm going to try. I feel a little silly resorting to something like this but I figure it's worth a try. > > Not sure about artifcical sugars as I avoid them because they trigger migraines. But I did read somewhere that they suspect seretonin levals as a possible cause. I believe this because low seretonin has caused me all kinds of problems. You can google seretonin and find natural ways to raise your levels. This way you can avoid adding anti-deppresents and their side effects into your life. > > Sent from my Samsung Interceptâ„¢ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2011 Report Share Posted December 29, 2011 I've been thinking about hypnosis as well. Luckly I have everyone at work trained to avoid my triggers. But I can't avoid electronic hums or new customers. I manage a bar, that includes bartending. I used to have a hard time explaining it to new people who tap on the bar along to the music. For the most part people understand. Also the regular customers have my back. Often they tell people to quit before I do. I tried hypnosis for something else yearrs ago. I felt stupid and didn't know what to do because I wasn't hypnotized. SO, I faked it. I'm willing to try it again. Let me know how it works for you. Sent from my Samsung Interceptâ„¢ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2011 Report Share Posted December 29, 2011 I've been thinking about hypnosis as well. Luckly I have everyone at work trained to avoid my triggers. But I can't avoid electronic hums or new customers. I manage a bar, that includes bartending. I used to have a hard time explaining it to new people who tap on the bar along to the music. For the most part people understand. Also the regular customers have my back. Often they tell people to quit before I do. I tried hypnosis for something else yearrs ago. I felt stupid and didn't know what to do because I wasn't hypnotized. SO, I faked it. I'm willing to try it again. Let me know how it works for you. Sent from my Samsung Interceptâ„¢ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2011 Report Share Posted December 29, 2011 It says to use the CD consistently for 30 days, so I'll let you know how it went at the close of a month. Keep your fingers crossed! > > I've been thinking about hypnosis as well. Luckly I have everyone at work trained to avoid my triggers. But I can't avoid electronic hums or new customers. I manage a bar, that includes bartending. I used to have a hard time explaining it to new people who tap on the bar along to the music. For the most part people understand. Also the regular customers have my back. Often they tell people to quit before I do. I tried hypnosis for something else yearrs ago. I felt stupid and didn't know what to do because I wasn't hypnotized. SO, I faked it. I'm willing to try it again. Let me know how it works for you. > > Sent from my Samsung Interceptâ„¢ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2011 Report Share Posted December 29, 2011 It says to use the CD consistently for 30 days, so I'll let you know how it went at the close of a month. Keep your fingers crossed! > > I've been thinking about hypnosis as well. Luckly I have everyone at work trained to avoid my triggers. But I can't avoid electronic hums or new customers. I manage a bar, that includes bartending. I used to have a hard time explaining it to new people who tap on the bar along to the music. For the most part people understand. Also the regular customers have my back. Often they tell people to quit before I do. I tried hypnosis for something else yearrs ago. I felt stupid and didn't know what to do because I wasn't hypnotized. SO, I faked it. I'm willing to try it again. Let me know how it works for you. > > Sent from my Samsung Interceptâ„¢ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2011 Report Share Posted December 29, 2011 I need some advice. My daughter mimics sounds like sniffing, clearing throat and coughing. She get mad at sounds like sucking on ice cubes, how people drink. She glares at others who make those sounds and mimics theirs sounds at an extreme level. I really do not understand and I don't want to make any angry. It isn't good to act out in this way. She's brilliant and has a bright future. I just want her to figure out how to deal with this problem. You can't go through life and have top level career, glaring and copying sounds in the board room. Is there anything we can do for her. I think that isolating herself from others is a big mistake. Is there anything that may work for her. > > > > > > > > Hi! I'm Lori and I'm delighted to have found this group, especially since I just discovered that misophonia is a real medical condition and not that I'm just being " too sensitive " about certain sounds. I always wondered why the sound of someone popping or chomping their gum, cracking their joints, whistling or jingling coins in their pants pockets always made me want to go postal. It's good to know that I'm not alone in this affliction and it will be nice to communicate with people who understand. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2011 Report Share Posted December 30, 2011 Yes! Repetitive movements really bother me as well. They are distracting and I can't filter them out unless I get up and leave. Vicki > > > > > > Hi! I'm Lori and I'm delighted to have found this group, especially since I just discovered that misophonia is a real medical condition and not that I'm just being " too sensitive " about certain sounds. I always wondered why the sound of someone popping or chomping their gum, cracking their joints, whistling or jingling coins in their pants pockets always made me want to go postal. It's good to know that I'm not alone in this affliction and it will be nice to communicate with people who understand. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2011 Report Share Posted December 30, 2011 I hate that instead of being able to ignore the offending motion or sound, I always zero in on it, almost like a moth to a flame...you know you shouldn't but you can't look away! Anyway, thanks everyone for the dietary suggestions. In addition to the hypnosis CD, I think I will try eliminating some grains from my diet and see if that helps, also. > > > > > > > > Hi! I'm Lori and I'm delighted to have found this group, especially since I just discovered that misophonia is a real medical condition and not that I'm just being " too sensitive " about certain sounds. I always wondered why the sound of someone popping or chomping their gum, cracking their joints, whistling or jingling coins in their pants pockets always made me want to go postal. It's good to know that I'm not alone in this affliction and it will be nice to communicate with people who understand. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2011 Report Share Posted December 30, 2011 I hate that instead of being able to ignore the offending motion or sound, I always zero in on it, almost like a moth to a flame...you know you shouldn't but you can't look away! Anyway, thanks everyone for the dietary suggestions. In addition to the hypnosis CD, I think I will try eliminating some grains from my diet and see if that helps, also. > > > > > > > > Hi! I'm Lori and I'm delighted to have found this group, especially since I just discovered that misophonia is a real medical condition and not that I'm just being " too sensitive " about certain sounds. I always wondered why the sound of someone popping or chomping their gum, cracking their joints, whistling or jingling coins in their pants pockets always made me want to go postal. It's good to know that I'm not alone in this affliction and it will be nice to communicate with people who understand. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2011 Report Share Posted December 30, 2011 I hate that instead of being able to ignore the offending motion or sound, I always zero in on it, almost like a moth to a flame...you know you shouldn't but you can't look away! Anyway, thanks everyone for the dietary suggestions. In addition to the hypnosis CD, I think I will try eliminating some grains from my diet and see if that helps, also. > > > > > > > > Hi! I'm Lori and I'm delighted to have found this group, especially since I just discovered that misophonia is a real medical condition and not that I'm just being " too sensitive " about certain sounds. I always wondered why the sound of someone popping or chomping their gum, cracking their joints, whistling or jingling coins in their pants pockets always made me want to go postal. It's good to know that I'm not alone in this affliction and it will be nice to communicate with people who understand. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2011 Report Share Posted December 30, 2011 I have been on this yahoo group for several months or more now and I definitely see this trend of many of us being bothered by repetitive movements. So, my question is- is this another aspect to misophonia or is it another condition that is common among people with misophonia?? To: Soundsensitivity Sent: Friday, December 30, 2011 2:14 PM Subject: Re: New to Group Yes! Repetitive movements really bother me as well. They are distracting and I can't filter them out unless I get up and leave. Vicki > > > > > > Hi! I'm Lori and I'm delighted to have found this group, especially since I just discovered that misophonia is a real medical condition and not that I'm just being "too sensitive" about certain sounds. I always wondered why the sound of someone popping or chomping their gum, cracking their joints, whistling or jingling coins in their pants pockets always made me want to go postal. It's good to know that I'm not alone in this affliction and it will be nice to communicate with people who understand. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2011 Report Share Posted December 30, 2011 Hi . I understand your thoughts on aspergers and a relation however, I do not fit that mold at all. I know aspergers includes severe trouble with social situations and that doesn't describe me in the least and never has. I was always quite social and enjoyed being the center of attention...That being said, I am sure there are a number of people with aspergers who also have misophonia or other sensory related issues... To: Soundsensitivity Sent: Friday, December 30, 2011 11:04 PM Subject: Re: Re: New to Group Marnie, I wonder as well. That's why I was asking about asperger's. Or, some other syndrome. Just wondering... To: "Soundsensitivity " <Soundsensitivity >Sent: Fri, December 30, 2011 9:04:53 PMSubject: Re: Re: New to Group I have been on this yahoo group for several months or more now and I definitely see this trend of many of us being bothered by repetitive movements. So, my question is- is this another aspect to misophonia or is it another condition that is common among people with misophonia?? To: Soundsensitivity Sent: Friday, December 30, 2011 2:14 PMSubject: Re: New to Group Yes! Repetitive movements really bother me as well. They are distracting and I can't filter them out unless I get up and leave.Vicki> > >> > > Hi! I'm Lori and I'm delighted to have found this group, especially since I just discovered that misophonia is a real medical condition and not that I'm just being "too sensitive" about certain sounds. I always wondered why the sound of someone popping or chomping their gum, cracking their joints, whistling or jingling coins in their pants pockets always made me want to go postal. It's good to know that I'm not alone in this affliction and it will be nice to communicate with people who understand.> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2012 Report Share Posted January 2, 2012 How old is your daughter? I mimicked from about 9 - 20 and have gradually learned to control my responses. I now have a 10 year old daughter who is starting to mimic and I know how frustrating it can be. My husband doesn't understand it (even after being married to me for 15 years), arguments erupt all the time. I am much more understanding, but I do want her to lead a more "normal" childhood than I did, so I try to educate her on the condition and what her triggers are. Certain things make her mimicking worse. If she's hungry, tired, upset, in a confined space where she feels she can't get away (like the car), and hormones. She carries ear plugs and her iPod everywhere. We practice appropriate responses to difficult situations. For example... She has a difficult time with hard "K" sounds which she mimics frequently and, after many months of work, she said in the car this weekend "I'm not trying to be rude, but your C's and K's are driving me crazy, could you try to speak more softly?" This was such an improvement over the response we would have gotten only a few weeks ago "KKKKKKKKK, you're so stupid". She mimics a lot right after school because she has held it in all day. Home is safe place and we allow her to mimic more at home so she can hold it together at school or in another public place. I have spent my whole life trying to find a cure for what I have and have never found therapy to work. Diet does help me and exercise helps my daughter. Isolation makes it worse, and bottling it up makes me crazy. Controlling my environment and my responses is the only way I can lead a normal life. In fact being smart and at the top of my career has helped me be able to control my environment. You may have some tough years ahead, but be supportive and seek help from teachers and doctors. She is going to have to learn to live with this, and so are you. There is no quick fix, no cure that I know of. To: Soundsensitivity Sent: Sunday, January 1, 2012 7:21 PMSubject: Re: New to Group Firstly, hitting my daughter never would happen. I'm a neophite, so I need specific advise. Does hypnosis work or White noise, Pink noise? But, just leaving the environment is not a real answer. You can't be normal doing that. I don't want to make anyone mad, but that can't be the only answer. You can't all just move into a convent and take a vow of silence. It makes my wife and I terrible sad that she removes herself from the family. I know she sometimes won't go out with us because she's having a problem with sounds. Recently, I've been sick and she was about to blow her stack because of all the coughing, sniffing and clearing of throats.Please, any strategies or devices or therapy ideas> > > > > >> > > > > > Hi! I'm Lori and I'm delighted to have found this group, especially since I just discovered that misophonia is a real medical condition and not that I'm just being "too sensitive" about certain sounds. I always wondered why the sound of someone popping or chomping their gum, cracking their joints, whistling or jingling coins in their pants pockets always made me want to go postal. It's good to know that I'm not alone in this affliction and it will be nice to communicate with people who understand.> > > > > >> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2012 Report Share Posted January 2, 2012 I have a 13 year old son dealing with 4S/Miso also - he doesn't mimick but he makes noises over the trigger noises to drown it out (here at home).....We too want him to lead as "normal" a life too - so thank you all for sharing - we are learning from everyone else. How old is your daughter? I mimicked from about 9 - 20 and have gradually learned to control my responses. I now have a 10 year old daughter who is starting to mimic and I know how frustrating it can be. My husband doesn't understand it (even after being married to me for 15 years), arguments erupt all the time. I am much more understanding, but I do want her to lead a more "normal" childhood than I did, so I try to educate her on the condition and what her triggers are. Certain things make her mimicking worse. If she's hungry, tired, upset, in a confined space where she feels she can't get away (like the car), and hormones. She carries ear plugs and her iPod everywhere. We practice appropriate responses to difficult situations. For example... She has a difficult time with hard "K" sounds which she mimics frequently and, after many months of work, she said in the car this weekend "I'm not trying to be rude, but your C's and K's are driving me crazy, could you try to speak more softly?" This was such an improvement over the response we would have gotten only a few weeks ago "KKKKKKKKK, you're so stupid". She mimics a lot right after school because she has held it in all day. Home is safe place and we allow her to mimic more at home so she can hold it together at school or in another public place. I have spent my whole life trying to find a cure for what I have and have never found therapy to work. Diet does help me and exercise helps my daughter. Isolation makes it worse, and bottling it up makes me crazy. Controlling my environment and my responses is the only way I can lead a normal life. In fact being smart and at the top of my career has helped me be able to control my environment. You may have some tough years ahead, but be supportive and seek help from teachers and doctors. She is going to have to learn to live with this, and so are you. There is no quick fix, no cure that I know of. To: Soundsensitivity Sent: Sunday, January 1, 2012 7:21 PMSubject: Re: New to Group Firstly, hitting my daughter never would happen. I'm a neophite, so I need specific advise. Does hypnosis work or White noise, Pink noise? But, just leaving the environment is not a real answer. You can't be normal doing that. I don't want to make anyone mad, but that can't be the only answer. You can't all just move into a convent and take a vow of silence. It makes my wife and I terrible sad that she removes herself from the family. I know she sometimes won't go out with us because she's having a problem with sounds. Recently, I've been sick and she was about to blow her stack because of all the coughing, sniffing and clearing of throats.Please, any strategies or devices or therapy ideas> > > > > >> > > > > > Hi! I'm Lori and I'm delighted to have found this group, especially since I just discovered that misophonia is a real medical condition and not that I'm just being "too sensitive" about certain sounds. I always wondered why the sound of someone popping or chomping their gum, cracking their joints, whistling or jingling coins in their pants pockets always made me want to go postal. It's good to know that I'm not alone in this affliction and it will be nice to communicate with people who understand.> > > > > >> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2012 Report Share Posted January 2, 2012 I have a 13 year old son dealing with 4S/Miso also - he doesn't mimick but he makes noises over the trigger noises to drown it out (here at home).....We too want him to lead as "normal" a life too - so thank you all for sharing - we are learning from everyone else. How old is your daughter? I mimicked from about 9 - 20 and have gradually learned to control my responses. I now have a 10 year old daughter who is starting to mimic and I know how frustrating it can be. My husband doesn't understand it (even after being married to me for 15 years), arguments erupt all the time. I am much more understanding, but I do want her to lead a more "normal" childhood than I did, so I try to educate her on the condition and what her triggers are. Certain things make her mimicking worse. If she's hungry, tired, upset, in a confined space where she feels she can't get away (like the car), and hormones. She carries ear plugs and her iPod everywhere. We practice appropriate responses to difficult situations. For example... She has a difficult time with hard "K" sounds which she mimics frequently and, after many months of work, she said in the car this weekend "I'm not trying to be rude, but your C's and K's are driving me crazy, could you try to speak more softly?" This was such an improvement over the response we would have gotten only a few weeks ago "KKKKKKKKK, you're so stupid". She mimics a lot right after school because she has held it in all day. Home is safe place and we allow her to mimic more at home so she can hold it together at school or in another public place. I have spent my whole life trying to find a cure for what I have and have never found therapy to work. Diet does help me and exercise helps my daughter. Isolation makes it worse, and bottling it up makes me crazy. Controlling my environment and my responses is the only way I can lead a normal life. In fact being smart and at the top of my career has helped me be able to control my environment. You may have some tough years ahead, but be supportive and seek help from teachers and doctors. She is going to have to learn to live with this, and so are you. There is no quick fix, no cure that I know of. To: Soundsensitivity Sent: Sunday, January 1, 2012 7:21 PMSubject: Re: New to Group Firstly, hitting my daughter never would happen. I'm a neophite, so I need specific advise. Does hypnosis work or White noise, Pink noise? But, just leaving the environment is not a real answer. You can't be normal doing that. I don't want to make anyone mad, but that can't be the only answer. You can't all just move into a convent and take a vow of silence. It makes my wife and I terrible sad that she removes herself from the family. I know she sometimes won't go out with us because she's having a problem with sounds. Recently, I've been sick and she was about to blow her stack because of all the coughing, sniffing and clearing of throats.Please, any strategies or devices or therapy ideas> > > > > >> > > > > > Hi! I'm Lori and I'm delighted to have found this group, especially since I just discovered that misophonia is a real medical condition and not that I'm just being "too sensitive" about certain sounds. I always wondered why the sound of someone popping or chomping their gum, cracking their joints, whistling or jingling coins in their pants pockets always made me want to go postal. It's good to know that I'm not alone in this affliction and it will be nice to communicate with people who understand.> > > > > >> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2012 Report Share Posted January 2, 2012 If I thought you would ever hit your kid, I wouldn't say that. Since you are here on her behalf, it's pretty obvious that you won't. If you are willing to allow her to wear headphones or earbuds then yes, white, pink, brown noise(s) could help her more easily tolerate being exposed to triggers. I suggest you google for free downloads to see if they help her. There are audiologists who can fit her for in-ear " hearing aids " which are actually noise generators. (Dr. J created a list of folks she has screened.) We are all in this together here, looking for answers, trying to get medical doctors involved and trying to get research started any way we can. I personally haven't heard anything that " works " and I have been working on this for years. We are getting publicity and I am staying in the solution, however my health insurance is limited and I am paying off last year's bills (a bad lead but now I can rule it out). If I were you, I'd be extremely wary of anyone who promises a solution. There isn't one. This disorder limits your daughter's future only to the extent that you allow it to. Understand that she has a hard-wired adverse physical reflex to certain sounds. If you understand her she will be much happier and better adjusted. If she can come to you for comfort she'll be much better adjusted. If you complain that she should just get over it and do not allow her to protect herself within the privacy of her family, her life outside will be worse. > > > > > > > > > > > > > > Hi! I'm Lori and I'm delighted to have found this group, especially since I just discovered that misophonia is a real medical condition and not that I'm just being " too sensitive " about certain sounds. I always wondered why the sound of someone popping or chomping their gum, cracking their joints, whistling or jingling coins in their pants pockets always made me want to go postal. It's good to know that I'm not alone in this affliction and it will be nice to communicate with people who understand. > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2012 Report Share Posted January 2, 2012 If I thought you would ever hit your kid, I wouldn't say that. Since you are here on her behalf, it's pretty obvious that you won't. If you are willing to allow her to wear headphones or earbuds then yes, white, pink, brown noise(s) could help her more easily tolerate being exposed to triggers. I suggest you google for free downloads to see if they help her. There are audiologists who can fit her for in-ear " hearing aids " which are actually noise generators. (Dr. J created a list of folks she has screened.) We are all in this together here, looking for answers, trying to get medical doctors involved and trying to get research started any way we can. I personally haven't heard anything that " works " and I have been working on this for years. We are getting publicity and I am staying in the solution, however my health insurance is limited and I am paying off last year's bills (a bad lead but now I can rule it out). If I were you, I'd be extremely wary of anyone who promises a solution. There isn't one. This disorder limits your daughter's future only to the extent that you allow it to. Understand that she has a hard-wired adverse physical reflex to certain sounds. If you understand her she will be much happier and better adjusted. If she can come to you for comfort she'll be much better adjusted. If you complain that she should just get over it and do not allow her to protect herself within the privacy of her family, her life outside will be worse. > > > > > > > > > > > > > > Hi! I'm Lori and I'm delighted to have found this group, especially since I just discovered that misophonia is a real medical condition and not that I'm just being " too sensitive " about certain sounds. I always wondered why the sound of someone popping or chomping their gum, cracking their joints, whistling or jingling coins in their pants pockets always made me want to go postal. It's good to know that I'm not alone in this affliction and it will be nice to communicate with people who understand. > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2012 Report Share Posted January 3, 2012 Hi , Yes they are. But lately I have seen talk about ear buds that go in the ear (supposedly they come with different sized attachments for different sized ears) and some that are even wireless. This means that you could have an Ipod with colored noise and in-ear wireless buds. I don't know the cost but I'll bet it's a lot less than a couple of $thou: however it's not something individually created or molded for you so fit and comfort might be an issue. From what I've read, the technology is still pretty new and the " wirelessness " only goes as far as an armband. Is there anything in the archives on the Misophonia site? > > > > > > > > > > > > > > > > Hi! I'm Lori and I'm delighted to have found this group, especially > >since I just discovered that misophonia is a real medical condition and not that > >I'm just being " too sensitive " about certain sounds. I always wondered why the > >sound of someone popping or chomping their gum, cracking their joints, whistling > >or jingling coins in their pants pockets always made me want to go postal. It's > >good to know that I'm not alone in this affliction and it will be nice to > >communicate with people who understand. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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