Re: neurology

[Guest guest]

Prn,

That is very interesting that your onset was after 50. I wonder if there are more people out that with late onset that are wondering what the heck is going on. For myself, I started very young, but feel a bit of the "odd man out" because some times sounds can be muddled. But the misophonia I deal with every day. The muddled sounds are "now and then."

To: Soundsensitivity Sent: Thu, December 15, 2011 9:11:36 PMSubject: neurology

 Hi ,

I see my neurologist next month. I have "drop attacks". I can't wait to ask him about this. I'll let you know what his input is.

The misophonia emails reflect some similar problems I have with my latex allergy groups.Back in the late 90's few people knew about it, the group I joined then is the reason I am alive today.

I was able to read, learn, ask questions and find the experts I needed to fight to live with an allergy to all natural (and synthetic) rubber latex. It's everywhere and almost impossible to avoid. But thanks to others sharing their life experiences I was able to create a safe living zone for myself.

Now, knowing my sound sensitivities have a name, I am relived to find this group.

I appreciate all points of view as it helps me sort through what I am experiencing. Mine started at the age of 52 after an allergic reaction to a medication. So I don't fit any of the usual symptomatic onset.

Thanks for sharing.

prn

An example of moving in the right direction is probably to see someone who specializes in Neurology.

To: Soundsensitivity Sent: Thursday, December 15, 2011 5:59 PMSubject: Re: Question for - PLEASE read!

hi maikaefer, yes aage moeller is the neuroscientist. i located his email address in texas and fired him an email to see if he could help all of the people(including my son) who suffer with misophonia daily. he was nice enough to answer my questions promptly and courteously,mentioning he had written a book on tinnitus which included a section on misophonia. he was consulted in joyce cohens article in the nytimes. i asked him if an audiologist or a psychologist would be more benefit and he said the psych dr. he also promised he would bring up misophonia and need for research at the next int'l conference he is attending. he is extremely intelligent and told me he will try to help. > > > > >> > > > > I do not have misophonia, but sometimes if I wake up with a blocked ear I > > > >find the radio too loud (audiosensitivity, due to endolymphatic hydrops). I am > > > >pretty sure I know the cause of audiosensitivity, but even if I am wrong, it > > > >must be far easier to find out the cause of AS than MA, and they are clearly > > > >related in some way. I think the experts agree there is a much raised incidence > > > >of ear problems in MA.> > > > > The reason I am on this site and not on the more ENT/medical/hyperacusis > > > >sites is that I think it is vitally important for everyone, especially someone > > > >like myself with unorthodox views, to avoid the "Filter Bubble" or Echo Chamber > > > >effect. We all, patients and

doctors need constant exposure to uncomfortable > > > >ideas. So the quickest way to get me off this site is to start agreeing with my > > > >theories, as I will then think that at long last they are being taken seriously > > > >and my experimental AS results will be checked, so that I can then move on to > > > >some other topic. > > > >> > > > > You say I am misdiagnosing you, yet you admit to having some of the problems > > > >on my list below (which ones?), any one of which flags up the ear. It makes no > > > >difference what the cause of any ear problem is, and loudness perception in the > > > >cochlea changes with age.> > > > > Audiosensitivity involves aversion to loud sounds, but all sound are not > > > >equal. It is always worse for sharp high-pitch sounds.>

> > > > So if you are interested in trying to work out the cause of MA, and in seeing > > > >things from a different angle, you should certainly stay on this site. > > > >Misophonics are going to have to sort this out by themselves, as doctors are > > > >years behind the curve. > > > >>

[Guest guest]

Prn, would you mind sharing what particular sounds you are sensitive to and what your reactions to them are? I apologize if you already said and I don't remember. Thanks. To: Soundsensitivity Sent: Thursday, December 15, 2011 9:46 PM Subject: Re: neurology

Prn,

That is very interesting that your onset was after 50. I wonder if there are more people out that with late onset that are wondering what the heck is going on. For myself, I started very young, but feel a bit of the "odd man out" because some times sounds can be muddled. But the misophonia I deal with every day. The muddled sounds are "now and then."

To: Soundsensitivity Sent: Thu, December 15, 2011 9:11:36 PMSubject: neurology

 Hi ,

I see my neurologist next month. I have "drop attacks". I can't wait to ask him about this. I'll let you know what his input is.

The misophonia emails reflect some similar problems I have with my latex allergy groups.Back in the late 90's few people knew about it, the group I joined then is the reason I am alive today.

I was able to read, learn, ask questions and find the experts I needed to fight to live with an allergy to all natural (and synthetic) rubber latex. It's everywhere and almost impossible to avoid. But thanks to others sharing their life experiences I was able to create a safe living zone for myself.

Now, knowing my sound sensitivities have a name, I am relived to find this group.

I appreciate all points of view as it helps me sort through what I am experiencing. Mine started at the age of 52 after an allergic reaction to a medication. So I don't fit any of the usual symptomatic onset.

Thanks for sharing.

prn

An example of moving in the right direction is probably to see someone who specializes in Neurology.

To: Soundsensitivity Sent: Thursday, December 15, 2011 5:59 PMSubject: Re: Question for - PLEASE read!

hi maikaefer, yes aage moeller is the neuroscientist. i located his email address in texas and fired him an email to see if he could help all of the people(including my son) who suffer with misophonia daily. he was nice enough to answer my questions promptly and courteously,mentioning he had written a book on tinnitus which included a section on misophonia. he was consulted in joyce cohens article in the nytimes. i asked him if an audiologist or a psychologist would be more benefit and he said the psych dr. he also promised he would bring up misophonia and need for research at the next int'l conference he is attending. he is extremely intelligent and told me he will try to help. > > > > >> > > > > I do not have misophonia, but sometimes if I wake up with a blocked ear I > > > >find the radio too loud (audiosensitivity, due to endolymphatic hydrops). I am > > > >pretty sure I know the cause of audiosensitivity, but even if I am wrong, it > > > >must be far easier to find out the cause of AS than MA, and they are clearly > > > >related in some way. I think the experts agree there is a much raised incidence > > > >of ear problems in MA.> > > > > The reason I am on this site and not on the more ENT/medical/hyperacusis > > > >sites is that I think it is vitally important for everyone, especially someone > > > >like myself with unorthodox views, to avoid the "Filter Bubble" or Echo Chamber > > > >effect. We all, patients and

doctors need constant exposure to uncomfortable > > > >ideas. So the quickest way to get me off this site is to start agreeing with my > > > >theories, as I will then think that at long last they are being taken seriously > > > >and my experimental AS results will be checked, so that I can then move on to > > > >some other topic. > > > >> > > > > You say I am misdiagnosing you, yet you admit to having some of the problems > > > >on my list below (which ones?), any one of which flags up the ear. It makes no > > > >difference what the cause of any ear problem is, and loudness perception in the > > > >cochlea changes with age.> > > > > Audiosensitivity involves aversion to loud sounds, but all sound are not > > > >equal. It is always worse for sharp high-pitch sounds.>

> > > > So if you are interested in trying to work out the cause of MA, and in seeing > > > >things from a different angle, you should certainly stay on this site. > > > >Misophonics are going to have to sort this out by themselves, as doctors are > > > >years behind the curve. .

[Guest guest]

Prn, would you mind sharing what particular sounds you are sensitive to and what your reactions to them are? I apologize if you already said and I don't remember. Thanks. To: Soundsensitivity Sent: Thursday, December 15, 2011 9:46 PM Subject: Re: neurology

Prn,

That is very interesting that your onset was after 50. I wonder if there are more people out that with late onset that are wondering what the heck is going on. For myself, I started very young, but feel a bit of the "odd man out" because some times sounds can be muddled. But the misophonia I deal with every day. The muddled sounds are "now and then."

To: Soundsensitivity Sent: Thu, December 15, 2011 9:11:36 PMSubject: neurology

 Hi ,

I see my neurologist next month. I have "drop attacks". I can't wait to ask him about this. I'll let you know what his input is.

The misophonia emails reflect some similar problems I have with my latex allergy groups.Back in the late 90's few people knew about it, the group I joined then is the reason I am alive today.

I was able to read, learn, ask questions and find the experts I needed to fight to live with an allergy to all natural (and synthetic) rubber latex. It's everywhere and almost impossible to avoid. But thanks to others sharing their life experiences I was able to create a safe living zone for myself.

Now, knowing my sound sensitivities have a name, I am relived to find this group.

I appreciate all points of view as it helps me sort through what I am experiencing. Mine started at the age of 52 after an allergic reaction to a medication. So I don't fit any of the usual symptomatic onset.

Thanks for sharing.

prn

An example of moving in the right direction is probably to see someone who specializes in Neurology.

To: Soundsensitivity Sent: Thursday, December 15, 2011 5:59 PMSubject: Re: Question for - PLEASE read!

hi maikaefer, yes aage moeller is the neuroscientist. i located his email address in texas and fired him an email to see if he could help all of the people(including my son) who suffer with misophonia daily. he was nice enough to answer my questions promptly and courteously,mentioning he had written a book on tinnitus which included a section on misophonia. he was consulted in joyce cohens article in the nytimes. i asked him if an audiologist or a psychologist would be more benefit and he said the psych dr. he also promised he would bring up misophonia and need for research at the next int'l conference he is attending. he is extremely intelligent and told me he will try to help. > > > > >> > > > > I do not have misophonia, but sometimes if I wake up with a blocked ear I > > > >find the radio too loud (audiosensitivity, due to endolymphatic hydrops). I am > > > >pretty sure I know the cause of audiosensitivity, but even if I am wrong, it > > > >must be far easier to find out the cause of AS than MA, and they are clearly > > > >related in some way. I think the experts agree there is a much raised incidence > > > >of ear problems in MA.> > > > > The reason I am on this site and not on the more ENT/medical/hyperacusis > > > >sites is that I think it is vitally important for everyone, especially someone > > > >like myself with unorthodox views, to avoid the "Filter Bubble" or Echo Chamber > > > >effect. We all, patients and

doctors need constant exposure to uncomfortable > > > >ideas. So the quickest way to get me off this site is to start agreeing with my > > > >theories, as I will then think that at long last they are being taken seriously > > > >and my experimental AS results will be checked, so that I can then move on to > > > >some other topic. > > > >> > > > > You say I am misdiagnosing you, yet you admit to having some of the problems > > > >on my list below (which ones?), any one of which flags up the ear. It makes no > > > >difference what the cause of any ear problem is, and loudness perception in the > > > >cochlea changes with age.> > > > > Audiosensitivity involves aversion to loud sounds, but all sound are not > > > >equal. It is always worse for sharp high-pitch sounds.>

> > > > So if you are interested in trying to work out the cause of MA, and in seeing > > > >things from a different angle, you should certainly stay on this site. > > > >Misophonics are going to have to sort this out by themselves, as doctors are > > > >years behind the curve. .

[Guest guest]



Hi ,

That is why I said I don't fit the picture. I am looking forward to input from my neurologist next month. I am sorry you have had to deal with this so long.

Try to enjoy the holidays as much as possible.

prn

Re: neurology

Prn,

That is very interesting that your onset was after 50. I wonder if there are more people out that with late onset that are wondering what the heck is going on. For myself, I started very young, but feel a bit of the "odd man out" because some times sounds can be muddled. But the misophonia I deal with every day. The muddled sounds are "now and then."

[Guest guest]



HI Mike,

It's hard to list them but ....finger nail tapping,slurping, water bottle crushing and twisting are a few that come to mind at this early hour. Oh,the flipping of magazine pages is a big trigger too.I am trying to compile a list for next months visit. My reactions can be mild, jaw clenching and leaving the area, to full blow rage if the sound persists and I cannot get away.

In writing them down I become more aware of that sound and then am irritated more. I will see what I find over the weekend and expand since there are at least 15 triggers for me.

After joining and reading others experiences I am thankful for the mild form I have and the few years that I have had it.

I use distraction to cope, among other things. The distraction technique is helpful for my tinnitus, onset same time as my sound sensitivity.

Thanks for asking.

prn

Re: neurology

Prn, would you mind sharing what particular sounds you are sensitive to and what your reactions to them are? I apologize if you already said and I don't remember. Thanks.

[Guest guest]



HI Mike,

It's hard to list them but ....finger nail tapping,slurping, water bottle crushing and twisting are a few that come to mind at this early hour. Oh,the flipping of magazine pages is a big trigger too.I am trying to compile a list for next months visit. My reactions can be mild, jaw clenching and leaving the area, to full blow rage if the sound persists and I cannot get away.

In writing them down I become more aware of that sound and then am irritated more. I will see what I find over the weekend and expand since there are at least 15 triggers for me.

After joining and reading others experiences I am thankful for the mild form I have and the few years that I have had it.

I use distraction to cope, among other things. The distraction technique is helpful for my tinnitus, onset same time as my sound sensitivity.

Thanks for asking.

prn

Re: neurology

Prn, would you mind sharing what particular sounds you are sensitive to and what your reactions to them are? I apologize if you already said and I don't remember. Thanks.

[Guest guest]



HI Mike,

It's hard to list them but ....finger nail tapping,slurping, water bottle crushing and twisting are a few that come to mind at this early hour. Oh,the flipping of magazine pages is a big trigger too.I am trying to compile a list for next months visit. My reactions can be mild, jaw clenching and leaving the area, to full blow rage if the sound persists and I cannot get away.

In writing them down I become more aware of that sound and then am irritated more. I will see what I find over the weekend and expand since there are at least 15 triggers for me.

After joining and reading others experiences I am thankful for the mild form I have and the few years that I have had it.

I use distraction to cope, among other things. The distraction technique is helpful for my tinnitus, onset same time as my sound sensitivity.

Thanks for asking.

prn

Re: neurology

Prn, would you mind sharing what particular sounds you are sensitive to and what your reactions to them are? I apologize if you already said and I don't remember. Thanks.

[Guest guest]

prn, thank you for replying. I am actually not Mike, but a female, Maikaefer.I am interested that your sound sensitivity started with tinnitus, would you say the external triggers you developed occurred simultaneously with the internal auditory perceptions of tinnitus or did they develop after the onset of the tinnitus? I ask because I have read, or at least I think I have read that tinnitus might affect the attention networks in the brain resulting in increased distractiblity, (I could be wrong here or this maybe something yet to be proven) But I wonder if any increased distractibility due to the onset of your tinnitus might have contributed to the start of your other sound

sensitivity that you have described below. Just curious, not making any kind of hypothesis or diagnosis here to be clear. ( I might well be corrected about the tinnitus info. anyhow)Also would you mind mentioning the drug that started it all. ThankxMaikaefer To: Soundsensitivity Sent: Friday, December 16, 2011 10:18 AM Subject: Re: neurology



HI Mike,

It's hard to list them but ....finger nail tapping,slurping, water bottle crushing and twisting are a few that come to mind at this early hour. Oh,the flipping of magazine pages is a big trigger too.I am trying to compile a list for next months visit. My reactions can be mild, jaw clenching and leaving the area, to full blow rage if the sound persists and I cannot get away.

In writing them down I become more aware of that sound and then am irritated more. I will see what I find over the weekend and expand since there are at least 15 triggers for me.

After joining and reading others experiences I am thankful for the mild form I have and the few years that I have had it.

I use distraction to cope, among other things. The distraction technique is helpful for my tinnitus, onset same time as my sound sensitivity.

Thanks for asking.

prn

Re: neurology

Prn, would you mind sharing what particular sounds you are sensitive to and what your reactions to them are? I apologize if you already said and I don't remember. Thanks.

[Guest guest]

prn, thank you for replying. I am actually not Mike, but a female, Maikaefer.I am interested that your sound sensitivity started with tinnitus, would you say the external triggers you developed occurred simultaneously with the internal auditory perceptions of tinnitus or did they develop after the onset of the tinnitus? I ask because I have read, or at least I think I have read that tinnitus might affect the attention networks in the brain resulting in increased distractiblity, (I could be wrong here or this maybe something yet to be proven) But I wonder if any increased distractibility due to the onset of your tinnitus might have contributed to the start of your other sound

sensitivity that you have described below. Just curious, not making any kind of hypothesis or diagnosis here to be clear. ( I might well be corrected about the tinnitus info. anyhow)Also would you mind mentioning the drug that started it all. ThankxMaikaefer To: Soundsensitivity Sent: Friday, December 16, 2011 10:18 AM Subject: Re: neurology



HI Mike,

It's hard to list them but ....finger nail tapping,slurping, water bottle crushing and twisting are a few that come to mind at this early hour. Oh,the flipping of magazine pages is a big trigger too.I am trying to compile a list for next months visit. My reactions can be mild, jaw clenching and leaving the area, to full blow rage if the sound persists and I cannot get away.

In writing them down I become more aware of that sound and then am irritated more. I will see what I find over the weekend and expand since there are at least 15 triggers for me.

After joining and reading others experiences I am thankful for the mild form I have and the few years that I have had it.

I use distraction to cope, among other things. The distraction technique is helpful for my tinnitus, onset same time as my sound sensitivity.

Thanks for asking.

prn

Re: neurology

Prn, would you mind sharing what particular sounds you are sensitive to and what your reactions to them are? I apologize if you already said and I don't remember. Thanks.

[Guest guest]

prn, thank you for replying. I am actually not Mike, but a female, Maikaefer.I am interested that your sound sensitivity started with tinnitus, would you say the external triggers you developed occurred simultaneously with the internal auditory perceptions of tinnitus or did they develop after the onset of the tinnitus? I ask because I have read, or at least I think I have read that tinnitus might affect the attention networks in the brain resulting in increased distractiblity, (I could be wrong here or this maybe something yet to be proven) But I wonder if any increased distractibility due to the onset of your tinnitus might have contributed to the start of your other sound

sensitivity that you have described below. Just curious, not making any kind of hypothesis or diagnosis here to be clear. ( I might well be corrected about the tinnitus info. anyhow)Also would you mind mentioning the drug that started it all. ThankxMaikaefer To: Soundsensitivity Sent: Friday, December 16, 2011 10:18 AM Subject: Re: neurology



HI Mike,

It's hard to list them but ....finger nail tapping,slurping, water bottle crushing and twisting are a few that come to mind at this early hour. Oh,the flipping of magazine pages is a big trigger too.I am trying to compile a list for next months visit. My reactions can be mild, jaw clenching and leaving the area, to full blow rage if the sound persists and I cannot get away.

In writing them down I become more aware of that sound and then am irritated more. I will see what I find over the weekend and expand since there are at least 15 triggers for me.

After joining and reading others experiences I am thankful for the mild form I have and the few years that I have had it.

I use distraction to cope, among other things. The distraction technique is helpful for my tinnitus, onset same time as my sound sensitivity.

Thanks for asking.

prn

Re: neurology

Prn, would you mind sharing what particular sounds you are sensitive to and what your reactions to them are? I apologize if you already said and I don't remember. Thanks.

[Guest guest]



Hi Maikaefer,

Sorry about the name mistake, I am usually more attentive...names are very important to this former nurse.

My triggers started after the onset of the tinnitus.

When I look back I would say about 8 months later.

They have sky rocketed this past year.

I forgot to add the opening of any bags, chips, candy, etc. will make me go ballistic. If some one tries to open it slowly, to avoid the noise, it makes it even worse. Like a Band-Aid, I believe in one loud rip to accomplish the job.

The medicine I reacted to was Avelox, for a severe ear infection.

After a day I was vomiting and during a violent session is when the ear ringing began. I thought it was temporary and only sought help after it persisted to the point of madness.

My hearing failed during that time period and returned after 6 months, to hyper acute hearing. Hmmm, that may be when the sound sensitivity began.

My immune system was compromised due to my over whelming latex allergy and I have been busy rebuilding it over the last few years.

Any hypothesis are welcome. I am relieved to know that I can talk to the neurologist about this next month.

Take care.

prn

Re: neurology

prn, thank you for replying. I am actually not Mike, but a female, Maikaefer.

I am interested that your sound sensitivity started with tinnitus, would you say the external triggers you developed occurred simultaneously with the internal auditory perceptions of tinnitus or did they develop after the onset of the tinnitus?

I ask because I have read, or at least I think I have read that tinnitus might affect the attention networks in the brain resulting in increased distractiblity, (I could be wrong here or this maybe something yet to be proven)

But I wonder if any increased distractibility due to the onset of your tinnitus might have contributed to the start of your other sound sensitivity that you have described below. Just curious, not making any kind of hypothesis or diagnosis here to be clear. ( I might well be corrected about the tinnitus info. anyhow)

Also would you mind mentioning the drug that started it all. Thankx

Maikaefer

[Guest guest]



Hi Maikaefer,

Sorry about the name mistake, I am usually more attentive...names are very important to this former nurse.

My triggers started after the onset of the tinnitus.

When I look back I would say about 8 months later.

They have sky rocketed this past year.

I forgot to add the opening of any bags, chips, candy, etc. will make me go ballistic. If some one tries to open it slowly, to avoid the noise, it makes it even worse. Like a Band-Aid, I believe in one loud rip to accomplish the job.

The medicine I reacted to was Avelox, for a severe ear infection.

After a day I was vomiting and during a violent session is when the ear ringing began. I thought it was temporary and only sought help after it persisted to the point of madness.

My hearing failed during that time period and returned after 6 months, to hyper acute hearing. Hmmm, that may be when the sound sensitivity began.

My immune system was compromised due to my over whelming latex allergy and I have been busy rebuilding it over the last few years.

Any hypothesis are welcome. I am relieved to know that I can talk to the neurologist about this next month.

Take care.

prn

Re: neurology

prn, thank you for replying. I am actually not Mike, but a female, Maikaefer.

I am interested that your sound sensitivity started with tinnitus, would you say the external triggers you developed occurred simultaneously with the internal auditory perceptions of tinnitus or did they develop after the onset of the tinnitus?

I ask because I have read, or at least I think I have read that tinnitus might affect the attention networks in the brain resulting in increased distractiblity, (I could be wrong here or this maybe something yet to be proven)

But I wonder if any increased distractibility due to the onset of your tinnitus might have contributed to the start of your other sound sensitivity that you have described below. Just curious, not making any kind of hypothesis or diagnosis here to be clear. ( I might well be corrected about the tinnitus info. anyhow)

Also would you mind mentioning the drug that started it all. Thankx

Maikaefer

[Guest guest]



Hi Maikaefer,

Sorry about the name mistake, I am usually more attentive...names are very important to this former nurse.

My triggers started after the onset of the tinnitus.

When I look back I would say about 8 months later.

They have sky rocketed this past year.

I forgot to add the opening of any bags, chips, candy, etc. will make me go ballistic. If some one tries to open it slowly, to avoid the noise, it makes it even worse. Like a Band-Aid, I believe in one loud rip to accomplish the job.

The medicine I reacted to was Avelox, for a severe ear infection.

After a day I was vomiting and during a violent session is when the ear ringing began. I thought it was temporary and only sought help after it persisted to the point of madness.

My hearing failed during that time period and returned after 6 months, to hyper acute hearing. Hmmm, that may be when the sound sensitivity began.

My immune system was compromised due to my over whelming latex allergy and I have been busy rebuilding it over the last few years.

Any hypothesis are welcome. I am relieved to know that I can talk to the neurologist about this next month.

Take care.

prn

Re: neurology

prn, thank you for replying. I am actually not Mike, but a female, Maikaefer.

I am interested that your sound sensitivity started with tinnitus, would you say the external triggers you developed occurred simultaneously with the internal auditory perceptions of tinnitus or did they develop after the onset of the tinnitus?

I ask because I have read, or at least I think I have read that tinnitus might affect the attention networks in the brain resulting in increased distractiblity, (I could be wrong here or this maybe something yet to be proven)

But I wonder if any increased distractibility due to the onset of your tinnitus might have contributed to the start of your other sound sensitivity that you have described below. Just curious, not making any kind of hypothesis or diagnosis here to be clear. ( I might well be corrected about the tinnitus info. anyhow)

Also would you mind mentioning the drug that started it all. Thankx

Maikaefer

[Guest guest]

prn, do you have actual physical pain/discomfort when hearing the sounds listed

below? or do you have an emotional reaction of rage/panic?

I always am skeptical when adults are diagnosed with ear infections. That seems

to me one of those fake diagnoses that they give you when they don't know what

else to say.

It totally sucks when the alleged treatment makes you worse. You have my

sympathies.

>

> Hi Maikaefer,

> Sorry about the name mistake, I am usually more attentive...names are very

important to this former nurse.

> My triggers started after the onset of the tinnitus.

> When I look back I would say about 8 months later.

> They have sky rocketed this past year.

> I forgot to add the opening of any bags, chips, candy, etc. will make me go

ballistic. If some one tries to open it slowly, to avoid the noise, it makes it

even worse. Like a Band-Aid, I believe in one loud rip to accomplish the job.

> The medicine I reacted to was Avelox, for a severe ear infection.

> After a day I was vomiting and during a violent session is when the ear

ringing began. I thought it was temporary and only sought help after it

persisted to the point of madness.

> My hearing failed during that time period and returned after 6 months, to

hyper acute hearing. Hmmm, that may be when the sound sensitivity began.

> My immune system was compromised due to my over whelming latex allergy and I

have been busy rebuilding it over the last few years.

> Any hypothesis are welcome. I am relieved to know that I can talk to the

neurologist about this next month.

> Take care.

> prn

> Re: neurology

>

>

>

>

>

>

> prn, thank you for replying. I am actually not Mike, but a female,

Maikaefer.

>

>

>

> I am interested that your sound sensitivity started with tinnitus, would you

say the external triggers you developed occurred simultaneously with the

internal auditory perceptions of tinnitus or did they develop after the onset of

the tinnitus?

>

>

>

> I ask because I have read, or at least I think I have read that tinnitus

might affect the attention networks in the brain resulting in increased

distractiblity, (I could be wrong here or this maybe something yet to be proven)

>

>

>

> But I wonder if any increased distractibility due to the onset of your

tinnitus might have contributed to the start of your other sound sensitivity

that you have described below. Just curious, not making any kind of hypothesis

or diagnosis here to be clear. ( I might well be corrected about the tinnitus

info. anyhow)

>

>

> Also would you mind mentioning the drug that started it all. Thankx

> Maikaefer

>

[Guest guest]

Hi Peach,

Good question about pain. I will cringe at times with some triggers, but is it pain? I will pay attention and see if there is pain associated with any of them.

Now more come to mind....the spoon clinking in a glass, my husband's blender, on high, when he is making his daily smoothie can send me in to a rage. . .hmm,it is painful at times. I close my office door and turn on soothing music when it is smoothie time.

I know all too well about treatments making some people worse, but not trying it meant I may have passed up a chance to return to my beloved profession. I have finally come to accept the fact that I will never be a nurse again. I appreciate your sympathy but I feel I am one of the lucky ones here compared to so many who live in isolation with this. I just see it as another challenge to face, learn how to manage it and continue to enjoy my life. My latex allergy keeps me isolated enough but now I realize how it has protected me from some of the experiences I have read here.

prn

Re: neurology

prn, do you have actual physical pain/discomfort when hearing the sounds listed below? or do you have an emotional reaction of rage/panic?I always am skeptical when adults are diagnosed with ear infections. That seems to me one of those fake diagnoses that they give you when they don't know what else to say.It totally sucks when the alleged treatment makes you worse. You have my sympathies.

[Guest guest]

Hi Peach,

Good question about pain. I will cringe at times with some triggers, but is it pain? I will pay attention and see if there is pain associated with any of them.

Now more come to mind....the spoon clinking in a glass, my husband's blender, on high, when he is making his daily smoothie can send me in to a rage. . .hmm,it is painful at times. I close my office door and turn on soothing music when it is smoothie time.

I know all too well about treatments making some people worse, but not trying it meant I may have passed up a chance to return to my beloved profession. I have finally come to accept the fact that I will never be a nurse again. I appreciate your sympathy but I feel I am one of the lucky ones here compared to so many who live in isolation with this. I just see it as another challenge to face, learn how to manage it and continue to enjoy my life. My latex allergy keeps me isolated enough but now I realize how it has protected me from some of the experiences I have read here.

prn

Re: neurology

prn, do you have actual physical pain/discomfort when hearing the sounds listed below? or do you have an emotional reaction of rage/panic?I always am skeptical when adults are diagnosed with ear infections. That seems to me one of those fake diagnoses that they give you when they don't know what else to say.It totally sucks when the alleged treatment makes you worse. You have my sympathies.

[Guest guest]

Hi Peach,

Good question about pain. I will cringe at times with some triggers, but is it pain? I will pay attention and see if there is pain associated with any of them.

Now more come to mind....the spoon clinking in a glass, my husband's blender, on high, when he is making his daily smoothie can send me in to a rage. . .hmm,it is painful at times. I close my office door and turn on soothing music when it is smoothie time.

I know all too well about treatments making some people worse, but not trying it meant I may have passed up a chance to return to my beloved profession. I have finally come to accept the fact that I will never be a nurse again. I appreciate your sympathy but I feel I am one of the lucky ones here compared to so many who live in isolation with this. I just see it as another challenge to face, learn how to manage it and continue to enjoy my life. My latex allergy keeps me isolated enough but now I realize how it has protected me from some of the experiences I have read here.

prn

Re: neurology

prn, do you have actual physical pain/discomfort when hearing the sounds listed below? or do you have an emotional reaction of rage/panic?I always am skeptical when adults are diagnosed with ear infections. That seems to me one of those fake diagnoses that they give you when they don't know what else to say.It totally sucks when the alleged treatment makes you worse. You have my sympathies.

[Guest guest]

Thank you, Prn! You, as well! )

To: Soundsensitivity Sent: Fri, December 16, 2011 10:10:09 AMSubject: Re: neurology

 Hi ,

That is why I said I don't fit the picture. I am looking forward to input from my neurologist next month. I am sorry you have had to deal with this so long.

Try to enjoy the holidays as much as possible.

prn

Re: neurology

Prn,

That is very interesting that your onset was after 50. I wonder if there are more people out that with late onset that are wondering what the heck is going on. For myself, I started very young, but feel a bit of the "odd man out" because some times sounds can be muddled. But the misophonia I deal with every day. The muddled sounds are "now and then."

[Guest guest]

Thank you, Prn! You, as well! )

To: Soundsensitivity Sent: Fri, December 16, 2011 10:10:09 AMSubject: Re: neurology

 Hi ,

That is why I said I don't fit the picture. I am looking forward to input from my neurologist next month. I am sorry you have had to deal with this so long.

Try to enjoy the holidays as much as possible.

prn

Re: neurology

Prn,

That is very interesting that your onset was after 50. I wonder if there are more people out that with late onset that are wondering what the heck is going on. For myself, I started very young, but feel a bit of the "odd man out" because some times sounds can be muddled. But the misophonia I deal with every day. The muddled sounds are "now and then."

[Guest guest]

I can totally relate to the opening of bags. Not only the opening, but the crinkeling of them. I have a coworker who eats a bag of chips at 10:30am on the dot, and i shake from hearing the sounds due to the rage and anxiety that builds. To: Soundsensitivity Sent: Friday, December 16, 2011 2:41 PM Subject: Re: neurology

prn, do you have actual physical pain/discomfort when hearing the sounds listed below? or do you have an emotional reaction of rage/panic?

I always am skeptical when adults are diagnosed with ear infections. That seems to me one of those fake diagnoses that they give you when they don't know what else to say.

It totally sucks when the alleged treatment makes you worse. You have my sympathies.

>

> Hi Maikaefer,

> Sorry about the name mistake, I am usually more attentive...names are very important to this former nurse.

> My triggers started after the onset of the tinnitus.

> When I look back I would say about 8 months later.

> They have sky rocketed this past year.

> I forgot to add the opening of any bags, chips, candy, etc. will make me go ballistic. If some one tries to open it slowly, to avoid the noise, it makes it even worse. Like a Band-Aid, I believe in one loud rip to accomplish the job.

> The medicine I reacted to was Avelox, for a severe ear infection.

> After a day I was vomiting and during a violent session is when the ear ringing began. I thought it was temporary and only sought help after it persisted to the point of madness.

> My hearing failed during that time period and returned after 6 months, to hyper acute hearing. Hmmm, that may be when the sound sensitivity began.

> My immune system was compromised due to my over whelming latex allergy and I have been busy rebuilding it over the last few years.

> Any hypothesis are welcome. I am relieved to know that I can talk to the neurologist about this next month.

> Take care.

> prn

> Re: neurology

>

>

>

>

>

>

> prn, thank you for replying. I am actually not Mike, but a female, Maikaefer.

>

>

>

> I am interested that your sound sensitivity started with tinnitus, would you say the external triggers you developed occurred simultaneously with the internal auditory perceptions of tinnitus or did they develop after the onset of the tinnitus?

>

>

>

> I ask because I have read, or at least I think I have read that tinnitus might affect the attention networks in the brain resulting in increased distractiblity, (I could be wrong here or this maybe something yet to be proven)

>

>

>

> But I wonder if any increased distractibility due to the onset of your tinnitus might have contributed to the start of your other sound sensitivity that you have described below. Just curious, not making any kind of hypothesis or diagnosis here to be clear. ( I might well be corrected about the tinnitus info. anyhow)

>

>

> Also would you mind mentioning the drug that started it all. Thankx

> Maikaefer

>

[Guest guest]

I can totally relate to the opening of bags. Not only the opening, but the crinkeling of them. I have a coworker who eats a bag of chips at 10:30am on the dot, and i shake from hearing the sounds due to the rage and anxiety that builds. To: Soundsensitivity Sent: Friday, December 16, 2011 2:41 PM Subject: Re: neurology

prn, do you have actual physical pain/discomfort when hearing the sounds listed below? or do you have an emotional reaction of rage/panic?

I always am skeptical when adults are diagnosed with ear infections. That seems to me one of those fake diagnoses that they give you when they don't know what else to say.

It totally sucks when the alleged treatment makes you worse. You have my sympathies.

>

> Hi Maikaefer,

> Sorry about the name mistake, I am usually more attentive...names are very important to this former nurse.

> My triggers started after the onset of the tinnitus.

> When I look back I would say about 8 months later.

> They have sky rocketed this past year.

> I forgot to add the opening of any bags, chips, candy, etc. will make me go ballistic. If some one tries to open it slowly, to avoid the noise, it makes it even worse. Like a Band-Aid, I believe in one loud rip to accomplish the job.

> The medicine I reacted to was Avelox, for a severe ear infection.

> After a day I was vomiting and during a violent session is when the ear ringing began. I thought it was temporary and only sought help after it persisted to the point of madness.

> My hearing failed during that time period and returned after 6 months, to hyper acute hearing. Hmmm, that may be when the sound sensitivity began.

> My immune system was compromised due to my over whelming latex allergy and I have been busy rebuilding it over the last few years.

> Any hypothesis are welcome. I am relieved to know that I can talk to the neurologist about this next month.

> Take care.

> prn

> Re: neurology

>

>

>

>

>

>

> prn, thank you for replying. I am actually not Mike, but a female, Maikaefer.

>

>

>

> I am interested that your sound sensitivity started with tinnitus, would you say the external triggers you developed occurred simultaneously with the internal auditory perceptions of tinnitus or did they develop after the onset of the tinnitus?

>

>

>

> I ask because I have read, or at least I think I have read that tinnitus might affect the attention networks in the brain resulting in increased distractiblity, (I could be wrong here or this maybe something yet to be proven)

>

>

>

> But I wonder if any increased distractibility due to the onset of your tinnitus might have contributed to the start of your other sound sensitivity that you have described below. Just curious, not making any kind of hypothesis or diagnosis here to be clear. ( I might well be corrected about the tinnitus info. anyhow)

>

>

> Also would you mind mentioning the drug that started it all. Thankx

> Maikaefer

>

[Guest guest]

Hi prn, thanks for your response. My misophonia suddenly struck early in life at the dinner table, no initiating event that I recall. I think it possible that my living with a non-relenting sound sensitivity over the years may have effected the attention circuitry in by brain more and more, hence the growing list of triggers unrelated to oral or nasal sounds. Or maybe I am just generally sound sensitive and attention span gets worse as we age anyway. I am sensitive in oh so many other ways as well but only the sound sensitivity is getting worse.Please keep us posted on your visit to the neurologist, I would love to hear more about it. Sorry about the latex allergy, must just be impossible to work as a nurse these days with an

allergy to latex gloves.Maikaefer To: Soundsensitivity Sent: Friday, December 16, 2011 1:14 PM Subject: Re: neurology



Hi Maikaefer,

Sorry about the name mistake, I am usually more attentive...names are very important to this former nurse.

My triggers started after the onset of the tinnitus.

When I look back I would say about 8 months later.

They have sky rocketed this past year.

I forgot to add the opening of any bags, chips, candy, etc. will make me go ballistic. If some one tries to open it slowly, to avoid the noise, it makes it even worse. Like a Band-Aid, I believe in one loud rip to accomplish the job.

The medicine I reacted to was Avelox, for a severe ear infection.

After a day I was vomiting and during a violent session is when the ear ringing began. I thought it was temporary and only sought help after it persisted to the point of madness.

My hearing failed during that time period and returned after 6 months, to hyper acute hearing. Hmmm, that may be when the sound sensitivity began.

My immune system was compromised due to my over whelming latex allergy and I have been busy rebuilding it over the last few years.

Any hypothesis are welcome. I am relieved to know that I can talk to the neurologist about this next month.

Take care.

prn

Re: neurology

prn, thank you for replying. I am actually not Mike, but a female, Maikaefer.

I am interested that your sound sensitivity started with tinnitus, would you say the external triggers you developed occurred simultaneously with the internal auditory perceptions of tinnitus or did they develop after the onset of the tinnitus?

I ask because I have read, or at least I think I have read that tinnitus might affect the attention networks in the brain resulting in increased distractiblity, (I could be wrong here or this maybe something yet to be proven)

But I wonder if any increased distractibility due to the onset of your tinnitus might have contributed to the start of your other sound sensitivity that you have described below. Just curious, not making any kind of hypothesis or diagnosis here to be clear. ( I might well be corrected about the tinnitus info. anyhow)

Also would you mind mentioning the drug that started it all. Thankx

Maikaefer

[Guest guest]

Just FYI, since latex allergies are not uncommon, I believe most hospitals also

carry vinyl gloves. You just need to make sure to tell them in advance.

>

> Hi prn, thanks for your response.

>

>  My misophonia suddenly struck early in life at the dinner table, no

initiating event that I recall. I think it possible that my living with a

non-relenting sound sensitivity over the years may have effected the attention

circuitry in by brain more and more, hence the growing list of triggers

unrelated to oral or nasal sounds. Or maybe I am just generally sound sensitive

and attention span gets worse as we age anyway. I am sensitive in oh so many

other ways as well but only the sound sensitivity is getting worse.

>

> Please keep us posted on your visit to the neurologist, I would love to hear

more about it.

>

> Sorry about the latex allergy, must just be impossible to work as a nurse

these days with an allergy to latex gloves.

> Maikaefer

>

>

>

>

> ________________________________

>

> To: Soundsensitivity

> Sent: Friday, December 16, 2011 1:14 PM

> Subject: Re: neurology

>

>

>  

> 

> Hi Maikaefer,

> Sorry about the name mistake,

> I am usually more attentive...names are very important to this former

> nurse.

> My triggers started after the

> onset of the tinnitus.

> When I look back I would say

> about 8 months later.

> They have sky rocketed this

> past year.

> I forgot to add the opening

> of any bags, chips, candy, etc. will make me go ballistic. If some one tries

to

> open it slowly, to avoid the noise, it makes it even worse. Like a Band-Aid, I

> believe in one loud rip to accomplish the job.

> The medicine I reacted to was

> Avelox, for a severe ear infection.

> After a day I was vomiting

> and during a violent session is when the ear ringing began. I thought it was

> temporary and only sought help after it persisted to the point of

> madness.

> My hearing failed during that

> time period and returned after 6 months, to hyper acute hearing. Hmmm, that

may

> be when the sound sensitivity began.

> My immune system was

> compromised due to my over whelming latex allergy and I have been busy

> rebuilding it over the last few years.

> Any hypothesis are welcome. I

> am relieved to know that I can talk to the neurologist about this next

> month.

> Take care.

> prn

> Re: neurology

> >

> > 

> >

> >

> >prn, thank you for replying. I am actually not Mike, but a female,

Maikaefer.

> >

> >

> >

> >I am interested that your sound sensitivity started with tinnitus, would you

say the external triggers you developed occurred simultaneously with the

internal auditory perceptions of tinnitus or did they develop after the onset

of the tinnitus?

> >

> >

> >

> >I ask because I have read, or at least I think I have read that tinnitus

might affect the attention networks in the brain resulting in increased

distractiblity, (I could be wrong here or this maybe something yet to be

proven)

> >

> >

> >

> >But I wonder if any increased distractibility due to the onset of your

tinnitus might have contributed to the start of your other sound sensitivity

that you have described below. Just curious, not making any kind of hypothesis

or diagnosis here to be clear. ( I might well be corrected about the tinnitus

info. anyhow)

> >

> >

> >Also would you mind mentioning the drug that started it all. Thankx

> >Maikaefer

> >

> >

> >

> > 

> .

>

[Guest guest]

Just FYI, since latex allergies are not uncommon, I believe most hospitals also

carry vinyl gloves. You just need to make sure to tell them in advance.

>

> Hi prn, thanks for your response.

>

>  My misophonia suddenly struck early in life at the dinner table, no

initiating event that I recall. I think it possible that my living with a

non-relenting sound sensitivity over the years may have effected the attention

circuitry in by brain more and more, hence the growing list of triggers

unrelated to oral or nasal sounds. Or maybe I am just generally sound sensitive

and attention span gets worse as we age anyway. I am sensitive in oh so many

other ways as well but only the sound sensitivity is getting worse.

>

> Please keep us posted on your visit to the neurologist, I would love to hear

more about it.

>

> Sorry about the latex allergy, must just be impossible to work as a nurse

these days with an allergy to latex gloves.

> Maikaefer

>

>

>

>

> ________________________________

>

> To: Soundsensitivity

> Sent: Friday, December 16, 2011 1:14 PM

> Subject: Re: neurology

>

>

>  

> 

> Hi Maikaefer,

> Sorry about the name mistake,

> I am usually more attentive...names are very important to this former

> nurse.

> My triggers started after the

> onset of the tinnitus.

> When I look back I would say

> about 8 months later.

> They have sky rocketed this

> past year.

> I forgot to add the opening

> of any bags, chips, candy, etc. will make me go ballistic. If some one tries

to

> open it slowly, to avoid the noise, it makes it even worse. Like a Band-Aid, I

> believe in one loud rip to accomplish the job.

> The medicine I reacted to was

> Avelox, for a severe ear infection.

> After a day I was vomiting

> and during a violent session is when the ear ringing began. I thought it was

> temporary and only sought help after it persisted to the point of

> madness.

> My hearing failed during that

> time period and returned after 6 months, to hyper acute hearing. Hmmm, that

may

> be when the sound sensitivity began.

> My immune system was

> compromised due to my over whelming latex allergy and I have been busy

> rebuilding it over the last few years.

> Any hypothesis are welcome. I

> am relieved to know that I can talk to the neurologist about this next

> month.

> Take care.

> prn

> Re: neurology

> >

> > 

> >

> >

> >prn, thank you for replying. I am actually not Mike, but a female,

Maikaefer.

> >

> >

> >

> >I am interested that your sound sensitivity started with tinnitus, would you

say the external triggers you developed occurred simultaneously with the

internal auditory perceptions of tinnitus or did they develop after the onset

of the tinnitus?

> >

> >

> >

> >I ask because I have read, or at least I think I have read that tinnitus

might affect the attention networks in the brain resulting in increased

distractiblity, (I could be wrong here or this maybe something yet to be

proven)

> >

> >

> >

> >But I wonder if any increased distractibility due to the onset of your

tinnitus might have contributed to the start of your other sound sensitivity

that you have described below. Just curious, not making any kind of hypothesis

or diagnosis here to be clear. ( I might well be corrected about the tinnitus

info. anyhow)

> >

> >

> >Also would you mind mentioning the drug that started it all. Thankx

> >Maikaefer

> >

> >

> >

> > 

> .

>

[Guest guest]

They are not only not uncommon, they are VERY common. All the hospitals and clinics here are latex free... they don't use ANY latex anywhere. I imagine lots of places are that way, now... and probably many more will be before long.

---------------------------------------------------------

♥

" Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥

http://www.caringbridge.org/visit/sarahmae

 

Just FYI, since latex allergies are not uncommon, I believe most hospitals also carry vinyl gloves. You just need to make sure to tell them in advance.

>

> Hi prn, thanks for your response.

>

>  My misophonia suddenly struck early in life at the dinner table, no initiating event that I recall. I think it possible that my living with a non-relenting sound sensitivity over the years may have effected the attention circuitry in by brain more and more, hence the growing list of triggers unrelated to oral or nasal sounds. Or maybe I am just generally sound sensitive and attention span gets worse as we age anyway. I am sensitive in oh so many other ways as well but only the sound sensitivity is getting worse.

>

> Please keep us posted on your visit to the neurologist, I would love to hear more about it.

>

> Sorry about the latex allergy, must just be impossible to work as a nurse these days with an allergy to latex gloves.

> Maikaefer

>

>

>

>

> ________________________________

>

> To: Soundsensitivity

> Sent: Friday, December 16, 2011 1:14 PM

> Subject: Re: neurology

>

>

>  

> 

> Hi Maikaefer,

> Sorry about the name mistake,

> I am usually more attentive...names are very important to this former

> nurse.

> My triggers started after the

> onset of the tinnitus.

> When I look back I would say

> about 8 months later.

> They have sky rocketed this

> past year.

> I forgot to add the opening

> of any bags, chips, candy, etc. will make me go ballistic. If some one tries to

> open it slowly, to avoid the noise, it makes it even worse. Like a Band-Aid, I

> believe in one loud rip to accomplish the job.

> The medicine I reacted to was

> Avelox, for a severe ear infection.

> After a day I was vomiting

> and during a violent session is when the ear ringing began. I thought it was

> temporary and only sought help after it persisted to the point of

> madness.

> My hearing failed during that

> time period and returned after 6 months, to hyper acute hearing. Hmmm, that may

> be when the sound sensitivity began.

> My immune system was

> compromised due to my over whelming latex allergy and I have been busy

> rebuilding it over the last few years.

> Any hypothesis are welcome. I

> am relieved to know that I can talk to the neurologist about this next

> month.

> Take care.

> prn

> Re: neurology

> >

> > 

> >

> >

> >prn, thank you for replying. I am actually not Mike, but a female, Maikaefer.

> >

> >

> >

> >I am interested that your sound sensitivity started with tinnitus, would you say the external triggers you developed occurred simultaneously with the internal auditory perceptions of tinnitus or did they develop after the onset of the tinnitus?

> >

> >

> >

> >I ask because I have read, or at least I think I have read that tinnitus might affect the attention networks in the brain resulting in increased distractiblity, (I could be wrong here or this maybe something yet to be proven)

> >

> >

> >

> >But I wonder if any increased distractibility due to the onset of your tinnitus might have contributed to the start of your other sound sensitivity that you have described below. Just curious, not making any kind of hypothesis or diagnosis here to be clear. ( I might well be corrected about the tinnitus info. anyhow)

> >

> >

> >Also would you mind mentioning the drug that started it all. Thankx

> >Maikaefer

> >

> >

> >

> > 

> .

>