Dr. McCandless- newborn with siezures

[Guest guest]

I hope the docs are looking for and identifying or ruling out intra-CSV,

intra-brain viruses as part of the differential diagnosis.

The parent might write the docs a polite letter asking if they " are

looking for and identifying or ruling out intra-CSV, intra-brain viruses

as part of the differential diagnosis " .

j_kalis wrote:

>What neurologist in Chicago do you recommend? I think I remember

>reading on this list once that you had someone there that you liked.

>A newborn born in Indianapolis two weeks ago is having siezures and

>turns purple and loses oxygen during them. They thought they had her

>stable on phenol barbitol (sp?) but now she is having trouble and the

>parents claim that the neurologist there has made several mistakes.

>They want someone good. They don't want to waste any time. They are

>open minded.

>

>Thanks,

> in NC

>

>

>

>

>

[Guest guest]

What neurologist in Chicago do you recommend? I think I remember

reading on this list once that you had someone there that you liked.

A newborn born in Indianapolis two weeks ago is having siezures and

turns purple and loses oxygen during them. They thought they had her

stable on phenol barbitol (sp?) but now she is having trouble and the

parents claim that the neurologist there has made several mistakes.

They want someone good. They don't want to waste any time. They are

open minded.

Thanks,

in NC

[Guest guest]

, They actually found that the baby had a brain hemmorage

(sp?). The docs think she may have had a stroke in utero. Could

this in any way be related to the virus's you mention or would these

be completely separate issues? I have no idea why a baby would have

a stroke in utero. Thanks for your help.

> >

> >

> >

> >>What neurologist in Chicago do you recommend? I think I

remember

> >>reading on this list once that you had someone there that you

liked.

> >>A newborn born in Indianapolis two weeks ago is having siezures

and

> >>turns purple and loses oxygen during them. They thought they

had her

> >>stable on phenol barbitol (sp?) but now she is having trouble

and the

> >>parents claim that the neurologist there has made several

mistakes.

> >>They want someone good. They don't want to waste any time.

They are

> >>open minded.

> >>

> >>Thanks,

> >> in NC

> >>

> >>

> >>

> >>

> >>

> >>

> >>

> >

> >

> >

> >

>

>

>

>

[Guest guest]

, They actually found that the baby had a brain hemmorage

(sp?). The docs think she may have had a stroke in utero. Could

this in any way be related to the virus's you mention or would these

be completely separate issues? I have no idea why a baby would have

a stroke in utero. Thanks for your help.

> >

> >

> >

> >>What neurologist in Chicago do you recommend? I think I

remember

> >>reading on this list once that you had someone there that you

liked.

> >>A newborn born in Indianapolis two weeks ago is having siezures

and

> >>turns purple and loses oxygen during them. They thought they

had her

> >>stable on phenol barbitol (sp?) but now she is having trouble

and the

> >>parents claim that the neurologist there has made several

mistakes.

> >>They want someone good. They don't want to waste any time.

They are

> >>open minded.

> >>

> >>Thanks,

> >> in NC

> >>

> >>

> >>

> >>

> >>

> >>

> >>

> >

> >

> >

> >

>

>

>

>

[Guest guest]

My daughter started having seizures at 8 months of age. This is what

I learned about seizures during her illness:

Do you know what type of seizures the child is having? It is

important what ype of seizure the child is having. For some seizures

the best treatment is Vitamin B6 IV inffusions from what I have been

told. AN EEG has to be done at the same time to see if the B6 is

making a difference.

Looking at diet is important too: if breastfed - mom needs to take

supplements and change diet to eliminate toxins, allergens etc. VRP

has a good article on supplements helpful for seizures. If formula -

be careful what you use - I don't know anything about formulas -

something hypoallergenic would be probably best...

My daughter's seizures stopped without meds. I thank God and parents

on sites like this one for that.

If you want more info email me directly,

Ania

>

> What neurologist in Chicago do you recommend? I think I remember

> reading on this list once that you had someone there that you

liked.

> A newborn born in Indianapolis two weeks ago is having siezures and

> turns purple and loses oxygen during them. They thought they had

her

> stable on phenol barbitol (sp?) but now she is having trouble and

the

> parents claim that the neurologist there has made several mistakes.

> They want someone good. They don't want to waste any time. They

are

> open minded.

>

> Thanks,

> in NC

>

[Guest guest]

My daughter started having seizures at 8 months of age. This is what

I learned about seizures during her illness:

Do you know what type of seizures the child is having? It is

important what ype of seizure the child is having. For some seizures

the best treatment is Vitamin B6 IV inffusions from what I have been

told. AN EEG has to be done at the same time to see if the B6 is

making a difference.

Looking at diet is important too: if breastfed - mom needs to take

supplements and change diet to eliminate toxins, allergens etc. VRP

has a good article on supplements helpful for seizures. If formula -

be careful what you use - I don't know anything about formulas -

something hypoallergenic would be probably best...

My daughter's seizures stopped without meds. I thank God and parents

on sites like this one for that.

If you want more info email me directly,

Ania

>

> What neurologist in Chicago do you recommend? I think I remember

> reading on this list once that you had someone there that you

liked.

> A newborn born in Indianapolis two weeks ago is having siezures and

> turns purple and loses oxygen during them. They thought they had

her

> stable on phenol barbitol (sp?) but now she is having trouble and

the

> parents claim that the neurologist there has made several mistakes.

> They want someone good. They don't want to waste any time. They

are

> open minded.

>

> Thanks,

> in NC

>

[Guest guest]

My daughter started having seizures at 8 months of age. This is what

I learned about seizures during her illness:

Do you know what type of seizures the child is having? It is

important what ype of seizure the child is having. For some seizures

the best treatment is Vitamin B6 IV inffusions from what I have been

told. AN EEG has to be done at the same time to see if the B6 is

making a difference.

Looking at diet is important too: if breastfed - mom needs to take

supplements and change diet to eliminate toxins, allergens etc. VRP

has a good article on supplements helpful for seizures. If formula -

be careful what you use - I don't know anything about formulas -

something hypoallergenic would be probably best...

My daughter's seizures stopped without meds. I thank God and parents

on sites like this one for that.

If you want more info email me directly,

Ania

>

> What neurologist in Chicago do you recommend? I think I remember

> reading on this list once that you had someone there that you

liked.

> A newborn born in Indianapolis two weeks ago is having siezures and

> turns purple and loses oxygen during them. They thought they had

her

> stable on phenol barbitol (sp?) but now she is having trouble and

the

> parents claim that the neurologist there has made several mistakes.

> They want someone good. They don't want to waste any time. They

are

> open minded.

>

> Thanks,

> in NC

>

[Guest guest]

Our daughter also presented with seizures. She's 11 now. But, for years we

didn't understand the nature of her seizures. Through fatty oxidation disorder

testing we found that she can't metabolize certain fats because of enzyme

deficiency. We have to be very careful with amount and type of fats she can

ingest - even supplements such as Vit.E and A and D. With the proper diet and

supplements her seizures are fairly under control. She took Depakote for 8 years

and she's now switched to Keppra. We wanted to remove all seizure medications so

our neurologist conducted an 8 hour EEG. We still have to keep her on the

Keppra. Carnitine can also induce a seizure for our daughter if she takes too

much - which is a normal amount for most people. Unfortunately, our daughter can

not take fish oils and such - she just can't properly metabolize it. She becomes

" foggy " .

Shari

Re: Dr. McCandless- newborn with siezures

My daughter started having seizures at 8 months of age. This is what

I learned about seizures during her illness:

Do you know what type of seizures the child is having? It is

important what ype of seizure the child is having. For some seizures

the best treatment is Vitamin B6 IV inffusions from what I have been

told. AN EEG has to be done at the same time to see if the B6 is

making a difference.

Looking at diet is important too: if breastfed - mom needs to take

supplements and change diet to eliminate toxins, allergens etc. VRP

has a good article on supplements helpful for seizures. If formula -

be careful what you use - I don't know anything about formulas -

something hypoallergenic would be probably best...

My daughter's seizures stopped without meds. I thank God and parents

on sites like this one for that.

If you want more info email me directly,

Ania

>

> What neurologist in Chicago do you recommend? I think I remember

> reading on this list once that you had someone there that you

liked.

> A newborn born in Indianapolis two weeks ago is having siezures and

> turns purple and loses oxygen during them. They thought they had

her

> stable on phenol barbitol (sp?) but now she is having trouble and

the

> parents claim that the neurologist there has made several mistakes.

> They want someone good. They don't want to waste any time. They

are

> open minded.

>

> Thanks,

> in NC

>

Many frequently asked questions and answers can be found at

<http://forums.autism-rxguidebook.com/default.aspx>

[Guest guest]

Our daughter also presented with seizures. She's 11 now. But, for years we

didn't understand the nature of her seizures. Through fatty oxidation disorder

testing we found that she can't metabolize certain fats because of enzyme

deficiency. We have to be very careful with amount and type of fats she can

ingest - even supplements such as Vit.E and A and D. With the proper diet and

supplements her seizures are fairly under control. She took Depakote for 8 years

and she's now switched to Keppra. We wanted to remove all seizure medications so

our neurologist conducted an 8 hour EEG. We still have to keep her on the

Keppra. Carnitine can also induce a seizure for our daughter if she takes too

much - which is a normal amount for most people. Unfortunately, our daughter can

not take fish oils and such - she just can't properly metabolize it. She becomes

" foggy " .

Shari

Re: Dr. McCandless- newborn with siezures

My daughter started having seizures at 8 months of age. This is what

I learned about seizures during her illness:

Do you know what type of seizures the child is having? It is

important what ype of seizure the child is having. For some seizures

the best treatment is Vitamin B6 IV inffusions from what I have been

told. AN EEG has to be done at the same time to see if the B6 is

making a difference.

Looking at diet is important too: if breastfed - mom needs to take

supplements and change diet to eliminate toxins, allergens etc. VRP

has a good article on supplements helpful for seizures. If formula -

be careful what you use - I don't know anything about formulas -

something hypoallergenic would be probably best...

My daughter's seizures stopped without meds. I thank God and parents

on sites like this one for that.

If you want more info email me directly,

Ania

>

> What neurologist in Chicago do you recommend? I think I remember

> reading on this list once that you had someone there that you

liked.

> A newborn born in Indianapolis two weeks ago is having siezures and

> turns purple and loses oxygen during them. They thought they had

her

> stable on phenol barbitol (sp?) but now she is having trouble and

the

> parents claim that the neurologist there has made several mistakes.

> They want someone good. They don't want to waste any time. They

are

> open minded.

>

> Thanks,

> in NC

>

Many frequently asked questions and answers can be found at

<http://forums.autism-rxguidebook.com/default.aspx>

[Guest guest]

Our daughter also presented with seizures. She's 11 now. But, for years we

didn't understand the nature of her seizures. Through fatty oxidation disorder

testing we found that she can't metabolize certain fats because of enzyme

deficiency. We have to be very careful with amount and type of fats she can

ingest - even supplements such as Vit.E and A and D. With the proper diet and

supplements her seizures are fairly under control. She took Depakote for 8 years

and she's now switched to Keppra. We wanted to remove all seizure medications so

our neurologist conducted an 8 hour EEG. We still have to keep her on the

Keppra. Carnitine can also induce a seizure for our daughter if she takes too

much - which is a normal amount for most people. Unfortunately, our daughter can

not take fish oils and such - she just can't properly metabolize it. She becomes

" foggy " .

Shari

Re: Dr. McCandless- newborn with siezures

My daughter started having seizures at 8 months of age. This is what

I learned about seizures during her illness:

Do you know what type of seizures the child is having? It is

important what ype of seizure the child is having. For some seizures

the best treatment is Vitamin B6 IV inffusions from what I have been

told. AN EEG has to be done at the same time to see if the B6 is

making a difference.

Looking at diet is important too: if breastfed - mom needs to take

supplements and change diet to eliminate toxins, allergens etc. VRP

has a good article on supplements helpful for seizures. If formula -

be careful what you use - I don't know anything about formulas -

something hypoallergenic would be probably best...

My daughter's seizures stopped without meds. I thank God and parents

on sites like this one for that.

If you want more info email me directly,

Ania

>

> What neurologist in Chicago do you recommend? I think I remember

> reading on this list once that you had someone there that you

liked.

> A newborn born in Indianapolis two weeks ago is having siezures and

> turns purple and loses oxygen during them. They thought they had

her

> stable on phenol barbitol (sp?) but now she is having trouble and

the

> parents claim that the neurologist there has made several mistakes.

> They want someone good. They don't want to waste any time. They

are

> open minded.

>

> Thanks,

> in NC

>

Many frequently asked questions and answers can be found at

<http://forums.autism-rxguidebook.com/default.aspx>