Re: IL-1s

[Guest guest]

Hey , yes, good to hear from you too. What did you decide to go with? I

haven't done Remicade but am thinking I may give it a try in the late spring.

Even though I'm in the crapper too, I can still function well enough, and right

now I've just started a program that has me driving 350 miles rt on Tues, Thurs,

Sat. I hate the idea of starting a new drug that completely fails when I have

this obligation for the next twelve weeks. So yes, I understand what you're

saying about how hard it is to get a life/career back just to realize you may

lose it again.

I hope you're right about the IL-1's. I'm losing my patience and what's left of

my sanity.

Take care of you!

>

> !! It's been so long old friend, we must catch up.

>

> I'm sorry to hear you are in the crapper too. It is quite amazing how fast we

fall. Last night I was sitting in traffic bawling my eyes out. That I'm back

here with my physical health. Just when I was getting a life back. A career

again. And now I can't handle any stress, almost having panic attacks,

exhausted, in pain, brain fog, ugh. It's too much sometimes.

>

> My rheumy practice is research oriented and the big doc (I see a new one under

his tutelage) thinks both IL-1s will be released this summer. In the meantime,

we'll see if they want to go Remicade or Actemra for me at 8:30am today. Will

report back then.

>

> You were on Remicade before, weren't you? For the life of me I can't remember.

>

> All the rheumy's I have seen (and there have been a lot) were shocked that I

had fairly decent results from Kineret for 5 years. They all think it's a

pretty crappy drug and don't usually see such long term use. So I'm actually

really looking forward to the new IL-1s.

>

> Talk to you soon my dear. Thinking of you.

>

>

> Houston

>