Re: Re: Contact CT AG Blumanthal NOW!

[Guest guest]

Why can't they leave alone that which is working?!OK, so your normal temp is low.....so I have to ask, how are your thyroid labs?  I don't remember you ever posting anything about being on any thyroid meds.  You may need some. 

I will add that all my life I haven't tolerated pain meds,  they always made me very sick.  Also, my dentist had a difficult time getting me numb and all three epidurals (with babies) didn't work well.Now that I'm on thyroid meds, the dentist can easily get me numb with less, and pain meds have been more tolerable. Go figure! (Makes sense to me.)

I'm glad she gave you script for both :-)

 

Hey ,

Well my pain doc changed my pain meds, the one I had worked fine, but I guess she

has to justify her fee... I started taking this medication on Friday night and

on Saturday night, I was sick, with a temp at 100.3, normal for me is 97.7.

I don't know if I caught something, with a constant supply of salt/C and MMS, I doubt

this, so that leaves only this new medication as the culprit. I was on this 5 years ago and had to stop it after two days, but didn't remember why... Now I remember, same thing. It works great at helping with pain, it also is like poison to my body...

Fortunately she also gave me a script for my old medicine at the same time, which works well for me, so I am now using it. I tried telling her with two failed gut surgeries and pain from hell, I can't afford to get these medications wrong.. I even gave her my " evil eye " but it didn't work.. :-)

I am still feeling crappy, but no fever and slowly my energy is returning...

Thanks,

Jim

>

> *Jim, I was wondering where you were. Hope you are feeling better now!

> OK everyone, lets get those fingers moving!

> *

>

> >

> > California Lyme Disease Association

> > Empowering Patients through advocacy, education & research...since 1989

> >

> > Action Alert

> >

> > IDSA improperly votes--again--to deny Lyme treatment. Contact CT Attorney

> > General now

> >

> > The IDSA Lyme review panel has released its report. The committee voted to

> > make NO CHANGES to the 2006 Lyme guidelines. These are the guidelines that

> > say no clinical judgment for physicians, no antibiotic treatment for chronic

> > Lyme, and no alternative treatments or supplements. These are the guidelines

> > that abandon sick Lyme patients and leave them nowhere to turn for help.

> >

> > Why we all need to contact AG Blumenthal now

> > The review process for the 2006 IDSA Lyme guidelines came about because of

> > a Settlement Agreement with Connecticut Attorney General Blumenthal.

> > But the IDSA didn't follow all the procedures laid down in that agreement.

> > If they had, one of the worst of the guidelines would have been thrown out.

> > The recommendation in question requires that a patient have a positive Lyme

> > lab test in order to be diagnosed with Lyme disease. Since Lyme lab tests

> > are notoriously unreliable, this requirement denies appropriate diagnosis

> > and treatment to untold thousands of patients with Lyme disease.

> >

> > Contact AG Blumenthal and tell him you want him to make sure the IDSA

> > follows all the rules. The lives of Lyme patients and their families are at

> > stake.

> >

> > If you can, please fax the AG. If no fax, email or call.

> > Fax

> > Phone

> > email: attorney.general@... <attorney.general%40po.state.ct.us>

> >

> > SAMPLE LETTER:

> >

> > Dear Attorney General Blumenthal:

> >

> > The IDSA panel did not comply with the voting requirements of your

> > Settlement Agreement for a critical recommendation in the guidelines--the

> > need for a positive lab test before patients can be treated. In fact, Lyme

> > lab tests are insensitive and miss many cases of Lyme. The IDSA sidesteps

> > the need to follow your rules by claiming that this point is not really a

> > recommendation. In fact, it is a strong recommendation, repeated throughout

> > the guidelines and relied upon by insurance companies to deny treatment

> > reimbursements to seriously ill patients. It should be subject to the same

> > voting procedures as every other recommendation in the IDSA guidelines.

> >

> > Please hold the IDSA to the Settlement Agreement and require them to re-do

> > the vote on lab tests. The health and well-being of patients and their

> > families depends upon it.

> >

> > Sincerely,

> >

> > (your name. Add personal details if you like.)

> >

> > SAMPLE PHONE MESSAGE

> >

> > I'm calling today because an injustice is being done to Lyme patients

> > everywhere. Please keep investigating the IDSA, and make sure they follow

> > the rules.

> >

> > For updated information on about the IDSA guidelines, subscribe to the Lyme

> > Policy Wonk blog.

> > Quick Links

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> > Join CALDA now

> >

> >

> >

>