Re: Poll Q for group: When you were born, did you have oxygen trouble?

[Guest guest]

HIYA

OUT OF CURIOSITY, DID YOU ASK FEMALES? I GENERALLY

WONDER ABOUT HORMONAL DIFFERENCES WITH EVERYTHING, BUT

MS ABSOLUTELY......OR WAS IT JUST THE 3 OF YOU?

THANKS

DONNA

[Guest guest]

Hi!

I don't know if I was a blue baby, but I was a very protracted and

difficult breech birth and had the umbilical cord wrapped around my

neck.

All the best,

Dudley

http://profiles.yahoo.com/dudley_delany

[Guest guest]

> OUT OF CURIOSITY, DID YOU ASK FEMALES? I GENERALLY

> WONDER ABOUT HORMONAL DIFFERENCES WITH EVERYTHING, BUT

> MS ABSOLUTELY......OR WAS IT JUST THE 3 OF YOU?

Hi Donna:

It was just the 4 of us & I wondered about gender differences too.

We're all progressive as well.

Re: asking females, I am now! 8)

[Guest guest]

SORRY, THOUGHT IT WAS ONLY 3 WELL, AS FOR ME, NOT I

KNOW OF WAS I A BLUE BABY.....MY SISTER IS PPMS BUT

SHE JUST DOESN'T SEEM TO WANT TO DEAL WITH ANY OF IT

SO I CAN ASK HER BUT I HAVE NO CLUE IF SHE'LL TELL ME

OR JUST GET MAD AT ME.

UMMM, A HELLO TO ALL! I'VE BEEN IN THE GROUP FOR QUITE

A WHILE NOW BUT GO MIA WHEN I'M NOT DOING WELL. OH,

I'M NOT YELLING. LOVELY OPTICAL NEURITIS, YA KNOW

USING CAPS MAKES MY EYES LESS TIRED SO I CAN READ MORE

THEN. A DONNA UPDATE - I'M NOT EVEN AT THE 2.5 YEAR

MARK QUITE YET. I', #4 IN MY FAMILY TO BE DX WITH MS.

THE DOCS DON'T GET MY SYMPTOMS AND THEY EVEN TOLD ME.

I GOT THE STANDARD RRMS DX I THINK TO GET THE MEDS

COVERED DEAL, YA KNOW. MY LISTS OF TREATMENTS SO FAR:

TH USUAL RAINBOW OF PILLS, AVONEX AT INITIAL DX AND I

HATED IT! MY SIS IS ON AVONEX. I DID LDN FOR A SPELL

AND STOPPED TAKING IT WHEN MY BABY, MY DOG, WAS DX

WITH BONE CANCER SO SHE COULD TAKE IT INSTEAD. IT

WORKED FOR 1.5 YEARS ON HER. I JUST HAD HER PUT TO

SLEEP 2 WEEKS AGO BECAUSE THE CANCER GOT TOO SEVERE

AND GETTING LDN PRESCRIBED IS HARD ENOUGH BUT TRY

GETTING IT FOR A DOG. UMMM, THEN THE DOCS TRIED

PLASMAPHRESIS. I DO NOT RECOMMEND THIS! WELL, I DID

GET ABOUT 6 WEEKS OF GOOD TIME BUT MY GOD, THOSE

TREATMENTS WERE AGONY! I JOKED THAT MICHAEL JACKSON

HAS BEEN TRYING TO GET WHITER N WHITER AND MY DOC WAS

MAKING ME BLACK, THE BRUISING. NOTHING RACIAL, I'M

JUST A JOKER IN GENERAL, AND SARCASTIC.....K, THEN IT

WAS CHEMO AND COPAXONE FOR A YEAR, MY ANNIV WAS THE

23RD. IT'S WORKING FOR ME SO I'M DEALING. I WENT THE

NATURAL ROUTE AND PREFER IT BUT I'VE BEEN STANDING AND

WALKING FOR LIKE 6-8 MONTHS NOW. UMMM, MY MS CAME ON

HEAVY AND QUICK. NO SYMPTOMS AND YA, THEY SAY THE

USUAL THERE TOO, I HAD SYMPTOMS BUT DIDN'T KNOW IT,

BLA, BLA...YEAH, BS. SO I WAS PARALYZED MY FIRST

FLARE. I'VE GONE THROUGH PARALYSIS AND STILL DO HERE N

THERE AND BLINDNESS INTERMITTENTLY AND ALL THE OTHER

FUN THINGS.... OH, CANT FORGET THE STEROIDS, IV'S AND

PILLS.....AS MUCH AS I HATE THE PHARMS, THEY TOLD ME

JAN OF 05 THAT THEY THOUGHT I WASN'T GOING TO MAKE IT

OUT OF THE HOSPITAL RE: I WAS A GONER. THEY WANTED TO

DO ALL THEIR FUN STUFF, CATHETERS, RESPIRATOR, FEEDING

TUBE AND CUT MY TENDONS BECAUSE OF THE SEVERE SPASMS I

WAS HAVING. OH, BACLOFEN PUMP TOO. I REFUSED IT ALL. I

GIVE MY PUP AND OTHER CRITTERS 100% CREDIT FOR MY

GETTING OUT OF THE HOSPITAL. I QUIT ALL THE PILLS AND

LEARNED OTHER WAYS TO HANDLE SYMPTOMS. ASK IF YOU HAVE

QUESTIONS CUZ IT'D A LONG STORY MY BACKGROUNG IS IN

THE SCIENCES SO I JUST KINDA USED MYSELF AS THE

EXPERIMENT. ANY AND ALL TREATMENTS AND ALTERNATIVE

TREATMENTS HAVE BEEN DONE IN A SCIENTIFIC MANNER.

I HOPE ALL ARE WELL AND AM DOING MY BEST TO GET BACK

INTO THINGS SO THANKS FOR THE PATIENCE

DONNA

[Guest guest]

Hi Donna,

Glad you are feeling well enough to be back, sorry about your dog.

Sounds like you have tried lots of things. Its good you have maintained

you sassy attitude that can really help in hard times. No one else in my

family is sick or has been sick, that made it harder for me to accept

when I got sick. I felt like I was the most healthy in terms of diet and

lifestlye but did not matter much. My one sister did have fibromylagia

but she got over it through diet and supplements and now she is

completely healthy. I have to really keep working at it to maintain

where I am at but its worth it. Talk to you soon.

donna chopyak wrote:

> SORRY, THOUGHT IT WAS ONLY 3 WELL, AS FOR ME, NOT I

> KNOW OF WAS I A BLUE BABY.....MY SISTER IS PPMS BUT

> SHE JUST DOESN'T SEEM TO WANT TO DEAL WITH ANY OF IT

> SO I CAN ASK HER BUT I HAVE NO CLUE IF SHE'LL TELL ME

> OR JUST GET MAD AT ME.

>

[Guest guest]

Thanks for the lovely welcome back and sentiments

about my puppy. 11 years and 65 pounds but always my

puppy. I understand the healthy lifestyle deal. I was

a hardcore vegan and stayed away from caffeine, sugar,

all that and was hiking 3-15 miles a day. I was a

party girl though but I researched MS when my

sister was diagnosed so I think I kinda knew I had it

and my first experience of it was paralysis so not

having gotten hurt, wasn't hard to figure it out.

peace out and I'm sure we'll chat in the future,

Donna

[Guest guest]

Hi Chere,

My sister is actually 9 years older than me and she

has been diagnosed for like 14 years already but when

I got diagnosed, she refused to speak to me over a

year. She said she got sick of answering my questions

and that was what I had a neurologist for. Don't ask

me because I have no clue. Then she doubted mt entire

diagnosis because I never got the spinal, there were

lesions galore on my MRI among symptoms. So I do the

NARCOMS registry but there is no way she'd do the UCSF

thing. The other weird stuff - my neuro told me to

start eating dead things again. I dropped to under

100#'s because of vertigo and had to totally become a

very unhealthy eater. I survived off of Coca Cola,

coffee and fast food. Yuk, I know. I still miss my

fruit n veggie ways but I still get sick off of it if

I eat it primarily. For some reason even water and

fruit juices was getting me sick. I don't think it was

only vertigo but what do I know. Interesting huh.

Glad I was a Grateful Dead fan because what a long

strange trip it has indeed been. I did the Swank Diet

when I was first diagnosed because it wasn't a whole

lot different than normal eating for me. I just

recently had bananas and strawberries and water about

2 weeks ago. YAY!!!! So I'm just going slow and

trusting what I think my body is trying to tell me.

A HUGE THANK YOU TO ALL YOU FOR THE WELCOME BACK

BE WELL,

Donna

[Guest guest]

Hi Donna!

Sorry to hear about your diet difficulties. I believe there is no one

'right' diet for everyone. Our bodies are unique genetically and

therefore what cures someone can kill someone else.

You may want to read 'The Metabolic Typing Diet'. The author argues

that there are many different factors that affect the levels of protein

vs Carbohydrates and Meat vs Vegetables in our diets. For this reason,

some people thrive on a Vegan diet where others starve. Here is a link

to a website on this book and how you can determine which metabolic type

you are:

http://www.metabolictyping.com/

I recommend getting the book via an interlibrary loan and if you like

it, then buy the book.

One other point. There is another metabolic typing book which tries to

connect your blood type to a metabolic level. Unfortunately, I can't

remember the name. IMO this book is too simplistic in it's approach to

determining what is right for you. There are many other factors which

can modify what level of protein you need to get well and stay well.

Finally, just because you may subscribe to a certain diet, does not mean

you need to ignore food allergies. The Best Bet and Swank diets should

not contradict the concepts brought forth by the Metabolic Typing diet.

All these diets do is warn against certain foods which excaserbate MS

sysmptoms. You can reconcile these two methods by increasing or

decreasing the quantities of food you eat so that for example you can

avoid dairy and wheat and still get the correct level of protein and

carbs your body needs by increasing your intake of alternative foods.

Hopet this helps!

Tom Nesler

Re: Re: Poll Q for group: When you were born, did you

have oxygen trouble?

Hi Chere,

My sister is actually 9 years older than me and she

has been diagnosed for like 14 years already but when

I got diagnosed, she refused to speak to me over a

year. She said she got sick of answering my questions

and that was what I had a neurologist for. Don't ask

me because I have no clue. Then she doubted mt entire

diagnosis because I never got the spinal, there were

lesions galore on my MRI among symptoms. So I do the

NARCOMS registry but there is no way she'd do the UCSF

thing. The other weird stuff - my neuro told me to

start eating dead things again. I dropped to under

100#'s because of vertigo and had to totally become a

very unhealthy eater. I survived off of Coca Cola,

coffee and fast food. Yuk, I know. I still miss my

fruit n veggie ways but I still get sick off of it if

I eat it primarily. For some reason even water and

fruit juices was getting me sick. I don't think it was

only vertigo but what do I know. Interesting huh.

Glad I was a Grateful Dead fan because what a long

strange trip it has indeed been. I did the Swank Diet

when I was first diagnosed because it wasn't a whole

lot different than normal eating for me. I just

recently had bananas and strawberries and water about

2 weeks ago. YAY!!!! So I'm just going slow and

trusting what I think my body is trying to tell me.

A HUGE THANK YOU TO ALL YOU FOR THE WELCOME BACK

BE WELL,

Donna

[Guest guest]

At the heart of your Metabolic Typing Program is your Eating Plan ,

a one page, color-coded, easy-to-read list of all the foods that are

right -- and wrong -- for your Metabolic Type. Not all proteins, or

carbs, or fats are equal. That's why a diet that works for you can

make your friend, or spouse, or sibling fat and unhealthy. The

result of your Metabolic Typing Assessment will provide you with an

Eating Plan that identifies all the right foods for your Metabolic

Type in Green, all Neutral foods in Black, all Caution foods in

Italics, and all Avoid foods in Red. Your Eating Plan is

conveniently laid out in a chart on one page......

https://www.metabolictypingonline.com/EatingPlan.aspx

-

>

> Hi Donna!

>

> Sorry to hear about your diet difficulties. I believe there is no

one

> 'right' diet for everyone.