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Re: Re: Kids with Chiari

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I'm glad to hear you say that about anger issues, Virginia! I'm 18

now, but I've always been an angry kid! I walked wicked late as well,

and when I first started walking I only would walk on my toes. I was

late to toilet train as well... My major issues have been posterior

headaches, dizziness, and balance issues! Hope this helps!

-Mandy

On Jan 18, 2010, at 12:18 PM, " Virginia "

wrote:

> Sam,

>

> I wanted to quickly reply that we (CCI) also have a Chiari Parents

> Group! It's good that you posted here, as well, and I know you will

> receive many replies. But if you also join the

> Parents' Group, you'll find a lot of

> parents on there who are quick to reply and help you! Here is the

> link:

>

> http://health.groups.yahoo.com/group/CCIparents/

>

> Also, although I am not a parent of a Chiari kid, I have read here

> about the violent behavior (anger, acting out, hitting and kicking

> etc) of children with Chiari. We asked Dr. Bolognese once of The

> Chiari Institute and he told us that this was very common for a

> child to do who has severe pain in the brain. In fact, I believe he

> said it is one of the classic symptoms for children with Chiari.

>

> Prayers for you and your son.

> Virginia

>

> >

> > I'm curios about any of you that have children with chiari. I have

> Chiari, and I'm starting to think my 5 yr. old son has it. The only

> obvious sign he is showing is headaches, but they don't seem like

> really bad ones that make him go to bed or anything. His sleeping

> problem is what's worrying me. I've seen that video of that 3 yr.

> old that could never sleep and he was diagnosed with it. Well that's

> like my son. He will sleep but wakes up every hour and eventually

> around 3-5am he's up for good. and after a couple of hours he's so

> irritable he's acting out calling names hitting and throwing things

> just like that little boy in the video. My son was also a late

> talker he didn't really start talking til he was 2. So what I am

> wondering is any of u with children of chiari could tell me their

> signs and symptoms. Maybe I'm missing some of his signs by not

> knowing them, or maybe he doesn't have enough to be worried I don't

> know. Thanks in advance

> >

> > in Ky

> >

>

>

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