Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 Oh goodness April, how my heart aches. If they don't blink, it means Frontal Lobe Dementia, maybe. I should say usually. Don't say anything to your dad, but act as if you are going to stroke his head or something, and tap like the doctor did. Right on the front. You can do that test yourself. Maybe come up from behind and have a mirror located where you can watch him, and then tap his head. Oh brother. I hope not. I understand some are not as bad, but if he has it he will probably have to go to a nursing home. There is no way you can care for him. Imogene In a message dated 7/19/2006 1:10:42 AM Central Daylight Time, aswest1021@... writes: Hi Imogene, What did you mean when you referred to as FTD is the monster of all dementias? Could something actually be worse then LBD? My FIL was told recently by an Emory neurologist that his problems are frontal lobe related. So, that dismisses his theory that my FIL has MSA. He is leaning towards a diagnosis of Lewy Body, but wants my FIL to be seen by a dementia specialist on Aug. 24th to firm up the diagnosis. I do remember the neurologist tapping on my FIL's forehead to see if he blinked and I don't think he did much blinking, at all. Is this indicative of something? April Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 <snip>Is this indicative of something?<snip> As I mentioned at the beginning of the thread... The neurologist tapped my mother's forehead and b/c she blinked said it was NOT FTD. Had she not blinked, it would be FTD. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 Imogene, I'm really worried about my FIL now. I've never even heard of FTD until I read your post. Does it cause tremors, rigidity, freezing, memory loss, and cognitive changes just like with LBD? What are the differences/similarities? I assume the prognosis isn't good. As I said, I distinctly recall the neurologist tapping on my FIL's forehead and I thought it was a strange thing to be doing. I just don't remember my FIL blinking very much, only a little. I plan to google FTD and see if I can learn more. April > > > Oh goodness April, how my heart aches. If they don't blink, it means Frontal > Lobe Dementia, maybe. I should say usually. > > Don't say anything to your dad, but act as if you are going to stroke his > head or something, and tap like the doctor did. Right on the front. You can do > that test yourself. Maybe come up from behind and have a mirror located where > you can watch him, and then tap his head. Oh brother. I hope not. I > understand some are not as bad, but if he has it he will probably have to go to a > nursing home. There is no way you can care for him. > > Imogene > > > In a message dated 7/19/2006 1:10:42 AM Central Daylight Time, > aswest1021@... writes: > > Hi Imogene, > > What did you mean when you referred to as FTD is the monster of all > dementias? Could something actually be worse then LBD? My FIL was > told recently by an Emory neurologist that his problems are frontal > lobe related. So, that dismisses his theory that my FIL has MSA. He > is leaning towards a diagnosis of Lewy Body, but wants my FIL to be > seen by a dementia specialist on Aug. 24th to firm up the diagnosis. > I do remember the neurologist tapping on my FIL's forehead to see if > he blinked and I don't think he did much blinking, at all. Is this > indicative of something? > > April > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 This does bother me Sharon M. Because my husband has a lot of shrinkage in the frontal Lobe. His apathy is from that. It can only get worse. Yes, that bothers me. I pray it doesn't. He has made one inappropriate comment to a Bank teller that bothered me and her. He may have thought it was me for a moment. Although I was not a teller, I worked in banks and behind the long counter. I know you have been deeply hurt, emotionally, and for that I sure am sorry. We don't expect our parents to do such horrible things, and treat us that way, and it is hard to always realize the dementia is speaking, when they seem perfectly lucid except for what they are saying, it is so out of character. Did he become violent? Some do. Imogene Caregiver for my True Texas Gentleman husband of 35 years. He has LBD with Parkinsonism. In a message dated 7/19/2006 2:11:30 PM Central Daylight Time, LadySmilingAtU2@... writes: april, this is strictly my opinion, but i think lbd and ftd are both awful, becuase many lbd'ers have the frontal part of the brain affected as well. dad had moderate shrinkage of the frontal lobe as well as mild brain shrinkage. the frontal part of the brain is the sexual inhibitions and tact part of the brain as i understand it. dad would treat me like a pimp would his whore. he would tell his friends for $100 sharon will do this and this to you. very embarassing adn at one point dad pulled 'it' out adn told me to suck this dry like you are sucking my money dry. i was very upset, donnie treid to talk to daddy but you know how hard it is to talk to lbd'ers about anything. these are memories i am trying hard to put to rest but they still haunt me. hugs, sharon m -- Daugher of Leonard, diag May 2004, had lbd since 1993, had hip surgery from fall 7/05, aspiration pneumonia 7/05 with pulmonary embolyis, had aspiration pneumonia and uti 8/05, died of blood pressure drop on 9/25/05, may he rest in peace with his mom and dad, a smile a day keeps the meanies away ---- aswest1021 wrote: Hi Imogene, What did you mean when you referred to as FTD is the monster of all dementias? Could something actually be worse then LBD? My FIL was told recently by an Emory neurologist that his problems are frontal lobe related. So, that dismisses his theory that my FIL has MSA. He is leaning towards a diagnosis of Lewy Body, but wants my FIL to be seen by a dementia specialist on Aug. 24th to firm up the diagnosis. I do remember the neurologist tapping on my FIL's forehead to see if he blinked and I don't think he did much blinking, at all. Is this indicative of something? April Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 april, this is strictly my opinion, but i think lbd and ftd are both awful, becuase many lbd'ers have the frontal part of the brain affected as well. dad had moderate shrinkage of the frontal lobe as well as mild brain shrinkage. the frontal part of the brain is the sexual inhibitions and tact part of the brain as i understand it. dad would treat me like a pimp would his whore. he would tell his friends for $100 sharon will do this and this to you. very embarassing adn at one point dad pulled 'it' out adn told me to suck this dry like you are sucking my money dry. i was very upset, donnie treid to talk to daddy but you know how hard it is to talk to lbd'ers about anything. these are memories i am trying hard to put to rest but they still haunt me. hugs, sharon m -- Daugher of Leonard, diag May 2004, had lbd since 1993, had hip surgery from fall 7/05, aspiration pneumonia 7/05 with pulmonary embolyis, had aspiration pneumonia and uti 8/05, died of blood pressure drop on 9/25/05, may he rest in peace with his mom and dad, a smile a day keeps the meanies away ---- aswest1021 wrote: Hi Imogene, What did you mean when you referred to as FTD is the monster of all dementias? Could something actually be worse then LBD? My FIL was told recently by an Emory neurologist that his problems are frontal lobe related. So, that dismisses his theory that my FIL has MSA. He is leaning towards a diagnosis of Lewy Body, but wants my FIL to be seen by a dementia specialist on Aug. 24th to firm up the diagnosis. I do remember the neurologist tapping on my FIL's forehead to see if he blinked and I don't think he did much blinking, at all. Is this indicative of something? April Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 This is true. Imogene In a message dated 7/19/2006 4:27:57 PM Central Daylight Time, octoryrose@... writes: As I mentioned at the beginning of the thread... The neurologist tapped my mother's forehead and b/c she blinked said it was NOT FTD. Had she not blinked, it would be FTD. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 imogene, you can have business cards made up that say, i am sorry that my husband has offended you, he has Lewy Body Dementia, and is unable to judge right from wrong, and comments are made inappropriately. if you would like more information pliease go to www.lbda.org, we didnt have to tdo that as dad was homebound and i had to explain to each person that he did things like that, well hugs, sharon m -- Daugher of Leonard, diag May 2004, had lbd since 1993, had hip surgery from fall 7/05, aspiration pneumonia 7/05 with pulmonary embolyis, had aspiration pneumonia and uti 8/05, died of blood pressure drop on 9/25/05, may he rest in peace with his mom and dad, a smile a day keeps the meanies away ---- Iward27663@... wrote: This does bother me Sharon M. Because my husband has a lot of shrinkage in the frontal Lobe. His apathy is from that. It can only get worse. Yes, that bothers me. I pray it doesn't. He has made one inappropriate comment to a Bank teller that bothered me and her. He may have thought it was me for a moment. Although I was not a teller, I worked in banks and behind the long counter. I know you have been deeply hurt, emotionally, and for that I sure am sorry. We don't expect our parents to do such horrible things, and treat us that way, and it is hard to always realize the dementia is speaking, when they seem perfectly lucid except for what they are saying, it is so out of character. Did he become violent? Some do. Imogene Caregiver for my True Texas Gentleman husband of 35 years. He has LBD with Parkinsonism. In a message dated 7/19/2006 2:11:30 PM Central Daylight Time, LadySmilingAtU2@... writes: april, this is strictly my opinion, but i think lbd and ftd are both awful, becuase many lbd'ers have the frontal part of the brain affected as well. dad had moderate shrinkage of the frontal lobe as well as mild brain shrinkage. the frontal part of the brain is the sexual inhibitions and tact part of the brain as i understand it. dad would treat me like a pimp would his whore. he would tell his friends for $100 sharon will do this and this to you. very embarassing adn at one point dad pulled 'it' out adn told me to suck this dry like you are sucking my money dry. i was very upset, donnie treid to talk to daddy but you know how hard it is to talk to lbd'ers about anything. these are memories i am trying hard to put to rest but they still haunt me. hugs, sharon m -- Daugher of Leonard, diag May 2004, had lbd since 1993, had hip surgery from fall 7/05, aspiration pneumonia 7/05 with pulmonary embolyis, had aspiration pneumonia and uti 8/05, died of blood pressure drop on 9/25/05, may he rest in peace with his mom and dad, a smile a day keeps the meanies away ---- aswest1021 wrote: Hi Imogene, What did you mean when you referred to as FTD is the monster of all dementias? Could something actually be worse then LBD? My FIL was told recently by an Emory neurologist that his problems are frontal lobe related. So, that dismisses his theory that my FIL has MSA. He is leaning towards a diagnosis of Lewy Body, but wants my FIL to be seen by a dementia specialist on Aug. 24th to firm up the diagnosis. I do remember the neurologist tapping on my FIL's forehead to see if he blinked and I don't think he did much blinking, at all. Is this indicative of something? April Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 You have really suffered from abuse. You have been left with deep scars from the kind of fighting you endured. I sure am sorry Sharon M. I love you and feel your love in everything you write to anyone on the list. Thank you for hanging in there with us, and helping all you can. Education is the key, and you are providing your story for that purpose. We need to hear it. My man hasn't gotten to that point yet, and he may not. I just hope not. Imogene Caregiver for my True Texas Gentleman husband of 35 years. He has LBD with Parkinsonism. In a message dated 7/20/2006 12:59:57 AM Central Daylight Time, LadySmilingAtU2@... writes: imogene, you can have business cards made up that say, i am sorry that my husband has offended you, he has Lewy Body Dementia, and is unable to judge right from wrong, and comments are made inappropriately. if you would like more information pliease go to www.lbda.org, we didnt have to tdo that as dad was homebound and i had to explain to each person that he did things like that, well hugs, sharon m Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 thank you so much imogene, your love now and the love and help/hope from others when all this went down helped me make it thru those times. it was weird tho, as dad only did that when donnie was not at home, and it was worse when he was visiting his family in tenn and i was left with daddy by myself. i would like to say i have put it all behind me but i would be lying, i try and most of the time i just remember the good times the giggle he had wehn the duck quacked old mcdonald etc. he would love that and he would love his kitten too, the hardest part with dad was he was a violent alcoholic and when he got in this ugly moods dr jekyyl mr hdye moods as i called htem sent me to flashbacks of the bad old days when i was growing up. so it was two-fold for me, a new hurt and renewing old hurt. my dad was a very unhappy man most of his life, he was married to my mom when neither one wanted to get married. and they both were pressured into it by their families. and when i came along 10 months later, my mom was not wanting to be a mom, and that caused more resentment all around. the family. that is why all were so shocked when i moved here to take care of dad. anyway, between the alcohol and the lbd he could be an eveil man, but then on non alcoholic and good lbd days he could be as good as gold. hugs, sharon m ps i pray that noone has to go thru the uglies like i did, esp you imogene, hugs -- Daugher of Leonard, diag May 2004, had lbd since 1993, had hip surgery from fall 7/05, aspiration pneumonia 7/05 with pulmonary embolyis, had aspiration pneumonia and uti 8/05, died of blood pressure drop on 9/25/05, may he rest in peace with his mom and dad, a smile a day keeps the meanies away ---- Iward27663@... wrote: You have really suffered from abuse. You have been left with deep scars from the kind of fighting you endured. I sure am sorry Sharon M. I love you and feel your love in everything you write to anyone on the list. Thank you for hanging in there with us, and helping all you can. Education is the key, and you are providing your story for that purpose. We need to hear it. My man hasn't gotten to that point yet, and he may not. I just hope not. Imogene Caregiver for my True Texas Gentleman husband of 35 years. He has LBD with Parkinsonism. In a message dated 7/20/2006 12:59:57 AM Central Daylight Time, LadySmilingAtU2@... writes: imogene, you can have business cards made up that say, i am sorry that my husband has offended you, he has Lewy Body Dementia, and is unable to judge right from wrong, and comments are made inappropriately. if you would like more information pliease go to www.lbda.org, we didnt have to tdo that as dad was homebound and i had to explain to each person that he did things like that, well hugs, sharon m Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.