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my deepest condolences. I am really sorry you have had to endure this

with your parents.

May you find a little peace knowing we understand ( I lost my father, too)

and care deeply.

Imogene

Caregiver for my True Texas Gentleman husband of 35 years. He has LBD with

Parkinsonism, and Frontal Lobe Disease with Apathy

In a message dated 5/17/2006 9:29:12 PM Central Daylight Time,

stim@... writes:

Not sure why I am posting this as FIL died of cancer. Mom has PDD, end of

life. Guess I

just needed to share a very difficult day with friends. He was given 1-2

days a week and a

half ago so it has been a very long week and a half with life in limbo.

We've known this

has been the prognosis for about 2 months. He fought the end of life, which

my mom so

wishes. Went from living with his wife in their own house at 88 and 85, to

dying in just

over 2 months, resisting his diagnosis to the end. My mom, at 92, 12 1/2

years into PDD

still lingers, to her chagrin. I am thankful his demise was so quick, even

though he did not

seem to come to terms with it. However, I so feel for Mom being stuck in

such a slow

demise.

, Oakville Ont.

Mom 92, 12 1/2 years " Parkinsons "

3 1/2 years ago LBD diagnosis, evident much longer in hindsight.

Encouraged to give up her licence 6 years ago.

Currently immobile, in tilt wheelchair, spoonfed pureed food. Spends most

of days behind

closed eyes.

Eltroxin, Tylenol 500 mg quid for pain on daily care, dressing and

undressing because of

rigidity.

Off Aricept since Feb./06

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I am sorry for your loss. It is a very difficult time for you and your

family. You are in my thoughts and prayers.

Your Toronto friend,

Kath

stimtimminss wrote:

Not sure why I am posting this as FIL died of cancer. Mom has PDD, end of

life. Guess I

just needed to share a very difficult day with friends. He was given 1-2 days a

week and a

half ago so it has been a very long week and a half with life in limbo. We've

known this

has been the prognosis for about 2 months. He fought the end of life, which my

mom so

wishes. Went from living with his wife in their own house at 88 and 85, to dying

in just

over 2 months, resisting his diagnosis to the end. My mom, at 92, 12 1/2 years

into PDD

still lingers, to her chagrin. I am thankful his demise was so quick, even

though he did not

seem to come to terms with it. However, I so feel for Mom being stuck in such a

slow

demise.

, Oakville Ont.

Mom 92, 12 1/2 years " Parkinsons "

3 1/2 years ago LBD diagnosis, evident much longer in hindsight.

Encouraged to give up her licence 6 years ago.

Currently immobile, in tilt wheelchair, spoonfed pureed food. Spends most of

days behind

closed eyes.

Eltroxin, Tylenol 500 mg quid for pain on daily care, dressing and undressing

because of

rigidity.

Off Aricept since Feb./06

Welcome to LBDcaregivers.

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- my deepest condolences to you and your family.

>

> Not sure why I am posting this as FIL died of cancer. Mom has PDD,

end of life. Guess I

> just needed to share a very difficult day with friends. He was

given 1-2 days a week and a

> half ago so it has been a very long week and a half with life in

limbo. We've known this

> has been the prognosis for about 2 months. He fought the end of

life, which my mom so

> wishes. Went from living with his wife in their own house at 88

and 85, to dying in just

> over 2 months, resisting his diagnosis to the end. My mom, at 92,

12 1/2 years into PDD

> still lingers, to her chagrin. I am thankful his demise was so

quick, even though he did not

> seem to come to terms with it. However, I so feel for Mom being

stuck in such a slow

> demise.

>

> , Oakville Ont.

>

> Mom 92, 12 1/2 years " Parkinsons "

> 3 1/2 years ago LBD diagnosis, evident much longer in hindsight.

> Encouraged to give up her licence 6 years ago.

> Currently immobile, in tilt wheelchair, spoonfed pureed food.

Spends most of days behind

> closed eyes.

> Eltroxin, Tylenol 500 mg quid for pain on daily care, dressing and

undressing because of

> rigidity.

> Off Aricept since Feb./06

>

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My condolences to you and your family.

, borough, ON

>

> Not sure why I am posting this as FIL died of cancer. Mom has PDD,

end of life. Guess I

> just needed to share a very difficult day with friends. He was

given 1-2 days a week and a

> half ago so it has been a very long week and a half with life in

limbo. We've known this

> has been the prognosis for about 2 months. He fought the end of

life, which my mom so

> wishes. Went from living with his wife in their own house at 88

and 85, to dying in just

> over 2 months, resisting his diagnosis to the end. My mom, at 92,

12 1/2 years into PDD

> still lingers, to her chagrin. I am thankful his demise was so

quick, even though he did not

> seem to come to terms with it. However, I so feel for Mom being

stuck in such a slow

> demise.

>

> , Oakville Ont.

>

> Mom 92, 12 1/2 years " Parkinsons "

> 3 1/2 years ago LBD diagnosis, evident much longer in hindsight.

> Encouraged to give up her licence 6 years ago.

> Currently immobile, in tilt wheelchair, spoonfed pureed food.

Spends most of days behind

> closed eyes.

> Eltroxin, Tylenol 500 mg quid for pain on daily care, dressing and

undressing because of

> rigidity.

> Off Aricept since Feb./06

>

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Sending our condolences in the passing of your FIL.

Our thoughts and prayers will be with you in the days

to come.

Hugs-

Sandie and

Des Moines, IA

-- FIL died today

Not sure why I am posting this as FIL died of cancer. Mom has PDD, end of

life. Guess I

just needed to share a very difficult day with friends. He was given 1-2

days a week and a

half ago so it has been a very long week and a half with life in limbo. We

ve known this

has been the prognosis for about 2 months. He fought the end of life, which

my mom so

wishes. Went from living with his wife in their own house at 88 and 85, to

dying in just

over 2 months, resisting his diagnosis to the end. My mom, at 92, 12 1/2

years into PDD

still lingers, to her chagrin. I am thankful his demise was so quick, even

though he did not

seem to come to terms with it. However, I so feel for Mom being stuck in

such a slow

demise.

, Oakville Ont.

Mom 92, 12 1/2 years " Parkinsons "

3 1/2 years ago LBD diagnosis, evident much longer in hindsight.

Encouraged to give up her licence 6 years ago.

Currently immobile, in tilt wheelchair, spoonfed pureed food. Spends most

of days behind

closed eyes.

Eltroxin, Tylenol 500 mg quid for pain on daily care, dressing and

undressing because of

rigidity.

Off Aricept since Feb./06

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,

My heart goes out to you and your family for the loss of your FIL.

May you find peace and comfort in the days ahead.

God Bless,

April

>

> Not sure why I am posting this as FIL died of cancer. Mom has

PDD, end of life. Guess I

> just needed to share a very difficult day with friends. He was

given 1-2 days a week and a

> half ago so it has been a very long week and a half with life in

limbo. We've known this

> has been the prognosis for about 2 months. He fought the end of

life, which my mom so

> wishes. Went from living with his wife in their own house at 88

and 85, to dying in just

> over 2 months, resisting his diagnosis to the end. My mom, at 92,

12 1/2 years into PDD

> still lingers, to her chagrin. I am thankful his demise was so

quick, even though he did not

> seem to come to terms with it. However, I so feel for Mom being

stuck in such a slow

> demise.

>

> , Oakville Ont.

>

> Mom 92, 12 1/2 years " Parkinsons "

> 3 1/2 years ago LBD diagnosis, evident much longer in hindsight.

> Encouraged to give up her licence 6 years ago.

> Currently immobile, in tilt wheelchair, spoonfed pureed food.

Spends most of days behind

> closed eyes.

> Eltroxin, Tylenol 500 mg quid for pain on daily care, dressing and

undressing because of

> rigidity.

> Off Aricept since Feb./06

>

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Dear ,

I can't remember where I left off when I got so busy with Mr. B but I

found this email and want to send you my condolences for the passing

of your FIL. I knew you had mentioned that he was not doing very

well and now he is at Peace.

As I watch Mr. B struggle, on and off, to " stay here " I think of your

Mom and wonder what she is thinking? This is such a strange disease

and there seems to be no rhyme or reason to it. I wish her the best

comfort and hope that you are doing well too.

Much love, prayers and Peace, Stevie

* * * * *

>

> Not sure why I am posting this as FIL died of cancer. Mom has PDD,

end of life. Guess I

> just needed to share a very difficult day with friends. He was

given 1-2 days a week and a

> half ago so it has been a very long week and a half with life in

limbo. We've known this

> has been the prognosis for about 2 months. He fought the end of

life, which my mom so

> wishes. Went from living with his wife in their own house at 88

and 85, to dying in just

> over 2 months, resisting his diagnosis to the end. My mom, at 92,

12 1/2 years into PDD

> still lingers, to her chagrin. I am thankful his demise was so

quick, even though he did not

> seem to come to terms with it. However, I so feel for Mom being

stuck in such a slow

> demise.

>

> , Oakville Ont.

>

> Mom 92, 12 1/2 years " Parkinsons "

> 3 1/2 years ago LBD diagnosis, evident much longer in hindsight.

> Encouraged to give up her licence 6 years ago.

> Currently immobile, in tilt wheelchair, spoonfed pureed food.

Spends most of days behind

> closed eyes.

> Eltroxin, Tylenol 500 mg quid for pain on daily care, dressing and

undressing because of

> rigidity.

> Off Aricept since Feb./06

>

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i am so sorry for the loss of your fil, i have been out of town and now trying

to catch up on emails, take care ofhyourself, hugs, sharon

--

Daugher of Leonard, diag May 2004, had lbd since 1993, had hip surgery from fall

7/05, aspiration pneumonia 7/05 with pulmonary embolyis, had aspiration

pneumonia and uti 8/05, died of blood pressure drop on 9/25/05,

may he rest in peace with his mom and dad,

a smile a day keeps the meanies away

---- stimtimminss wrote:

Not sure why I am posting this as FIL died of cancer. Mom has PDD, end of life.

Guess I

just needed to share a very difficult day with friends. He was given 1-2 days a

week and a

half ago so it has been a very long week and a half with life in limbo. We've

known this

has been the prognosis for about 2 months. He fought the end of life, which my

mom so

wishes. Went from living with his wife in their own house at 88 and 85, to

dying in just

over 2 months, resisting his diagnosis to the end. My mom, at 92, 12 1/2 years

into PDD

still lingers, to her chagrin. I am thankful his demise was so quick, even

though he did not

seem to come to terms with it. However, I so feel for Mom being stuck in such a

slow

demise.

, Oakville Ont.

Mom 92, 12 1/2 years " Parkinsons "

3 1/2 years ago LBD diagnosis, evident much longer in hindsight.

Encouraged to give up her licence 6 years ago.

Currently immobile, in tilt wheelchair, spoonfed pureed food. Spends most of

days behind

closed eyes.

Eltroxin, Tylenol 500 mg quid for pain on daily care, dressing and undressing

because of

rigidity.

Off Aricept since Feb./06

Welcome to LBDcaregivers.

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