Re: legitimacy of LBD Association

[Guest guest]

Dear Judith,

Please accept my sincere condolences on the loss of your husband. You are

so right that LBD is a horrible disease. I know you miss your Rolf, but he is

at peace now. As far as the LBD Association goes, yes we have heard of it,

and it is very legitimate. Several of the members of this caregiver group

are responsible for the formation of the LBD Association, and involved in the

day to day operation of the Association. My father just passed away in March,

and donations were made to the LBD Association in his honor. It is a

wonderful cause, and the donations are greatly appreciated. You will be in my

thoughts and prayers.

Hugs,

Piper

[Guest guest]

Judith,

Sending you my heartfelt condolences.

Courage

[Guest guest]

Dear Judith,,,,, I am so sorry about the passing of your loved one , we all

know he's in a better place your good care is over now your have to take

care of yourself , its a hard road to travel and you did it well , Bless

you and your family..... Eileen Canada

-- legitimacy of LBD Association

My husband, 84, died yesterday from LBD and I would like my friends

and relatives to donate to an organization called Lewy Body Dementia

Association, Inc. Has anyone heard of this charity?

My husband, Rolf, had LBD for at least 5 years, perhaps more. He

was a very strong willed person and most of the time he was in

denial. It all started with mild Parkinson symptoms and gradually,

but steady got worse. It really snowballed last July and he got

sick and was taken to our local hospital and transferred to a

nursing home where he received excellent care. It is a horrible

disease and only my love for my husband kept me going, but it almost

mentally and physically killed me. I wrote maybe in 2005 and since

then I have been reading the messages from others going through the

unbelievable stages of this disease. I somehow prevailed and so

will all of you. Death would be the only relief for my Rolf, but

now even though he really left me so long ago, I need to realize he

is really gone.

I pray all of you caregivers find the strength to go on when moments

will come when you will feel so hopeless and not know what to do.

You all should feel proud of yourselves because you get no reward in

return. Your love for your LBD patient keeps you going and I know I

hope I can get some of the images out of my mind from the past years

and remember the Rolf I married 36 years.

Good luck to you all,

Judith

Welcome to LBDcaregivers.

[Guest guest]

Judith, I am truly sorry for your loss. And, at the same time for your loss

of good health in caring for your loved one for so long. Please do try to let

go and relax if possible.

Here is the site you were Inquiring about. Donna R. always has the LBD site

listed at the end of her letters, but this site will take you directly to the

Donation site.

_http://www.lewybodydementia.org/donation.shtml_

(http://www.lewybodydementia.org/donation.shtml)

Imogene

Caregiver for my True Texas Gentleman husband of 35 years. He has LBD and

Parkinsonism

In a message dated 5/3/2006 2:35:51 PM Central Daylight Time,

judith_s@... writes:

My husband, 84, died yesterday from LBD and I would like my friends

and relatives to donate to an organization called Lewy Body Dementia

Association, Inc. Has anyone heard of this charity?

My husband, Rolf, had LBD for at least 5 years, perhaps more. He

was a very strong willed person and most of the time he was in

denial. It all started with mild Parkinson symptoms and gradually,

but steady got worse. It really snowballed last July and he got

sick and was taken to our local hospital and transferred to a

nursing home where he received excellent care. It is a horrible

disease and only my love for my husband kept me going, but it almost

mentally and physically killed me. I wrote maybe in 2005 and since

then I have been reading the messages from others going through the

unbelievable stages of this disease. I somehow prevailed and so

will all of you. Death would be the only relief for my Rolf, but

now even though he really left me so long ago, I need to realize he

is really gone.

I pray all of you caregivers find the strength to go on when moments

will come when you will feel so hopeless and not know what to do.

You all should feel proud of yourselves because you get no reward in

return. Your love for your LBD patient keeps you going and I know I

hope I can get some of the images out of my mind from the past years

and remember the Rolf I married 36 years.

Good luck to you all,

Judith

Welcome to LBDcaregivers.

[Guest guest]

Judith: Please accept my deepest sympathies. You are right, Rolf is o.k. It is

we who are left that suffer, but we have good memories. Concentrate on those.

Myrna (68) in Missouri

Caregiver for Husband Jerry (70)

Diagnosed AD 1997, LBD 2004

[Guest guest]

Dear Judith,

I send my most heartfelt condolences to you for the passing of

your dear husband. And I thank you for the prayer of strength for

those of us who will follow on the same path as you.

Many Prayers, Love and Peace to help you get through this most

difficult time, Stevie in California

* * * * * *

>

> My husband, 84, died yesterday from LBD and I would like my friends

> and relatives to donate to an organization called Lewy Body

Dementia

> Association, Inc. Has anyone heard of this charity?

>

> My husband, Rolf, had LBD for at least 5 years, perhaps more. He

> was a very strong willed person and most of the time he was in

> denial. It all started with mild Parkinson symptoms and gradually,

> but steady got worse. It really snowballed last July and he got

> sick and was taken to our local hospital and transferred to a

> nursing home where he received excellent care. It is a horrible

> disease and only my love for my husband kept me going, but it

almost

> mentally and physically killed me. I wrote maybe in 2005 and since

> then I have been reading the messages from others going through the

> unbelievable stages of this disease. I somehow prevailed and so

> will all of you. Death would be the only relief for my Rolf, but

> now even though he really left me so long ago, I need to realize he

> is really gone.

>

> I pray all of you caregivers find the strength to go on when

moments

> will come when you will feel so hopeless and not know what to do.

> You all should feel proud of yourselves because you get no reward

in

> return. Your love for your LBD patient keeps you going and I know

I

> hope I can get some of the images out of my mind from the past

years

> and remember the Rolf I married 36 years.

>

> Good luck to you all,

>

> Judith

>

[Guest guest]

Judith - my deepest condolences to you during this difficult time.

>

> My husband, 84, died yesterday from LBD and I would like my friends

> and relatives to donate to an organization called Lewy Body

Dementia

> Association, Inc. Has anyone heard of this charity?

>

> My husband, Rolf, had LBD for at least 5 years, perhaps more. He

> was a very strong willed person and most of the time he was in

> denial. It all started with mild Parkinson symptoms and gradually,

> but steady got worse. It really snowballed last July and he got

> sick and was taken to our local hospital and transferred to a

> nursing home where he received excellent care. It is a horrible

> disease and only my love for my husband kept me going, but it

almost

> mentally and physically killed me. I wrote maybe in 2005 and since

> then I have been reading the messages from others going through the

> unbelievable stages of this disease. I somehow prevailed and so

> will all of you. Death would be the only relief for my Rolf, but

> now even though he really left me so long ago, I need to realize he

> is really gone.

>

> I pray all of you caregivers find the strength to go on when

moments

> will come when you will feel so hopeless and not know what to do.

> You all should feel proud of yourselves because you get no reward

in

> return. Your love for your LBD patient keeps you going and I know

I

> hope I can get some of the images out of my mind from the past

years

> and remember the Rolf I married 36 years.

>

> Good luck to you all,

>

> Judith

>

[Guest guest]

Judith

My condolences to you. May your good memories sustain you.

, borough, ON

>

> My husband, 84, died yesterday from LBD and I would like my friends

> and relatives to donate to an organization called Lewy Body

Dementia

> Association, Inc. Has anyone heard of this charity?

>

> My husband, Rolf, had LBD for at least 5 years, perhaps more. He

> was a very strong willed person and most of the time he was in

> denial. It all started with mild Parkinson symptoms and gradually,

> but steady got worse. It really snowballed last July and he got

> sick and was taken to our local hospital and transferred to a

> nursing home where he received excellent care. It is a horrible

> disease and only my love for my husband kept me going, but it

almost

> mentally and physically killed me. I wrote maybe in 2005 and since

> then I have been reading the messages from others going through the

> unbelievable stages of this disease. I somehow prevailed and so

> will all of you. Death would be the only relief for my Rolf, but

> now even though he really left me so long ago, I need to realize he

> is really gone.

>

> I pray all of you caregivers find the strength to go on when

moments

> will come when you will feel so hopeless and not know what to do.

> You all should feel proud of yourselves because you get no reward

in

> return. Your love for your LBD patient keeps you going and I know

I

> hope I can get some of the images out of my mind from the past

years

> and remember the Rolf I married 36 years.

>

> Good luck to you all,

>

> Judith

>

[Guest guest]

Hi Judith

My heartfelt condolences to you. Just knowing that

Rolf is in a better place and free from this disease

will hopefully help you deal with your loss. God

Bless. Dena

--- judith5s wrote:

> My husband, 84, died yesterday from LBD and I would

> like my friends

> and relatives to donate to an organization called

> Lewy Body Dementia

> Association, Inc. Has anyone heard of this charity?

>

> My husband, Rolf, had LBD for at least 5 years,

> perhaps more. He

> was a very strong willed person and most of the time

> he was in

> denial. It all started with mild Parkinson symptoms

> and gradually,

> but steady got worse. It really snowballed last

> July and he got

> sick and was taken to our local hospital and

> transferred to a

> nursing home where he received excellent care. It

> is a horrible

> disease and only my love for my husband kept me

> going, but it almost

> mentally and physically killed me. I wrote maybe in

> 2005 and since

> then I have been reading the messages from others

> going through the

> unbelievable stages of this disease. I somehow

> prevailed and so

> will all of you. Death would be the only relief for

> my Rolf, but

> now even though he really left me so long ago, I

> need to realize he

> is really gone.

>

> I pray all of you caregivers find the strength to go

> on when moments

> will come when you will feel so hopeless and not

> know what to do.

> You all should feel proud of yourselves because you

> get no reward in

> return. Your love for your LBD patient keeps you

> going and I know I

> hope I can get some of the images out of my mind

> from the past years

> and remember the Rolf I married 36 years.

>

> Good luck to you all,

>

> Judith

>

>

>

>

__________________________________________________

[Guest guest]

Judith, i am so sorry that Rolf has passed. although i hope you belive as i that

our loved ones become our personal guardian angels. i am glad that he is no

longer suffreing as lbd is very ugly disesase.

as for the LBDA. yes it is a very legitamate organization that was started by

several of the early members to help everyone learn about lbd. i have had the

pleasure of meeting 2 of its founders, peggy smith and jim whitworth, and when

my dad passed in leiu of flowers i had donations made to lbda as well. i am

glad that we did so. as maybe their donations will help more people learn about

lbd and there is also a scientific board on lbda as well, with scientists and

doctors trying to learn about lbd as much as possible so they can help patients

have a more productive lives.

again, take care, and my thoughts and prayers are with yuou hugs, sharon m

pensacola florida

--

Daugher of Leonard, diag May 2004, had lbd since 1993, had hip surgery from fall

7/05, aspiration pneumonia 7/05 with pulmonary embolyis, had aspiration

pneumonia and uti 8/05, died of blood pressure drop on 9/25/05,

may he rest in peace with his mom and dad,

a smile a day keeps the meanies away

---- judith5s wrote:

My husband, 84, died yesterday from LBD and I would like my friends

and relatives to donate to an organization called Lewy Body Dementia

Association, Inc. Has anyone heard of this charity?

My husband, Rolf, had LBD for at least 5 years, perhaps more. He

was a very strong willed person and most of the time he was in

denial. It all started with mild Parkinson symptoms and gradually,

but steady got worse. It really snowballed last July and he got

sick and was taken to our local hospital and transferred to a

nursing home where he received excellent care. It is a horrible

disease and only my love for my husband kept me going, but it almost

mentally and physically killed me. I wrote maybe in 2005 and since

then I have been reading the messages from others going through the

unbelievable stages of this disease. I somehow prevailed and so

will all of you. Death would be the only relief for my Rolf, but

now even though he really left me so long ago, I need to realize he

is really gone.

I pray all of you caregivers find the strength to go on when moments

will come when you will feel so hopeless and not know what to do.

You all should feel proud of yourselves because you get no reward in

return. Your love for your LBD patient keeps you going and I know I

hope I can get some of the images out of my mind from the past years

and remember the Rolf I married 36 years.

Good luck to you all,

Judith

Welcome to LBDcaregivers.