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Re: Jim going to nh

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Jan, I am sorry. And, I know you are tired. This is what I was concerned

about, is my husband swinging, and hurting me. The doctor said, " well he isn't

doing it on purpose it is the disease. " I know that. But, I still don't want

to get hurt. That is when my LO goes to a NH, too.

Imogene

In a message dated 5/4/2006 12:32:59 AM Central Daylight Time,

janetcolello@... writes:

Hi, Early this morning about 4:30AM, Wednesday, Jim

woke up soaking wet and removed his clothes. Of

course, he had the wet clothes on the sheets and I

needed to change him and the bedding. He was very

combative hitting and swinging at me and kicking at

me. I could get no where near him or the bed to change

them. This continued for quite a few minutes, so I

called the paramedics to come and take him to the ER.

When he checked into the ER he was hitting and

swinging at the nurses and it took 4 of them to

restrain him. They had to put him in a jacket and tie

it to the bed, so his arms wouldn't be able to swing.

I told them I was glad to see the restraints instead

of the Haldol. And the doctor said, " oh we got the

message, it's written all over the charts not to give

him Haldol or Ativan. So it has finally worked for

them to get the word on that. When I returned back to

the hospital after checking out all the nh around 4PM,

two nurses thought Jim would like to sit up for a

change and released the straps holding his arms down

and right away he is swinging and hitting at them

again, so they had to bring in others to strap him

down again, when I left at 8PM, he was still in the

restraints.

Since Jim was there I spoke to a social worker and she

gave me a list of MediCal nh that have the doctor's

from my husband's health provider. From 9:30AM - 4PM I

visited everyone of those facilities, because my

number one pick that I chose from last year had no

rooms available, so I had to pick a back up #2. I

found one that seems nice and does have a semi private

room, so Jim is going to be transfered there tomorrow

and I will keep him there until my #1 choice for Jim

has an opening and then transfer him to that one.

Thing is they kept Jim over night tonight in ER,

because he is combative and no nh wants him, so they

have to adjust his medications at the hospital and get

him calmed down and possibly tomorrow, he will be in a

nh.

I am trying to be strong. I have such a nervous

stomach about all this, but it is time for Jim to be

in a facility. I can not help him when he is

combative.

I was going to do all this in the summer, but since

the hospital can transfer him and get everything in

order, I decided to do it now.

I will let you know tomorrow what is happening. Jan

__________________________________________________

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Dear Jan,

I am so sorry to hear about Jim, but I know it is a good thing that you will

finally be getting some help. I am praying for you and Jim, and hoping that

he settles down. I am hopeful he will settle into his new place, and things

will be better for both of you. You will be in my thoughts.

Love and hugs,

Piper

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Guest guest

Oh Jan,

My heart goes out to you. You have been there for Jim 24/7 through all these

years. You

have done the right thing for both of you during this crisis. No one could have

done more

than you have done. I am sure many tears are being shed, but keep in mind the

fact that

now someone else can deal with his behaviours while hopefully you get to spend

more

positive time with him. I wish I could give you a big bear hug in person.

-- In LBDcaregivers , Janet Colello wrote:

>

> Hi, Early this morning about 4:30AM, Wednesday, Jim

> woke up soaking wet and removed his clothes. Of

> course, he had the wet clothes on the sheets and I

> needed to change him and the bedding. He was very

> combative hitting and swinging at me and kicking at

> me. I could get no where near him or the bed to change

> them. This continued for quite a few minutes, so I

> called the paramedics to come and take him to the ER.

> When he checked into the ER he was hitting and

> swinging at the nurses and it took 4 of them to

> restrain him. They had to put him in a jacket and tie

> it to the bed, so his arms wouldn't be able to swing.

> I told them I was glad to see the restraints instead

> of the Haldol. And the doctor said, " oh we got the

> message, it's written all over the charts not to give

> him Haldol or Ativan. So it has finally worked for

> them to get the word on that. When I returned back to

> the hospital after checking out all the nh around 4PM,

> two nurses thought Jim would like to sit up for a

> change and released the straps holding his arms down

> and right away he is swinging and hitting at them

> again, so they had to bring in others to strap him

> down again, when I left at 8PM, he was still in the

> restraints.

> Since Jim was there I spoke to a social worker and she

> gave me a list of MediCal nh that have the doctor's

> from my husband's health provider. From 9:30AM - 4PM I

> visited everyone of those facilities, because my

> number one pick that I chose from last year had no

> rooms available, so I had to pick a back up #2. I

> found one that seems nice and does have a semi private

> room, so Jim is going to be transfered there tomorrow

> and I will keep him there until my #1 choice for Jim

> has an opening and then transfer him to that one.

> Thing is they kept Jim over night tonight in ER,

> because he is combative and no nh wants him, so they

> have to adjust his medications at the hospital and get

> him calmed down and possibly tomorrow, he will be in a

> nh.

> I am trying to be strong. I have such a nervous

> stomach about all this, but it is time for Jim to be

> in a facility. I can not help him when he is

> combative.

> I was going to do all this in the summer, but since

> the hospital can transfer him and get everything in

> order, I decided to do it now.

> I will let you know tomorrow what is happening. Jan

>

> __________________________________________________

>

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Hi Jan

I am glad that you are finally going to get help with Jim. I know

you did a great job with him at home this long. This will be a new

part of the journey to adapt to. Get some much needed rest. Now you

can be the one who gets to have the fun with Jim!

, borough, ON

cg to MIL

>

> Hi, Early this morning about 4:30AM, Wednesday, Jim

> woke up soaking wet and removed his clothes. Of

> course, he had the wet clothes on the sheets and I

> needed to change him and the bedding. He was very

> combative hitting and swinging at me and kicking at

> me. I could get no where near him or the bed to change

> them. This continued for quite a few minutes, so I

> called the paramedics to come and take him to the ER.

> When he checked into the ER he was hitting and

> swinging at the nurses and it took 4 of them to

> restrain him. They had to put him in a jacket and tie

> it to the bed, so his arms wouldn't be able to swing.

> I told them I was glad to see the restraints instead

> of the Haldol. And the doctor said, " oh we got the

> message, it's written all over the charts not to give

> him Haldol or Ativan. So it has finally worked for

> them to get the word on that. When I returned back to

> the hospital after checking out all the nh around 4PM,

> two nurses thought Jim would like to sit up for a

> change and released the straps holding his arms down

> and right away he is swinging and hitting at them

> again, so they had to bring in others to strap him

> down again, when I left at 8PM, he was still in the

> restraints.

> Since Jim was there I spoke to a social worker and she

> gave me a list of MediCal nh that have the doctor's

> from my husband's health provider. From 9:30AM - 4PM I

> visited everyone of those facilities, because my

> number one pick that I chose from last year had no

> rooms available, so I had to pick a back up #2. I

> found one that seems nice and does have a semi private

> room, so Jim is going to be transfered there tomorrow

> and I will keep him there until my #1 choice for Jim

> has an opening and then transfer him to that one.

> Thing is they kept Jim over night tonight in ER,

> because he is combative and no nh wants him, so they

> have to adjust his medications at the hospital and get

> him calmed down and possibly tomorrow, he will be in a

> nh.

> I am trying to be strong. I have such a nervous

> stomach about all this, but it is time for Jim to be

> in a facility. I can not help him when he is

> combative.

> I was going to do all this in the summer, but since

> the hospital can transfer him and get everything in

> order, I decided to do it now.

> I will let you know tomorrow what is happening. Jan

>

> __________________________________________________

>

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Guest guest

Hi Jan... I know how you feeling my husband was taken from the hospital to

a nursing home also as he has a bad temper , they make they decided he go

to a NH the way he was acting, its been over a year and he still acting

up as now he was moved to the retiring side and still wants out , its so

hard on all of us , GOD bless all you have done for him , now start taking

care of Jan ok love Eileen Canada

-- Re: Jim going to nh

Hi Jan

I am glad that you are finally going to get help with Jim. I know

you did a great job with him at home this long. This will be a new

part of the journey to adapt to. Get some much needed rest. Now you

can be the one who gets to have the fun with Jim!

, borough, ON

cg to MIL

>

> Hi, Early this morning about 4:30AM, Wednesday, Jim

> woke up soaking wet and removed his clothes. Of

> course, he had the wet clothes on the sheets and I

> needed to change him and the bedding. He was very

> combative hitting and swinging at me and kicking at

> me. I could get no where near him or the bed to change

> them. This continued for quite a few minutes, so I

> called the paramedics to come and take him to the ER.

> When he checked into the ER he was hitting and

> swinging at the nurses and it took 4 of them to

> restrain him. They had to put him in a jacket and tie

> it to the bed, so his arms wouldn't be able to swing.

> I told them I was glad to see the restraints instead

> of the Haldol. And the doctor said, " oh we got the

> message, it's written all over the charts not to give

> him Haldol or Ativan. So it has finally worked for

> them to get the word on that. When I returned back to

> the hospital after checking out all the nh around 4PM,

> two nurses thought Jim would like to sit up for a

> change and released the straps holding his arms down

> and right away he is swinging and hitting at them

> again, so they had to bring in others to strap him

> down again, when I left at 8PM, he was still in the

> restraints.

> Since Jim was there I spoke to a social worker and she

> gave me a list of MediCal nh that have the doctor's

> from my husband's health provider. From 9:30AM - 4PM I

> visited everyone of those facilities, because my

> number one pick that I chose from last year had no

> rooms available, so I had to pick a back up #2. I

> found one that seems nice and does have a semi private

> room, so Jim is going to be transfered there tomorrow

> and I will keep him there until my #1 choice for Jim

> has an opening and then transfer him to that one.

> Thing is they kept Jim over night tonight in ER,

> because he is combative and no nh wants him, so they

> have to adjust his medications at the hospital and get

> him calmed down and possibly tomorrow, he will be in a

> nh.

> I am trying to be strong. I have such a nervous

> stomach about all this, but it is time for Jim to be

> in a facility. I can not help him when he is

> combative.

> I was going to do all this in the summer, but since

> the hospital can transfer him and get everything in

> order, I decided to do it now.

> I will let you know tomorrow what is happening. Jan

>

> __________________________________________________

>

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Guest guest

Jan,

My heart is breaking for what you're going through right now. I

know it is far from easy. I so admire you because you're not afraid

to admit that the time has come for your husband to go into a

nursing home. You know that you can't do it on your own anymore and

that takes a tremendous amount of courage. I wish you strength,

peace, and comfort to face whatever lies before you. Please know

that you are in the thoughts and prayers of so many of us here.

Continue to keep us posted, and always remember...you are not alone.

Hugs and best wishes,

April

>

> Hi, Early this morning about 4:30AM, Wednesday, Jim

> woke up soaking wet and removed his clothes. Of

> course, he had the wet clothes on the sheets and I

> needed to change him and the bedding. He was very

> combative hitting and swinging at me and kicking at

> me. I could get no where near him or the bed to change

> them. This continued for quite a few minutes, so I

> called the paramedics to come and take him to the ER.

> When he checked into the ER he was hitting and

> swinging at the nurses and it took 4 of them to

> restrain him. They had to put him in a jacket and tie

> it to the bed, so his arms wouldn't be able to swing.

> I told them I was glad to see the restraints instead

> of the Haldol. And the doctor said, " oh we got the

> message, it's written all over the charts not to give

> him Haldol or Ativan. So it has finally worked for

> them to get the word on that. When I returned back to

> the hospital after checking out all the nh around 4PM,

> two nurses thought Jim would like to sit up for a

> change and released the straps holding his arms down

> and right away he is swinging and hitting at them

> again, so they had to bring in others to strap him

> down again, when I left at 8PM, he was still in the

> restraints.

> Since Jim was there I spoke to a social worker and she

> gave me a list of MediCal nh that have the doctor's

> from my husband's health provider. From 9:30AM - 4PM I

> visited everyone of those facilities, because my

> number one pick that I chose from last year had no

> rooms available, so I had to pick a back up #2. I

> found one that seems nice and does have a semi private

> room, so Jim is going to be transfered there tomorrow

> and I will keep him there until my #1 choice for Jim

> has an opening and then transfer him to that one.

> Thing is they kept Jim over night tonight in ER,

> because he is combative and no nh wants him, so they

> have to adjust his medications at the hospital and get

> him calmed down and possibly tomorrow, he will be in a

> nh.

> I am trying to be strong. I have such a nervous

> stomach about all this, but it is time for Jim to be

> in a facility. I can not help him when he is

> combative.

> I was going to do all this in the summer, but since

> the hospital can transfer him and get everything in

> order, I decided to do it now.

> I will let you know tomorrow what is happening. Jan

>

> __________________________________________________

>

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Guest guest

Hi Jan,

I'm really feeling it for you.

You have been such a wonderful wife to Jim and you should take great

pride and comfort in that. You have done your share and then some.

In time, I hope that you and Jim will adjust to the new living

arrangement. We too had mom in our second pick for a NH for over a year

and then we finally got a spot at our number one pick. It was worth the

wait but by this time mom was too far advanced to really take in her new

surroundings.

There is nothing wrong with seeking help for our loved ones. Once a

relationship is established with the staff and if this is a good NH you

will feel less anxious about Jim being there and perhaps even get some

time for yourself. Sending you strength and a huge hug.

Courage

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Guest guest

Jan,

Even though you knew this was going to happen one can not be prepared for

this. It is truely the beginning of the end. You will not be free until Jim

is free. There is always guilt even though you cannot feel guilty as you

have done a great job alone. Even though I had great help and support from

my four children I do not think I could have dealt with such a long time of

ones constantly needing watching the decline of one you love. The hardest

part is trying to remember the good times ......that will come. I am just

now having dreams of many of the good times and funny things we did in 52

years. Now begin to think of what you will have to do in the future.

Hang in there!!!

Simmel

>

>Reply-To: LBDcaregivers

>To: " LBDcaregivers " <LBDcaregivers >

>Subject: Jim going to nh

>Date: Wed, 3 May 2006 22:31:11 -0700 (PDT)

>

>Hi, Early this morning about 4:30AM, Wednesday, Jim

>woke up soaking wet and removed his clothes. Of

>course, he had the wet clothes on the sheets and I

>needed to change him and the bedding. He was very

>combative hitting and swinging at me and kicking at

>me. I could get no where near him or the bed to change

>them. This continued for quite a few minutes, so I

>called the paramedics to come and take him to the ER.

>When he checked into the ER he was hitting and

>swinging at the nurses and it took 4 of them to

>restrain him. They had to put him in a jacket and tie

>it to the bed, so his arms wouldn't be able to swing.

>I told them I was glad to see the restraints instead

>of the Haldol. And the doctor said, " oh we got the

>message, it's written all over the charts not to give

>him Haldol or Ativan. So it has finally worked for

>them to get the word on that. When I returned back to

>the hospital after checking out all the nh around 4PM,

>two nurses thought Jim would like to sit up for a

>change and released the straps holding his arms down

>and right away he is swinging and hitting at them

>again, so they had to bring in others to strap him

>down again, when I left at 8PM, he was still in the

>restraints.

>Since Jim was there I spoke to a social worker and she

>gave me a list of MediCal nh that have the doctor's

>from my husband's health provider. From 9:30AM - 4PM I

>visited everyone of those facilities, because my

>number one pick that I chose from last year had no

>rooms available, so I had to pick a back up #2. I

>found one that seems nice and does have a semi private

>room, so Jim is going to be transfered there tomorrow

>and I will keep him there until my #1 choice for Jim

>has an opening and then transfer him to that one.

>Thing is they kept Jim over night tonight in ER,

>because he is combative and no nh wants him, so they

>have to adjust his medications at the hospital and get

>him calmed down and possibly tomorrow, he will be in a

>nh.

>I am trying to be strong. I have such a nervous

>stomach about all this, but it is time for Jim to be

>in a facility. I can not help him when he is

>combative.

>I was going to do all this in the summer, but since

>the hospital can transfer him and get everything in

>order, I decided to do it now.

>I will let you know tomorrow what is happening. Jan

>

>__________________________________________________

>

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Dear Jan

I will definitely keep you in my prayers. I know how

hard it is to place your loved one in a NH. I just did

that with my mom in March. Remember, Jan, you have

been the best caregiver anyone could have ever wanted

and I know you will continue to do just that as he

enters the NH. Your job isn't over. I will be praying

that your #1 choice has an opening very soon. It is a

gut wrenching experience, but you can do it. Take

care, Kiddo. We are all here for you. Dena

--- Janet Colello wrote:

> Hi, Early this morning about 4:30AM, Wednesday, Jim

> woke up soaking wet and removed his clothes. Of

> course, he had the wet clothes on the sheets and I

> needed to change him and the bedding. He was very

> combative hitting and swinging at me and kicking at

> me. I could get no where near him or the bed to

> change

> them. This continued for quite a few minutes, so I

> called the paramedics to come and take him to the

> ER.

> When he checked into the ER he was hitting and

> swinging at the nurses and it took 4 of them to

> restrain him. They had to put him in a jacket and

> tie

> it to the bed, so his arms wouldn't be able to

> swing.

> I told them I was glad to see the restraints instead

> of the Haldol. And the doctor said, " oh we got the

> message, it's written all over the charts not to

> give

> him Haldol or Ativan. So it has finally worked for

> them to get the word on that. When I returned back

> to

> the hospital after checking out all the nh around

> 4PM,

> two nurses thought Jim would like to sit up for a

> change and released the straps holding his arms down

> and right away he is swinging and hitting at them

> again, so they had to bring in others to strap him

> down again, when I left at 8PM, he was still in the

> restraints.

> Since Jim was there I spoke to a social worker and

> she

> gave me a list of MediCal nh that have the doctor's

> from my husband's health provider. From 9:30AM - 4PM

> I

> visited everyone of those facilities, because my

> number one pick that I chose from last year had no

> rooms available, so I had to pick a back up #2. I

> found one that seems nice and does have a semi

> private

> room, so Jim is going to be transfered there

> tomorrow

> and I will keep him there until my #1 choice for Jim

> has an opening and then transfer him to that one.

> Thing is they kept Jim over night tonight in ER,

> because he is combative and no nh wants him, so they

> have to adjust his medications at the hospital and

> get

> him calmed down and possibly tomorrow, he will be in

> a

> nh.

> I am trying to be strong. I have such a nervous

> stomach about all this, but it is time for Jim to be

> in a facility. I can not help him when he is

> combative.

> I was going to do all this in the summer, but since

> the hospital can transfer him and get everything in

> order, I decided to do it now.

> I will let you know tomorrow what is happening. Jan

>

> __________________________________________________

>

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Janet-

I feel so bad for both you and Jim. You did the right thing placing Jim in the

NH. I don't think you could go on much longer the way things are now. My

prayers and thoughts are with you.

Gerry

Wilmington, De.

Daughter & caregiver of Dick Deverell who passed away 9/11/05 after more than a

4 yr. battle with LBD.

Jim going to nh

Hi, Early this morning about 4:30AM, Wednesday, Jim

woke up soaking wet and removed his clothes. Of

course, he had the wet clothes on the sheets and I

needed to change him and the bedding. He was very

combative hitting and swinging at me and kicking at

me. I could get no where near him or the bed to change

them. This continued for quite a few minutes, so I

called the paramedics to come and take him to the ER.

When he checked into the ER he was hitting and

swinging at the nurses and it took 4 of them to

restrain him. They had to put him in a jacket and tie

it to the bed, so his arms wouldn't be able to swing.

I told them I was glad to see the restraints instead

of the Haldol. And the doctor said, " oh we got the

message, it's written all over the charts not to give

him Haldol or Ativan. So it has finally worked for

them to get the word on that. When I returned back to

the hospital after checking out all the nh around 4PM,

two nurses thought Jim would like to sit up for a

change and released the straps holding his arms down

and right away he is swinging and hitting at them

again, so they had to bring in others to strap him

down again, when I left at 8PM, he was still in the

restraints.

Since Jim was there I spoke to a social worker and she

gave me a list of MediCal nh that have the doctor's

from my husband's health provider. From 9:30AM - 4PM I

visited everyone of those facilities, because my

number one pick that I chose from last year had no

rooms available, so I had to pick a back up #2. I

found one that seems nice and does have a semi private

room, so Jim is going to be transfered there tomorrow

and I will keep him there until my #1 choice for Jim

has an opening and then transfer him to that one.

Thing is they kept Jim over night tonight in ER,

because he is combative and no nh wants him, so they

have to adjust his medications at the hospital and get

him calmed down and possibly tomorrow, he will be in a

nh.

I am trying to be strong. I have such a nervous

stomach about all this, but it is time for Jim to be

in a facility. I can not help him when he is

combative.

I was going to do all this in the summer, but since

the hospital can transfer him and get everything in

order, I decided to do it now.

I will let you know tomorrow what is happening. Jan

__________________________________________________

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Guest guest

Oh Janet!!

My heart just aches for you because I know from the most unbearable

experience just what it is like 'waiting' in ER with a flailing, violent,

abusive loved one. I am so sorry Lewy struck out at you and Jim in this way.

It breaks my heart to read that you have to start that devastating process

of deciding to look at residential care options. It is simply the worst

thing! I shall be thinking of you both

Sending hugs and prayers

Sally x

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