Re: Re: Dogs

[Guest guest]

what's the problem with seeing the dogs? Are you allergic?

--Diane Quinlan dianequinlan@...

-------------- Original message --------------

Arlen,

I told my husband .... there is a guy on my group that sounds just like you....and you do. Concerning wearing a mask when seeing your grandbabies, mightn't that be a > little frightening to them? How about meeting them occasionally in a neutral > location without the damn dogs.> > Arlen

I sanded and stained newly built in shelving in the living room. I used a gas mask that was safe against chemicals, etc. ... with my oxygen tubing run up inside of it. Borrowed it from the carpenter. I could use that again. HA! I agree with you...they would be scared of me with even a medical mask...probably rip it right off my face. I am doomed as doomed can be!

Joyce >> Concerning wearing a mask when seeing your grandbabies, mightn't that be a > little frightening to them? How about meeting them occasionally in a neutral > location without the damn dogs.> > Arlen>

[Guest guest]

Yeah...my dogs are so important to me. They keep me company during the day while my husband is working...and they keep me moving, too....scooping the yard, giving them a bath. I'm really sorry to hear about your problem at their house....you are right about the dog allergens....they cling to things...even the rugs. I used to be allergic to dogs...when I was a kid, I sneezed all the time....but I love dogs so much, I persevered. I do bathe mine often, which gets rid of the dander...and that's what people react to.

You must have fun with your grandchildren. I never had children, but I enjoy seeing my nieces and nephews when we visit family. Hope you have a great weekend! It's wonderful spring weather here in Pennsylvania!!

--Diane Quinlan dianequinlan@...

[Guest guest]

Hey, Diane., How are you doing? I can really relate to how important your dogs are to you.... I have three of them and they are my babies...they don't know they are dogs, they think they are humans. lol I bought a king size bed so we could all sleep comfortably..I have a seven year old miniature poodle, an eight year old hound mix...and a two year old rat terrier mix. They are rotten...spoiled..spoiled...spoiled..I guess you could replace the word spoiled with loved..they are loved..loved..loved..at night when I turn the concentrator on...my poodle, charlie,, comes running as fast as he can..he thinks that is the time he is suppose to lick me to death. and Homey, my hound dog, he thinks it is time I let him under the covers. Then Star, my terrier, she tries to get between them two...they love me. Well, enough about my dogs. I hope you are feeling well and life is good. Barbdianequinlan@... wrote: Yeah...my dogs are so important to me. They keep me company during the day while my husband is working...and they keep me moving, too....scooping the yard, giving them a bath. I'm really sorry to hear about your problem at their house....you are right about the dog allergens....they cling to things...even the rugs. I used to be allergic to dogs...when I was a kid, I sneezed all the time....but I love dogs so much, I persevered. I do bathe mine often, which gets rid of the dander...and that's what people react to. You must have fun with your

grandchildren. I never had children, but I enjoy seeing my nieces and nephews when we visit family. Hope you have a great weekend! It's wonderful spring weather here in Pennsylvania!! --Diane Quinlan dianequinlan@...

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

[Guest guest]

I had a rough week last week....friday night, I was home alone...my husband was playing with his band....around 10 oclock, I got a sharp pain in my right eye. I'd been working on building a small dollhouse for a couple of hours in front of the TV and I thought I had just strained my eyes. So, I sat back to rest and then realised that the whole area around my eye was numb....then my vision was blurry...I started to panic because I was alone...I knew I couldn't drive myself to the ED, so I called 911. They came to get me and I still wasn't sure I wanted to go to the ED...they told me I had bled into my eye and recommended that someone look at it...I bled into my eye once before years ago, but didn't have all the other symptoms at that time...so I decided to go. The hospital is only a few minutes from the house. The ED was very nice...I was glad that I keep a sheet with all my medications on it...makes it easier than trying to remember them. They did an x-

ray of my head and then looked at my corneas to see if they were scratched....they were not and the x-ray was normal. They kept asking me if anyone at home was hurting me. I reassurred them that I was fine and that this just happened spontaneously. They released me after 2AM, which is the time when I knew my husband would come home....so I kept calling the house and sure enough, he answered and was panicked because he didn't know what was going on. He feels so guilty because he wasn't here.....that's not his fault....he is home every other night. So, I had an ice pack on my eye for a few days after that and didn't get much done last week. I still have to finish two miniature projects cause they are being exhibited at my miniature club's show at the end of April. People like to see what each member has been working on. With all the time I have, I should have a lot more done. But, just like the rest of you, lots of days, it's hard

to get up and going. I think I'm not getting enough oxygen....I had it on 5 Liters and walked down the driveway to my car and the pulse ox said 82. I had the pulse ox around the house to check my level when I had just completed an activity and it's always low. I get so short of breath on 4 liters....but I worry that I won't be as mobile if I need a higher flow. So, I haven't really said anything about it.....I'm going to call the pulmonologist on Monday and talk to them. I don't know how they evaluate that.

Well, sorry I chatted so long. It's getting late and I gotta get to bed.

You are all in my thoughts!

--Diane Quinlan dianequinlan@...

[Guest guest]

Diane, I read your post and got all choked up. I feel connected to this group for I have nobody that will talk to me about this beast and what it is doing to us. Hang in there and may god bless. Grey

Re: Re: Dogs

I had a rough week last week....friday night, I was home alone...my husband was playing with his band....around 10 oclock, I got a sharp pain in my right eye. I'd been working on building a small dollhouse for a couple of hours in front of the TV and I thought I had just strained my eyes. So, I sat back to rest and then realised that the whole area around my eye was numb....then my vision was blurry...I started to panic because I was alone...I knew I couldn't drive myself to the ED, so I called 911. They came to get me and I still wasn't sure I wanted to go to the ED...they told me I had bled into my eye and recommended that someone look at it...I bled into my eye once before years ago, but didn't have all the other symptoms at that time...so I decided to go. The hospital is only a few minutes from the house. The ED was very nice...I was glad that I keep a sheet with all my medications on it...makes it easier than trying to remember them. They did an x- ray of my head and then looked at my corneas to see if they were scratched....they were not and the x-ray was normal. They kept asking me if anyone at home was hurting me. I reassurred them that I was fine and that this just happened spontaneously. They released me after 2AM, which is the time when I knew my husband would come home....so I kept calling the house and sure enough, he answered and was panicked because he didn't know what was going on. He feels so guilty because he wasn't here.....that's not his fault....he is home every other night. So, I had an ice pack on my eye for a few days after that and didn't get much done last week. I still have to finish two miniature projects cause they are being exhibited at my miniature club's show at the end of April. People like to see what each member has been working on. With all the time I have, I should have a lot more done. But, just like the rest of you, lots of days, it's hard to get up and going. I think I'm not getting enough oxygen....I had it on 5 Liters and walked down the driveway to my car and the pulse ox said 82. I had the pulse ox around the house to check my level when I had just completed an activity and it's always low. I get so short of breath on 4 liters....but I worry that I won't be as mobile if I need a higher flow. So, I haven't really said anything about it.....I'm going to call the pulmonologist on Monday and talk to them. I don't know how they evaluate that.

Well, sorry I chatted so long. It's getting late and I gotta get to bed.

You are all in my thoughts!

--Diane Quinlan dianequinlan@...

[Guest guest]

Joyce, I saw your responce to Gray, I wanted to put my 2cents in. If we had someone to talk to maybe when we go to the drs, we would not walk out in denial. In March when mine told me the fibrosis on the CT is progressing I walked out without asking how much, now what are the options,meds., or treatment. I now have to ask those questions in May. I feel like I am losing so much. I'm running and getting nowhere. Thinking of you always P.S. I call this thing a monster (Monster in my closet) janne5303 wrote: Grey, I believe a lot

of us feel the lonliness of which you speak. nobody that will talk to me about this beast and what it is doing to us Friends nor family want to get real with me. They change the subject or stay away altogether. It is like when somebody has a family member die and we don't mention that person to them because we are afraid of causing them pain....or it makes us uncomfortable. Every person I know (including myself) who has suffered grief say that they want ed to talk about it. Well, I don't know about you, but I grieve for the loss of my health. I grieve at the prospect of being separated from loved ones. The most wonderful gift that anyone could give

me would be to really listen to me. I definatly do not want sympathy, but I want someone to care. I don't want people to tell me how 'good' I look. I don't want people passing me to say 'how are you'...then go right on by before you could possibly tell them. Surely they don't believe that I really am 'fine' when I am shuffling along dragging oxygen! I thank God for you people. We need to be real with each other. It is o.k. to be frustrated and we need to rant....I do! The fact that you were 'choked up' thinking about Diane's experience and her struggle just touched my heart. I love that you call this thing a 'beast'.....my thoughts exactly....I hate it! Hugs, Joyce >> Diane, I read your post and got all choked up. I feel connected to this group for I have nobody that will talk to me about this beast and what it is doing to us. Hang in there and may god bless. Grey> Re: Re: Dogs> > > I had a rough week last week....friday night, I was home alone...my husband was playing with his band....around 10 oclock, I got a sharp pain in my right eye. I'd been working on building a small dollhouse for a couple of hours in front of the TV and I thought I had just strained my eyes. So, I sat back to rest and then realised that the

whole area around my eye was numb....then my vision was blurry...I started to panic because I was alone...I knew I couldn't drive myself to the ED, so I called 911. They came to get me and I still wasn't sure I wanted to go to the ED...they told me I had bled into my eye and recommended that someone look at it...I bled into my eye once before years ago, but didn't have all the other symptoms at that time...so I decided to go. The hospital is only a few minutes from the house. The ED was very nice...I was glad that I keep a sheet with all my medications on it...makes it easier than trying to remember them. They did an x- ray of my head and then looked at my corneas to see if they were scratched....they were not and the x-ray was normal. They kept asking me if anyone at home was hurting me. I reassurred them that I was fine and that this just happened spontaneously. They released me after 2AM, which is the time when I knew my husband would come home....so I kept calling the

house and sure enough, he answered and was panicked because he didn't know what was going on. He feels so guilty because he wasn't here.....that's not his fault....he is home every other night. So, I had an ice pack on my eye for a few days after that and didn't get much done last week. I still have to finish two miniature projects cause they are being exhibited at my miniature club's show at the end of April. People like to see what each member has been working on. With all the time I have, I should have a lot more done. But, just like the rest of you, lots of days, it's hard to get up and going. I think I'm not getting enough oxygen....I had it on 5 Liters and walked down the driveway to my car and the pulse ox said 82. I had the pulse ox around the house to check my level when I had just completed an activity and it's always low. I get so short of breath on 4 liters....but I worry that I won't be as mobile if I need a higher flow. So, I haven't really said anything

about it.....I'm going to call the pulmonologist on Monday and talk to them. I don't know how they evaluate that.> Well, sorry I chatted so long. It's getting late and I gotta get to bed. > You are all in my thoughts!> > --> Diane Quinlan > dianequinlan@... > > > > >

[Guest guest]

, You NEED to talk to your Dr. about EVERYTHING concerning this monster on our backs. I have ask my Dr. everything I can possible want or need to know. She looks at me funny sometimes but she answers. I go on line and read everything I can find. This group is so wonderful for your heart and support when you need it. We all pray for each other. God Bless. Peggy

on 4/16/06 11:33 PM, linda arnold at lovepuppy49@... wrote:

Joyce,

I saw your responce to Gray, I wanted to put my 2cents in. If we had someone to talk to maybe when we go to the drs, we would not walk out in denial. In March when mine told me the fibrosis on the CT is progressing I walked out without asking how much, now what are the options,meds., or treatment. I now have to ask

those questions in May. I feel like I am losing so much. I'm running and getting nowhere.

Thinking of you always

P.S. I call this thing a monster (Monster in my closet)

janne5303 wrote:

Grey,

I believe a lot of us feel the lonliness of which you speak. nobody that will talk to me about this beast and what it is doing to us

Friends nor family want to get real with me. They change the subject or stay away altogether. It is like when somebody has a family member die and we don't mention that person to them because we are afraid of causing them pain....or it makes us uncomfortable. Every person I know (including myself) who has suffered grief say that they want ed to talk about it.

Well, I don't know about you, but I grieve for the loss of my health. I grieve at the prospect of being separated from loved ones. The most wonderful gift that anyone could give me would be to really listen to me. I definatly do not want sympathy, but I want someone to care. I don't want people to tell me how 'good' I look. I don't want people passing me to say 'how are you'...then go right on by before you could possibly tell them. Surely they don't believe that I really am 'fine' when I am shuffling along dragging oxygen!

I thank God for you people. We need to be real with each other. It is o.k. to be frustrated and we need to rant....I do! The fact that you were 'choked up' thinking about Diane's experience and her struggle just touched my heart.

I love that you call this thing a 'beast'.....my thoughts exactly....I hate it!

Hugs,

Joyce

>

> Diane, I read your post and got all choked up. I feel connected to this group for I have nobody that will talk to me about this beast and what it is doing to us. Hang in there and may god bless. Grey

> Re: Re: Dogs

>

>

> I had a rough week last week....friday night, I was home alone...my husband was playing with his band....around 10 oclock, I got a sharp pain in my right eye. I'd been working on building a small dollhouse for a couple of hours in front of the TV and I thought I had just strained my eyes. So, I sat back to rest and then realised that the whole area around my eye was numb....then my vision was blurry...I started to panic because I was alone...I knew I couldn't drive myself to the ED, so I called 911. They came to get me and I still wasn't sure I wanted to go to the ED...they told me I had bled into my eye and recommended that someone look at it...I bled into my eye once before years ago, but didn't have all the other symptoms at that time...so I decided to go. The hospital is only a few minutes from the house. The ED was very nice...I was glad that I keep a sheet with all my medications on it...makes it easier than trying to remember them. They did an x- ray of my head and then looked at my corneas to see if they were scratched....they were not and the x-ray was normal. They kept asking me if anyone at home was hurting me. I reassurred them that I was fine and that this just happened spontaneously. They released me after 2AM, which is the time when I knew my husband would come home....so I kept calling the house and sure enough, he answered and was panicked because he didn't know what was going on. He feels so guilty because he wasn't here.....that's not his fault....he is home every other night. So, I had an ice pack on my eye for a few days after that and didn't get much done last week. I still have to finish two miniature projects cause they are being exhibited at my miniature club's show at the end of April. People like to see what each member has been working on. With all the time I have, I should have a lot more done. But, just like the rest of you, lots of days, it's hard to get up and going. I think I'm not getting enough oxygen....I had it on 5 Liters and walked down the driveway to my car and the pulse ox said 82. I had the pulse ox around the house to check my level when I had just completed an activity and it's always low. I get so short of breath on 4 liters....but I worry that I won't be as mobile if I need a higher flow. So, I haven't really said anything about it.....I'm going to call the pulmonologist on Monday and talk to them. I don't know how they evaluate that.

> Well, sorry I chatted so long. It's getting late and I gotta get to bed.

> You are all in my thoughts!

>

> --

> Diane Quinlan

> dianequinlan@...

>

>

>

>

>

[Guest guest]

Peggy, I have read everything I can find out about my monster. what I have trouble handling is the shortness of time involved. I found out in July 05 due to test taken 1yr earler I had lost 1/2 of both lungs within 1 yr. 3 months later no progression. now 6 months later it has taken more. I guess I scared how fast it is going. Peggy wrote: , You NEED to talk to your Dr. about EVERYTHING concerning this monster on our backs. I have ask my Dr. everything I can possible want or need to know. She looks at me funny sometimes but she answers. I go on line and read everything I can find. This group is so wonderful for your heart and support when you need it. We all pray for each other. God Bless. Peggyon 4/16/06 11:33 PM, linda arnold at

lovepuppy49@... wrote: Joyce, I saw your responce to Gray, I wanted to put my 2cents in. If we had someone to talk to maybe when we go to the drs, we would not walk out in denial. In March when mine told me the fibrosis on the CT is progressing I walked out without asking how much, now what are the options,meds., or treatment. I now have to ask those questions in May. I feel like I am losing so much. I'm running and getting nowhere. Thinking of you always P.S. I call this thing a monster (Monster in my closet) janne5303 wrote: Grey, I believe a lot of us

feel the lonliness of which you speak. nobody that will talk to me about this beast and what it is doing to us Friends nor family want to get real with me. They change the subject or stay away altogether. It is like when somebody has a family member die and we don't mention that person to them because we are afraid of causing them pain....or it makes us uncomfortable. Every person I know (including myself) who has suffered grief say that they want ed to talk about it. Well, I don't know about you, but I grieve for the loss of my health. I grieve

at the prospect of being separated from loved ones. The most wonderful gift that anyone could give me would be to really listen to me. I definatly do not want sympathy, but I want someone to care. I don't want people to tell me how 'good' I look. I don't want people passing me to say 'how are you'...then go right on by before you could possibly tell them. Surely they don't believe that I really am 'fine' when I am shuffling along dragging oxygen! I thank God for you people. We need to be real with each other. It is o.k. to be frustrated and we need to rant....I do! The fact that you were 'choked up' thinking about Diane's experience and her struggle just touched my heart. I love that you call this thing a 'beast'.....my thoughts

exactly....I hate it! Hugs, Joyce >> Diane, I read your post and got all choked up. I feel connected to this group for I have nobody that will talk to me about this beast and what it is doing to us. Hang in there and may god bless. Grey> Re: Re: Dogs> > > I had a rough week last week....friday night, I was home alone...my husband was playing with his band....around 10 oclock, I got a sharp pain in my right eye. I'd

been working on building a small dollhouse for a couple of hours in front of the TV and I thought I had just strained my eyes. So, I sat back to rest and then realised that the whole area around my eye was numb....then my vision was blurry...I started to panic because I was alone...I knew I couldn't drive myself to the ED, so I called 911. They came to get me and I still wasn't sure I wanted to go to the ED...they told me I had bled into my eye and recommended that someone look at it...I bled into my eye once before years ago, but didn't have all the other symptoms at that time...so I decided to go. The hospital is only a few minutes from the house. The ED was very nice...I was glad that I keep a sheet with all my medications on it...makes it easier than trying to remember them. They did an x- ray of my head and then looked at my corneas to see if they were scratched....they were not and the x-ray was normal. They kept asking me if anyone at home was hurting me. I

reassurred them that I was fine and that this just happened spontaneously. They released me after 2AM, which is the time when I knew my husband would come home....so I kept calling the house and sure enough, he answered and was panicked because he didn't know what was going on. He feels so guilty because he wasn't here.....that's not his fault....he is home every other night. So, I had an ice pack on my eye for a few days after that and didn't get much done last week. I still have to finish two miniature projects cause they are being exhibited at my miniature club's show at the end of April. People like to see what each member has been working on. With all the time I have, I should have a lot more done. But, just like the rest of you, lots of days, it's hard to get up and going. I think I'm not getting enough oxygen....I had it on 5 Liters and walked down the driveway to my car and the pulse ox said 82. I had the pulse ox around the house to check my level when I had just

completed an activity and it's always low. I get so short of breath on 4 liters....but I worry that I won't be as mobile if I need a higher flow. So, I haven't really said anything about it.....I'm going to call the pulmonologist on Monday and talk to them. I don't know how they evaluate that.> Well, sorry I chatted so long. It's getting late and I gotta get to bed. > You are all in my thoughts!> > --> Diane Quinlan > dianequinlan@... > > > > >

[Guest guest]

, Don't put much into what you read about your time left.. There are some of us that have been going on for 8 years or better. Only God knows when you will go home. Honey I know this is the hardest thing you have ever had to confront. But God can and will help you. " He'll never bring you to something he will not bring you through. "

This disease is so nasty and we that have it need to stick together. You'll find someone here will always help you through the rough times. Look at the sunshine every morning and thank our Heavenly Father for the beautiful day. Then do something to make you happy!

I have family in Ocoee Tn. that's close to Cleveland. Are you close to a bigger town? You HAVE to talk to your Dr about communication with him, getting test results, etc. Have you done the PFT--Breathing tests? 6 min. walk test? You need Oxygen if you are below 90% on the oxi-meter.

Is your Dr a Pulmonary? If not find one. Trust me we are praying for you. I'm glad you pray, now put your faith to work. God is faithful. Write any time. Peggy

on 4/17/06 11:54 PM, linda arnold at lovepuppy49@... wrote:

Peggy,

I have read everything I can find out about my monster. what I have trouble handling is the shortness of time involved. I found out in July 05 due to test taken 1yr earler I had lost 1/2 of both lungs within 1 yr. 3 months later no progression. now 6 months later it has taken more. I guess I scared how fast it is going.

Peggy wrote:

, You NEED to talk to your Dr. about EVERYTHING concerning this monster on our backs. I have ask my Dr. everything I can possible want or need to know. She looks at me funny sometimes but she answers. I go on line and read everything I can find. This group is so wonderful for your heart and support when you need it. We all pray for each other. God Bless. Peggy

on 4/16/06 11:33 PM, linda arnold at lovepuppy49@... wrote:

Joyce,

I saw your responce to Gray, I wanted to put my 2cents in. If we had someone to talk to maybe when we go to the drs, we would not walk out in denial. In March when mine told me the fibrosis on the CT is progressing I walked out without asking how much, now what are the options,meds., or treatment. I now have to ask

those questions in May. I feel like I am losing so much. I'm running and getting nowhere.

Thinking of you always

P.S. I call this thing a monster (Monster in my closet)

janne5303 wrote:

Grey,

I believe a lot of us feel the lonliness of which you speak. nobody that will talk to me about this beast and what it is doing to us

Friends nor family want to get real with me. They change the subject or stay away altogether. It is like when somebody has a family member die and we don't mention that person to them because we are afraid of causing them pain....or it makes us uncomfortable. Every person I know (including myself) who has suffered grief say that they want ed to talk about it.

Well, I don't know about you, but I grieve for the loss of my health. I grieve at the prospect of being separated from loved ones. The most wonderful gift that anyone could give me would be to really listen to me. I definatly do not want sympathy, but I want someone to care. I don't want people to tell me how 'good' I look. I don't want people passing me to say 'how are you'...then go right on by before you could possibly tell them. Surely they don't believe that I really am 'fine' when I am shuffling along dragging oxygen!

I thank God for you people. We need to be real with each other. It is o.k. to be frustrated and we need to rant....I do! The fact that you were 'choked up' thinking about Diane's experience and her struggle just touched my heart.

I love that you call this thing a 'beast'.....my thoughts exactly....I hate it!

Hugs,

Joyce

>

> Diane, I read your post and got all choked up. I feel connected to this group for I have nobody that will talk to me about this beast and what it is doing to us. Hang in there and may god bless. Grey

> Re: Re: Dogs

>

>

> I had a rough week last week....friday night, I was home alone...my husband was playing with his band....around 10 oclock, I got a sharp pain in my right eye. I'd been working on building a small dollhouse for a couple of hours in front of the TV and I thought I had just strained my eyes. So, I sat back to rest and then realised that the whole area around my eye was numb....then my vision was blurry...I started to panic because I was alone...I knew I couldn't drive myself to the ED, so I called 911. They came to get me and I still wasn't sure I wanted to go to the ED...they told me I had bled into my eye and recommended that someone look at it...I bled into my eye once before years ago, but didn't have all the other symptoms at that time...so I decided to go. The hospital is only a few minutes from the house. The ED was very nice...I was glad that I keep a sheet with all my medications on it...makes it easier than trying to remember them. They did an x- ray of my head and then looked at my corneas to see if they were scratched....they were not and the x-ray was normal. They kept asking me if anyone at home was hurting me. I reassurred them that I was fine and that this just happened spontaneously. They released me after 2AM, which is the time when I knew my husband would come home....so I kept calling the house and sure enough, he answered and was panicked because he didn't know what was going on. He feels so guilty because he wasn't here.....that's not his fault....he is home every other night. So, I had an ice pack on my eye for a few days after that and didn't get much done last week. I still have to finish two miniature projects cause they are being exhibited at my miniature club's show at the end of April. People like to see what each member has been working on. With all the time I have, I should have a lot more done. But, just like the rest of you, lots of days, it's hard to get up and going. I think I'm not getting enough oxygen....I had it on 5 Liters and walked down the driveway to my car and the pulse ox said 82. I had the pulse ox around the house to check my level when I had just completed an activity and it's always low. I get so short of breath on 4 liters....but I worry that I won't be as mobile if I need a higher flow. So, I haven't really said anything about it.....I'm going to call the pulmonologist on Monday and talk to them. I don't know how they evaluate that.

> Well, sorry I chatted so long. It's getting late and I gotta get to bed.

> You are all in my thoughts!

>

> --

> Diane Quinlan

> dianequinlan@...

>

>

>

>

>