Guest guest Posted October 27, 2006 Report Share Posted October 27, 2006 I think they would help if he's always fighting ear infections!! I'm also surprised the doctors aren't concerned with how often he's on antibiotics.... when taken too often, bacteria mutate and the antibiotics become USELESS. Many kids get them...its a quick and simple procedure...my daughter was ABOUT to have them, and then sorta outgrew her ear infections by 2 yrs old. They do often help with speech issues too, if he's not hearing properly because of constantly clogged ears! good luck! Angel 's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2006 Report Share Posted October 27, 2006 Shyanna is 10. She is on her 3rd set of tubes. I LOVE them. I believe she hears better with them. The tubes actually keep the fluid out of the ears. Our ENT told us that with fluid in her ears, she is hearing as if we plug our ears and listen to people talk. The first set stayed in for about 18 months which is considered good. The second set were semi-permanent, just shaped a little different. She tends to get a few more ear infections when she doesn't have them in. When she lost the first ones it was at the end of school and we actually waited until school was about to start before having them put back in. The third set were put after one of the two had fallen out. They actually repositioned the one still in and put the second one in her other ear. I know for Shyanna they cut down on ear infections, therefore cutting down on missed school time and extracurricular activities. If you think you want them, you could request a 2nd opinion or just maybe express your concern that you would like to give them a try. Another option would be wait this one out and see how long before his next ear infection arrives. Also, are you having him checked at the end of his medicine to make sure the infection is completely cleared? are ear tubes helpful? hi everyone! our 3 year old son, jake, is not being treated for his second ear infection already this fall! He has had many ear infections in the past and many antibiotics, which don't seem to work! Last year we took him to a pediatric ent and to our surprise, he said jake did not need them. Our concerns are mounting because it is not even winter yet and here we go again! Plus, now he is in preschool. we are going to take him again for a second opinion about ear tubes....jake is very delayed in speech and I can't help but wonder if he would be able to hear and speak better with ear tubes. I don't know anything about ear tubes. Could you please help me and give me your advice, feedback and personal experiences with them. are they even worth it? HELP!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2006 Report Share Posted October 27, 2006 My Jake got ear tubes this last winter because he had recurring ear infections that didn't seem to clear up with antibiotics. My other son was also getting them at the same time. I took both boys to the pediatric ENT who said Jake needed ear tubes " because he has down syndrome " but wanted to try allergy meds on my other son first. I was upset with the comment and argued with him because I thought needed tubes too, but instead Jake was the only one that received them. Before he had the tubes put in, Jake had what we thought were allergies because his eyes and nose were always running. Since his tubes were put in this last January he has not had one single runny nose, watery eyes or ear infection. We haven't had to give him allergy medication since they were put in. I LOVE THEM! I can't say I've noticed any improvement in his speech though. Going back to my other son , he has had two more infections since that time and allergy medication seemed to do nothing for him. I tried to explain to the doctor that he doesn't have allergies but he wouldn't listen to me, so I took him off the allergy medication. With winter time coming again, I'm sure will continue to get more ear infections. I have to see his pediatrician next week so I think I'm going to push for her to refer me to another pediatric ENT so I can get the tubes for him as well. Since were on the subject, when I saw the ENT he said that had enlarged adenoids. He was originally going to put tubes in and take out his adenoids at the same time but that's when he came up with the bright idea to try allergy medication. has a moderate speech delay and is currently getting speech therapy. The therapist keeps thinking it's something medical that is causing his delay because he's speaking, it's just not clear (she suggested his hearing or something to do with a short gap with the tongue?). I've had his hearing tested twice, both times came back within normal range. I don't think it's his hearing because it seems like he can hear like a hawk around the house. I also know ear infections can cause delays but I was curious about his adenoids, because they are enlarged. I've researched and read that sometimes when you have enlarged adenoids it can muffle your speech because your congested (which always is). Has anyone had experience with enlarge adenoids and if so, was there a problem with speech? I really think I need to get a second opinion from another ENT. Krysten Mom to /mds (just turned 2!) and (3-1/2) are ear tubes helpful? hi everyone! our 3 year old son, jake, is not being treated for his second ear infection already this fall! He has had many ear infections in the past and many antibiotics, which don't seem to work! Last year we took him to a pediatric ent and to our surprise, he said jake did not need them. Our concerns are mounting because it is not even winter yet and here we go again! Plus, now he is in preschool. we are going to take him again for a second opinion about ear tubes....jake is very delayed in speech and I can't help but wonder if he would be able to hear and speak better with ear tubes. I don't know anything about ear tubes. Could you please help me and give me your advice, feedback and personal experiences with them. are they even worth it? HELP!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2006 Report Share Posted October 27, 2006 I am all for tubes. OUr son Caden had an ear infection the whole winter they were out of antibiotics for him to use! I had to push them to see an ent and then I had to force him to do the surgery!!! Caden has not had an ear infection since he had the tubes. I believe he was 1 when he got them and they fell out last winter already and he is 3. My niece is deaf in 1 ear because of too many ear infections and my sister who is a Speech Pathologist said every time Caden has an ear infection he has trouble hearing sounds which could delay his speech. I know it is hard to see your child be put under so that is a personal decision, but it really worked out well for us. Hope this helped. - mom to Ella (5) and Caden MDS (3) IMDSA Fundraising Chairperson ---- lancasterhorses wrote: > hi everyone! our 3 year old son, jake, is not being treated for his > second ear infection already this fall! He has had many ear infections > in the past and many antibiotics, which don't seem to work! Last year > we took him to a pediatric ent and to our surprise, he said jake did > not need them. Our concerns are mounting because it is not even winter > yet and here we go again! Plus, now he is in preschool. we are going to > take him again for a second opinion about ear tubes....jake is very > delayed in speech and I can't help but wonder if he would be able to > hear and speak better with ear tubes. I don't know anything about ear > tubes. Could you please help me and give me your advice, feedback and > personal experiences with them. are they even worth it? HELP!! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2006 Report Share Posted October 27, 2006 Yes, if treated properly Tubes do make a MAJOR differrence. After you get them you can't get ANY water (even from bathing) down in the ears. They recommened that you put vaseline on small peices of cotton and insert just at the opening of the ear before washing there hair. But....I think that the vaseline itself builds up so I always just bath Trinity with me and put her on my lap to wash her hair (she's only 3 so we still gotta a little time left) anyway My daughter (Trinity's mother) had 14 sets growing up and Trinity has already had 3 sets. But I've also learned with ALL these Doctors you gotta be persistent. I would highly suggest you get a second opinion. And Kick and Scream and Holler!!!!!!! Blessings..... Terrie (Trinity's mammy) lancasterhorses wrote: hi everyone! our 3 year old son, jake, is not being treated for his second ear infection already this fall! He has had many ear infections in the past and many antibiotics, which don't seem to work! Last year we took him to a pediatric ent and to our surprise, he said jake did not need them. Our concerns are mounting because it is not even winter yet and here we go again! Plus, now he is in preschool. we are going to take him again for a second opinion about ear tubes....jake is very delayed in speech and I can't help but wonder if he would be able to hear and speak better with ear tubes. I don't know anything about ear tubes. Could you please help me and give me your advice, feedback and personal experiences with them. are they even worth it? HELP!! --------------------------------- Everyone is raving about the all-new Yahoo! Mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2006 Report Share Posted October 28, 2006 My daughter had tubes put in and her tonsils and adenoids taken out all at the same time. She was about 2 1/2 at the time and still not eating solid foods - The ENT took one look at her tonsils and adenoids and told me " I bet she's not eating solid foods yet. " I told her, she was right and it was the best thing I could have done for Katy. It is not a fun surgery to go through - but she did much better after she had time to heal. Also the ENT put what she called the longer tubes in Katy's ears and they lasted till she was probably 8 or 9 - The ENT wasn't sure she could get the longer tubes in because of how small Katy's ear canals were, but said she would try, if not, she would put the shorter tubes in and they would probably have to be redone in a year or so - I was glad she able to get the longer tubes in - they lasted many years and Katy did not have any ear infections. Charlotte Siegmund (Mom to Katy now 15) are ear tubes helpful? hi everyone! our 3 year old son, jake, is not being treated for his second ear infection already this fall! He has had many ear infections in the past and many antibiotics, which don't seem to work! Last year we took him to a pediatric ent and to our surprise, he said jake did not need them. Our concerns are mounting because it is not even winter yet and here we go again! Plus, now he is in preschool. we are going to take him again for a second opinion about ear tubes....jake is very delayed in speech and I can't help but wonder if he would be able to hear and speak better with ear tubes. I don't know anything about ear tubes. Could you please help me and give me your advice, feedback and personal experiences with them. are they even worth it? HELP!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2006 Report Share Posted October 28, 2006 I would like to pipe in on the ear tube issue. Children with MDS can have small ear canals and because of this, it makes it very hard for the fluid to drain properly. Thus, multiple ear infections that wont go away with antibiotics. Tim has 3 sets of tubes when he was younger. Some kids don't need more than one set, but every time his tubes fell out he got more infections. Tim was deaf until his first set of tubes when he was 19months old. The fluid had backed up so much in his ears that he was unable to hear anything. (When you have fluid in your ears, the ear drum does not move properly to hear sound) Immediately after the first set of tubes, Tim's speech began to dramatically improve. (If you can't hear you don't speak!) The proceedure is a quick day proceedure that causes NO PAIN at all to the child. Some children with MDS do have trouble with anestesia so you definately want to talk with the doctor about that. I think that it is important to have the tubes in when your child is having repeated ear infections or ear infections that wont heal with antibiotics. Kristy > > > ---- lancasterhorses wrote: > > hi everyone! our 3 year old son, jake, is not being treated for his > > second ear infection already this fall! He has had many ear infections > > in the past and many antibiotics, which don't seem to work! Last year > > we took him to a pediatric ent and to our surprise, he said jake did > > not need them. Our concerns are mounting because it is not even winter > > yet and here we go again! Plus, now he is in preschool. we are going to > > take him again for a second opinion about ear tubes....jake is very > > delayed in speech and I can't help but wonder if he would be able to > > hear and speak better with ear tubes. I don't know anything about ear > > tubes. Could you please help me and give me your advice, feedback and > > personal experiences with them. are they even worth it? HELP!! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2006 Report Share Posted October 28, 2006 Have his hearing tested with an Audiologist. They can even test for the amount of fluid in his ears. mom to 11, 9, 6 and 3 and 11 months MDS are ear tubes helpful? > hi everyone! our 3 year old son, jake, is not being treated for his > second ear infection already this fall! He has had many ear infections > in the past and many antibiotics, which don't seem to work! Last year > we took him to a pediatric ent and to our surprise, he said jake did > not need them. Our concerns are mounting because it is not even winter > yet and here we go again! Plus, now he is in preschool. we are going to > take him again for a second opinion about ear tubes....jake is very > delayed in speech and I can't help but wonder if he would be able to > hear and speak better with ear tubes. I don't know anything about ear > tubes. Could you please help me and give me your advice, feedback and > personal experiences with them. are they even worth it? HELP!! > > > > > Become a member of IMDSA today at http://www.imdsa.com > ******************************************************* > Purchase your MDS awareness bracelet today! http://www.imdsa.com/bracelets > ************************************************************************** > Contact IMDSA Today at: > IMDSA~PO Box 1052~lin,TX~77856~USA~1-~1-888-MDS-LINK > ********************************************************************* > Share your story today! http://www.mosaicdownsyndrome.com > ********************************************************* > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 My son without MDS, who is now 4 has had ear tubes twice(at age 1 and again at 2) and then at age 3 had his tonsils and adneoids removed. He had a huge speech delay from all the ear infections his first year. He had the first set of ear tubes placed started speech therapy and within six months was talking non stop! The next Winter he needed a new set because he was still getting ear infections (although less than the year before) and they became clogged and non functioning. We had a huge decrease in ear infections after that with the rare 2-3/ year. Since his T+A were removed at 3 he hasn't had one. (he had them removed not only because of ear infections but Loud Snoring, frequent waking up at night and some apnea, as well as a long winter with repeated strep throat! Its amazing. He was so skinny before the surgery because he couldn't breathe and eat. He didn't gain any weight between 2-3. Well he just had his 4 year check up and he gained 11 pounds since his surgery in Feb! He started eating non-stop once they were removed! My daughter 14 months old with MDS had ear tubes placed last Spring for frequent ear infections. She had 9 ear infections from last October to May. They were placed in May and she has only had one infection so far. The real test will be this winter!! She did have a hearing test before the tubes were placed and they said she had so much fluid in her ears that everything she heard probably sounded muffled. She is 14 months and says 3 words and babbles alot. It is kind of hard to see if she will be speech delayed yet. Good Luck. I feel the ear tubes benifited both my kids, and if your Instinct says your son would benefit, you are probabably right! and 14 months old MDS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 My son (without MDS) had his tonsils and adneoids out last winter at age 3. The ENT said he could tell he needed them out just by listening to him talk. His Speech was fine at this point (not delayed) but he said he had a very nasally muffled speech sound. He said he could tell the way he tried to prounounce words and make sounds. His voice was so different after his surgery. I never noticed the problem before surgey but the change was dramatic. His voice after, was a much more crisp high pitch voice with clearer sounds. I hope that helps! (mom to 14 months MDS) Quote Link to comment Share on other sites More sharing options...
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