Guest guest Posted January 20, 2002 Report Share Posted January 20, 2002 recovering4@... wrote: > Pennsylvania...we need your voice! > Due to the new mandatory Chickenpox vaccine in the State of > Pennsylvania, the Pittsburgh Tribune called us for an interview to run in > Triblive for the > Pittsburgh area. They are seeking local residents who oppose vaccines > from aborted fetal tissue to voice their opinion. > > Please call Mark Houser at (412) 320-7995. There are other reasons to oppose this vaccine other than the fact its from fetal tissue; its not that effective, there have been reported deaths, vaccine induced infections can expose adults to it " Merck operates a varicella zoster virus identification program that has logged some 8,000 voluntary adverse experiences reports " Family Practice News Sept 15, 2000 Between 3-95 and 7-98: -6,574 VAERS reports were filed -82% with Chicken pox alone -14 deaths NVIC Press Release 9-12-2000 taken from raw VAERS data Be sure to present these other issues to the press. Let them emphasis is issue about fetal tissue. If you want to try to do away with it by swaying public opinion, I think it better to get a complete picture of it's drawbacks rather than to focus in on just the negative aspect of being derived from aborted fetal tissue. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 more shutting the stable door after the horse has bolted. even the genetic's understanding is not up with current thinking on heavy metals and vaccines altering geentic expression why don't they do something useful like exploring ways or resetting gene expression ? > www.autismresearch.ca > > Below is a quote from Jeanette Holden, Program Director of the ASD- > CARC. Please consider visiting the website and registering your > family for this important research. > > > " Our hope is to recruit 10,000 families to participate in our > research – most of these families will participate by completing > questionnaires and by providing us with a small sample (blood, > saliva or cheek swab) for genetic studies. Other families will be > invited to participate in more detailed assessments – various > interviews, diagnostic assessments and other studies relating to > processing information, brain imaging, dysmorphology, etc.. > > Why do we need 10,000 families for our study? > > The reason is that we believe autism spectrum disorders are actually > a group of disorders – there may be 10 or more different types of > ASDs – all sharing some behaviors and other family characteristics. > In order to identify both genetic and environmental factors that > contribute to these conditions, we need to divide families > into " subgroups " that are more " homogeneous " – i.e. very similar or > identical to one another. Some subgroups may be more common than > others and, for this reason, all families are important. " > > www.autismresearch.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2004 Report Share Posted August 9, 2004 Welcome to the group! a, our fearless leader and group owner has created a Web site full of useful information: http://rheumatoid.arthritis.freehosting.net/ I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Can you help? > The following sentence was on the board .Can someone please tell me > how to get there. > " If you want to learn more about this disease without participating, > go to our website frequently for updated medical information. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 Ladies, Deborah Pettitt is an implant sister who owns York Clinial in New Orleans and St. Louis. She has started a study to determine why women and children get sick from breast implants. There's been some posts on this, but I get the feeling it's not getting the attention it needs to be successful. To finance this study, she is filing a law suit against the manufacturer's of breast implants on the behalf of women made ill by breast implants. Assuming the women win, the proceeds will go to finance the study . . . which, done right will be very, very expensive. What she needs is for women to sign onto the lawsuit as plantiff's. . . I'm signing on myself - and I hope all of you will do so too! For those women who HAVEN'T had their implants removed yet, they can still participate in the study. Deb will send you a kit for specimens to be studied. Please contact Deborah for more information: Deborah A. Pettitt, RN, BSN, CCRA YorkClinical Consulting Director Of Women's Health WK: (504)866-2060 FX: (504) 866-0888 CELL: 1-888-473-5273 dpettitt@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2006 Report Share Posted November 14, 2006 First you are doing a great job in not placing yourself in denial. Often time parents know thru their gut instincts that things are just not right but they deny it away or justify it away. While it is great that you are seeking the advice of other parents my first suggestion would be to " rule out " or confirm any developmental issues. The first place to start is to find a developmental pediatrician in your area who can do the testing that is necessary to obtain a proper diagnosis. It does sound as if your child has some sensory integration dysfunction. However you mentioned that he is receiving OT for other issues. Talk to your OT therapist and ask her to test him on sensory integration dyfunction. You are on the right path you just need medical confirmation. The developmental pediatrician can not only diagnose but also put you on the right path to the appropriate intervention based on your child's testing. Good luck, Connie Ajay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2006 Report Share Posted November 14, 2006 It sounds to me as if your son may have problems with sensory integration. There's a great book on the subject called " The Out-of-Sync Child " by Carol Kranowitz. I bought my copy at and Noble. Sensory Integration Dysfunction would explain many of your son's behaviors. It's true that a lot of people on the autistic spectrum also have sensory integration issues (my own son does). This may be what your friend is picking up on. However, it's also certainly possible to have sensory integration problems without being on the spectrum. Many people have sensory issues without being autistic in any way. Sue C. 16 NT Ian 15 AS/BP/Tourette's Liz 13 BP/ADD J'alex 11 BP/ADHD Evan 8 BP/ADHD > > My little guy is 5 almost 6. For sometime now He has done > certain things that have had me curious at what is going on with > him. However I haven't gotten the courage to do too much about it. > So I'm here. Some of the things that he did he stopped doing, which > is a big reason why I haven't taken him to a doctor. I just don't > know if his behaviour is normal child stuff or not. I'll put things > in columns to make it easy on everyone including me. > > does now... > -repeatedly hits self on forehead (like the " duh " gesture) > -says " never " or " it's a secret " > -run full speed up to other children or people, sometimes into them. > (slow runner, but still not appropriate) > -high 5's and shakes other peoples hands to roughly. > -stays seated in a childrens church environment no more then 10 > minutes, then gets up and finds another seat. > -covers ears and whines when fireworks go off (yet absolutely loves > them) > -covers ears and/or finds a corner. sometimes cries quietly. may ask > to leave. > -wanders away. > -when asked if we should listen to music in car, says " no " . > -unable to learn a line from a song (itsy bitsy spider etc.) > -unable to go down stairs alone, must hold rail and someone's hand > for support. Also takes one step at a time (does not alternate feet). > -will go in bounce house if one or two kids are in. He holds the > side or sits down 90% of time. > -unable to button up shirt or pants or unbutton, as well as zippers > (he can do pants, and sleeper but not other zippers.) > -he will sit down on the ground with body facing the opposite > direction of direction of teaching, but he will have his head > pointing in the right direction. > > did... > -slowly pulled on right lower eyelid. > -wanders away. > -when music plays during childrens church would sit down and shut > down. > -unable to learn a line in a song (wheels on the bus etc.) > -couldn't have dirty hands, if he fell and his hands touched the > ground he would scream and cry and then run to the bathroom. > -couldn't be placed on anything high (counter tops, car hoods etc.) > Couch and highchair no problem. > -scream and cry if we wanted him to go in bounce house. Would sit or > lay down inside. > > Doesn't do... > -He doesn't have a problem talking with people or being around > people. (he loves it) > -Doesn't have a problem with change. (took 3 days to go from bottle > to cup) > -doesn't use diapers. (He was potty trained by 2 and sleeping > through the night at 2.5 yrs) > -doesn't have major tantrums (we usually say " are you 5 or a baby? " > he will respond, and then we say " should we be acting like a 5 yr old > or a baby right now? " or we say " let's count to 5 and take a > breath. " once he hits 6 we will change the number in both phrases.) > -no hand flapping, or walking on toes. > > So I'm confused. He does have speech therapy which he has recieved > since 3 yrs 11 months, for mispronunciation, and disarticulation. We > were also told he has weak muscles in his mouth. Which makes sense, > when he was a baby we had to physically move his mouth up and down in > order for him to suck. He also gets Occupational therapy for low > muscle strength in hands and fingers. He has a 2% rank in overall > fine motor skills. He didn't jump till he was 4, just started > jumping off things (curbs, steps etc) this past month. Didn't start > going up stairs without assistance till this summer. He does have > tubes in his ears and has had zero hearing in his right ear due to > excessive wax. His eardrum now is recessed and weak. But, he can > hear out of it, at a below average hearing level. He does have > exczema, allergies. He gets frustrated easy and will grunt, or > scream. Last week he put the key in the lock of my car door, and > tried to turn it. It wouldn't move, instead of trying again he > immediately screamed the grunted and cried. He only tried once. He > also gets special education for reading. There probably is more that > I am missing right now. But I think this covers a lot. He is in > a " Children with Special Needs " group at church. Another mother > whose child is a little older and diagnosed with Autism has said that > is very much the same as her kid and that is on the > Spectrum. I have seen a lot of similariteis between and Brad. I > guess that is why I'm here. Could it be true? What do you think? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2006 Report Share Posted November 15, 2006 My daughter also did not have some of the more obvious signs of autism, but a lot of sensory issues. But she only has a diagnosis of speech delay. But she did a lot of the same things your son does/did. A lot only became obvious when others mentioned it. I think from what you described I would get an evaluation. But sometimes if the signs are not obvious enough or not present during the evaluation than no diagnosis may be made. My daughter most likely has high functioning autism or Aspergers from the people who know her best but did not receive a diagnosis the day I had her evaluated. She acted almost normal that day but the evaluator should come home with me to see how she really is. Jen > > My little guy is 5 almost 6. For sometime now He has done > certain things that have had me curious at what is going on with > him. However I haven't gotten the courage to do too much about it. > So I'm here. Some of the things that he did he stopped doing, which > is a big reason why I haven't taken him to a doctor. I just don't > know if his behaviour is normal child stuff or not. I'll put things > in columns to make it easy on everyone including me. > > does now... > -repeatedly hits self on forehead (like the " duh " gesture) > -says " never " or " it's a secret " > -run full speed up to other children or people, sometimes into them. > (slow runner, but still not appropriate) > -high 5's and shakes other peoples hands to roughly. > -stays seated in a childrens church environment no more then 10 > minutes, then gets up and finds another seat. > -covers ears and whines when fireworks go off (yet absolutely loves > them) > -covers ears and/or finds a corner. sometimes cries quietly. may ask > to leave. > -wanders away. > -when asked if we should listen to music in car, says " no " . > -unable to learn a line from a song (itsy bitsy spider etc.) > -unable to go down stairs alone, must hold rail and someone's hand > for support. Also takes one step at a time (does not alternate feet). > -will go in bounce house if one or two kids are in. He holds the > side or sits down 90% of time. > -unable to button up shirt or pants or unbutton, as well as zippers > (he can do pants, and sleeper but not other zippers.) > -he will sit down on the ground with body facing the opposite > direction of direction of teaching, but he will have his head > pointing in the right direction. > > did... > -slowly pulled on right lower eyelid. > -wanders away. > -when music plays during childrens church would sit down and shut > down. > -unable to learn a line in a song (wheels on the bus etc.) > -couldn't have dirty hands, if he fell and his hands touched the > ground he would scream and cry and then run to the bathroom. > -couldn't be placed on anything high (counter tops, car hoods etc.) > Couch and highchair no problem. > -scream and cry if we wanted him to go in bounce house. Would sit or > lay down inside. > > Doesn't do... > -He doesn't have a problem talking with people or being around > people. (he loves it) > -Doesn't have a problem with change. (took 3 days to go from bottle > to cup) > -doesn't use diapers. (He was potty trained by 2 and sleeping > through the night at 2.5 yrs) > -doesn't have major tantrums (we usually say " are you 5 or a baby? " > he will respond, and then we say " should we be acting like a 5 yr old > or a baby right now? " or we say " let's count to 5 and take a > breath. " once he hits 6 we will change the number in both phrases.) > -no hand flapping, or walking on toes. > > So I'm confused. He does have speech therapy which he has recieved > since 3 yrs 11 months, for mispronunciation, and disarticulation. We > were also told he has weak muscles in his mouth. Which makes sense, > when he was a baby we had to physically move his mouth up and down in > order for him to suck. He also gets Occupational therapy for low > muscle strength in hands and fingers. He has a 2% rank in overall > fine motor skills. He didn't jump till he was 4, just started > jumping off things (curbs, steps etc) this past month. Didn't start > going up stairs without assistance till this summer. He does have > tubes in his ears and has had zero hearing in his right ear due to > excessive wax. His eardrum now is recessed and weak. But, he can > hear out of it, at a below average hearing level. He does have > exczema, allergies. He gets frustrated easy and will grunt, or > scream. Last week he put the key in the lock of my car door, and > tried to turn it. It wouldn't move, instead of trying again he > immediately screamed the grunted and cried. He only tried once. He > also gets special education for reading. There probably is more that > I am missing right now. But I think this covers a lot. He is in > a " Children with Special Needs " group at church. Another mother > whose child is a little older and diagnosed with Autism has said that > is very much the same as her kid and that is on the > Spectrum. I have seen a lot of similariteis between and Brad. I > guess that is why I'm here. Could it be true? What do you think? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2006 Report Share Posted November 15, 2006 -Hi Jen, Here is how I see it. If your child has developmental delays in more than 1 area, then it is pervasive and affects everything, hence the term Pervasive Developmental Disorder (PDD). I would get an eval as soon as possible. After all, it can't hurt. You need to get help from the school district also. Have them eval him too. Good Luck, Debbie-- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2006 Report Share Posted November 16, 2006 I have considered going to another group to get her re-diagnosed, but since she is recovering and already receiving services through the school, I have not moved forward with the diagnosis. She does have issues in many areas and I do feel she still has autism, but after the mercury is removed she may not have the same problems. I don't know what the advantage of getting a diagnosis is at this point. Correct me if I am wrong, but I have already looked into disability coverage, she receives therapy, is in a special ed class, has been seen by a DAN Dr., and has the support from her pediatrician to assist with lab work during chelation. Jen > > -Hi Jen, > > Here is how I see it. If your child has developmental delays in more > than 1 area, then it is pervasive and affects everything, hence the > term Pervasive Developmental Disorder (PDD). I would get an eval as > soon as possible. After all, it can't hurt. You need to get help > from the school district also. Have them eval him too. > > Good Luck, > > Debbie-- > Quote Link to comment Share on other sites More sharing options...
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