12 year old daughter and thyroid/adrenal tests

[Guest guest]

Some advice needed please! My daughter is seeing a peadiatrition in

Switzerland as she has ADHD and probably some other psychiatric probs

too. Having gotten into this whole thyroid and adrenal thing myself I

have begun to question her health (particularly as I am certain I was

hypo when pregnant).I have already begun to treat myself.

I have already ascertained that this doctor doesn't believe in

" temperatures " and all the other " mumbo jumbo " and that blood tests

are the only hard evidence in his eyes.

Anyway, this paediatrition has agreed to have her thyroid tested and I

have so far managed to persuade him that a one off serum cortisol

blood test wouldn't show the whole picture and I will either get her

24 hour saliva tested myself or as he suggests, a 24 hour urine

collection. Would this be as good as the saliva testing and would it

indicate the DHEA levels also?

I have asked specifically for Free T3 and Free T4 which he says is OK

but then says that he will be doing a thyroid screen using a blood

spot test. Is this OK? Does it test for Free T3 and Free T4?

I am having to tread so carefully with this chap as he is highly

recommended in the field of ADHD but appears to be of the typical

" endo mind " when it comes to the thyroid and adrenals. I know that it

is near on impossible to find a decent ADHD paediatrition let alone

one who is in my area AND speaks English. I do not want him to

dissmiss me as a neurotic mother.

My problem is that I have trouble myself expressing why I dissagree

with the usual doctors views of how to treat the thyroid etc. I am not

the sort of person who is good at realing off the research I have read

or even explaining it. I know in my heart the truth about thyroid and

adrenal problems but this isn't good enough when you are faced with a

doctor in this position is it? Am I making sense?

Anyway, any advice from anyone who has been in a similar situation

would be gratefully received. Even the thought of having to dissagree

with this doctor gives me palps!

[Guest guest]

Hi! -

First of all congratulations on beginning your own treatment! I find it very empowering, myself. ;o)

Yes, it is difficult to find adequate help for our children. Also very difficult to find help with any sympathy toward parents let alone help that recognizes and respects the wisdom of parents. I see you are dealing with limited choices (as too many of us are!) I don't have ready answers for how to help your paediatrician (pediatrician) understand how to diagnose and treat hypothyroid and hypoadrenal issues.

The cortisol testing needs to be done in 4 separate tests over the course of 24 hours in order to see the cortisol rhythm. So the 24 hour tests are not useful for looking for a pattern. The link below has illustrations and explanations of various patterns of cortisol rhythm. Perhaps the doctor would be interested in this link:

http://www.chronicfatigue.org/ASI%20Normal.html

I noted on the homepage that they have help and information in English, German, and Spanish. Perhaps, one of the languages will help your doctor. If, for example you are in a German-speaking canton, there is help in German... I didn't see French or Italian :-((

If you are in a French-speaking canton, perhaps, you can persuade him to consult with the internationally famous Hertoghe's in Belgium? Generations of thyroid experts! Or you might take the train to visit the Hertoghe's in Belgium for a consult!!!

I would certainly agree with you doctor that saliva tests have their drawbacks - but so do blood tests. For example it is easier to collect saliva 4 x per day and between 11pm and midnight than to go to a blood lab in the middle of the night. Perhaps if you print up one or a few of the discussions about the stages of adrenal stress, he will see that much of his job is already accomplished by the saliva lab evaluation!

If your doctor would like to read about how to diagnose and treat adrenal insufficiency, then perhaps you can give him Dr Jeffries', Safe Uses Of Cortisol. You can always say you heard that it is a terrific book on the history and safe uses of cortisol (which it is) which might interest him. Perhaps a copy of Dr Mark Starr's book on Hypothyroidism Type II can ? You might give him the book saying of course he already knows what's in the books and what they about but you thought he might find time to review their protocols, anyway - that sort of approach...

You are likely the best to gauge whether giving him copies of abstracts or links is likely to help... (there is even greater disdain in the EU for women patients with all their " little papers " !)

I think I would be trying to accomplish the same goals, with the same frustrations, in your position. Hopefully, you will be able to get what you already understand you or your child needs - namely the Free T3, Free T4, TPOAb and TGAb, B12, and ferritin. Also, the 4 x in one day saliva cortisol or ASI (Adrenal Stress Index.) Perhaps there are other tests you can use, in your situation, to confirm adrenal status...

Personally, I would be looking for ways to ensure that my family has access to what we need, regardless... but it is not entirely clear to me what effect Codex has had on the EU countries with respect to restricting access to supplements, and so forth, which might make that far more difficult than it already is.

Sorry, not much help, but hoping that you can find a way to accomplish what you know you must... good thoughts for you. As my old Swish MIL used to say " Courage! "

....

Some advice needed please! My daughter is seeing a paediatrition inSwitzerland as she has ADHD and probably some other psychiatric probs too. Having gotten into this whole thyroid and adrenal thing myself I have begun to question her health (particularly as I am certain I was hypo when pregnant).I have already begun to treat myself.

I have already ascertained that this doctor doesn't believe in " temperatures " and all the other " mumbo jumbo " and that blood testsare the only hard evidence in his eyes.Anyway, this paediatrition has agreed to have her thyroid tested and I

have so far managed to persuade him that a one off serum cortisol blood test wouldn't show the whole picture and I will either get her24 hour saliva tested myself or as he suggests, a 24 hour urinecollection. Would this be as good as the saliva testing and would it

indicate the DHEA levels also? I have asked specifically for Free T3 and Free T4 which he says is OKbut then says that he will be doing a thyroid screen using a bloodspot test. Is this OK? Does it test for Free T3 and Free T4?

I am having to tread so carefully with this chap as he is highly recommended in the field of ADHD but appears to be of the typical " endo mind " when it comes to the thyroid and adrenals. I know that it

is near on impossible to find a decent ADHD paediatrition let alone one who is in my area AND speaks English. I do not want him todismiss me as a neurotic mother.My problem is that I have trouble myself expressing why I disagree

with the usual doctors views of how to treat the thyroid etc. I am not the sort of person who is good at reeling off the research I have reador even explaining it. I know in my heart the truth about thyroid and

adrenal problems but this isn't good enough when you are faced with adoctor in this position is it? Am I making sense?Anyway, any advice from anyone who has been in a similar situationwould be gratefully received. Even the thought of having to disagree

with this doctor gives me palps!

[Guest guest]

Hi :

I am new here and sorry to butt in but if a doctor is resistant to other opinions I can understand why you would be nervous talking to him.

Did you consider checking your daughter for heavy metal toxicity as well? Mercury toxicity lowers body temp and interferes with thyroid and adrenal functions. I have heavy metals toxicity as well as adrenal insufficiency and thyroid problems.

-- 12 year old daughter and thyroid/adrenal tests

Some advice needed please! My daughter is seeing a peadiatrition inSwitzerland as she has ADHD and probably some other psychiatric probstoo. Having gotten into this whole thyroid and adrenal thing myself Ihave begun to question her health (particularly as I am certain I washypo when pregnant).I have already begun to treat myself.I have already ascertained that this doctor doesn't believe in"temperatures" and all the other "mumbo jumbo" and that blood testsare the only hard evidence in his eyes.Anyway, this paediatrition has agreed to have her thyroid tested and Ihave so far managed to persuade him that a one off serum cortisolblood test wouldn't show the whole picture and I will either get her24 hour saliva tested myself or as he suggests, a 24 hour urinecollection. Would this be as good as the saliva testing and would itindicate the DHEA levels also?I have asked specifically for Free T3 and Free T4 which he says is OKbut then says that he will be doing a thyroid screen using a bloodspot test. Is this OK? Does it test for Free T3 and Free T4?I am having to tread so carefully with this chap as he is highlyrecommended in the field of ADHD but appears to be of the typical"endo mind" when it comes to the thyroid and adrenals. I know that itis near on impossible to find a decent ADHD paediatrition let aloneone who is in my area AND speaks English. I do not want him todissmiss me as a neurotic mother.My problem is that I have trouble myself expressing why I dissagreewith the usual doctors views of how to treat the thyroid etc. I am notthe sort of person who is good at realing off the research I have reador even explaining it. I know in my heart the truth about thyroid andadrenal problems but this isn't good enough when you are faced with adoctor in this position is it? Am I making sense?Anyway, any advice from anyone who has been in a similar situationwould be gratefully received. Even the thought of having to dissagreewith this doctor gives me palps!

[Guest guest]

Hi

Nicola in Belgium here. I spoke with Thierry Hertoghe yesterday

about treating my 7 year old daughter for hypothyroidism. He is

obviously totally au fait with thyroid / adrenal / mercury issues,

and treats his own children with thyroid hormones. He might be a

better bet for your daughter, but it would take a train journey or

flight.

Nicola

-- In NaturalThyroidHormonesADRENALS , " C.

Mannelli, Ed.D. " wrote:

>

> Hi :

>

> I am new here and sorry to butt in but if a doctor is resistant to

other

> opinions I can understand why you would be nervous talking to him.

>

> Did you consider checking your daughter for heavy metal toxicity as

well?

> Mercury toxicity lowers body temp and interferes with thyroid and

adrenal

> functions. I have heavy metals toxicity as well as adrenal

insufficiency

> and thyroid problems.

>

>

>

> -- 12 year old daughter and

> thyroid/adrenal tests

>

> Some advice needed please! My daughter is seeing a peadiatrition in

> Switzerland as she has ADHD and probably some other psychiatric

probs

> too. Having gotten into this whole thyroid and adrenal thing myself

I

> have begun to question her health (particularly as I am certain I

was

> hypo when pregnant).I have already begun to treat myself.

>

> I have already ascertained that this doctor doesn't believe in

> " temperatures " and all the other " mumbo jumbo " and that blood tests

> are the only hard evidence in his eyes.

>

> Anyway, this paediatrition has agreed to have her thyroid tested

and I

> have so far managed to persuade him that a one off serum cortisol

> blood test wouldn't show the whole picture and I will either get her

> 24 hour saliva tested myself or as he suggests, a 24 hour urine

> collection. Would this be as good as the saliva testing and would it

> indicate the DHEA levels also?

>

> I have asked specifically for Free T3 and Free T4 which he says is

OK

> but then says that he will be doing a thyroid screen using a blood

> spot test. Is this OK? Does it test for Free T3 and Free T4?

>

> I am having to tread so carefully with this chap as he is highly

> recommended in the field of ADHD but appears to be of the typical

> " endo mind " when it comes to the thyroid and adrenals. I know that

it

> is near on impossible to find a decent ADHD paediatrition let alone

> one who is in my area AND speaks English. I do not want him to

> dissmiss me as a neurotic mother.

>

> My problem is that I have trouble myself expressing why I dissagree

> with the usual doctors views of how to treat the thyroid etc. I am

not

> the sort of person who is good at realing off the research I have

read

> or even explaining it. I know in my heart the truth about thyroid

and

> adrenal problems but this isn't good enough when you are faced with

a

> doctor in this position is it? Am I making sense?

>

> Anyway, any advice from anyone who has been in a similar situation

> would be gratefully received. Even the thought of having to

dissagree

> with this doctor gives me palps!

>

>

>

>

>

>

>

>

>

[Guest guest]

I see we are on the same wavelength!!

Nicola

> If you are in a French-speaking canton, perhaps, you can persuade

him to

> consult with the internationally famous Hertoghe's in Belgium?

Generations

> of thyroid experts! Or you might take the train to visit the

Hertoghe's in

> Belgium for a consult!!!

>

used to say

> " *Courage*! "

>

> ...

[Guest guest]

> >

> >

> >

> > I see we are on the same wavelength!!

> >

> > Nicola

> >

> >

> >

> > > If you are in a French-speaking canton, perhaps, you can persuade

> > him to

> > > consult with the internationally famous Hertoghe's in Belgium?

> > Generations

> > > of thyroid experts! Or you might take the train to visit the

> > Hertoghe's in

> > > Belgium for a consult!!!

> > > ...

> >

>

Tee Hee! You guys have really cheered me up!

Thank you sooooo much for the advice:

Nicola, you know, perhaps I should just go the Belgium. Apparently its

a 6 hour train journey from Basel but then at keast I know I will be

speaking to a doctor who is on the same wavelength, who actually cares

and will assess my daughter properly! We will make it a familoy thing!

What a day out. And you and I should definitely compare notes! Feel

free to email me anytime.

, Thank you so much. You said you hadn't been much help but

you really have helped a lot. Your comments made me laugh lots too!

Have a good day

PS) loved the french smiley face!!!

[Guest guest]

>

> Hi :

>

> I am new here and sorry to butt in but if a doctor is resistant to

other

> opinions I can understand why you would be nervous talking to him.

>

> Did you consider checking your daughter for heavy metal toxicity as

well?

> Mercury toxicity lowers body temp and interferes with thyroid and

adrenal

> functions. I have heavy metals toxicity as well as adrenal

insufficiency

> and thyroid problems.

>

>

Thanks , I think I will go see Dr Hertogue and get mecury and

everything checked.

>

> -- 12 year old daughter and

> thyroid/adrenal tests

>

> Some advice needed please! My daughter is seeing a peadiatrition in

> Switzerland as she has ADHD and probably some other psychiatric probs

> too. Having gotten into this whole thyroid and adrenal thing myself I

> have begun to question her health (particularly as I am certain I was

> hypo when pregnant).I have already begun to treat myself.

>

> I have already ascertained that this doctor doesn't believe in

> " temperatures " and all the other " mumbo jumbo " and that blood tests

> are the only hard evidence in his eyes.

>

> Anyway, this paediatrition has agreed to have her thyroid tested and I

> have so far managed to persuade him that a one off serum cortisol

> blood test wouldn't show the whole picture and I will either get her

> 24 hour saliva tested myself or as he suggests, a 24 hour urine

> collection. Would this be as good as the saliva testing and would it

> indicate the DHEA levels also?

>

> I have asked specifically for Free T3 and Free T4 which he says is OK

> but then says that he will be doing a thyroid screen using a blood

> spot test. Is this OK? Does it test for Free T3 and Free T4?

>

> I am having to tread so carefully with this chap as he is highly

> recommended in the field of ADHD but appears to be of the typical

> " endo mind " when it comes to the thyroid and adrenals. I know that it

> is near on impossible to find a decent ADHD paediatrition let alone

> one who is in my area AND speaks English. I do not want him to

> dissmiss me as a neurotic mother.

>

> My problem is that I have trouble myself expressing why I dissagree

> with the usual doctors views of how to treat the thyroid etc. I am not

> the sort of person who is good at realing off the research I have read

> or even explaining it. I know in my heart the truth about thyroid and

> adrenal problems but this isn't good enough when you are faced with a

> doctor in this position is it? Am I making sense?

>

> Anyway, any advice from anyone who has been in a similar situation

> would be gratefully received. Even the thought of having to dissagree

> with this doctor gives me palps!

>

>

>

>

>

>

>

>

>

[Guest guest]

Dr Thierry Hertoghe

9 Avenue van Bever

1180 Bruxelles 18

00 32 27 36 68 68

.....

call soon - cause he's pretty full

Nicola

> > >

> >

> Tee Hee! You guys have really cheered me up!

>

> Thank you sooooo much for the advice:

>

> Nicola, you know, perhaps I should just go the Belgium. Apparently

its

> a 6 hour train journey from Basel but then at keast I know I will be

> speaking to a doctor who is on the same wavelength, who actually

cares

> and will assess my daughter properly! We will make it a familoy

thing!

> What a day out. And you and I should definitely compare notes! Feel

> free to email me anytime.

>

> , Thank you so much. You said you hadn't been much help but

> you really have helped a lot. Your comments made me laugh lots too!

>

> Have a good day

>

> PS) loved the french smiley face!!!

>