New Member

Posted October 29, 2005 · October 29, 2005

Hi Smmoore, and welcome to the board. I too have a queen mother mixed

with a lot of waif traits. Understanding BPD has changed my life and

I am much happier. The book Stop Walking on Eggshells is also a must

as well as the workbook Understanding the Borderline Mother by

Lawson. There are many helps for the child of a Borderline

Parent(called KO's:kids of: here) in both of these books. I am glad

you are getting the help you need. Dee

Posted October 29, 2005 · October 29, 2005

Hi smoore, welcome and I hope the Board will be helpful to you. As

Dee said, and as you will probably hear 5,000 times, a tremendously

useful book is UBM. I got mine for a good price on buy.com.

The advice UBM gives for dealing with Queens is: (1) affirm your own

separate identity. (This is who I am). (2) create a structure in life

where your own self is protected (3) make clear the consequences of

her actions. This is just a very brief summary of what the book

says. It basically says you have to deal with the Queen getting angry

as you assert and protect your own self.

Good luck

Charlie

>

> Hi Smmoore, and welcome to the board. I too have a queen mother mixed

> with a lot of waif traits. Understanding BPD has changed my life and

> I am much happier. The book Stop Walking on Eggshells is also a must

> as well as the workbook Understanding the Borderline Mother by

> Lawson. There are many helps for the child of a Borderline

> Parent(called KO's:kids of: here) in both of these books. I am glad

> you are getting the help you need. Dee

>

Posted March 13, 2009 · March 13, 2009

Good Morning, my name is Hope and I am a caregiver. My future brother in law has

cirrohis and hepatitus C and is in Liver failure. I know that he will not be a

" good " canidate for transplant. His doctor informed us that this is how it is.

His name is , he is 55 years old. I am sure he is in the End of Liver

Failure, he is hemoraging from bladder and is jaundice. I want to thank your

group for allowing me to join. If I can help or give support to anyone just

e-mail me and I'll do what I can. Even if you just need a shoulder to lean on or

a hug. Take Care and again Thank You............Hope

Posted March 13, 2009 · March 13, 2009

welcome hope ,i am barby,my husband has esld from hep.c .i am sorry to hear

about robert,how long has he been sick?? i love your name hope!we are all in

this sinking boat together so i wanted to tell you we are here for you and your

family also. can you tell me the progession you have seen with robert and the

time frames? if not thats ok, i am always looking to find out one very important

question...how long do we have left together. i know theres no answer but

curiosoty kills the cat lol.i wish you all the best possable outcome and that

robert gets a liver,if not i pray his crossing over will be peaceful when the

time comes. you are all in my prayers.much love barby

>

> Good Morning, my name is Hope and I am a caregiver. My future brother in law

has cirrohis and hepatitus C and is in Liver failure. I know that he will not be

a " good " canidate for transplant. His doctor informed us that this is how it is.

His name is , he is 55 years old. I am sure he is in the End of Liver

Failure, he is hemoraging from bladder and is jaundice. I want to thank your

group for allowing me to join. If I can help or give support to anyone just

e-mail me and I'll do what I can. Even if you just need a shoulder to lean on or

a hug. Take Care and again Thank You............Hope

>

Posted March 13, 2009 · March 13, 2009

Welcome to the Group Hope,

You've come to a wonderful place with many wonderful caring people. I'm MaC. I

joined in Apr 06 after my wife passed from Alcoholic Cirrhosis. This place has

been a God send. Everyone here is helpful and friendly and truly care. We are

all pretty much like family.

Of course I am glad you found us, but sorry for the reason. I do have a couple

of questions for you though. When the doctor said he's not a " good " candidate.

Was that a doctor from a Transplant Evaluation Team? Becuase they are the ONLY

doctors who can say yes or no to a transplant. They put the patient through a

battery of tests to determine their eligibility. A general practitioner or

Gastro Doc, Hepatologist that he may see on a regular basis cannot make that

determination. They do of course have to refer him to a transplant center for

evaluation though. I hope his doctors " opinion " of whether he is a good or bad

candidate doesn't preclude him/her from doing that.

Lastly, what type of treatment is he getting? How long has he been jaundice?

End stage liver disease is progressive. My wife was in end stage liver disease

for at least a year before it came to the point of actual liver failure. Even

then, that lasted for about three months.

Anyway,

Welcome, there are many here and you will find that we all love each other and

help and care for each other. Like I said, we are one big family all in this

fight together. I, like you am, or was a caregiver. Others here are fighting the

disease and others have had a transplant and are going through treatment while

others wait on the list. There are many caregivers. Some who are taking care of

their loved ones, and some who have lost their loved ones. Regardless of the

reason why we are here, we are here to share our support and help each other

through this disease.

MaC

Subject: New Member

To: livercirrhosissupport

Cc: " Hope "

Date: Friday, March 13, 2009, 6:14 AM

Good Morning, my name is Hope and I am a caregiver. My future

brother in law has cirrohis and hepatitus C and is in Liver failure. I know that

he will not be a " good " canidate for transplant. His doctor informed us that

this is how it is. His name is , he is 55 years old. I am sure he is in

the End of Liver Failure, he is hemoraging from bladder and is jaundice. I want

to thank your group for allowing me to join. If I can help or give support to

anyone just e-mail me and I'll do what I can. Even if you just need a shoulder

to lean on or a hug. Take Care and again Thank You......... ...Hope

Posted March 13, 2009 · March 13, 2009

Hi Hope,

Welcome to our group. I am Penny and have Hepatitis C, but no idea how I got

it. I had a liver transplant on January 6, 2008. I am now doing the treatment

for the Hep C so it doesn't damage my new liver. This is a great group for

support with very caring people. We share and help each other.

Penny

>

> Good Morning, my name is Hope and I am a caregiver. My future brother in law

has cirrohis and hepatitus C and is in Liver failure. I know that he will not be

a " good " canidate for transplant. His doctor informed us that this is how it is.

His name is , he is 55 years old. I am sure he is in the End of Liver

Failure, he is hemoraging from bladder and is jaundice. I want to thank your

group for allowing me to join. If I can help or give support to anyone just

e-mail me and I'll do what I can. Even if you just need a shoulder to lean on or

a hug. Take Care and again Thank You............Hope

>

Posted June 15, 2009 · June 15, 2009

Hi,

I have cirrhosis and am on the transplant list for kidney and liver. I take the

prescribe medication and the last time I was tested for amonia, I was negative.

I notice that I am tired all the time and miss the energy.

Are you the caretaker or the one with cirrhosis?

This is an excellant group full of knowledge..........Welcome

Lots of hugs and kisses to everyone.

Lyncia

Subject: New Member

To: livercirrhosissupport

Date: Monday, June 15, 2009, 6:28 PM

Hi,

I am a new member to this group[. Does anybody have the latest news on

treatments for cirrhosis. Would anyone like to share their stories about what

they are going thru if they have cirrhosis or know of a friend or family member?

I would love feedback. This disease is insidious and I am a bit afraid and

ignorant about it. Please help. thanks to all that reply.

Posted June 15, 2009 · June 15, 2009

welcome julie,my name is barby.i am the caregiver to my husband,he has ESLD.so

do you have cirrhosis or are you a caregiver?? i dont really know how to answer

your question, since a transplant is the only cure for my husband.but i want to

welcome you to our family,we all are here for you ,to try and help ,inform and

comfort you. much love barby

>

> Hi,

> I am a new member to this group[. Does anybody have the latest news on

treatments for cirrhosis. Would anyone like to share their stories about what

they are going thru if they have cirrhosis or know of a friend or family member?

I would love feedback. This disease is insidious and I am a bit afraid and

ignorant about it. Please help. thanks to all that reply.

>

Posted June 15, 2009 · June 15, 2009

Hi, . I would like to welcome you to the group. We are over 500 people who

either have or care for someone with Liver disease. The standard treatment for

liver disease as a whole is to remove the insult to the liver. Obesity,

alcoholism, and even viral and bacterial hepatitis are among them, but there are

even more. End stage liver disease or cirrhosis currently has no said treatment,

except liver transplant, but science is working at a feverish pace to find a

cure.

Scar tissue spreading from one lobule to the next is called " bridging fibrosis,

and leads to high blood pressure in a main liver vein, called the portal vein.

Portal hypertension is what ails us. It causes ascities, bleeding varicies, and

brain mal-function, known as hepatic encephalopathy. In my case, the built up

toxins are even causing a lung diease called hepatopulmonary syndrome.

We are here for each other, to lean on, and share with. We have a nice photo

album, and files for dowloading, and even aq database, so you can get to know us

by our conditions. But I think you will get to know us by our personalities too.

There are three moderators, but it is a boring job, because our members are

among the best behaved on any group on the web. I am Bobby, a moderator, and the

others are MaC, and Pamela. Each of us has lost a loved one to ESLD. Feel free

to ask questions, and again, welcome, Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Monday, June 15, 2009 5:28:37 PM

Subject: New Member

Hi,

I am a new member to this group[. Does anybody have the latest news on

treatments for cirrhosis. Would anyone like to share their stories about what

they are going thru if they have cirrhosis or know of a friend or family member?

I would love feedback. This disease is insidious and I am a bit afraid and

ignorant about it. Please help. thanks to all that reply.

Posted June 15, 2009 · June 15, 2009

Hi. I am Penny and I had a liver transplant in January, 2008. Hepatitis C is

what caused my cirrhosis and liver failure. There really isn't any treatment

for cirrhosis except a liver transplant, unless you stop what is causing the

cirrhosis before it causes too much damage. Do you have cirrhosis, or are you

the caretaker of someone who does?

This is a great group with lots of knowledgeable and caring people. Welcome.

Penny

>

> Hi,

> I am a new member to this group[. Does anybody have the latest news on

treatments for cirrhosis. Would anyone like to share their stories about what

they are going thru if they have cirrhosis or know of a friend or family member?

I would love feedback. This disease is insidious and I am a bit afraid and

ignorant about it. Please help. thanks to all that reply.

>

Posted June 16, 2009 · June 16, 2009

Hi welcome to the group. My name is Debbie and I have Hepatitis C which is

affecting my liver greatly but have never had a biopsy so have no idea if I have

cirrhosis and can't give you much information concerning it but you've came to

the right place and will be able to gleen much info and support here. Best

wishes~~~Debbie

>

> Hi,

> I am a new member to this group[. Does anybody have the latest news on

treatments for cirrhosis. Would anyone like to share their stories about what

they are going thru if they have cirrhosis or know of a friend or family member?

I would love feedback. This disease is insidious and I am a bit afraid and

ignorant about it. Please help. thanks to all that reply.

>

Posted June 16, 2009 · June 16, 2009

Hi ...

Welcome! We're all here to help, not only ourselves, but each other. Nice to

'meet' you. I'm the caregiver to my husband, who has non-alcoholic

cirrhosis...basically that means the doctors could find no other reason for the

cirrhosis. He also deals with type 2 diabetes, onset in the past two years or

so, and secondary polycythemia. All of these battle against each other to some

degree or another.

Anyway, I do my best to take care of him, help him when I can and let him try to

help me when he can. I love him dearly but somedays this 'crap' really wears me

to a frazzle. I can only try to imagine how he must feel about it all.

So, that's my story in a pinch....I don't say alot here, but I do lurk in the

corner and catch the daily messages. That lets me keep up with everyone and

learn as I go. I do have a full time job out of the house, although right now

it's only 20/wk. Danged economy! But when things get stressful around here, I

sometimes turn here to vent. This group is great about 'listening' and allowing

you to vent and get it all out when you need to. They're a wonderful bunch and

I'm so glad I found this group. I'm sure you will be too....

Have a great rest of the week!

Twila

>

> Hi,

> I am a new member to this group[. Does anybody have the latest news on

treatments for cirrhosis. Would anyone like to share their stories about what

they are going thru if they have cirrhosis or know of a friend or family member?

I would love feedback. This disease is insidious and I am a bit afraid and

ignorant about it. Please help. thanks to all that reply.

>

Posted June 18, 2009 · June 18, 2009

hi julia

its a long road but in the end its worth it. well my husband suffer for 2 years

and we thought that he wouldn't make it. and i even had hospice and then we no

longer had them he just got a liver he was on the list for only 3 days. but he

was very lucky to be alive. hes really sore and hes doing great other than that.

also you hang in there and do everything that your suppose to and keep all your

appointments and the right thing will happen for you. thanks linda

Subject: Re: New Member

To: livercirrhosissupport

Date: Wednesday, June 17, 2009, 12:31 AM

Hi ...

Welcome! We're all here to help, not only ourselves, but each other. Nice to

'meet' you. I'm the caregiver to my husband, who has non-alcoholic cirrhosis...

basically that means the doctors could find no other reason for the cirrhosis.

He also deals with type 2 diabetes, onset in the past two years or so, and

secondary polycythemia. All of these battle against each other to some degree or

another.