New member

[Guest guest]

Howdy!

My nada is queen/witch mostly, too. I live real close to my mom but have

attempted no contact for the past 4 months. She kept trying to hoover me and

my 15 year old daughter in but all has been quieter lately. I think nada

thinks her " time out " will be over in November or December, though. Ugh! B/c

of something I had said like telling her to leave us alone and I would think

about talking to her in 6 mths to a year. My sister and her family come to

down in Nov to visit and they usually stay at her house. I don't know what I

am going to do about all that this year. Usually me and daughter would just

go stay over there. Daughter and I can't stand going to her house, though.

Duaghter used to take care of nada's 3 miniature horses and is sad not to be

able to do anything with them any more, but also does not want to be around

her grandnada.

Daughter and I live real close to nada.

Do you live close to yours? Are you in contact?

Theresa

>

> Good afternoon all:

>

> My name is Sherry and I am a new member here.

>

> I am an adult child of a mother who has both BPD and N traits. If you

> have read the book UTBM than you would describe her as

> the " Queen/Witch " character. I have spent most of the last several

> years recovering from the toxic effects that this person has had on my

> family members and myself. Thanks to therapy and a lot of hard work on

> my part and support groups such as this one, my life is finally a good

> one. But it has been hard road to travel.

>

> Bless all of you who have had to deal with such parents. Difficult

> doesn't begin to describe it.

>

> Sherry

> AKA: PinkButterflyNTX

>

>

>

>

>

>

>

>

>

>

> Send questions and/or concerns to ModOasis-owner

> " Stop Walking on Eggshells, " a primer for non-BPs, can be ordered via

> 1-888-35-SHELL () and for the table of contents, go to:

> http://www.BPDCentral.com

>

>

>

[Guest guest]

Dear , hi. My name is Bobby. I am a 45 year old with alcoholic end stage

liver disease. Welcome to our group. This is a group of very nice people who are

having a similar experience to yours. There are a number of patients who post

often, as well as the care givers. We have several transplant survivors and

candidates, as well as hospice patients. Liver disease is a devastating disease,

which robs people of some of the most fundamental body functions, most of which

we take for granted on a regular basis. I'll skip the part about how the liver

is the biggest organ in out body, and also the largest gland, bla bla, and go

right to ; we have a collection of PDF files for you to download and read, which

includes a mini college course from NCS university, which can really help with a

detailed understanding of what is about to happen to your dad. My heart goes out

to you this morning, I am saddened by the news of his condition. We have a

member data base ,

which if you use, can help you tell us apart, and also help us tell each other

apart. It is totally voluntary. There is also a photo album. I like the photo

album, which I find to be bitter sweet,we make friends, and then sometimes we

lose them much much too fast. This disease nor this group is not for the faint

of heart, it is a " big boy/big girl. all grown up, facing the worst possible

scenario and yet we still find a way to make humor, and love each other " kind of

group. This is the reason a lot of our friends around here might sound very

religious. I myself was a proud self described " heathen " during the youth of my

life, but I'll admit, when faced with a terminal illness, I ran straight back to

my Catholic roots. (yeesh,I hope I didn't just out myself to any one who will

take offense). We do not force our beliefs on anyone, the group as a whole

doesn't speak for any one religion, sect, denomination, political party, and we

wish to avoid controversy

when ever possible. This is really one of the few places where you can come

and face your dad's illness with like people who are really stuck in a similar

situation. If that is what you were seeking when you found us, you came to the

right place.

Getting down to brass tacks, let me say that there are a number of people who

have lost someone dear to the, from end stage liver disease, or " cirrhosis " as

it is also called. My best friend of 9 years died on August 3,2006, after a

three year long battle with the disease.I became sick right in the middle of

caring for her, and only through learning what was happening to her did I

diagnose myself, get a biopsy, and arrest my progression in time. I am in a

stage of fairly well compensated, with three complications which are puzzling to

myself, my wife, and my many doctors. The story of Ardis can be viewed here-

http://robertwalkingeagle.googlepages.com/home

I also have a liver disease blog by , my liver which is here-

http://billybobswildride.blogspot.com/

http://billybobswildride.com/

Nice to meet you. Love, Bobby

long life, old age, everything good-Apache prayer

________________________________

To: livercirrhosissupport

Sent: Monday, January 19, 2009 5:04:04 AM

Subject: New member

Hello all

I just joined the group and thought I would say hi.

My dad was diagnosed with liver cirrhosis a few months ago after a visit from

the emergency GP. In December he was admitted to hospital to drain the fluid

build up in his abdomen and was then diagnosed as also having secondary cancer

in the liver too.

He was sent for a second CT and the results came back on Tuesday last week.

The cancer in his liver is inoperable because it is not localised and spread

throughout the liver, and they have also discovered a tumour in one of the viens

on his chest.

He was admitted to hospital a second time last Wednesday to drain the fluid

build up again from his abdomen, which for me seems aweful quick considering the

first time was only about a month before.

The prognosis is not good, basically there is no treatment that he can be given

for either the cirrhosis or the cancer. I have searched the internet for

information on how his condition will develop, but it is fairly limited, and

from what the doctors are saying and the information I have found online, the

cirrhosis appears to be the bigger of the two evils.

I would really like to know what is ahead of us, it is difficult enough knowing

that his time is limited, but I would also like to know what symptoms he is

likely to develop and the severity of them. Its something we need to be prepared

for.

Unfortunately you all have experiences in some shape or form of this disease, so

your input would be greatly appreciated, I know that some or most of it wont be

pleasant but I think knowing what is coming is half the battle. My mum isnt

emotionally strong enough to deal with the facts, but if I know in advance and

see the symptoms as they develop then maybe I can soften the blow for her a bit.

Take good care

Many thanks

S

[Guest guest]

You've found the right place. Your questions will be answered, helpful advice

given and love and support abounds here!   Welcome. My husband was diagnosed

over 2 years ago and I felt so alone....then I found this forum. Thank God.

                                       

                                    Love,Jill

 

We don't remember days, we remember moments.

Life is not measured by the breaths we take,but by the moments that take our

breath away.

Subject: New member

To: livercirrhosissupport

Date: Monday, January 19, 2009, 7:04 AM

Hello all

 

I just joined the group and thought I would say hi.

 

My dad was diagnosed with liver cirrhosis a few months ago after a visit from

the emergency GP. In December he was admitted to hospital to drain the fluid

build up in his abdomen and was then diagnosed as also having secondary cancer

in the liver too.

 

He was sent for a second CT and the results came back on Tuesday last week.

 

The cancer in his liver is inoperable because it is not localised and spread

throughout the liver, and they have also discovered a tumour in one of the viens

on his chest.

 

He was admitted to hospital a second time last Wednesday to drain the fluid

build up again from his abdomen, which for me seems aweful quick considering the

first time was only about a month before.

 

The prognosis is not good, basically there is no treatment that he can be given

for either the cirrhosis or the cancer. I have searched the internet for

information on how his condition will develop, but it is fairly limited, and

from what the doctors are saying and the information I have found online, the

cirrhosis appears to be the bigger of the two evils.

 

I would really like to know what is ahead of us, it is difficult enough knowing

that his time is limited, but I would also like to know what symptoms he is

likely to develop and the severity of them. Its something we need to be prepared

for.

 

Unfortunately you all have experiences in some shape or form of this disease, so

your input would be greatly appreciated, I know that some or most of it wont be

pleasant but I think knowing what is coming is half the battle. My mum isnt

emotionally strong enough to deal with the facts, but if I know in advance and

see the symptoms as they develop then maybe I can soften the blow for her a bit.

 

Take good care

 

Many thanks

 

S

 

 

[Guest guest]

welcome stacey ,you have found one of the greatest places on earth!i

am sorry to hear of your dad being so sick honey,cirrhosis is a nasty

disease and we all have this among other things in common here.we are

on big family here ,we help one another thru the tough days console

each other laugh cry and we can be just plain silly sometimes,but

most importantly we love support and educate one another,you will be

very happy here with us i promise.i wish i could tell you play by

play what to expect but i cant were as its different for everyone,

others here can inform you better than i can about the things you are

asking, my husband was diagnosed in aug. 08 so i am fairly new here,

but i have learned so much from my friends it amazes the drs. when i

can finish their sentences for them and know words they think should

be new to me teehee, i just tell them i have friends in great places

lol.i will be keeping you ,you daddy and your family in my prayers,

take care of your momma sweety,protect her but keep her knowlegdable

as to what the drs. are saying.i know this is very hard for you and

her ,that i do know for sure,she should be very proud of you, taking

the bull by the horns and seeking knowlegde and answers,only the

truely strong will do this. so i welcome you and wish you all the

best take care and know you are loved here, much love barby

>

> Hello all

>  

> I just joined the group and thought I would say hi.

>  

> My dad was diagnosed with liver cirrhosis a few months ago after a

visit from the emergency GP. In December he was admitted to hospital

to drain the fluid build up in his abdomen and was then diagnosed as

also having secondary cancer in the liver too.

>  

> He was sent for a second CT and the results came back on Tuesday

last week.

>  

> The cancer in his liver is inoperable because it is not localised

and spread throughout the liver, and they have also discovered a

tumour in one of the viens on his chest.

>  

> He was admitted to hospital a second time last Wednesday to drain

the fluid build up again from his abdomen, which for me seems aweful

quick considering the first time was only about a month before.

>  

> The prognosis is not good, basically there is no treatment that he

can be given for either the cirrhosis or the cancer. I have searched

the internet for information on how his condition will develop,

but it is fairly limited, and from what the doctors are saying

and the information I have found online, the cirrhosis appears to be

the bigger of the two evils.

>  

> I would really like to know what is ahead of us, it is difficult

enough knowing that his time is limited, but I would also like to

know what symptoms he is likely to develop and the severity of them.

Its something we need to be prepared for.

>  

> Unfortunately you all have experiences in some shape or form of

this disease, so your input would be greatly appreciated, I know that

some or most of it wont be pleasant but I think knowing what is

coming is half the battle. My mum isnt emotionally strong enough to

deal with the facts, but if I know in advance and see the symptoms as

they develop then maybe I can soften the blow for her a bit.

>  

> Take good care

>  

> Many thanks

>  

> S

>  

>  

>

>

>

>

>

[Guest guest]

Hi everyone,

I just joined this group. I didn't realize that I had been accepted as

a member until just now because I messed up and used my default e-mail

address at Yahoo which I can't even access because I lost the password

years ago. I just changed it so that I can get mail now.

I have a huge swollen liver that is very uncomfortable. It has caused

me to have a huge hernia in my navel, and the whole thing looks just

terrible. I can hardly stand to look at myself in the mirror.

I had no idea that I had cirrhosis until about a year ago when I threw

up a lot of blood and was taken to the hospital, where I was diagnosed

with this and told that it was brought on by having hep C. I can't

work, but my company, even though I am not getting paid, keeps me on

the roster so that I can keep my company insurance. The insurance does

not pay everything, however, and I have a huge amount of debt due to

that. My wife still works, but she doesn't make enough to pay all of

these bills. I wish I could get out there and do something, but I have

no strength or stamina, and I mostly just stay at home and watch TV,

surf the net, and sleep. I am always fighting off depression. I

consider it unbecoming. I have always tried to be very stoic and

accept reality without letting it beat me down, but lately that has

been hard to do.

Thanks for listening to my complaints.

Holman

Presidio, Texas

[Guest guest]

Hi ,

Welcome to our group. There are a lot of people here who know what

you are going through, and will give you lots of support. Feel free

to ask all the questions you want and someone here will most likely

have an answer.

I am Penny. I have Hepatitis C, and had a liver transplant last

January 6, 2008. I am now doing the treatment for Hepatitis C. I

also had an umbilical hernia that looked horrible. It was fixed just

before my transplant.

It can be depressing and scarey, and we all understand that.

Do you see a hepatologist (liver specialist)? Have you been referred

to be evaluated for a liver transplant?

Take care of yourself.

Penny

>

> Hi everyone,

>

> I just joined this group. I didn't realize that I had been accepted

as

> a member until just now because I messed up and used my default e-

mail

> address at Yahoo which I can't even access because I lost the

password

> years ago. I just changed it so that I can get mail now.

>

> I have a huge swollen liver that is very uncomfortable. It has

caused

> me to have a huge hernia in my navel, and the whole thing looks just

> terrible. I can hardly stand to look at myself in the mirror.

>

> I had no idea that I had cirrhosis until about a year ago when I

threw

> up a lot of blood and was taken to the hospital, where I was

diagnosed

> with this and told that it was brought on by having hep C. I can't

> work, but my company, even though I am not getting paid, keeps me on

> the roster so that I can keep my company insurance. The insurance

does

> not pay everything, however, and I have a huge amount of debt due to

> that. My wife still works, but she doesn't make enough to pay all of

> these bills. I wish I could get out there and do something, but I

have

> no strength or stamina, and I mostly just stay at home and watch TV,

> surf the net, and sleep. I am always fighting off depression. I

> consider it unbecoming. I have always tried to be very stoic and

> accept reality without letting it beat me down, but lately that has

> been hard to do.

>

> Thanks for listening to my complaints.

>

> Holman

> Presidio, Texas

>

[Guest guest]

Welcome to the group. You are not alone in your disease or your feelings because

of it.  I hope the support here in this group will help you. My husband is going

through the same thing. He had the huge hernia too. After his last stay in the

hospital where they drained off  fluid tfrom his abdomen that has gotten better

too. He's still been real weak and loosing weight, can't eat, nothing settles

right with his stomach upset all the time, back ache. Keeps saying he hopes he

can start to feel well again as it's been so long since he could enjoy doing

anything. He was off work for 12 weeks and then had to make a decision to go

back or quit. He decided to try work again. I didn't think he could do it but

actually it made him feel better mentally when he did.  It didn't help  his body

but his attitude some. Just go day by day.

________________________________

To: livercirrhosissupport

Sent: Friday, January 30, 2009 3:15:10 PM

Subject: New member

Hi everyone,

I just joined this group. I didn't realize that I had been accepted as

a member until just now because I messed up and used my default e-mail

address at Yahoo which I can't even access because I lost the password

years ago. I just changed it so that I can get mail now.

I have a huge swollen liver that is very uncomfortable. It has caused

me to have a huge hernia in my navel, and the whole thing looks just

terrible. I can hardly stand to look at myself in the mirror.

I had no idea that I had cirrhosis until about a year ago when I threw

up a lot of blood and was taken to the hospital, where I was diagnosed

with this and told that it was brought on by having hep C. I can't

work, but my company, even though I am not getting paid, keeps me on

the roster so that I can keep my company insurance. The insurance does

not pay everything, however, and I have a huge amount of debt due to

that. My wife still works, but she doesn't make enough to pay all of

these bills.. I wish I could get out there and do something, but I have

no strength or stamina, and I mostly just stay at home and watch TV,

surf the net, and sleep. I am always fighting off depression. I

consider it unbecoming. I have always tried to be very stoic and

accept reality without letting it beat me down, but lately that has

been hard to do.

Thanks for listening to my complaints.

Holman

Presidio, Texas

[Guest guest]

welcome bryant,glad to have you here with us ,hopefully we can help

lift your spirits. we are here to listen and understand considering

we are all in the same sinking ship :)we are a pretty tight knit

group more like a family and you are welcomed with open arms. if ya

need to talk vent or just be heard one of us is always here. my

husband also has esld from hep c. its been a crazy ride, hows your

wife holding up threw it all? i do know all to well about the bills

as all of us do here,just pay what you can and file the rest ,thats

pretty much all we can do. i wish you the best and dont worry about

those pesty old mirrors just hang a towel over it. i tend to avoid

them these days and just picture myself looking 30 again

hahahaha ,have a great evening barby

>

> Hi everyone,

>

> I just joined this group. I didn't realize that I had been accepted

as

> a member until just now because I messed up and used my default e-

mail

> address at Yahoo which I can't even access because I lost the

password

> years ago. I just changed it so that I can get mail now.

>

> I have a huge swollen liver that is very uncomfortable. It has

caused

> me to have a huge hernia in my navel, and the whole thing looks just

> terrible. I can hardly stand to look at myself in the mirror.

>

> I had no idea that I had cirrhosis until about a year ago when I

threw

> up a lot of blood and was taken to the hospital, where I was

diagnosed

> with this and told that it was brought on by having hep C. I can't

> work, but my company, even though I am not getting paid, keeps me on

> the roster so that I can keep my company insurance. The insurance

does

> not pay everything, however, and I have a huge amount of debt due to

> that. My wife still works, but she doesn't make enough to pay all of

> these bills. I wish I could get out there and do something, but I

have

> no strength or stamina, and I mostly just stay at home and watch TV,

> surf the net, and sleep. I am always fighting off depression. I

> consider it unbecoming. I have always tried to be very stoic and

> accept reality without letting it beat me down, but lately that has

> been hard to do.

>

> Thanks for listening to my complaints.

>

> Holman

> Presidio, Texas

>

[Guest guest]

Welcome ,

 

Hope you find some comfort and fellowship here in this group.  There is a wealth

of knowledge and experience here and tons of love!

 

Pamela

caregiver

Subject: New member

To: livercirrhosissupport

Date: Friday, January 30, 2009, 12:15 PM

Hi everyone,

I just joined this group. I didn't realize that I had been accepted as

a member until just now because I messed up and used my default e-mail

address at Yahoo which I can't even access because I lost the password

years ago. I just changed it so that I can get mail now.

I have a huge swollen liver that is very uncomfortable. It has caused

me to have a huge hernia in my navel, and the whole thing looks just

terrible. I can hardly stand to look at myself in the mirror.

I had no idea that I had cirrhosis until about a year ago when I threw

up a lot of blood and was taken to the hospital, where I was diagnosed

with this and told that it was brought on by having hep C. I can't

work, but my company, even though I am not getting paid, keeps me on

the roster so that I can keep my company insurance. The insurance does

not pay everything, however, and I have a huge amount of debt due to

that. My wife still works, but she doesn't make enough to pay all of

these bills. I wish I could get out there and do something, but I have

no strength or stamina, and I mostly just stay at home and watch TV,

surf the net, and sleep. I am always fighting off depression. I

consider it unbecoming. I have always tried to be very stoic and

accept reality without letting it beat me down, but lately that has

been hard to do.

Thanks for listening to my complaints.

Holman

Presidio, Texas

[Guest guest]

Hi and welcome to the group.  I am Diane and I just lost my husband to

cirrhosis on Jan. 26.  This has been a difficult week, but the Lord has been

gracious and has given me strength.  This is an absolutely wonderful group of

people!  They are so supportive and caring.  Our journey with cirrhosis has been

so much better because of these great people.  I know you will find support and

education here.  I'm afraid I'm not very helpful right now, but hope to be back

and able to help out again soon.  You are in my prayers.

Hugs..............

Diane

________________________________

To: livercirrhosissupport

Sent: Friday, January 30, 2009 3:15:10 PM

Subject: New member

Hi everyone,

I just joined this group. I didn't realize that I had been accepted as

a member until just now because I messed up and used my default e-mail

address at Yahoo which I can't even access because I lost the password

years ago. I just changed it so that I can get mail now.

I have a huge swollen liver that is very uncomfortable. It has caused

me to have a huge hernia in my navel, and the whole thing looks just

terrible. I can hardly stand to look at myself in the mirror.

I had no idea that I had cirrhosis until about a year ago when I threw

up a lot of blood and was taken to the hospital, where I was diagnosed

with this and told that it was brought on by having hep C. I can't

work, but my company, even though I am not getting paid, keeps me on

the roster so that I can keep my company insurance. The insurance does

not pay everything, however, and I have a huge amount of debt due to

that. My wife still works, but she doesn't make enough to pay all of

these bills. I wish I could get out there and do something, but I have

no strength or stamina, and I mostly just stay at home and watch TV,

surf the net, and sleep. I am always fighting off depression. I

consider it unbecoming. I have always tried to be very stoic and

accept reality without letting it beat me down, but lately that has

been hard to do.

Thanks for listening to my complaints.

Holman

Presidio, Texas

[Guest guest]

Hi maC, It was good to hear from you. I will try to answer your

questions as best I can. has been sick for about six month's, I

believe he was ill before but did not say anything, He has spent the

last five years taking care of his Mom. She needed 24 hr care so he did

not work. In Jan she passed away. About two weeks later I took to

ER he was really swollen and had a hard time breathing. After testing

they inserted a needle in his abdominal area and extracted the fluid.

He had infection in his abdominal area paranitis (sp) they gave him

antibotics, told us that he had cirrhossis of the liver and hepatitis C.

The liver had stoped functioning. Sent him home, he is with his sister

now, with meds and told us that if fluid came back to come back to er.

Three days later I took him back to ER, they drained some of the fluid

but not all. The Dr. told us that he needed transplant and would get us

app. with Liver specialist. Also, told us that because of his abuse of

alchol and drugs that he is not a likley canidate for Liver transplant.

Also, told there is no hope forhim. Released him and sent us to

GP . Still waiting to see Liver Dr., GP said he had bad Kidney infection

and gave antibiotics. Returned three days later for blood and urine

test and Dr. said that both red and white blood cells are pouring from

bladder, will try to get app. with Kidney Dr. That was last week, have

not heard anything from Drs. but we call almost every day to see if

they have a canecllation app. so far not. is getting real weak,

stays dizzy and sick to stomach. His mental is getting fuzzy. Not a good

sign. I am with and his sister almost daily, and talk on phone

alot. I let her know if he gets any worse I will come stay with them. I

also try to take them out for car rides and when he feels like it to eat

out. I try to think of postive things I can do to keep his spirits up.

I also do what I call lol touch base with him. I ask honest questions

about his feelings, fears, joys tears hugs and whatever. If any one

knows of any other things I can do, please let me know, I am open for

suggestions. If I can help any way with others in the group, just let

me know. Take Care...........Hope

>

> From: Hope friskiewoman@...

> Subject: New Member

> To: livercirrhosissupport

> Cc: " Hope " friskiewoman@...

> Date: Friday, March 13, 2009, 6:14 AM

>

>

>

>

>

>

>

>

>

>

>

>

> Good Morning, my name is Hope and I am a caregiver. My future brother

in law has cirrohis and hepatitus C and is in Liver failure. I know that

he will not be a " good " canidate for transplant. His doctor informed us

that this is how it is. His name is , he is 55 years old. I am

sure he is in the End of Liver Failure, he is hemoraging from bladder

and is jaundice. I want to thank your group for allowing me to join. If

I can help or give support to anyone just e-mail me and I'll do what I

can. Even if you just need a shoulder to lean on or a hug. Take Care and

again Thank You......... ...Hope

>

>

>

>

[Guest guest]

Hi Barby, Good to meet you. I posted story to MaC, in the six

maby seven month's now I have seen go downhill fast. I really

think he has been ill for a very long time. He is very thin and now I

out weigh him. He is about 5 " 10 " and weighs less than 120 lbs. I am 5 " 2

and 1/4 and weigh about 118 or so he has lost alot of weight , I think

he weighed about 165 or so just a few month's ago. He is also very

jaundice (sp) and is loosing alot of blood, when I talked to Pam ( his

sister) this am he cut himself with a shaver and she had a really hard

time stopping the flow. I am going to see them in a few minutes, so I

can check things out. has one brother and he works 10 hr days

plus drives 65 miles one way to work and then home again. When he has

days off he goes visits his family. I met him through friends and he is

the love of my life. This is a hard time, but somehow we will keep the

family unit together. On a lighter note, my Mom and Dad named me Hope

because they hoped I would be thier last child, I was #5, guess what?

There were two more lol. Two boys and five girls. We are a close family.

My sisters call us THE GOLDEN GIRLS. ha I am Blanche lol. we have alot

of fun together and laugh even with tears. Sorry to be so long winded

but am very grateful to find your group. It gives me comfort. Thank

You.........Take Care.........Hope

> >

> > Good Morning, my name is Hope and I am a caregiver. My future

brother in law has cirrohis and hepatitus C and is in Liver failure. I

know that he will not be a " good " canidate for transplant. His doctor

informed us that this is how it is. His name is , he is 55 years

old. I am sure he is in the End of Liver Failure, he is hemoraging from

bladder and is jaundice. I want to thank your group for allowing me to

join. If I can help or give support to anyone just e-mail me and I'll do

what I can. Even if you just need a shoulder to lean on or a hug. Take

Care and again Thank You............Hope

> >

> >

> >

> >

> >

[Guest guest]

Hope,

I am sorry to hear about , my husband has ESLD as well, dx'd in Jan 2008.

 Tho, he isn't quite as bad, yet.  You say is bleeding, what are they

doing for this?  Does he go to ER to stop bleeding?

We are all trying to figure out time frames for our loved ones and that is very

dfficult.  My husband goes from bad(sleeping all the time) and then he rallys

back to the point he actually is doing chores around the house.  It is a tough

illness to predict.  I am 67 yrs old and I envision this to be my future well

into my seventies ( anyway at least I hope) He also lost alot of weight in the

beginning. He is now gaining weight and is pretty stable at 165 for the past two

months.  I really thought I was going to lose him in Novemeber, he got better

after they gave him platlets in the hospital. (er visit then inpatient stay)  He

continued to be okay then he got worst just a few weeks ago and Dr's said he

wasn't going to last long,  But today he is watering our garden in back and

looking forward to the warm weather.  He gets cold easily and complains of pain

but otherwise he is out of bed and enjoying God's goodness.  We appreciate

everyday and are

even making plans for a mini vacation, driving trip up the coast to Santa

Barbara to visit some of the missions. 

We will keep you and in our prayers,  This group is super and you will

not be alone.

Peace,Phyllis

________________________________

To: livercirrhosissupport

Sent: Friday, March 13, 2009 11:01:41 AM

Subject: Re: New Member

Hi Barby, Good to meet you. I posted story to MaC, in the six

maby seven month's now I have seen go downhill fast.. I really

think he has been ill for a very long time. He is very thin and now I

out weigh him. He is about 5 " 10 " and weighs less than 120 lbs. I am 5 " 2

and 1/4 and weigh about 118 or so he has lost alot of weight , I think

he weighed about 165 or so just a few month's ago. He is also very

jaundice (sp) and is loosing alot of blood, when I talked to Pam ( his

sister) this am he cut himself with a shaver and she had a really hard

time stopping the flow. I am going to see them in a few minutes, so I

can check things out. has one brother and he works 10 hr days

plus drives 65 miles one way to work and then home again. When he has

days off he goes visits his family. I met him through friends and he is

the love of my life. This is a hard time, but somehow we will keep the

family unit together. On a lighter note, my Mom and Dad named me Hope

because they hoped I would be thier last child, I was #5, guess what?

There were two more lol. Two boys and five girls. We are a close family.

My sisters call us THE GOLDEN GIRLS. ha I am Blanche lol. we have alot

of fun together and laugh even with tears. Sorry to be so long winded

but am very grateful to find your group. It gives me comfort. Thank

You......... Take Care......... .Hope

> >

> > Good Morning, my name is Hope and I am a caregiver. My future

brother in law has cirrohis and hepatitus C and is in Liver failure. I

know that he will not be a " good " canidate for transplant. His doctor

informed us that this is how it is. His name is , he is 55 years

old. I am sure he is in the End of Liver Failure, he is hemoraging from

bladder and is jaundice. I want to thank your group for allowing me to

join. If I can help or give support to anyone just e-mail me and I'll do

what I can. Even if you just need a shoulder to lean on or a hug. Take

Care and again Thank You......... ...Hope

> >

> >

> >

> >

> >