Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 Hi Jan- We wanted you to know we are thinking of you and Jim and always keep both of you in our prayers. With outstretched arms- Sandie and S -- Jim's Health Hi, I had a wonderful Christmas with my family, but I felt horrible about leaving Jim for a day to be with my family. I did not have time to visit with him on Christmas Eve, as that is the day that we celebrate and open gifts and I had so much to prepare and get ready to bring to the big event. My oldest daughter had Christmas Eve at her house and did a fantastic job and had a wonderful dinner for us all. My sister spent the night at my house on Christmas Eve night and the next night and left early this evening. We went to visit Jim on Christmas night and he was in good spirits, even wanted to get out of bed for awhile. My sister gave him a balloon ball for Christmas. It looks like a balloon, but has the surface of a ball. We all hit the balloon back and forth. It was great exercise for Jim and he seemed to have fun with it. He also ate his dinner well. This evening I went in to visit him and he was so weak. Entirely different from the night before. He could bearly sit up. His blood pressure was 90/70 and he almost passed out. He was shaking and could hardly hold his head up to drink liquids. When Jim's blood pressure drops at the hospital they put him on Potassium Chloride to get it up again, I thought that maybe putting some salt on Jim's dinner would give him some chloride, sodium chloride, and he also had a banana on his dinner tray and that was potassium, so I fed him the salty dinner and the banana. He ate a good portion of it and drank two full glasses of orange juice, which is good to get the blood sugar up. The nurse took his BP later and it had gone up to 110/90. jim was not shaking so much either. He still seemed very weak though and I hear all kinds of mucus in his throat that he can not cough up. He is too weak to cough it up. I bought some Mucinex. Has anyone here used that for mucus/phlegm for their LO? I bought it in Child's form, because it is liquid form and easy for Jim to take. It is with Guaifenesin, so I figure it's ok to give to him. I am not going to wait around for the doctor to ok it. Jim is nearly choking on his mucus. I want to losen it up for him. Arghhhhhhhhhhhhhhh I just feel so helpless to help Jim and I feel like I am trying to communicate with an invisable doctor, since I have never met Jim's doctor at the nh. I asked at the nh when the doctor visits, but they said there is no routine day, the doctor shows up when the doctor shows up. I can only leave messages to the doctor through his advice nurse or have the nurses at the nh fax the doctor. I feel like things are not being done quick enough to help Jim. Some days are much better with Jim and I feel good and tonight I feel like I am sinking. I am on a 2 week vacation and I am going to spend it with Jim everyday all day for the next few weeks to try and build him back up. Now, that Christmas is over and I don't have that to think about too. Hope you all had a wonderful Christmas and if you don't celebrate Christmas a wonderful holiday..................Jan __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Hi S, Thank you for your concerns. I am on that LBD emotional roller coaster, never knowing quite where Jim is on his journey. One day he seems in good spirits and another day so weak. Today, was a good day. I have a good feeling from today that he is going to pull through this. I pray that he does. He has been hit back to back with a severe UTI and then Pneumonia all within a week of each other. His immune system broke down, but I am there now everyday for 8-9 hours to make sure that he is eating his meals and drinking liquids. He has lost so much weight from not eating, but I am going to build up his strength again. He ate well today and all his vital signs are normal again. I started giving him Mucinex, child's strength, for all the congestion in his chest that he can not cough up. I am sure if they found out at the nh that I was giving him medication that was not a doctor's order that I would be in deep trouble, but I have called the doctor and left a message for a perscription for chest congestion and did not hear back. Jim has taken the medication for two days and already shows great improvement. He is coughing and sneezing up gobs of mucus, now that the medication has loosened it up. He even was chatty today. Maybe the medication is making him chatty. Although, there is no alcohol in it, but it was sure good to hear, since he has not talked in 3 weeks. I pray that tomorrow is another good day. Hugs to you S............Jan Sandie and wrote: Hi Jan- We wanted you to know we are thinking of you and Jim and always keep both of you in our prayers. With outstretched arms- Sandie and S -- Jim's Health Hi, I had a wonderful Christmas with my family, but I felt horrible about leaving Jim for a day to be with my family. I did not have time to visit with him on Christmas Eve, as that is the day that we celebrate and open gifts and I had so much to prepare and get ready to bring to the big event. My oldest daughter had Christmas Eve at her house and did a fantastic job and had a wonderful dinner for us all. My sister spent the night at my house on Christmas Eve night and the next night and left early this evening. We went to visit Jim on Christmas night and he was in good spirits, even wanted to get out of bed for awhile. My sister gave him a balloon ball for Christmas. It looks like a balloon, but has the surface of a ball. We all hit the balloon back and forth. It was great exercise for Jim and he seemed to have fun with it. He also ate his dinner well. This evening I went in to visit him and he was so weak. Entirely different from the night before. He could bearly sit up. His blood pressure was 90/70 and he almost passed out. He was shaking and could hardly hold his head up to drink liquids. When Jim's blood pressure drops at the hospital they put him on Potassium Chloride to get it up again, I thought that maybe putting some salt on Jim's dinner would give him some chloride, sodium chloride, and he also had a banana on his dinner tray and that was potassium, so I fed him the salty dinner and the banana. He ate a good portion of it and drank two full glasses of orange juice, which is good to get the blood sugar up. The nurse took his BP later and it had gone up to 110/90. jim was not shaking so much either. He still seemed very weak though and I hear all kinds of mucus in his throat that he can not cough up. He is too weak to cough it up. I bought some Mucinex. Has anyone here used that for mucus/phlegm for their LO? I bought it in Child's form, because it is liquid form and easy for Jim to take. It is with Guaifenesin, so I figure it's ok to give to him. I am not going to wait around for the doctor to ok it. Jim is nearly choking on his mucus. I want to losen it up for him. Arghhhhhhhhhhhhhhh I just feel so helpless to help Jim and I feel like I am trying to communicate with an invisable doctor, since I have never met Jim's doctor at the nh. I asked at the nh when the doctor visits, but they said there is no routine day, the doctor shows up when the doctor shows up. I can only leave messages to the doctor through his advice nurse or have the nurses at the nh fax the doctor. I feel like things are not being done quick enough to help Jim. Some days are much better with Jim and I feel good and tonight I feel like I am sinking. I am on a 2 week vacation and I am going to spend it with Jim everyday all day for the next few weeks to try and build him back up. Now, that Christmas is over and I don't have that to think about too. Hope you all had a wonderful Christmas and if you don't celebrate Christmas a wonderful holiday..................Jan __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 OH! Good, good, good! Glad to hear that all your efforts are bringing some good results! I'll keep him in my prayers that he continues to do well. I'm sure you're enjoying all your extra long visits. And so is he!! :) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Jan, my heart always goes to you. My best to both of you. Imogene In a message dated 12/29/2006 3:33:54 AM Central Standard Time, janetcolello@... writes: Hi S, Thank you for your concerns. I am on that LBD emotional roller coaster, never knowing quite where Jim is on his journey. One day he seems in good spirits and another day so weak. Today, was a good day. I have a good feeling from today that he is going to pull through this. I pray that he does. He has been hit back to back with a severe UTI and then Pneumonia all within a week of each other. His immune system broke down, but I am there now everyday for 8-9 hours to make sure that he is eating his meals and drinking liquids. He has lost so much weight from not eating, but I am going to build up his strength again. He ate well today and all his vital signs are normal again. I started giving him Mucinex, child's strength, for all the congestion in his chest that he can not cough up. I am sure if they found out at the nh that I was giving him medication that was not a doctor's order that I would be in deep trouble, but I have called the doctor and left a message for a perscription for chest congestion and did not hear back. Jim has taken the medication for two days and already shows great improvement. He is coughing and sneezing up gobs of mucus, now that the medication has loosened it up. He even was chatty today. Maybe the medication is making him chatty. Although, there is no alcohol in it, but it was sure good to hear, since he has not talked in 3 weeks. I pray that tomorrow is another good day. Hugs to you S............Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Hi Jan- I have been following your recent days and our hearts go out to you and Jim. I am sure your love for Jim and the extra cares you give will see him through this bump in his journey. I understand what you wrote about the " emotional roller coaster " at this time. It seems that every day is a " what will happen today and am I prepared for it " kind of day then when there is improvement there is a bit of peace only to worry for the next moment. Thank you for the continued updates on Jim. How are you holding up today? I know there are days when you want fall, when the stress of it all catches up yet please know Jan, you will make it through this and with strength. I can't explain how it happens except with faith. Hugs again, to you and Jim- Sandie and -- Jim's Health Hi, I had a wonderful Christmas with my family, but I felt horrible about leaving Jim for a day to be with my family. I did not have time to visit with him on Christmas Eve, as that is the day that we celebrate and open gifts and I had so much to prepare and get ready to bring to the big event. My oldest daughter had Christmas Eve at her house and did a fantastic job and had a wonderful dinner for us all. My sister spent the night at my house on Christmas Eve night and the next night and left early this evening. We went to visit Jim on Christmas night and he was in good spirits, even wanted to get out of bed for awhile. My sister gave him a balloon ball for Christmas. It looks like a balloon, but has the surface of a ball. We all hit the balloon back and forth. It was great exercise for Jim and he seemed to have fun with it. He also ate his dinner well. This evening I went in to visit him and he was so weak. Entirely different from the night before. He could bearly sit up. His blood pressure was 90/70 and he almost passed out. He was shaking and could hardly hold his head up to drink liquids. When Jim's blood pressure drops at the hospital they put him on Potassium Chloride to get it up again, I thought that maybe putting some salt on Jim's dinner would give him some chloride, sodium chloride, and he also had a banana on his dinner tray and that was potassium, so I fed him the salty dinner and the banana. He ate a good portion of it and drank two full glasses of orange juice, which is good to get the blood sugar up. The nurse took his BP later and it had gone up to 110/90. jim was not shaking so much either. He still seemed very weak though and I hear all kinds of mucus in his throat that he can not cough up. He is too weak to cough it up. I bought some Mucinex. Has anyone here used that for mucus/phlegm for their LO? I bought it in Child's form, because it is liquid form and easy for Jim to take. It is with Guaifenesin, so I figure it's ok to give to him. I am not going to wait around for the doctor to ok it. Jim is nearly choking on his mucus. I want to losen it up for him. Arghhhhhhhhhhhhhhh I just feel so helpless to help Jim and I feel like I am trying to communicate with an invisable doctor, since I have never met Jim's doctor at the nh. I asked at the nh when the doctor visits, but they said there is no routine day, the doctor shows up when the doctor shows up. I can only leave messages to the doctor through his advice nurse or have the nurses at the nh fax the doctor. I feel like things are not being done quick enough to help Jim. Some days are much better with Jim and I feel good and tonight I feel like I am sinking. I am on a 2 week vacation and I am going to spend it with Jim everyday all day for the next few weeks to try and build him back up. Now, that Christmas is over and I don't have that to think about too. Hope you all had a wonderful Christmas and if you don't celebrate Christmas a wonderful holiday..................Jan __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Jan, One of the nursing home nurses told me that as the family I could give my Mother anything that I wanted. It's just the nurses that have to have a doctor's orders. This is to protect them from any lawsuits. Keep up the good fight, in Dallas > Hi Jan- > > We wanted you to know we are thinking of you and > Jim and always keep both of you in our prayers. > > With outstretched arms- > > Sandie and > S > > -- Jim's Health > > Hi, > I had a wonderful Christmas with my family, but I felt horrible about > leaving Jim for a day to be with my family. I did not have time to visit > with him on Christmas Eve, as that is the day that we celebrate and open > gifts and I had so much to prepare and get ready to bring to the big event. > My oldest daughter had Christmas Eve at her house and did a fantastic job > and had a wonderful dinner for us all. > My sister spent the night at my house on Christmas Eve night and the next > night and left early this evening. We went to visit Jim on Christmas night > and he was in good spirits, even wanted to get out of bed for awhile. My > sister gave him a balloon ball for Christmas. It looks like a balloon, but > has the surface of a ball. We all hit the balloon back and forth. It was > great exercise for Jim and he seemed to have fun with it. He also ate his > dinner well. > This evening I went in to visit him and he was so weak. Entirely different > from the night before. He could bearly sit up. His blood pressure was 90/70 > and he almost passed out. He was shaking and could hardly hold his head up > to drink liquids. When Jim's blood pressure drops at the hospital they put > him on Potassium Chloride to get it up again, I thought that maybe putting > some salt on Jim's dinner would give him some chloride, sodium chloride, and > he also had a banana on his dinner tray and that was potassium, so I fed > him the salty dinner and the banana. He ate a good portion of it and drank > two full glasses of orange juice, which is good to get the blood sugar up. > The nurse took his BP later and it had gone up to 110/90. jim was not > shaking so much either. He still seemed very weak though and I hear all > kinds of mucus in his throat that he can not cough up. He is too weak to > cough it up. I bought some Mucinex. Has anyone here used that for > mucus/phlegm for their LO? > I bought it in Child's form, because it is liquid form and easy for Jim to > take. It is with Guaifenesin, so I figure it's ok to give to him. I am not > going to wait around for the doctor to ok it. Jim is nearly choking on his > mucus. I want to losen it up for him. Arghhhhhhhhhhhhhhh I just feel so > helpless to help Jim and I feel like I am trying to communicate with an > invisable doctor, since I have never met Jim's doctor at the nh. I asked at > the nh when the doctor visits, but they said there is no routine day, the > doctor shows up when the doctor shows up. > I can only leave messages to the doctor through his advice nurse or have > the nurses at the nh fax the doctor. I feel like things are not being done > quick enough to help Jim. Some days are much better with Jim and I feel good > and tonight I feel like I am sinking. > I am on a 2 week vacation and I am going to spend it with Jim everyday all > day for the next few weeks to try and build him back up. Now, that Christmas > is over and I don't have that to think about too. > Hope you all had a wonderful Christmas and if you don't celebrate > Christmas a wonderful holiday..................Jan > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Jan, Glad to hear that Jim is doing better. I am sure your just being with him is an immense help to him. Hope his lungs get cleared up. Where in heck is the Doctor anyway. Hope you find him at some point while you are there! I would find it unusual that you didn't see him any more than you have. Hugs, Donna R Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in a nh. She was almost 89 when she died in '02. No dx other than mine. Jim's Health Hi, I had a wonderful Christmas with my family, but I felt horrible about leaving Jim for a day to be with my family. I did not have time to visit with him on Christmas Eve, as that is the day that we celebrate and open gifts and I had so much to prepare and get ready to bring to the big event. My oldest daughter had Christmas Eve at her house and did a fantastic job and had a wonderful dinner for us all. My sister spent the night at my house on Christmas Eve night and the next night and left early this evening. We went to visit Jim on Christmas night and he was in good spirits, even wanted to get out of bed for awhile. My sister gave him a balloon ball for Christmas. It looks like a balloon, but has the surface of a ball. We all hit the balloon back and forth. It was great exercise for Jim and he seemed to have fun with it. He also ate his dinner well. This evening I went in to visit him and he was so weak. Entirely different from the night before. He could bearly sit up. His blood pressure was 90/70 and he almost passed out. He was shaking and could hardly hold his head up to drink liquids. When Jim's blood pressure drops at the hospital they put him on Potassium Chloride to get it up again, I thought that maybe putting some salt on Jim's dinner would give him some chloride, sodium chloride, and he also had a banana on his dinner tray and that was potassium, so I fed him the salty dinner and the banana. He ate a good portion of it and drank two full glasses of orange juice, which is good to get the blood sugar up. The nurse took his BP later and it had gone up to 110/90. jim was not shaking so much either. He still seemed very weak though and I hear all kinds of mucus in his throat that he can not cough up. He is too weak to cough it up. I bought some Mucinex. Has anyone here used that for mucus/phlegm for their LO? I bought it in Child's form, because it is liquid form and easy for Jim to take. It is with Guaifenesin, so I figure it's ok to give to him. I am not going to wait around for the doctor to ok it. Jim is nearly choking on his mucus. I want to losen it up for him. Arghhhhhhhhhhhhhhh I just feel so helpless to help Jim and I feel like I am trying to communicate with an invisable doctor, since I have never met Jim's doctor at the nh. I asked at the nh when the doctor visits, but they said there is no routine day, the doctor shows up when the doctor shows up. I can only leave messages to the doctor through his advice nurse or have the nurses at the nh fax the doctor. I feel like things are not being done quick enough to help Jim. Some days are much better with Jim and I feel good and tonight I feel like I am sinking. I am on a 2 week vacation and I am going to spend it with Jim everyday all day for the next few weeks to try and build him back up. Now, that Christmas is over and I don't have that to think about too. Hope you all had a wonderful Christmas and if you don't celebrate Christmas a wonderful holiday..................Jan __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Hi Jan It was great to hear from you. I will continue to pray for Jim and that your trips all work out. I know this is a huge set back for Jim, but let's pray that he recovers totally. I thought that Kaiser Dr's had to return your calls within the 24 working hours. Was it over a holiday or weekend that you called? If not I would call again. My mom would have this chronic drippy eye. Almost like pink eye. And I would and still just go in every day like usual and put the drops in when no one is around. I just can't be bothered with all the ordeal it takes to get a prescription and then I have to go get it etc... when I already have some at home. It clears up every time. She gets it once or twice a year. The prescription is old now, so I will have to get the Dr. to prescribe it next time. We do what we have to do. Hope you all have a great New Year!! I will be busy getting my Aunt settled either here or possible a different rehab, so I may be off for a while. I will try to read as much as possible. I will thinking for you all daily. Dena Mother (84) Living with LBD in NH. --- Janet Colello wrote: > Hi S, > Thank you for your concerns. I am on that LBD > emotional roller coaster, never knowing quite where > Jim is on his journey. One day he seems in good > spirits and another day so weak. Today, was a good > day. I have a good feeling from today that he is > going to pull through this. I pray that he does. He > has been hit back to back with a severe UTI and then > Pneumonia all within a week of each other. His > immune system broke down, but I am there now > everyday for 8-9 hours to make sure that he is > eating his meals and drinking liquids. He has lost > so much weight from not eating, but I am going to > build up his strength again. He ate well today and > all his vital signs are normal again. I started > giving him Mucinex, child's strength, for all the > congestion in his chest that he can not cough up. I > am sure if they found out at the nh that I was > giving him medication that was not a doctor's order > that I would be in deep trouble, but I have called > the doctor and left a message for a > perscription for chest congestion and did not hear > back. Jim has taken the medication for two days and > already shows great improvement. He is coughing and > sneezing up gobs of mucus, now that the medication > has loosened it up. He even was chatty today. Maybe > the medication is making him chatty. Although, there > is no alcohol in it, but it was sure good to hear, > since he has not talked in 3 weeks. > I pray that tomorrow is another good day. > Hugs to you S............Jan > > > > Sandie and wrote: > Hi Jan- > > We wanted you to know we are thinking of you and > Jim and always keep both of you in our prayers. > > With outstretched arms- > > Sandie and > S > > -- Jim's Health > > Hi, > I had a wonderful Christmas with my family, but I > felt horrible about > leaving Jim for a day to be with my family. I did > not have time to visit > with him on Christmas Eve, as that is the day that > we celebrate and open > gifts and I had so much to prepare and get ready to > bring to the big event. > My oldest daughter had Christmas Eve at her house > and did a fantastic job > and had a wonderful dinner for us all. > My sister spent the night at my house on Christmas > Eve night and the next > night and left early this evening. We went to visit > Jim on Christmas night > and he was in good spirits, even wanted to get out > of bed for awhile. My > sister gave him a balloon ball for Christmas. It > looks like a balloon, but > has the surface of a ball. We all hit the balloon > back and forth. It was > great exercise for Jim and he seemed to have fun > with it. He also ate his > dinner well. > This evening I went in to visit him and he was so > weak. Entirely different > from the night before. He could bearly sit up. His > blood pressure was 90/70 > and he almost passed out. He was shaking and could > hardly hold his head up > to drink liquids. When Jim's blood pressure drops at > the hospital they put > him on Potassium Chloride to get it up again, I > thought that maybe putting > some salt on Jim's dinner would give him some > chloride, sodium chloride, and > he also had a banana on his dinner tray and that was > potassium, so I fed > him the salty dinner and the banana. He ate a good > portion of it and drank > two full glasses of orange juice, which is good to > get the blood sugar up. > The nurse took his BP later and it had gone up to > 110/90. jim was not > shaking so much either. He still seemed very weak > though and I hear all > kinds of mucus in his throat that he can not cough > up. He is too weak to > cough it up. I bought some Mucinex. Has anyone here > used that for > mucus/phlegm for their LO? > I bought it in Child's form, because it is liquid > form and easy for Jim to > take. It is with Guaifenesin, so I figure it's ok to > give to him. I am not > going to wait around for the doctor to ok it. Jim is > nearly choking on his > mucus. I want to losen it up for him. > Arghhhhhhhhhhhhhhh I just feel so > helpless to help Jim and I feel like I am trying to > communicate with an > invisable doctor, since I have never met Jim's > doctor at the nh. I asked at > the nh when the doctor visits, but they said there > is no routine day, the > doctor shows up when the doctor shows up. > I can only leave messages to the doctor through his > advice nurse or have > the nurses at the nh fax the doctor. I feel like > things are not being done > quick enough to help Jim. Some days are much better > with Jim and I feel good > and tonight I feel like I am sinking. > I am on a 2 week vacation and I am going to spend it > with Jim everyday all > day for the next few weeks to try and build him back > up. Now, that Christmas > is over and I don't have that to think about too. > Hope you all had a wonderful Christmas and if you > don't celebrate > Christmas a wonderful holiday..................Jan > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Jan, I am glad that Jim seems to be doing a bit better. Probably because of all the TLC you are giving him. He is very blessed to have you in his life as I can see how deeply you care about him. I am sure the nursing staff are glad you are there as it lets them off the hook for so much of the care. Thanks for giving us an update and I will continue to pray that the congestion will clear up and he will start feeling better soon. Hugs Vallerie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Hi Dena, Yes, I left the message with the Kaiser doctor and said that I had my cell phone on for a return call or to leave a message. Well, of course, I sat in Jim's room for hours and the moment I stepped out, the doctor called, but I wasn't there to receive the call and he left a message, so I called back and he wasn't there, I left another message, but never heard back. So I just started giving Jim the medication anyway for two days and then today a nurse said that the doctor has approved the medication. So now officially he can take it. I just gave Jim a two day head start! I hate not being able to meet the doctor and speak with the doctor. I have to be at the Home at the right time and moment the doctor visits, as there is no set time. Jim has that same eye thing, the doctor called it Blepheritis. He has medication too. I also thought it was pink eye when it started about 3 or 4 years ago. It comes back about every 4 months. So, whenever it reoccurs the nurse will put the medication on his eyes. His is not drops, but an ointment in a tube and it goes on the lower and upper lids of the eyes and within a day it is gone, until about 4 months later when it shows up again. What drops does your mother take for her eyes? Have a great New Year and I hope that it all goes the way you want it to go for your aunt to be in rehab. Are you on Yahoo messenger to chat? I am on Yahoo Messenger if you ever want to be a chatting buddy. JanetColello is my ID if you want to be on my buddy list. Jan Dena LEAVITT wrote: Hi Jan It was great to hear from you. I will continue to pray for Jim and that your trips all work out. I know this is a huge set back for Jim, but let's pray that he recovers totally. I thought that Kaiser Dr's had to return your calls within the 24 working hours. Was it over a holiday or weekend that you called? If not I would call again. My mom would have this chronic drippy eye. Almost like pink eye. And I would and still just go in every day like usual and put the drops in when no one is around. I just can't be bothered with all the ordeal it takes to get a prescription and then I have to go get it etc... when I already have some at home. It clears up every time. She gets it once or twice a year. The prescription is old now, so I will have to get the Dr. to prescribe it next time. We do what we have to do. Hope you all have a great New Year!! I will be busy getting my Aunt settled either here or possible a different rehab, so I may be off for a while. I will try to read as much as possible. I will thinking for you all daily. Dena Mother (84) Living with LBD in NH. --- Janet Colello wrote: > Hi S, > Thank you for your concerns. I am on that LBD > emotional roller coaster, never knowing quite where > Jim is on his journey. One day he seems in good > spirits and another day so weak. Today, was a good > day. I have a good feeling from today that he is > going to pull through this. I pray that he does. He > has been hit back to back with a severe UTI and then > Pneumonia all within a week of each other. His > immune system broke down, but I am there now > everyday for 8-9 hours to make sure that he is > eating his meals and drinking liquids. He has lost > so much weight from not eating, but I am going to > build up his strength again. He ate well today and > all his vital signs are normal again. I started > giving him Mucinex, child's strength, for all the > congestion in his chest that he can not cough up. I > am sure if they found out at the nh that I was > giving him medication that was not a doctor's order > that I would be in deep trouble, but I have called > the doctor and left a message for a > perscription for chest congestion and did not hear > back. Jim has taken the medication for two days and > already shows great improvement. He is coughing and > sneezing up gobs of mucus, now that the medication > has loosened it up. He even was chatty today. Maybe > the medication is making him chatty. Although, there > is no alcohol in it, but it was sure good to hear, > since he has not talked in 3 weeks. > I pray that tomorrow is another good day. > Hugs to you S............Jan > > > > Sandie and wrote: > Hi Jan- > > We wanted you to know we are thinking of you and > Jim and always keep both of you in our prayers. > > With outstretched arms- > > Sandie and > S > > -- Jim's Health > > Hi, > I had a wonderful Christmas with my family, but I > felt horrible about > leaving Jim for a day to be with my family. I did > not have time to visit > with him on Christmas Eve, as that is the day that > we celebrate and open > gifts and I had so much to prepare and get ready to > bring to the big event. > My oldest daughter had Christmas Eve at her house > and did a fantastic job > and had a wonderful dinner for us all. > My sister spent the night at my house on Christmas > Eve night and the next > night and left early this evening. We went to visit > Jim on Christmas night > and he was in good spirits, even wanted to get out > of bed for awhile. My > sister gave him a balloon ball for Christmas. It > looks like a balloon, but > has the surface of a ball. We all hit the balloon > back and forth. It was > great exercise for Jim and he seemed to have fun > with it. He also ate his > dinner well. > This evening I went in to visit him and he was so > weak. Entirely different > from the night before. He could bearly sit up. His > blood pressure was 90/70 > and he almost passed out. He was shaking and could > hardly hold his head up > to drink liquids. When Jim's blood pressure drops at > the hospital they put > him on Potassium Chloride to get it up again, I > thought that maybe putting > some salt on Jim's dinner would give him some > chloride, sodium chloride, and > he also had a banana on his dinner tray and that was > potassium, so I fed > him the salty dinner and the banana. He ate a good > portion of it and drank > two full glasses of orange juice, which is good to > get the blood sugar up. > The nurse took his BP later and it had gone up to > 110/90. jim was not > shaking so much either. He still seemed very weak > though and I hear all > kinds of mucus in his throat that he can not cough > up. He is too weak to > cough it up. I bought some Mucinex. Has anyone here > used that for > mucus/phlegm for their LO? > I bought it in Child's form, because it is liquid > form and easy for Jim to > take. It is with Guaifenesin, so I figure it's ok to > give to him. I am not > going to wait around for the doctor to ok it. Jim is > nearly choking on his > mucus. I want to losen it up for him. > Arghhhhhhhhhhhhhhh I just feel so > helpless to help Jim and I feel like I am trying to > communicate with an > invisable doctor, since I have never met Jim's > doctor at the nh. I asked at > the nh when the doctor visits, but they said there > is no routine day, the > doctor shows up when the doctor shows up. > I can only leave messages to the doctor through his > advice nurse or have > the nurses at the nh fax the doctor. I feel like > things are not being done > quick enough to help Jim. Some days are much better > with Jim and I feel good > and tonight I feel like I am sinking. > I am on a 2 week vacation and I am going to spend it > with Jim everyday all > day for the next few weeks to try and build him back > up. Now, that Christmas > is over and I don't have that to think about too. > Hope you all had a wonderful Christmas and if you > don't celebrate > Christmas a wonderful holiday..................Jan > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Hi Jan My mom is on the same stuff. It is a tube of ointment rather than drops. They probably have the same thing. I accidentally meet the Dr once in the 10 months that she has been there. I had him go to her room and check her bed sore. I hardly ever saw the second Hospice nurse either. She would come at such weird times. You can always call membership and complain that you cannot speak to Dr and get them involved. Maybe try one more time and then let membership know. You know the saying " The squeaky wheel gets the grease " Off Topic: My Aunt's appeal was over turned and she may remain at the rehab center until the next evaluation which will be on Wed. We are watching them like a hawk and have had meetings with everyone you could think of. She got at least 1 & 1/2 hours of rehab today when she was getting 30 mins. We have her up out of bed for the majority of the day now too. What was happening is she was up 30 mins each day and then in bed the rest of the time. She was getting so weak and they felt that she had plateaued and would not get any better than she was. Well, today she walked twice the distance that she had been walking so she definitely has not plateaued. My cousin and I are all over this and have many outsiders watching was well. They are finally handling things the way we want them handled. It is too bad that you have to go to such lengths to get the quality of care that you are suppose to get. I am not really happy with Kaiser at this point either. (If you missed the earlier post my Aunt broke her hip) Dena Caregiver for Mom (84) Living with LBD in NH. Soon to be caregiver for Aunt(79) with broken hip living in my home --- Janet Colello wrote: > > Hi Dena, > Yes, I left the message with the Kaiser doctor and > said that I had my cell phone on for a return call > or to leave a message. Well, of course, I sat in > Jim's room for hours and the moment I stepped out, > the doctor called, but I wasn't there to receive the > call and he left a message, so I called back and he > wasn't there, I left another message, but never > heard back. So I just started giving Jim the > medication anyway for two days and then today a > nurse said that the doctor has approved the > medication. So now officially he can take it. I just > gave Jim a two day head start! I hate not being able > to meet the doctor and speak with the doctor. I have > to be at the Home at the right time and moment the > doctor visits, as there is no set time. > Jim has that same eye thing, the doctor called it > Blepheritis. He has medication too. I also thought > it was pink eye when it started about 3 or 4 years > ago. It comes back about every 4 months. So, > whenever it reoccurs the nurse will put the > medication on his eyes. His is not drops, but an > ointment in a tube and it goes on the lower and > upper lids of the eyes and within a day it is gone, > until about 4 months later when it shows up again. > What drops does your mother take for her eyes? > Have a great New Year and I hope that it all goes > the way you want it to go for your aunt to be in > rehab. > Are you on Yahoo messenger to chat? I am on Yahoo > Messenger if you ever want to be a chatting buddy. > JanetColello is my ID if you want to be on my buddy > list. > Jan > > Dena LEAVITT wrote: > Hi Jan > > It was great to hear from you. I will continue to > pray > for Jim and that your trips all work out. I know > this > is a huge set back for Jim, but let's pray that he > recovers totally. > > I thought that Kaiser Dr's had to return your calls > within the 24 working hours. Was it over a holiday > or > weekend that you called? If not I would call again. > > My mom would have this chronic drippy eye. Almost > like > pink eye. And I would and still just go in every day > like usual and put the drops in when no one is > around. > I just can't be bothered with all the ordeal it > takes > to get a prescription and then I have to go get it > etc... when I already have some at home. It clears > up > every time. She gets it once or twice a year. The > prescription is old now, so I will have to get the > Dr. > to prescribe it next time. We do what we have to do. > > Hope you all have a great New Year!! I will be busy > getting my Aunt settled either here or possible a > different rehab, so I may be off for a while. I will > try to read as much as possible. I will thinking for > you all daily. > > Dena > Mother (84) Living with LBD in NH. > > --- Janet Colello wrote: > > > Hi S, > > Thank you for your concerns. I am on that LBD > > emotional roller coaster, never knowing quite > where > > Jim is on his journey. One day he seems in good > > spirits and another day so weak. Today, was a good > > day. I have a good feeling from today that he is > > going to pull through this. I pray that he does. > He > > has been hit back to back with a severe UTI and > then > > Pneumonia all within a week of each other. His > > immune system broke down, but I am there now > > everyday for 8-9 hours to make sure that he is > > eating his meals and drinking liquids. He has lost > > so much weight from not eating, but I am going to > > build up his strength again. He ate well today and > > all his vital signs are normal again. I started > > giving him Mucinex, child's strength, for all the > > congestion in his chest that he can not cough up. > I > > am sure if they found out at the nh that I was > > giving him medication that was not a doctor's > order > > that I would be in deep trouble, but I have called > > the doctor and left a message for a > > perscription for chest congestion and did not hear > > back. Jim has taken the medication for two days > and > > already shows great improvement. He is coughing > and > > sneezing up gobs of mucus, now that the medication > > has loosened it up. He even was chatty today. > Maybe > > the medication is making him chatty. Although, > there > > is no alcohol in it, but it was sure good to hear, > > since he has not talked in 3 weeks. > > I pray that tomorrow is another good day. > > Hugs to you S............Jan > > > > > > > > Sandie and wrote: > > Hi Jan- > > > > We wanted you to know we are thinking of you and > > Jim and always keep both of you in our prayers. > > > > With outstretched arms- > > > > Sandie and > > S > > > > -- Jim's Health > > > > Hi, > > I had a wonderful Christmas with my family, but I > > felt horrible about > > leaving Jim for a day to be with my family. I did > > not have time to visit > > with him on Christmas Eve, as that is the day that > > we celebrate and open > > gifts and I had so much to prepare and get ready > to > > bring to the big event. > > My oldest daughter had Christmas Eve at her house > > and did a fantastic job > > and had a wonderful dinner for us all. > > My sister spent the night at my house on Christmas > > Eve night and the next > > night and left early this evening. We went to > visit > > Jim on Christmas night > > and he was in good spirits, even wanted to get out > > of bed for awhile. My > > sister gave him a balloon ball for Christmas. It > > looks like a balloon, but > > has the surface of a ball. We all hit the balloon > > back and forth. It was > > great exercise for Jim and he seemed to have fun > > with it. He also ate his > > dinner well. > > This evening I went in to visit him and he was so > > weak. Entirely different > > from the night before. He could bearly sit up. His > > blood pressure was 90/70 > > and he almost passed out. He was shaking and could > > hardly hold his head up > > to drink liquids. When Jim's blood pressure drops > at > > the hospital they put > > him on Potassium Chloride to get it up again, I > > thought that maybe putting > > some salt on Jim's dinner would give him some > > chloride, sodium chloride, and > > he also had a banana on his dinner tray and that > was > > potassium, so I fed > > him the salty dinner and the banana. He ate a good > > portion of it and drank > > two full glasses of orange juice, which is good to > > get the blood sugar up. > > The nurse took his BP later and it had gone up to > > 110/90. jim was not > > shaking so much either. He still seemed very weak > > though and I hear all > > kinds of mucus in his throat that he can not cough > > up. He is too weak to > > cough it up. I bought some Mucinex. Has anyone > here > > used that for > > mucus/phlegm for their LO? > > I bought it in Child's form, because it is liquid > > form and easy for Jim to > > take. It is with Guaifenesin, so I figure it's ok > to > > give to him. I am not > > going to wait around for the doctor to ok it. Jim > is > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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