Re: Walking~ long, important message

[Guest guest]

Hello

The first ray of light I'll share is: you'll outgrow fibromyalgia!

My neurologist said they don't know why, but old people don't have

fibromyalgia! I said I'm 57, how old do I have to be~ Can't wait to be

old:)

I have raging fibromyalgia. It's had me in its paralyzing grip for years

and I've used a wheelchair if I need to walk in something bigger than a 7-11

store:( I could go on and on about the miserable time I've had, about the

family vacationing without me and about a husband leaving me after 40 years

for someone healthy and happy:(

BUT, I want to add some light at the end of your tunnels:)

I found neuromuscular massage almost two years ago. I thought my legs were

hard all of the way up because I used to be a dancer. Wrong. They, and my

whole back were filled with scar tissue. I went for this neuro. massage 3x

weekly for 6 months. At times it was so painful I thought I'd pass out and

it was all I could do to keep from screaming BUT I wanted to dance again.

Gradually the layers wore off. First, I had 'someone else's' back! No

pain. Then somewhat later, my legs worked ~ all at once something DEEP gave

way! I was supposed to go home, drink alot of water and rest BUT I went to

the local gymn! I walked without a cane even! I could stand up straight

and I did a few things at the gym I'm not sure I'd have done 'before'. !!!

For about a week and a half the skies parted.

If I hadn't been reinjured then, I believe I'd be walking, dancing and have

my life back. I was reinjured, my insurance had maxed out, I had no money

due to an impending divorce and now I have no money or insurance because of

the finalization.

BUT THE BOTTOM LINE IS: MOST PEOPLE WITH FIBROMYALGIA DON'T KNOW ABOUT

NEUROMUSCULAR MASSAGE & IT WORKS!!!!! P.S. Get a masseuse who's able to go

gently at first, but can use alot of pressure and her Elbow later ~ that's

what finally worked! And Always follow with alot of water!

Also, someone told me that when you're resting, your knees have NO fluid?!

I'd never heard that before. I'd get up in the night to go to the restroom,

but the pain was so bad, that by the time I could get my knees going,

something else was 'going'. Oops. Really aggravating. BUT all you have to

do is some mild for of movement with your legs before you stand up. Even

gently kicking the air. That brings the fluid right back and you'll feel no

pain on standing. Really works!!!

My other suggestion is NOT to get trigger point injections. Found out that

just builds up MORE scar tissue and pain:(

My heart goes out to you all. Try to talk to your minister or someone else

your 'mate' is comfortable with before he/she walks too. In court my ex

said there's Nothing Wrong With Me! He insinuated it was in my head! He

bought my first wheelchair eight years ago! My neurologist came on the phone

and clarified. Your mates need to know this is a real disease often

paralleled with MS, in fact, I was told the MS Society and the Arthritis

Foundation are trying to take it on so there'll be help and support for us.

By the way, if you've fallen alot (or gotten knocked down over and over)

that can cause fibromyalgia. Before the beloved insurance company paid in

full for the automatic wheelchair/scooter, they asked if I'd had a history

of falling. If they only knew:(

For years I didn't report abuse because I knew he'd loose his job and my son

and I'd loose our coveted health insurance and great life insurance policies

we've had for years. Guess what. He left me because I was so sad from pain

he caused. I now have no health insurance and he wiped out the life

insurance policies leaving nothing for our beloved son's future.

AND I found out there's something called a white collar law in Florida. He

wouldn't have lost his job-in-the-sky. He'd have sat in jail in the

evenings and week-ends! Thought I'd pass that along. Another wife told me

most wives with fibromyalgia get left. . . their husbands can't take the

misery we live in. If I can help you in any way just write me off-list.

The legalities I've learned I'd be happy to share.

May God hold you gently in his hands

Kate

[Guest guest]

wow

i feel for you!

You have gone through so much!

I sometimes wonder if my husband will be able to take this for a long period

of time! I have only had this since July

But it gets worse all the time! but not everyday

It's alot for me never mind him to go through but to watch someone in pain

all the time is sad too!

ugh

oh I am just glad to be alive!!!!!!!!!!!!!!!!!!!!!

Lexie

Re: Walking~ long, important message

> Hello

>

> The first ray of light I'll share is: you'll outgrow fibromyalgia!

> My neurologist said they don't know why, but old people don't have

> fibromyalgia! I said I'm 57, how old do I have to be~ Can't wait to be

> old:)

>

> I have raging fibromyalgia. It's had me in its paralyzing grip for years

> and I've used a wheelchair if I need to walk in something bigger than a

7-11

> store:( I could go on and on about the miserable time I've had, about the

> family vacationing without me and about a husband leaving me after 40

years

> for someone healthy and happy:(

>

> BUT, I want to add some light at the end of your tunnels:)

> I found neuromuscular massage almost two years ago. I thought my legs

were

> hard all of the way up because I used to be a dancer. Wrong. They, and

my

> whole back were filled with scar tissue. I went for this neuro. massage

3x

> weekly for 6 months. At times it was so painful I thought I'd pass out

and

> it was all I could do to keep from screaming BUT I wanted to dance again.

> Gradually the layers wore off. First, I had 'someone else's' back! No

> pain. Then somewhat later, my legs worked ~ all at once something DEEP

gave

> way! I was supposed to go home, drink alot of water and rest BUT I went

to

> the local gymn! I walked without a cane even! I could stand up straight

> and I did a few things at the gym I'm not sure I'd have done 'before'.

!!!

> For about a week and a half the skies parted.

>

> If I hadn't been reinjured then, I believe I'd be walking, dancing and

have

> my life back. I was reinjured, my insurance had maxed out, I had no money

> due to an impending divorce and now I have no money or insurance because

of

> the finalization.

>

> BUT THE BOTTOM LINE IS: MOST PEOPLE WITH FIBROMYALGIA DON'T KNOW ABOUT

> NEUROMUSCULAR MASSAGE & IT WORKS!!!!! P.S. Get a masseuse who's able to

go

> gently at first, but can use alot of pressure and her Elbow later ~ that's

> what finally worked! And Always follow with alot of water!

>

> Also, someone told me that when you're resting, your knees have NO fluid?!

> I'd never heard that before. I'd get up in the night to go to the

restroom,

> but the pain was so bad, that by the time I could get my knees going,

> something else was 'going'. Oops. Really aggravating. BUT all you have

to

> do is some mild for of movement with your legs before you stand up. Even

> gently kicking the air. That brings the fluid right back and you'll feel

no

> pain on standing. Really works!!!

>

> My other suggestion is NOT to get trigger point injections. Found out

that

> just builds up MORE scar tissue and pain:(

>

> My heart goes out to you all. Try to talk to your minister or someone

else

> your 'mate' is comfortable with before he/she walks too. In court my ex

> said there's Nothing Wrong With Me! He insinuated it was in my head! He

> bought my first wheelchair eight years ago! My neurologist came on the

phone

> and clarified. Your mates need to know this is a real disease often

> paralleled with MS, in fact, I was told the MS Society and the Arthritis

> Foundation are trying to take it on so there'll be help and support for

us.

>

> By the way, if you've fallen alot (or gotten knocked down over and over)

> that can cause fibromyalgia. Before the beloved insurance company paid in

> full for the automatic wheelchair/scooter, they asked if I'd had a history

> of falling. If they only knew:(

>

> For years I didn't report abuse because I knew he'd loose his job and my

son

> and I'd loose our coveted health insurance and great life insurance

policies

> we've had for years. Guess what. He left me because I was so sad from

pain

> he caused. I now have no health insurance and he wiped out the life

> insurance policies leaving nothing for our beloved son's future.

>

> AND I found out there's something called a white collar law in Florida.

He

> wouldn't have lost his job-in-the-sky. He'd have sat in jail in the

> evenings and week-ends! Thought I'd pass that along. Another wife told

me

> most wives with fibromyalgia get left. . . their husbands can't take the

> misery we live in. If I can help you in any way just write me off-list.

> The legalities I've learned I'd be happy to share.

> May God hold you gently in his hands

> Kate

>

>

>

[Guest guest]

hate to be a dud, but most spouses head out sooner or later. unless you have

a natural nurturer for a husband, i wouldn't hold my breath. i know that is

hard to hear...and i could be wrong but i am on a few lists and a few lists

too many are all women who have lost there men to these diseases because

they aren't able to deal with ending their lives as we have. the best thing

to do is to get involved with as many things as possible and stay involved.

then when he goes , you will at least have friends around you that

understand.

reality bites babe. get used to it. i am 43..have 3 kids, have been

diagnosed for less than3 years and he is living with a 24 yr old with a new

baby from some other guy and they are all very happy ...so if young and

healthy is what they want...i wonder who will be the one cleaning up the

drool or whatever...when they are old and grey or find themselves

incapacitated and no one wants them. does he really think that young babe is

gonna stick around? HAH!

robin

Re: Walking~ long, important message

> Hello

>

> The first ray of light I'll share is: you'll outgrow fibromyalgia!

> My neurologist said they don't know why, but old people don't have

> fibromyalgia! I said I'm 57, how old do I have to be~ Can't wait to be

> old:)

>

> I have raging fibromyalgia. It's had me in its paralyzing grip for years

> and I've used a wheelchair if I need to walk in something bigger than a

7-11

> store:( I could go on and on about the miserable time I've had, about the

> family vacationing without me and about a husband leaving me after 40

years

> for someone healthy and happy:(

>

> BUT, I want to add some light at the end of your tunnels:)

> I found neuromuscular massage almost two years ago. I thought my legs

were

> hard all of the way up because I used to be a dancer. Wrong. They, and

my

> whole back were filled with scar tissue. I went for this neuro. massage

3x

> weekly for 6 months. At times it was so painful I thought I'd pass out

and

> it was all I could do to keep from screaming BUT I wanted to dance again.

> Gradually the layers wore off. First, I had 'someone else's' back! No

> pain. Then somewhat later, my legs worked ~ all at once something DEEP

gave

> way! I was supposed to go home, drink alot of water and rest BUT I went

to

> the local gymn! I walked without a cane even! I could stand up straight

> and I did a few things at the gym I'm not sure I'd have done 'before'.

!!!

> For about a week and a half the skies parted.

>

> If I hadn't been reinjured then, I believe I'd be walking, dancing and

have

> my life back. I was reinjured, my insurance had maxed out, I had no money

> due to an impending divorce and now I have no money or insurance because

of

> the finalization.

>

> BUT THE BOTTOM LINE IS: MOST PEOPLE WITH FIBROMYALGIA DON'T KNOW ABOUT

> NEUROMUSCULAR MASSAGE & IT WORKS!!!!! P.S. Get a masseuse who's able to

go

> gently at first, but can use alot of pressure and her Elbow later ~ that's

> what finally worked! And Always follow with alot of water!

>

> Also, someone told me that when you're resting, your knees have NO fluid?!

> I'd never heard that before. I'd get up in the night to go to the

restroom,

> but the pain was so bad, that by the time I could get my knees going,

> something else was 'going'. Oops. Really aggravating. BUT all you have

to

> do is some mild for of movement with your legs before you stand up. Even

> gently kicking the air. That brings the fluid right back and you'll feel

no

> pain on standing. Really works!!!

>

> My other suggestion is NOT to get trigger point injections. Found out

that

> just builds up MORE scar tissue and pain:(

>

> My heart goes out to you all. Try to talk to your minister or someone

else

> your 'mate' is comfortable with before he/she walks too. In court my ex

> said there's Nothing Wrong With Me! He insinuated it was in my head! He

> bought my first wheelchair eight years ago! My neurologist came on the

phone

> and clarified. Your mates need to know this is a real disease often

> paralleled with MS, in fact, I was told the MS Society and the Arthritis

> Foundation are trying to take it on so there'll be help and support for

us.

>

> By the way, if you've fallen alot (or gotten knocked down over and over)

> that can cause fibromyalgia. Before the beloved insurance company paid in

> full for the automatic wheelchair/scooter, they asked if I'd had a history

> of falling. If they only knew:(

>

> For years I didn't report abuse because I knew he'd loose his job and my

son

> and I'd loose our coveted health insurance and great life insurance

policies

> we've had for years. Guess what. He left me because I was so sad from

pain

> he caused. I now have no health insurance and he wiped out the life

> insurance policies leaving nothing for our beloved son's future.

>

> AND I found out there's something called a white collar law in Florida.

He

> wouldn't have lost his job-in-the-sky. He'd have sat in jail in the

> evenings and week-ends! Thought I'd pass that along. Another wife told

me

> most wives with fibromyalgia get left. . . their husbands can't take the

> misery we live in. If I can help you in any way just write me off-list.

> The legalities I've learned I'd be happy to share.

> May God hold you gently in his hands

> Kate

>

>

>

[Guest guest]

nice to hear that....i have never heard that. EVER. who did you hear that

from and can you get documentation?

robin

Re: Walking~ long, important message

Hello

The first ray of light I'll share is: you'll outgrow fibromyalgia!

My neurologist said they don't know why, but old people don't have

fibromyalgia! I said I'm 57, how old do I have to be~ Can't wait to be

old:)

I have raging fibromyalgia. It's had me in its paralyzing grip for years

and I've used a wheelchair if I need to walk in something bigger than a 7-11

store:( I could go on and on about the miserable time I've had, about the

family vacationing without me and about a husband leaving me after 40 years

for someone healthy and happy:(

BUT, I want to add some light at the end of your tunnels:)

I found neuromuscular massage almost two years ago. I thought my legs were

hard all of the way up because I used to be a dancer. Wrong. They, and my

whole back were filled with scar tissue. I went for this neuro. massage 3x

weekly for 6 months. At times it was so painful I thought I'd pass out and

it was all I could do to keep from screaming BUT I wanted to dance again.

Gradually the layers wore off. First, I had 'someone else's' back! No

pain. Then somewhat later, my legs worked ~ all at once something DEEP gave

way! I was supposed to go home, drink alot of water and rest BUT I went to

the local gymn! I walked without a cane even! I could stand up straight

and I did a few things at the gym I'm not sure I'd have done 'before'. !!!

For about a week and a half the skies parted.

If I hadn't been reinjured then, I believe I'd be walking, dancing and have

my life back. I was reinjured, my insurance had maxed out, I had no money

due to an impending divorce and now I have no money or insurance because of

the finalization.

BUT THE BOTTOM LINE IS: MOST PEOPLE WITH FIBROMYALGIA DON'T KNOW ABOUT

NEUROMUSCULAR MASSAGE & IT WORKS!!!!! P.S. Get a masseuse who's able to go

gently at first, but can use alot of pressure and her Elbow later ~ that's

what finally worked! And Always follow with alot of water!

Also, someone told me that when you're resting, your knees have NO fluid?!

I'd never heard that before. I'd get up in the night to go to the restroom,

but the pain was so bad, that by the time I could get my knees going,

something else was 'going'. Oops. Really aggravating. BUT all you have to

do is some mild for of movement with your legs before you stand up. Even

gently kicking the air. That brings the fluid right back and you'll feel no

pain on standing. Really works!!!

My other suggestion is NOT to get trigger point injections. Found out that

just builds up MORE scar tissue and pain:(

My heart goes out to you all. Try to talk to your minister or someone else

your 'mate' is comfortable with before he/she walks too. In court my ex

said there's Nothing Wrong With Me! He insinuated it was in my head! He

bought my first wheelchair eight years ago! My neurologist came on the phone

and clarified. Your mates need to know this is a real disease often

paralleled with MS, in fact, I was told the MS Society and the Arthritis

Foundation are trying to take it on so there'll be help and support for us.

By the way, if you've fallen alot (or gotten knocked down over and over)

that can cause fibromyalgia. Before the beloved insurance company paid in

full for the automatic wheelchair/scooter, they asked if I'd had a history

of falling. If they only knew:(

For years I didn't report abuse because I knew he'd loose his job and my son

and I'd loose our coveted health insurance and great life insurance policies

we've had for years. Guess what. He left me because I was so sad from pain

he caused. I now have no health insurance and he wiped out the life

insurance policies leaving nothing for our beloved son's future.

AND I found out there's something called a white collar law in Florida. He

wouldn't have lost his job-in-the-sky. He'd have sat in jail in the

evenings and week-ends! Thought I'd pass that along. Another wife told me

most wives with fibromyalgia get left. . . their husbands can't take the

misery we live in. If I can help you in any way just write me off-list.

The legalities I've learned I'd be happy to share.

May God hold you gently in his hands

Kate

[Guest guest]

Kate,

That is the first time that I have ever heard of FMS being out grown. I think

i would have to disagree with your Doctor, not you *smile* on that one.

I have heard though that people with FMS usually have a history of some sort

of traumatic injury or emotional situation in their past. A sort of post

traumatic stress response.

mk wrote:

> Hello

>

> The first ray of light I'll share is: you'll outgrow fibromyalgia!

> My neurologist said they don't know why, but old people don't have

> fibromyalgia! I said I'm 57, how old do I have to be~ Can't wait to be

> old:)

>

> I have raging fibromyalgia. It's had me in its paralyzing grip for years

> and I've used a wheelchair if I need to walk in something bigger than a 7-11

> store:( I could go on and on about the miserable time I've had, about the

> family vacationing without me and about a husband leaving me after 40 years

> for someone healthy and happy:(

>

> BUT, I want to add some light at the end of your tunnels:)

> I found neuromuscular massage almost two years ago. I thought my legs were

> hard all of the way up because I used to be a dancer. Wrong. They, and my

> whole back were filled with scar tissue. I went for this neuro. massage 3x

> weekly for 6 months. At times it was so painful I thought I'd pass out and

> it was all I could do to keep from screaming BUT I wanted to dance again.

> Gradually the layers wore off. First, I had 'someone else's' back! No

> pain. Then somewhat later, my legs worked ~ all at once something DEEP gave

> way! I was supposed to go home, drink alot of water and rest BUT I went to

> the local gymn! I walked without a cane even! I could stand up straight

> and I did a few things at the gym I'm not sure I'd have done 'before'. !!!

> For about a week and a half the skies parted.

>

> If I hadn't been reinjured then, I believe I'd be walking, dancing and have

> my life back. I was reinjured, my insurance had maxed out, I had no money

> due to an impending divorce and now I have no money or insurance because of

> the finalization.

>

> BUT THE BOTTOM LINE IS: MOST PEOPLE WITH FIBROMYALGIA DON'T KNOW ABOUT

> NEUROMUSCULAR MASSAGE & IT WORKS!!!!! P.S. Get a masseuse who's able to go

> gently at first, but can use alot of pressure and her Elbow later ~ that's

> what finally worked! And Always follow with alot of water!

>

> Also, someone told me that when you're resting, your knees have NO fluid?!

> I'd never heard that before. I'd get up in the night to go to the restroom,

> but the pain was so bad, that by the time I could get my knees going,

> something else was 'going'. Oops. Really aggravating. BUT all you have to

> do is some mild for of movement with your legs before you stand up. Even

> gently kicking the air. That brings the fluid right back and you'll feel no

> pain on standing. Really works!!!

>

> My other suggestion is NOT to get trigger point injections. Found out that

> just builds up MORE scar tissue and pain:(

>

> My heart goes out to you all. Try to talk to your minister or someone else

> your 'mate' is comfortable with before he/she walks too. In court my ex

> said there's Nothing Wrong With Me! He insinuated it was in my head! He

> bought my first wheelchair eight years ago! My neurologist came on the phone

> and clarified. Your mates need to know this is a real disease often

> paralleled with MS, in fact, I was told the MS Society and the Arthritis

> Foundation are trying to take it on so there'll be help and support for us.

>

> By the way, if you've fallen alot (or gotten knocked down over and over)

> that can cause fibromyalgia. Before the beloved insurance company paid in

> full for the automatic wheelchair/scooter, they asked if I'd had a history

> of falling. If they only knew:(

>

> For years I didn't report abuse because I knew he'd loose his job and my son

> and I'd loose our coveted health insurance and great life insurance policies

> we've had for years. Guess what. He left me because I was so sad from pain

> he caused. I now have no health insurance and he wiped out the life

> insurance policies leaving nothing for our beloved son's future.

>

> AND I found out there's something called a white collar law in Florida. He

> wouldn't have lost his job-in-the-sky. He'd have sat in jail in the

> evenings and week-ends! Thought I'd pass that along. Another wife told me

> most wives with fibromyalgia get left. . . their husbands can't take the

> misery we live in. If I can help you in any way just write me off-list.

> The legalities I've learned I'd be happy to share.

> May God hold you gently in his hands

> Kate

>

>

[Guest guest]

I have also heard that you can get if you are run down and have no immune

system and then get pnuumonia!

Lexie

Re: Walking~ long, important message

> Kate,

> That is the first time that I have ever heard of FMS being out grown. I

think

> i would have to disagree with your Doctor, not you *smile* on that one.

> I have heard though that people with FMS usually have a history of some

sort

> of traumatic injury or emotional situation in their past. A sort of post

> traumatic stress response.

>

>

>

> mk wrote:

>

> > Hello

> >

> > The first ray of light I'll share is: you'll outgrow fibromyalgia!

> > My neurologist said they don't know why, but old people don't have

> > fibromyalgia! I said I'm 57, how old do I have to be~ Can't wait to be

> > old:)

> >

> > I have raging fibromyalgia. It's had me in its paralyzing grip for

years

> > and I've used a wheelchair if I need to walk in something bigger than a

7-11

> > store:( I could go on and on about the miserable time I've had, about

the

> > family vacationing without me and about a husband leaving me after 40

years

> > for someone healthy and happy:(

> >

> > BUT, I want to add some light at the end of your tunnels:)

> > I found neuromuscular massage almost two years ago. I thought my legs

were

> > hard all of the way up because I used to be a dancer. Wrong. They, and

my

> > whole back were filled with scar tissue. I went for this neuro. massage

3x

> > weekly for 6 months. At times it was so painful I thought I'd pass out

and

> > it was all I could do to keep from screaming BUT I wanted to dance

again.

> > Gradually the layers wore off. First, I had 'someone else's' back! No

> > pain. Then somewhat later, my legs worked ~ all at once something DEEP

gave

> > way! I was supposed to go home, drink alot of water and rest BUT I went

to

> > the local gymn! I walked without a cane even! I could stand up

straight

> > and I did a few things at the gym I'm not sure I'd have done 'before'.

!!!

> > For about a week and a half the skies parted.

> >

> > If I hadn't been reinjured then, I believe I'd be walking, dancing and

have

> > my life back. I was reinjured, my insurance had maxed out, I had no

money

> > due to an impending divorce and now I have no money or insurance because

of

> > the finalization.

> >

> > BUT THE BOTTOM LINE IS: MOST PEOPLE WITH FIBROMYALGIA DON'T KNOW ABOUT

> > NEUROMUSCULAR MASSAGE & IT WORKS!!!!! P.S. Get a masseuse who's able to

go

> > gently at first, but can use alot of pressure and her Elbow later ~

that's

> > what finally worked! And Always follow with alot of water!

> >

> > Also, someone told me that when you're resting, your knees have NO

fluid?!

> > I'd never heard that before. I'd get up in the night to go to the

restroom,

> > but the pain was so bad, that by the time I could get my knees going,

> > something else was 'going'. Oops. Really aggravating. BUT all you

have to

> > do is some mild for of movement with your legs before you stand up.

Even

> > gently kicking the air. That brings the fluid right back and you'll

feel no

> > pain on standing. Really works!!!

> >

> > My other suggestion is NOT to get trigger point injections. Found out

that

> > just builds up MORE scar tissue and pain:(

> >

> > My heart goes out to you all. Try to talk to your minister or someone

else

> > your 'mate' is comfortable with before he/she walks too. In court my ex

> > said there's Nothing Wrong With Me! He insinuated it was in my head! He

> > bought my first wheelchair eight years ago! My neurologist came on the

phone

> > and clarified. Your mates need to know this is a real disease often

> > paralleled with MS, in fact, I was told the MS Society and the Arthritis

> > Foundation are trying to take it on so there'll be help and support for

us.

> >

> > By the way, if you've fallen alot (or gotten knocked down over and over)

> > that can cause fibromyalgia. Before the beloved insurance company paid

in

> > full for the automatic wheelchair/scooter, they asked if I'd had a

history

> > of falling. If they only knew:(

> >

> > For years I didn't report abuse because I knew he'd loose his job and my

son

> > and I'd loose our coveted health insurance and great life insurance

policies

> > we've had for years. Guess what. He left me because I was so sad from

pain

> > he caused. I now have no health insurance and he wiped out the life

> > insurance policies leaving nothing for our beloved son's future.

> >

> > AND I found out there's something called a white collar law in Florida.

He

> > wouldn't have lost his job-in-the-sky. He'd have sat in jail in the

> > evenings and week-ends! Thought I'd pass that along. Another wife told

me

> > most wives with fibromyalgia get left. . . their husbands can't take the

> > misery we live in. If I can help you in any way just write me off-list.

> > The legalities I've learned I'd be happy to share.

> > May God hold you gently in his hands

> > Kate

> >

> >

[Guest guest]

I think its alot more likely that its common that woman pick bad husbands! It

isn't fair to blame a decease on a mans character flaws. Ever notice that

women with FMS tend to be the kind of woman that wants to take care of everybody

but themselves? That tends to attract men that want to be taken care of. When

the woman is not longer able to powder their little bottoms they get their nose

bent out of shape and go find a new mommy.

Please understand that I am in no way cutting any woman down, with or without

FMS. I just think that men that leave because of our problems were better off

gone to begin with.

r wrote:

> hate to be a dud, but most spouses head out sooner or later. unless you have

> a natural nurturer for a husband, i wouldn't hold my breath. i know that is

> hard to hear...and i could be wrong but i am on a few lists and a few lists

> too many are all women who have lost there men to these diseases because

> they aren't able to deal with ending their lives as we have. the best thing

> to do is to get involved with as many things as possible and stay involved.

> then when he goes , you will at least have friends around you that

> understand.

> reality bites babe. get used to it. i am 43..have 3 kids, have been

> diagnosed for less than3 years and he is living with a 24 yr old with a new

> baby from some other guy and they are all very happy ...so if young and

> healthy is what they want...i wonder who will be the one cleaning up the

> drool or whatever...when they are old and grey or find themselves

> incapacitated and no one wants them. does he really think that young babe is

> gonna stick around? HAH!

> robin

> Re: Walking~ long, important message

>

> > Hello

> >

> > The first ray of light I'll share is: you'll outgrow fibromyalgia!

> > My neurologist said they don't know why, but old people don't have

> > fibromyalgia! I said I'm 57, how old do I have to be~ Can't wait to be

> > old:)

> >

> > I have raging fibromyalgia. It's had me in its paralyzing grip for years

> > and I've used a wheelchair if I need to walk in something bigger than a

> 7-11

> > store:( I could go on and on about the miserable time I've had, about the

> > family vacationing without me and about a husband leaving me after 40

> years

> > for someone healthy and happy:(

> >

> > BUT, I want to add some light at the end of your tunnels:)

> > I found neuromuscular massage almost two years ago. I thought my legs

> were

> > hard all of the way up because I used to be a dancer. Wrong. They, and

> my

> > whole back were filled with scar tissue. I went for this neuro. massage

> 3x

> > weekly for 6 months. At times it was so painful I thought I'd pass out

> and

> > it was all I could do to keep from screaming BUT I wanted to dance again.

> > Gradually the layers wore off. First, I had 'someone else's' back! No

> > pain. Then somewhat later, my legs worked ~ all at once something DEEP

> gave

> > way! I was supposed to go home, drink alot of water and rest BUT I went

> to

> > the local gymn! I walked without a cane even! I could stand up straight

> > and I did a few things at the gym I'm not sure I'd have done 'before'.

> !!!

> > For about a week and a half the skies parted.

> >

> > If I hadn't been reinjured then, I believe I'd be walking, dancing and

> have

> > my life back. I was reinjured, my insurance had maxed out, I had no money

> > due to an impending divorce and now I have no money or insurance because

> of

> > the finalization.

> >

> > BUT THE BOTTOM LINE IS: MOST PEOPLE WITH FIBROMYALGIA DON'T KNOW ABOUT

> > NEUROMUSCULAR MASSAGE & IT WORKS!!!!! P.S. Get a masseuse who's able to

> go

> > gently at first, but can use alot of pressure and her Elbow later ~ that's

> > what finally worked! And Always follow with alot of water!

> >

> > Also, someone told me that when you're resting, your knees have NO fluid?!

> > I'd never heard that before. I'd get up in the night to go to the

> restroom,

> > but the pain was so bad, that by the time I could get my knees going,

> > something else was 'going'. Oops. Really aggravating. BUT all you have

> to

> > do is some mild for of movement with your legs before you stand up. Even

> > gently kicking the air. That brings the fluid right back and you'll feel

> no

> > pain on standing. Really works!!!

> >

> > My other suggestion is NOT to get trigger point injections. Found out

> that

> > just builds up MORE scar tissue and pain:(

> >

> > My heart goes out to you all. Try to talk to your minister or someone

> else

> > your 'mate' is comfortable with before he/she walks too. In court my ex

> > said there's Nothing Wrong With Me! He insinuated it was in my head! He

> > bought my first wheelchair eight years ago! My neurologist came on the

> phone

> > and clarified. Your mates need to know this is a real disease often

> > paralleled with MS, in fact, I was told the MS Society and the Arthritis

> > Foundation are trying to take it on so there'll be help and support for

> us.

> >

> > By the way, if you've fallen alot (or gotten knocked down over and over)

> > that can cause fibromyalgia. Before the beloved insurance company paid in

> > full for the automatic wheelchair/scooter, they asked if I'd had a history

> > of falling. If they only knew:(

> >

> > For years I didn't report abuse because I knew he'd loose his job and my

> son

> > and I'd loose our coveted health insurance and great life insurance

> policies

> > we've had for years. Guess what. He left me because I was so sad from

> pain

> > he caused. I now have no health insurance and he wiped out the life

> > insurance policies leaving nothing for our beloved son's future.

> >

> > AND I found out there's something called a white collar law in Florida.

> He

> > wouldn't have lost his job-in-the-sky. He'd have sat in jail in the

> > evenings and week-ends! Thought I'd pass that along. Another wife told

> me

> > most wives with fibromyalgia get left. . . their husbands can't take the

> > misery we live in. If I can help you in any way just write me off-list.

> > The legalities I've learned I'd be happy to share.

> > May God hold you gently in his hands

> > Kate

> >

> >

> >

[Guest guest]

Certainly they will come up with some answers to improve quality of life or

even a cure before some of these younger women start losing their husbands.

Personally, I divorced mine

a few years ago shortly before this developed for some good reasons, and

I'm kind of lonely, but I'm so glad I

don't have to deal with having a man

to take care of right now.

I've got my dog and my work and for

now, that is enough. Oh, and I'm 54.

Susie

> Re: Walking~ long, important message

>

>

> hate to be a dud, but most spouses head out sooner or later.

> unless you have

> a natural nurturer for a husband, i wouldn't hold my breath. i

> know that is

> hard to hear...and i could be wrong but i am on a few lists and a

> few lists

> too many are all women who have lost there men to these diseases because

> they aren't able to deal with ending their lives as we have. the

> best thing

> to do is to get involved with as many things as possible and stay

> involved.

> then when he goes , you will at least have friends around you that

> understand.

> reality bites babe. get used to it. i am 43..have 3 kids, have been

> diagnosed for less than3 years and he is living with a 24 yr old

> with a new

> baby from some other guy and they are all very happy ...so if young and

> healthy is what they want...i wonder who will be the one cleaning up the

> drool or whatever...when they are old and grey or find themselves

> incapacitated and no one wants them. does he really think that

> young babe is

> gonna stick around? HAH!

> robin

> Re: Walking~ long, important message

>

>

> > Hello

> >

> > The first ray of light I'll share is: you'll outgrow fibromyalgia!

> > My neurologist said they don't know why, but old people don't have

> > fibromyalgia! I said I'm 57, how old do I have to be~ Can't wait to be

> > old:)

> >

> > I have raging fibromyalgia. It's had me in its paralyzing grip

> for years

> > and I've used a wheelchair if I need to walk in something bigger than a

> 7-11

> > store:( I could go on and on about the miserable time I've

> had, about the

> > family vacationing without me and about a husband leaving me after 40

> years

> > for someone healthy and happy:(

> >

> > BUT, I want to add some light at the end of your tunnels:)

> > I found neuromuscular massage almost two years ago. I thought my legs

> were

> > hard all of the way up because I used to be a dancer. Wrong. They, and

> my

> > whole back were filled with scar tissue. I went for this neuro. massage

> 3x

> > weekly for 6 months. At times it was so painful I thought I'd pass out

> and

> > it was all I could do to keep from screaming BUT I wanted to

> dance again.

> > Gradually the layers wore off. First, I had 'someone else's' back! No

> > pain. Then somewhat later, my legs worked ~ all at once something DEEP

> gave

> > way! I was supposed to go home, drink alot of water and rest BUT I went

> to

> > the local gymn! I walked without a cane even! I could stand

> up straight

> > and I did a few things at the gym I'm not sure I'd have done 'before'.

> !!!

> > For about a week and a half the skies parted.

> >

> > If I hadn't been reinjured then, I believe I'd be walking, dancing and

> have

> > my life back. I was reinjured, my insurance had maxed out, I

> had no money

> > due to an impending divorce and now I have no money or insurance because

> of

> > the finalization.

> >

> > BUT THE BOTTOM LINE IS: MOST PEOPLE WITH FIBROMYALGIA DON'T KNOW ABOUT

> > NEUROMUSCULAR MASSAGE & IT WORKS!!!!! P.S. Get a masseuse who's able to

> go

> > gently at first, but can use alot of pressure and her Elbow

> later ~ that's

> > what finally worked! And Always follow with alot of water!

> >

> > Also, someone told me that when you're resting, your knees have

> NO fluid?!

> > I'd never heard that before. I'd get up in the night to go to the

> restroom,

> > but the pain was so bad, that by the time I could get my knees going,

> > something else was 'going'. Oops. Really aggravating. BUT

> all you have

> to

> > do is some mild for of movement with your legs before you stand

> up. Even

> > gently kicking the air. That brings the fluid right back and

> you'll feel

> no

> > pain on standing. Really works!!!

> >

> > My other suggestion is NOT to get trigger point injections. Found out

> that

> > just builds up MORE scar tissue and pain:(

> >

> > My heart goes out to you all. Try to talk to your minister or someone

> else

> > your 'mate' is comfortable with before he/she walks too. In court my ex

> > said there's Nothing Wrong With Me! He insinuated it was in my head! He

> > bought my first wheelchair eight years ago! My neurologist came on the

> phone

> > and clarified. Your mates need to know this is a real disease often

> > paralleled with MS, in fact, I was told the MS Society and the Arthritis

> > Foundation are trying to take it on so there'll be help and support for

> us.

> >

> > By the way, if you've fallen alot (or gotten knocked down over and over)

> > that can cause fibromyalgia. Before the beloved insurance

> company paid in

> > full for the automatic wheelchair/scooter, they asked if I'd

> had a history

> > of falling. If they only knew:(

> >

> > For years I didn't report abuse because I knew he'd loose his job and my

> son

> > and I'd loose our coveted health insurance and great life insurance

> policies

> > we've had for years. Guess what. He left me because I was so sad from

> pain

> > he caused. I now have no health insurance and he wiped out the life

> > insurance policies leaving nothing for our beloved son's future.

> >

> > AND I found out there's something called a white collar law in Florida.

> He

> > wouldn't have lost his job-in-the-sky. He'd have sat in jail in the

> > evenings and week-ends! Thought I'd pass that along. Another wife told

> me

> > most wives with fibromyalgia get left. . . their husbands can't take the

> > misery we live in. If I can help you in any way just write me off-list.

> > The legalities I've learned I'd be happy to share.

> > May God hold you gently in his hands

> > Kate

> >

> >

> >

[Guest guest]

i think you hit it for me anyway. thanks for identifying that for me.,..and

they will continue to look and leave and look and leave until they die or

find someone that will mommy them.

robin

Re: Walking~ long, important message

>

> > Hello

> >

> > The first ray of light I'll share is: you'll outgrow fibromyalgia!

> > My neurologist said they don't know why, but old people don't have

> > fibromyalgia! I said I'm 57, how old do I have to be~ Can't wait to be

> > old:)

> >

> > I have raging fibromyalgia. It's had me in its paralyzing grip for

years

> > and I've used a wheelchair if I need to walk in something bigger than a

> 7-11

> > store:( I could go on and on about the miserable time I've had, about

the

> > family vacationing without me and about a husband leaving me after 40

> years

> > for someone healthy and happy:(

> >

> > BUT, I want to add some light at the end of your tunnels:)

> > I found neuromuscular massage almost two years ago. I thought my legs

> were

> > hard all of the way up because I used to be a dancer. Wrong. They, and

> my

> > whole back were filled with scar tissue. I went for this neuro. massage

> 3x

> > weekly for 6 months. At times it was so painful I thought I'd pass out

> and

> > it was all I could do to keep from screaming BUT I wanted to dance

again.

> > Gradually the layers wore off. First, I had 'someone else's' back! No

> > pain. Then somewhat later, my legs worked ~ all at once something DEEP

> gave

> > way! I was supposed to go home, drink alot of water and rest BUT I went

> to

> > the local gymn! I walked without a cane even! I could stand up

straight

> > and I did a few things at the gym I'm not sure I'd have done 'before'.

> !!!

> > For about a week and a half the skies parted.

> >

> > If I hadn't been reinjured then, I believe I'd be walking, dancing and

> have

> > my life back. I was reinjured, my insurance had maxed out, I had no

money

> > due to an impending divorce and now I have no money or insurance because

> of

> > the finalization.

> >

> > BUT THE BOTTOM LINE IS: MOST PEOPLE WITH FIBROMYALGIA DON'T KNOW ABOUT

> > NEUROMUSCULAR MASSAGE & IT WORKS!!!!! P.S. Get a masseuse who's able to

> go

> > gently at first, but can use alot of pressure and her Elbow later ~

that's

> > what finally worked! And Always follow with alot of water!

> >

> > Also, someone told me that when you're resting, your knees have NO

fluid?!

> > I'd never heard that before. I'd get up in the night to go to the

> restroom,

> > but the pain was so bad, that by the time I could get my knees going,

> > something else was 'going'. Oops. Really aggravating. BUT all you

have

> to

> > do is some mild for of movement with your legs before you stand up.

Even

> > gently kicking the air. That brings the fluid right back and you'll

feel

> no

> > pain on standing. Really works!!!

> >

> > My other suggestion is NOT to get trigger point injections. Found out

> that

> > just builds up MORE scar tissue and pain:(

> >

> > My heart goes out to you all. Try to talk to your minister or someone

> else

> > your 'mate' is comfortable with before he/she walks too. In court my ex

> > said there's Nothing Wrong With Me! He insinuated it was in my head! He

> > bought my first wheelchair eight years ago! My neurologist came on the

> phone

> > and clarified. Your mates need to know this is a real disease often

> > paralleled with MS, in fact, I was told the MS Society and the Arthritis

> > Foundation are trying to take it on so there'll be help and support for

> us.

> >

> > By the way, if you've fallen alot (or gotten knocked down over and over)

> > that can cause fibromyalgia. Before the beloved insurance company paid

in

> > full for the automatic wheelchair/scooter, they asked if I'd had a

history

> > of falling. If they only knew:(

> >

> > For years I didn't report abuse because I knew he'd loose his job and my

> son

> > and I'd loose our coveted health insurance and great life insurance

> policies

> > we've had for years. Guess what. He left me because I was so sad from

> pain

> > he caused. I now have no health insurance and he wiped out the life

> > insurance policies leaving nothing for our beloved son's future.

> >

> > AND I found out there's something called a white collar law in Florida.

> He

> > wouldn't have lost his job-in-the-sky. He'd have sat in jail in the

> > evenings and week-ends! Thought I'd pass that along. Another wife told

> me

> > most wives with fibromyalgia get left. . . their husbands can't take the

> > misery we live in. If I can help you in any way just write me off-list.

> > The legalities I've learned I'd be happy to share.

> > May God hold you gently in his hands

> > Kate

> >

> >

> >

[Guest guest]

To: <fibromyalgiacuredegroups>

Sent: Saturday, January 06, 2001 5:20 PM

Subject: Re: Walking~ long, important message

I think its alot more likely that its common that woman pick bad husbands.

*Women don't pick bad husbands. They pick young attentive, loving 'actors'

that loose their facade after marriage.*

It isn't fair to blame a decease on a mans character flaws.

*First: the disease doesn't care if you blame it:)

*Second: you can blame fibromyalgia on being hit and knocked down over and

over Or squeezed until your back's injured for months-over and over. So I

Can blame fibromyalgia on my ex's character flaws.*

Ever notice that women with FMS tend to be the kind of woman that wants to

take care of everybody but themselves? That tends to attract men that want

to be taken care of.

*I'd love to have had time to take care of myself, but I had two children on

two different machines for almost two years. Then took care of his demented

mother over and over for ten years While having severe pain and horrible

health myself.*

When the woman is not longer able to powder their little bottoms they get

their nose bent out of shape and go find a new mommy. Please understand

that I am in no way cutting any woman down, with or without FMS.

*Glad to hear it. Life is extremely hard without us bashing each other:)*

I just think that men that leave because of our problems were better off

gone to begin with.

*Probably true. But my son'd like to have had a father, I'd like to have

had health insurance and at 57 I'd like to be helped out and perhaps be able

to have something 'tucked' away for my future.*

*Kate*