Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 Hello and welcome - I want to encourage you to hang on! WOW you must be overwhelmed! so first thing is to actively choose to eat this elephant on bite at a time. #1 you have some diagnoses - do you have a support system of family? friends? local support group with " skin on " ? and congratulations in heading into the internet for more support and knowledge #2 choose to educate yourself about your conditions one at a time starting with the one that is your first priority...immediate , life threatening first and then pain, fatigue ... whatever ...each of us has our own idea which is most important #3 Improve your nutrition - probably will need some supplements - remember when you are real sick that you may need small doses of vitamins/minerals/ whatever until you can build yourself up a little - JOURNAL your thoughts, feeligs, symptoms inrelation to each thing you try so you can look back and see improvement! Look for the positives to record - our mental responses affect our physical progress. #4 Drink good water - a quart/liter for each 50 pounds of weight per day or 1/2 your weight in # ounces of water are the two rules I hear most often. #5 establish a faith or belief system ... for me this is a strong reliance on God and a personal relationship with Jesus Christ. Now I turn these priorities upside-down! But whatever order you put them in , I call this my BASIC 5 ! Faith, water, nutrition, education, support from outside the family But my dear husband comes right after God! Hang in there - I care and want to Reach out to you! in WA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 Thank you so very much! I was relieved when I thought my ACM surgery would cure everything but when it didn't I was let down somewhat. But will press on with this group's help. Thanks for everything, Lonnie ===== FREE Subscription Arthritis Chronicle Newsletter http://www.activexamerica.com/at.cgi/187007/Newsletter __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Hi Lonnie, Sorry to hear about your misfortunes! One or two conditions are usually a challenge to cope with, and you have quite a number of them to deal with. You sound like a person with some faith and hope, and that is half the battle. Have you considered essiac herbal tea to deal with many of your conditions? It has strong blood cleansing properties, and is excellent for many systemic diseases. It is mainly used for cancer, but has also been effective with fibromyalgia, and may help alleviate your pain and general weakness and malaise. Try going to www.essiac-herbal.com and reading up on it. It has no side effects, is 100% herbal, and is relatively inexpensive (on this site, anyway). I wish you the best of luck! Keep us informed of your progess. God Bless! BD --- loontoon4 wrote: > Hi everybody! > My name is Lonnie and I am looking for some help in > my quest to find out what is going on with me. I am > 35 years old. I have been having problems for about > 4-5 years. It all started with tingling in my hands. > From there I have went downhill ever since with few > periods of somewhat wellness. I have been dx'ed with > MS, Lupus, Fibromyalgia, Arnold Chiari Malformation, > CFS, anxiety, mercury exposure due to amalgam > fillings, among several that I am sure that I have > forgot. Recently I had posterior fossa decompression > surgery on 2/21/02. I then developed a CSF leak that > resulted in a staph infection and I had to have more > surgery on 3/22/02. I still have the muscle > weakness, severe fatigue, and general malaise > feeling. I have had just about every test that there > is and the abnormal results that I had is an ANA > titer of 1:320, lesions on my brain, and Chiari > Malformation. I haven't had any recent tests and I > was wondering if they could change. I haven't had > any CBC or lab work in quite awhile. I am getting > desperate and would like any input on what I should > do. Thanks for all replies. > Lonnie in Soonerland > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 Mark and , thanks for the great advice and suggestions. I really appreciated it. I will definitely keep everybody informed on my roller-coaster ride of life. Have a great and blessed evening, Lonnie in Soonerland ===== FREE Subscription Arthritis Chronicle Newsletter http://www.activexamerica.com/at.cgi/187007/Newsletter http://groups.yahoo.com/group/ArthritisNewsletter __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 Hi Celeste, 10 times better, huh. Sounds worth it. Thanks for responding to my post. Good luck with the procedure that you are planning to do. Keepme informed. Have a great evening, Lonnie in Sooerland ===== FREE Subscription Arthritis Chronicle Newsletter http://www.activexamerica.com/at.cgi/187007/Newsletter http://groups.yahoo.com/group/ArthritisNewsletter __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2002 Report Share Posted June 7, 2002 > Hi everybody! > My name is Lonnie and I am looking for some help in my quest to find out what is going on with me. I am 35 years old. I have been having problems for about 4-5 years. It all started with tingling in my hands. From there I have went downhill ever since with few periods of somewhat wellness. I have been dx'ed with MS, Lupus, Fibromyalgia, Arnold Chiari Malformation, CFS, anxiety, mercury exposure due to amalgam fillings, among several that I am sure that I have forgot. Recently I had posterior fossa decompression surgery on 2/21/02. I then developed a CSF leak that resulted in a staph infection and I had to have more surgery on 3/22/02. I still have the muscle weakness, severe fatigue, and general malaise feeling. I have had just about every test that there is and the abnormal results that I had is an ANA titer of 1:320, lesions on my brain, and Chiari Malformation. I haven't had any recent tests and I was wondering if they could change. I haven't had any CBC or lab work in quite awhile. I am getting desperate and would like any input on what I should do. Thanks for all replies. > Lonnie in Soonerland Hello Lonnie, Well, I'm a lurker here (not sure if I have ever posted before). I don't have fibro, but do know a reasonable amount about mercury toxicity and how to correct it. So, I would suggest that many people (such as doctors) do not know how to determine mercury toxicity. I would further suggest that mercury toxicity CAN result in fibro. This doesn't mean it is the case for YOU however. I would suggest that you try to get to the bottom of the mercury issue--- as it may be really quite important if this is a problem in your case. Here is information on testing for mercury toxicity (which, by the way is relatively cheap, and very non-invasive): http://groups.yahoo.com/group/Autism-Mercury/files/HOW_TO_hair_test Also, for " fun " here is a post about a couple people who in fact got over fibro by doing mercury detox: http://groups.yahoo.com/group/Autism-Mercury/message/30131 best wishes, Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2002 Report Share Posted June 7, 2002 Hi Moria, Thanks for the sites. I will go and see what they say. I really do think that my problems were started by my amalgam fillings. I have been told by a alternative dentist that my mercury readings were the highest the office has seen. I also had a urine test which used a chelating agent. They wouldn't give me the results until I paid my bill in full. The bill was $1,800 for the first day! Who can afford that? So I haven't been back. Thanks again and I will keep in touch. What kind of name is Moria? Have a great evening, Lonnie --- moriamerri wrote: > > > Hi everybody! > > My name is Lonnie and I am looking for some help > in my quest to find > out what is going on with me. I am 35 years old. I > have been having > problems for about 4-5 years. It all started with > tingling in my > hands. From there I have went downhill ever since > with few periods of > somewhat wellness. I have been dx'ed with MS, Lupus, > Fibromyalgia, > Arnold Chiari Malformation, CFS, anxiety, mercury > exposure due to > amalgam fillings, among several that I am sure that > I have forgot. > Recently I had posterior fossa decompression surgery > on 2/21/02. I > then developed a CSF leak that resulted in a staph > infection and I had > to have more surgery on 3/22/02. I still have the > muscle weakness, > severe fatigue, and general malaise feeling. I have > had just about > every test that there is and the abnormal results > that I had is an ANA > titer of 1:320, lesions on my brain, and Chiari > Malformation. I > haven't had any recent tests and I was wondering if > they could change. > I haven't had any CBC or lab work in quite awhile. I > am getting > desperate and would like any input on what I should > do. Thanks for all > replies. > > Lonnie in Soonerland > > Hello Lonnie, > > Well, I'm a lurker here (not sure if I have ever > posted before). > I don't have fibro, but do know a reasonable amount > about mercury > toxicity and how to correct it. So, I would suggest > that many > people (such as doctors) do not know how to > determine mercury > toxicity. I would further suggest that mercury > toxicity CAN > result in fibro. This doesn't mean it is the case > for YOU however. > I would suggest that you try to get to the bottom of > the > mercury issue--- as it may be really quite important > if this > is a problem in your case. Here is information on > testing for > mercury toxicity (which, by the way is relatively > cheap, and > very non-invasive): > http://groups.yahoo.com/group/Autism-Mercury/files/HOW_TO_hair_test > > Also, for " fun " here is a post about a couple people > who in fact got > over fibro by doing mercury detox: > > http://groups.yahoo.com/group/Autism-Mercury/message/30131 > > best wishes, > Moria > > ===== FREE Subscription Arthritis Chronicle Newsletter http://www.activexamerica.com/at.cgi/187007/Newsletter http://groups.yahoo.com/group/ArthritisNewsletter __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2002 Report Share Posted June 8, 2002 > Hi Moria, > Thanks for the sites. sure, you are welcome. Let me know if you have other questions about mercury. I have more URLs LOL. > I will go and see what they say. > I really do think that my problems were started by my > amalgam fillings. I have been told by a alternative > dentist that my mercury readings were the highest the > office has seen. I also had a urine test which used a > chelating agent. They wouldn't give me the results > until I paid my bill in full. The bill was $1,800 for > the first day! Who can afford that? um, yeah, that is a lot of money! The hair test file (the one I posted URL for) is a real bargain by comparison -- $40 to $80 depending on how you go about it. So I haven't been > back. Thanks again and I will keep in touch. What kind > of name is Moria? several different derivations. best wishes, Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2003 Report Share Posted November 19, 2003 Dear Emma, You said: <<I have read alot about suicidal thoughts whilst on Seroxat - is it the same with all SSRI's?>> ** I'm going to echo Joe's " yup " here. The important thing here is to always remind yourself that anything that is out of the ordinary for you is the drug, not you. Keeping this perspective helps people survive this time. It's also good practice for not acting on your emotions. People sometimes ask how to tell the difference between their emotions and their intellect and/or spirit. The easiest way I can think to do this is by paying attention to how much 'charged' energy is being expressed surrounding the issue. The intellect and spirit will deal more calmly, with the energy being smoother, cleaner, and less chaotic. Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2008 Report Share Posted July 25, 2008 Hi Brent- I think I've seen you post on the OCD Support group! I have the ACT for Anxiety Disorders book also -- I also have a dissertation from Dr. Twohig that focuses on using ACT for OCD. I beleive he is presenting at the OC Foundation conference in August. Lori > > Hi everyone, > > I am a new member here and I am really interested in ACT for anxiety. > I have the book ACT for Anxiety Disorders and had the opportunity to > see Forsyth present on ACT for anxiety disorders. I am really > interested in how ACT can be utilized for OCD and was wondering > whether anything has been published in book form specific to OCD. So > far I have found nothing specific to OCD. Also, what is ACT's > perspective on using basic medications such as SSRIs for anxiety > conditions? > > Brent > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2009 Report Share Posted January 11, 2009 Good advice ... some folks need to get the lay of the land before doing something that takes a chunk of time and for these I often encourage folks to go ahead and skim the whole thingin a day or two doing no exercises. Then let it sit for a day or two and if it whispers to you, go back and do it deliberately doing all the exercises.If you bog down on a specific exercise skip it and come back later,but otherwise try to go right through. It will take a month or two doing it that way. In our research on the book we usually allow 2 months.The data say the darn thing works fairly well overall.But Joe is right ... it takes time.We will be rooting for you!- S C. Foundation ProfessorDepartment of Psychology /298University of NevadaReno, NV 89557-0062hayes@... or stevenchayes@... Fax: Context Press (you can use for messages): (www.contextpress.com)If you want my vita, publications, PowerPoint slides, go to http://www.contextualpsychology.org/blog/steven_hayes If you are a professional or student and want to be part of the world wide ACT discussion or RFT discussions go to http://health.groups.yahoo.com/group/acceptanceandcommitmenttherapy/join orhttp://health.groups.yahoo.com/group/relationalframetheory/joinIf you are a member of the public reading ACT self-help books (e.g., " Get Out of Your Mind and Into Your Life " etc) go to: http://health.groups.yahoo.com/group/ACT_for_the_Public/join Hi , You've picked a good book. Don't try to over think it. Just read the book and follow it as it intends you to. Just remember it's not a race. You wont fix your problems any quicker by reading the book quicker (in fact it may make things harder if you don't pick up on all of what is said/written). Just remember what you are learning are life long skills. By reading the book you are investing in something very precious. Yourself. Take your time and if you don't get it at first don't give up, you will get it in the end. Talk to the people on this forum. There are really nice people here who may have had similar experiences. Look forward to reading your posts. Take care. Joe :-) > > Hi I just bought Book,It was an impulse buy but the book really appealed to me.I was just wondering how to get the most out of the book.Should I read the book first and then do the exercises? Do I do the exercises first? Should I study the psychology and philosophy? I am trying to overthink it I know but I want to get the most out of it.Thank you > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2009 Report Share Posted January 12, 2009 Thank you so much.I have only skimmed and am reading it slowly so far but it has helped me so much. I was in DBT,but really was bothered by the strictness of the therapy and the confrontation of the program.I did get alot out of the mindfulness though and because of that I was drawn after I withdrew from DBT after a year to this book.What are the similarities and differences that I shoud expect between DBT and ACT? I am slowly reading it and I love how it seems more focusing on acceptance and less on changing people's behaviors. I am using this for depression and anxiety.and have shared it with friends who have PTSD and they found the exercises very challenging and already want to buy the book. I look forward to talking to everyone more.This is a very life changing book already. I feel myself starting to accept alot more. > > > Hi , > > You've picked a good book. Don't try to over > think it. Just > > read the book and follow it as it intends you to. Just > remember it's > > not a race. You wont fix your problems any quicker by > reading the book > > quicker (in fact it may make things harder if you > don't pick up on all > > of what is said/written). > > Just remember what you are learning are life long > skills. By reading > > the book you are investing in something very precious. > Yourself. Take > > your time and if you don't get it at first > don't give up, you will get > > it in the end. > > Talk to the people on this forum. There are really > nice people here > > who may have had similar experiences. Look forward to > reading your > > posts. Take care. Joe :-) > > > > > > > > > > Hi I just bought Book,It was an > impulse buy but the > > book really appealed to me.I was just wondering how to > get the most > > out of the book.Should I read the book first and then > do the > > exercises? Do I do the exercises first? Should I study > the psychology > > and philosophy? I am trying to overthink it I know but > I want to get > > the most out of it.Thank you > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2009 Report Share Posted January 13, 2009 Hi and allYou need to take time to read the book and do the exercises again and again and again and again until every word sinks into your bones and you know it inside out. This took me about 6 months and I'm still revisiting it from time to time. That way when you are in pain and start to struggle, your mind will remind you of the traps and pitfalls and you can start to notice and let go of the struggle. It can be infuriating and frustrating (especially willingness sections!) so if you feel like you want to rip it up and burn it at times that's ok, you are making progress.Good luckLeo Stay connected to the people that matter most with a smarter inbox. Take a look. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2009 Report Share Posted February 7, 2009 Hi! I've been a member of the board for some time but I never introduced myself or told my story. My son Cole was diagnosed with EN last year. It took some time to actually get a diagnose but I am glad we know what it is. He was 5 years old when the EN first started. The first episode was on a around 5 pm on a normal day. He had some cold like symptoms a few weeks before the first flair up. I was on the phone with his Dad and he was complaining that his feet hurt, I did not think much of it b/c he had been playing all day with his friend so i figured it was from playing. Then maybe 10 min later he was like no mom my feet really hurt. i took off his socks and his ankles were a little swollen. I was thinking that is weird?? So I called his dad to see if i should call the Doctor or something (he was always a very healthy child so I never really called the doctors for anything). My husband said yes to give them a call....the pediatric office was closing so they said to take him to urgent care. I went to urgent care (it was about 1/2 from our house). By the time i got to the urgent care his feet ankles and knees were So severely swollen he was not able to work and he was in tears (which he never cries). We were in the waiting room of the U.C. and they said they was nothing they could do for him and we needed to take him to Rainbows or the ER. (I was a little worried at this time...the swelling was so bad...I'll attach pic if I can figure it out). At the Er they ran tons of blood tests and gave him some Motrin for the pain. Slowing the swelling went down and in a few hours he was doing a lot better. He still walked with a limp for a few days. The bloods tests said he was fine? Step Culture was also fine they even did the 3 days lab test from strep and that was negative). The only thing the said they thought it could be was rheumatoid arthritis. We made an apt with one of the ped doctors in the office for the next day (his doctor had been out on medical leave). She thought it was strange and refereed us to a rheumatologist (we could not get an apt for weeks). But Cole seemed to be doing better so I was ok with waiting. But then a few days later he has a new symptom. he had a weird rash on the lower part of his legs. They felt like hard bumps and were a little pink/red color. We went back to the doctor and she ran more blood tests and now they think maybe he has Lyme disease?? All these tests also come back fine. A few days after this he has another rash and it is big lumps on his legs??? And then a few days after this he had a BIG RED RASH on his legs that looked like Burns. Finally by ped called to get us into the rheumatologist earlier. The said it was not the arthritis but something called serum sickness or HSP? And that it should never happen again. I was fine with those answers and we moved on. About 6 months later it started again.....and it again stared with cold like symptoms. Then I remembered that last time this happened I have given him Triaminic Cough Syrup and that was the first time he had ever had that. I have since taken him to see an allergist and he was The one who diagnosed him with EN, he seems to think it was from a strep infection. I just don;t know why the strep cultures came back negative many times?? I really truly think it was from the cough syrup. The allergist is admit it was from strep??? I'm NOT going to gibe him that cough syrup any more but if that was the reason for the EN I would like to know what Meds he may be allergic to?? The allergist never did any blood work to see if he had any allergies. He just said it should never happen again? Sorry that was so long. It was a very scary week or so we had. I am very happy we know what it is I just wish I knew what it was really caused from, not what it might have been caused from. But he is now a happy healthy 6 year old! ~Sue Quote Link to comment Share on other sites More sharing options...
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