Guest guest Posted October 16, 2007 Report Share Posted October 16, 2007 Dear Frances,On behalf of all our members, welcome to our Erythema Nodosum Group! Thanks for sending in your Questionnaire. I have added your information to our "Member Medical History" Files on the Group site and posted it below.You now have Full EN Group privileges.You are receiving ALL EN Group emails, and you may also visit the Erythema Nodosum Group Site:http://health.groups.yahoo.com/group/erythema_nodosum_Group/ whenever you like by logging on with your Yahoo ID and secret password.You do not have to have the group emails delivered to be a member here.I hope you will remain a member here to support others even after you go into remission. I sincerely hope we can get you there!Since EN IS NOT BEING ACTIVELY RESEARCHED, please take this opportunity to make a generous donation to our "EN Research Fund" to find a cure for this painful disorder. Instructions have been sent to you.Also, please visit our new Erythema Nodosum Websitehttp://www.geocities.com/erythema_nodosum/ We intend to make it the best EN website on the net.Although you have a very difficult case of EN, we all know what you are going through. Welcome to our Friendly Erythema Nodosum Group!Love,Chronic Idiopathic EN since 1968********* Frances 's Case History10/16/071. Your name and age: Frances , age 54 2. Your location: North Augusta, SC 3. Your email address: b.maryfrances@... 4. Your Yahoo ID: b.maryfrances 5. Describe your erythema nodosum/PG symptoms or, if you do not have EN or PG, please explain why you wish to join this group. Extremely painful nodules on my arms, legs, thighs, hips and abdomen. I've had as many as 40 lesions at one time. I also have low grade fever and malaise. 6. List any other health conditions. I have arthritis in finger and thumb joints. I also had depression. 7. State what medications or treatments you take for EN, and their effectiveness: I've taken, NSAIDS, Colchicine, Plaquenil, Thalimide, Dapsone, Cellcept, oral steroids, SSKI and steroid injections. 8. When did you first get erythema nodosum or PG? The first lesion appeared in the early 1980's. This outbreak lasted about a year and a half. I had a recurrence in 1992 which lasted until 1994. In 1996 I began what I consider as chronic EN, I've not been without nodules at all. 9. How long have you had erythema nodosum or PG? A total of 16 + years. 10. Do you agree to treat all EN members with respect? Yes 11.Do you agree to post NO advertisements for any products or services? Yes 12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search, referral from another group or person etc.)I was doing a search for EN and the support group was on the search list. Quote Link to comment Share on other sites More sharing options...
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