Re: Upper Resp Symptoms and GERD

[Guest guest]

,

I hadn't heard from you in a few days & was wondering how was doing?

Did you do the MRI yet? Keep us posted. I've been so worried about

.

Ray, mother to Tabitha (age 5), Autumn, age 3 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan Avery, 2 months

_________________________________________________________________

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[Guest guest]

,

I hadn't heard from you in a few days & was wondering how was doing?

Did you do the MRI yet? Keep us posted. I've been so worried about

.

Ray, mother to Tabitha (age 5), Autumn, age 3 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan Avery, 2 months

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

,

I hadn't heard from you in a few days & was wondering how was doing?

Did you do the MRI yet? Keep us posted. I've been so worried about

.

Ray, mother to Tabitha (age 5), Autumn, age 3 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan Avery, 2 months

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

Oh I am so sorry. I have been so worried about AND about you.

How ARE you feeling? How is your DVT?

I am so sorry to hear about and the worsening pain/balance problems.

I wish I could just jump on a plane and give you a hug. Is there any way

they can put you on a cancellation list to possibly move UP the MRI? What

are they giving him for pain? I am also sorry to hear about the kidneys.

How do they handle that problem? Forgive me for asking, I don't know too

much about kidney problems.

I am sorry to hear that is unwell too. Is she fighting an infection as

well?

Please know that you are in my continued thoughts and prayers. I truly wish

I lived closer so that I could be there to help you through this. Please try

and take a few minutes for yourself when you can. Keep us posted when you

can.

Tina

Mike 15 JRA, CVID, Asthma, Sinusitis and GI

[Guest guest]

Oh I am so sorry. I have been so worried about AND about you.

How ARE you feeling? How is your DVT?

I am so sorry to hear about and the worsening pain/balance problems.

I wish I could just jump on a plane and give you a hug. Is there any way

they can put you on a cancellation list to possibly move UP the MRI? What

are they giving him for pain? I am also sorry to hear about the kidneys.

How do they handle that problem? Forgive me for asking, I don't know too

much about kidney problems.

I am sorry to hear that is unwell too. Is she fighting an infection as

well?

Please know that you are in my continued thoughts and prayers. I truly wish

I lived closer so that I could be there to help you through this. Please try

and take a few minutes for yourself when you can. Keep us posted when you

can.

Tina

Mike 15 JRA, CVID, Asthma, Sinusitis and GI

[Guest guest]

Oh I am so sorry. I have been so worried about AND about you.

How ARE you feeling? How is your DVT?

I am so sorry to hear about and the worsening pain/balance problems.

I wish I could just jump on a plane and give you a hug. Is there any way

they can put you on a cancellation list to possibly move UP the MRI? What

are they giving him for pain? I am also sorry to hear about the kidneys.

How do they handle that problem? Forgive me for asking, I don't know too

much about kidney problems.

I am sorry to hear that is unwell too. Is she fighting an infection as

well?

Please know that you are in my continued thoughts and prayers. I truly wish

I lived closer so that I could be there to help you through this. Please try

and take a few minutes for yourself when you can. Keep us posted when you

can.

Tina

Mike 15 JRA, CVID, Asthma, Sinusitis and GI

[Guest guest]

Ray, Tina and le, thankyou for asking about . We have

9 days more until the cranial MRI under general is scheduled. In the

meantime, the headpain is worsening, along with balance and speech. Friday

he had episodes of pain so severe he began to scream, it is the first time

he has done that, and with all the pain meds he is on as prophylactic

(Indomethacin and Amitrptyline) I know it had to be expremely bad to evoke

such a response from him. There were some more episodes over the weekend

but not so severe, all on top of what we now term his 'normal' headpain. I

cant shake the feeling he should be in hospital under observation and it is

so hard to watch what is happening when we dont yet know WHY. My mind can

only think the worse, and next Thursday cant come quick enough.

Things have been really hard over here, on top of all the pid stuff,GI and

return of bilateral hydronephrosis and dilatation of both kidneys.

has been unwell and my husband has started on medication for depression.

And I'M worried how my body is going to manage if needs to be

hospitalised because of my current DVT/PE. ( I always stay in with him).

I havent written in a while because I feared once I started typing I wouldnt

be able to stop the out pouring.

Take care everyone, my love and best wishes to all and most especially to

the pumpkins not doing so well at the moment.

, mum in Australia to (5) and (3), both with pid, early

onset hypothyroidsm, GI issues, asthma, and - Chronic Paroxysmal

Hemicrania, bilateral hydronephrosis and dilatation of kidneys (PUJ

obstruction)

Re: Upper Resp Symptoms and GERD

> ,

> I hadn't heard from you in a few days & was wondering how was

doing?

> Did you do the MRI yet? Keep us posted. I've been so worried about

> .

>

> Ray, mother to Tabitha (age 5), Autumn, age 3 (IgG def., asthma,

> chronic sinusitis, and allergies), and Duncan Avery, 2 months

>

>

>

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

>

>

>

> This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

>

>

[Guest guest]

,

Isn't there any way they can move up the MRI, given that his

condition is obviously worsening? I know here if I reported those

concerns to our drs, we would be moved up ASAP.

I am so sorry to hear that everything is so crazy for you. I will

continue to pray for you & your family. Please give a hug

for us to let him know we care about his a great deal. Also,

consider yourself hugged too!

My husband's aunt lives in Australia--I just found that out the other

day. She called her son & I just happened to be the one who answered

the phone. She mentioned something about it & that's when I realized

she had moved from Houston to Australia to be with her fiance. Maybe

I can find out where she lives for you. I know her name is Kissey,

but that probably doesn't help you much!

Ray, mother to Tabitha (age 5), Autumn, age 3 (IgG def.,

asthma, chronic sinusitis, and allergies), and Duncan Avery, 2 months

[Guest guest]

,

Isn't there any way they can move up the MRI, given that his

condition is obviously worsening? I know here if I reported those

concerns to our drs, we would be moved up ASAP.

I am so sorry to hear that everything is so crazy for you. I will

continue to pray for you & your family. Please give a hug

for us to let him know we care about his a great deal. Also,

consider yourself hugged too!

My husband's aunt lives in Australia--I just found that out the other

day. She called her son & I just happened to be the one who answered

the phone. She mentioned something about it & that's when I realized

she had moved from Houston to Australia to be with her fiance. Maybe

I can find out where she lives for you. I know her name is Kissey,

but that probably doesn't help you much!

Ray, mother to Tabitha (age 5), Autumn, age 3 (IgG def.,

asthma, chronic sinusitis, and allergies), and Duncan Avery, 2 months

[Guest guest]

--I am praying for you and , and Tabitha, and your husband.

Cling to Christ, my friend. I wish i could come and clean your house a

nd cook for you for a week....hold you and your family, and comfort

you....Truly, our Savior is the only ONe who can comfort you and carry

you all through this. love, maurita