Re: question from a skeptic

[Guest guest]

I think that those are questions that you have to ask Dr. Goldberg as I was

not present at the appointment. Kathy -NNY

[Guest guest]

Of the 150 charts that I reviewed in Dr. Goldberg's office all of the kids

had abnormalities. All of the kids in my clinic also have abnormalities.

Kathy -NNY

[Guest guest]

The children who have " normal bloodwork " are a very small number. They also

have positive history and physicals. Once they have been on treatment for a

period of time their bloodwork begins to reflect the typical pattern.

Again this is a very small number of children. Kathy -NNY

[Guest guest]

I'd submit that rather than being a skeptic, that you are actually argumentative

by personality (ample evidence below in my opinion). Has it occurred to you

that your daughter's condition may be different from the other patients Dr.

Goldberg has? Have you anything constructive for this board?

dave.serrano@... wrote:

> Thanks. One item caught my eye on this:

> >>I would suggest you discuss your skepticism with Dr. Goldberg yourself at

> either your monthly phone conference, or on his Tuesday night chat.<<

>

> This I have done and to be quite frank this is one of the main reasons I

> remain skeptical. I am little tired of him raising his voice to me and my

> wife and going on mini-trantrums about not enough funding and " losing a

> generation of kids " if the proper drugs are not developed and " what am I

> doing reading stuff on the internet " (that's not his stuff). I have

> provided him literature on several items for his review. He could have

> studied it and given me reasons why he thought it invalid. Instead I get an

> earful on stuff that are not relevant to my questions. It seems if I am not

> 100% 'on board' and expect proof and require good explanations (I don't care

> how technical he gets with me...I like that) that I am somehow a 'renegade'.

> To be honest I find his bedside manner pushy and arrogant. Sorry Dr. G, the

> facts that (a) my daughter is autistic and ( gets sores in her mouth are

> simply not enough to demonstrate to me that she is a child. Maybe it

> is to him but I expect him to provide me with the data. Actually the sores

> in her mouth are what drove me to see him. However, to date I have seen no

> movement in their reduction. I have no issue with a doc that says he can't

> help me. But I struggle with his insistence on when we haven't seen

> any changes with Valtrex, Famvir, Nizoral, or Paxil to date (or her

> bloodwork for that matter). Again, I have no problem with " if something's

> broke, fix it " but I personally haven't been shown what's broke.

>

> For every scientific post supporting its claims there is a piece of

> research supporting DAN! or CAN. Thus, there are many organizations with

> lots of data, each supporting their position. Dr G has taken up as his

> religion but that shouldn't mean that every piece of literature published by

> 'the dark side' is incorrect. Personally I find the overall evidence

> compelling but not convincing. I have not picked a camp. I try to read (or

> at least skim) it all (well, at least stay up to date). After years of

> reading I can say definitively that I don't know much about the biology of

> autism or what helps it from a biomedical approach.

>

> Thanks again everyone for the info and thoughts. I promise this is my last

> post on this topic.

>

> Dave.

>

> RE: question from a skeptic

>

> Dave,

>

> First and foremost there are many neuro immune diseases...RSD,

> Narcolepsy,

> MS to name a few...

>

>

> Responsibility for the content of this message lies strictly with

> the original author, and is not necessarily endorsed by or the

> opinion of the Research Institute.

>

>

>

[Guest guest]

----- Original Message -----

From: dave.serrano@...

I promise this is my last

post on this topic.

Dave.

I hope not. This has been a very interesting discussion, and I think it points

out the need for more indepth research. I'm a long way from thinking is a

" one-size fits all " explanation. The strides our dd has made are clear to all

who see her. But I have to be honest that I'm not entirely sure which

interventions to attribute them all to. It seemed that just removing milk

flipped a switch in her. And any time we forget that and give her milk we pay a

price. Recently, we slacked off on her medications and yesterday we endured a

tantrum that was remaniscant of old times. The skeptic in me says that it's

just a coincidence, but I'm also practical and don't want to take the chance.

Our dd is one of the ones whose blood work was inconclusive.

Dave, did you ever have your dd's mouth sores tested to find out exactly what is

causing them? If it is a Herpes virus I would stay on the protocol just for

that reason alone.

[Guest guest]

I have found Dave's posts to be honest and refreshing. He is only

explaining how he sees things unfolding. And he is doing it in an

objective manner - hardly " argumentative " . And I have found the

ensuing message thread very informative.

timary

> I'd submit that rather than being a skeptic, that you are actually

argumentative

> by personality (ample evidence below in my opinion). Has it

occurred to you

> that your daughter's condition may be different from the other

patients Dr.

> Goldberg has? Have you anything constructive for this board?

>