Guest guest Posted May 10, 2000 Report Share Posted May 10, 2000 Tammy and , Did they say they would sedate him? Bayleigh was sedated for the MRI and CT scan she had done...it wasn't too bad, although she DID NOT like the chloral hydrate they gave her orally to sedate...I think she threw most of it up all down my husband's shirt... !!!!! It goes pretty fast, so it's not so bad...Good luck!!!!!! W. ----Original Message Follows---- From: bailykuhn@... Reply-Plagiocephalyegroups Torticolliskidsegroups, Wesnr@..., smithbj@..., nrg@..., bobbdj@..., flochats@..., kpeterse@..., 4dave3@..., uffdapa@..., Woodikris@..., Nielsen.phillip@..., plagiocephalyegroups, luvemma@..., Moose767@..., SBURDS@..., tkaul@..., VACINWI@... Subject: Tammy & Date: Fri, 5 May 2000 14:45:47 EDT We had our appointment with the Pediatric Neurologist and he did diagnose with positional plagiocephaly and torticollis. I hope he gives my x pediatrician a few choice words, after all she thought I was nuts! Would love to be a mouse in that corner. We get an MRI on May 16. That should be interesting. No food for for 6 hours prior. That is not going to be fun. They said it would take a half hour and we should have results and speak to the neurologist the same day, no waiting for results. The MRI is to be certain no pressure on his brain. He said he was a happy, very responsive, social little boy and doesn't see any problems but just to make sure. Muscle tone was good also. We have someone local who can fit him with a helmet. Since insurance pays 100% we may just go there. I have an appointment with them Monday to check it all out. Would like to go to Madison because of the DOC band but a $200 deductible and 80% plus the driving. We will see. We should be evaluated next week by a physical therapist. Will have to learn the stretches. Since he is only 5 months, hopping all goes well. Tammy & ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2000 Report Share Posted May 10, 2000 - yes they are sedating him. Sounds like the same stuff too. They are going to do it at nap time to make it hopefully easier on all. The thought of him not eating during the day for 6 hours could make it very interesting too. Tammy & Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2000 Report Share Posted May 10, 2000 In a message dated 5/10/00 3:00:58 AM Pacific Daylight Time, tiggerandme@... writes: << I think she threw most of it up all down my husband's shirt... ! >> Oh, the rite of vomit-on-clothing-I-must-still-wear-in-public!! I sometimes wonder if along with the kids' extra change of clothes if I should pack us a spare! Kimry PS, Abby was also sedated for her CTscan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2000 Report Share Posted May 10, 2000 Kimry...that's just too funny! When was going through his severe reflux stage (8 wks to 8 months) that is EXACTLY what I had to do! I remember taking him to the doctor, at approx. 10 wks of age, for the projectile vomiting problem. Fortunately, (unfortunately for me) proceeded to demonstrate his remarkable projectile abilities just when the doctor entered the exam. room...I'll always remember the first words to come out of the pediatrician's mouth: " Impressive! " Actually...it was a good thing it was witnessed...I was beginning to think everyone thought I was nuts! Of course, we were sent for a STAT abdominal ultrasound and upper GI series at the hospital all the while smelling like baby puke. It wasn't fun! Polly > In a message dated 5/10/00 3:00:58 AM Pacific Daylight Time, > tiggerandme@h... writes: > > << I think she threw most of it up all > down my husband's shirt... ! >> > Oh, the rite of vomit-on-clothing-I-must-still-wear-in-public!! > I sometimes wonder if along with the kids' extra change of clothes if I > should pack us a spare! Kimry > PS, Abby was also sedated for her CTscan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2000 Report Share Posted May 11, 2000 do these babies also have a reflux problem?good lord what's next?livie has just started the vomiting though we always suspected a reflyx problem.we thought the asthma may have been triggered by the reflux because she does arch when you hold her and feed her.we are aware of the many reflux problems as our youngest son had SEVERE reflux from birth on tillthe age of 2 when he was diagnosed.he was too small to do any type of testing that may have included anesthesia or sedation of any type due to failure to thrive and diaphragmatic hernia.he was treated successfully with tagamet,prilosec and rice cereal.he also has celiac sprue disease so he's been watched very carefully by the gastro guys as we call them.we have an appt.today for livie for what else,an ear infection,and she goes for her 9 month check up on the 25th.the pulmo guy suspects reflux as well.but with her type of insurance we need to go back to the ped who can then refer us to the g.i.guys. what's next? lynne and livie. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2000 Report Share Posted May 11, 2000 In a message dated 05/11/00 8:29:38 AM EST, pollyjanos@... writes: << Lynne, I do want to add that I have read all of your posts and am an ADMIRER of yours for what you are doing for your niece! You're a true saint! I will keep you in my prayers. >> I couldn't agree with Polly more! You're amazing, Lynne. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2000 Report Share Posted May 11, 2000 My goodness, Lynne, you certainly have had your hands full! They were thinking that had pyloric stenosis, hence the GI series at 10 weeks of age. It proved negative so surgery was not needed. I recall being on Zantac mostly, and Propulsid, too, for a brief period (thank God he's not on that anymore...just heard about all the terrible side effects and deaths associated with this drug and I believe that it has since been pulled from the market) Honestly, his reflux and failure to thrive was probably primarily due to his prematurity...his little digestive system just didn't have enough time to " mature " while in utero. If you have read my " insurance appeal " (in the files section) you will see that 's reflux was a contributing cause (among MANY) to the development of his positional plagio. The only way I could put him down to sleep was in his bouncer: it kept him in enough of an upright position to reduce the risks of aspiration from his inevitable vomiting. I feel very fortunate that he has since, " outgrown " this problem, along with most others. Now just awaiting his 2nd birthday to see if the scoliosis improves any. Lynne, I do want to add that I have read all of your posts and am an ADMIRER of yours for what you are doing for your niece! You're a true saint! I will keep you in my prayers. Polly > do these babies also have a reflux problem?good lord what's next? livie has > just started the vomiting though we always suspected a reflyx problem.we > thought the asthma may have been triggered by the reflux because she does > arch when you hold her and feed her.we are aware of the many reflux problems > as our youngest son had SEVERE reflux from birth on tillthe age of 2 when he > was diagnosed.he was too small to do any type of testing that may have > included anesthesia or sedation of any type due to failure to thrive and > diaphragmatic hernia.he was treated successfully with tagamet,prilosec and > rice cereal.he also has celiac sprue disease so he's been watched very > carefully by the gastro guys as we call them.we have an appt.today for livie > for what else,an ear infection,and she goes for her 9 month check up on the > 25th.the pulmo guy suspects reflux as well.but with her type of insurance we > need to go back to the ped who can then refer us to the g.i.guys. > what's next? > lynne and livie. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2000 Report Share Posted May 12, 2000 we haven't had any reflux problems but my sisters boy did and he had something going on with his head, I say plagio but she has never had it DX -----Original Message----- From: DOLY1023@... <DOLY1023@...> Plagiocephalyegroups <Plagiocephalyegroups> Date: Thursday, May 11, 2000 5:34 AM Subject: Re: Tammy & >do these babies also have a reflux problem?good lord what's next?livie has >just started the vomiting though we always suspected a reflyx problem.we >thought the asthma may have been triggered by the reflux because she does >arch when you hold her and feed her.we are aware of the many reflux problems >as our youngest son had SEVERE reflux from birth on tillthe age of 2 when he >was diagnosed.he was too small to do any type of testing that may have >included anesthesia or sedation of any type due to failure to thrive and >diaphragmatic hernia.he was treated successfully with tagamet,prilosec and >rice cereal.he also has celiac sprue disease so he's been watched very >carefully by the gastro guys as we call them.we have an appt.today for livie >for what else,an ear infection,and she goes for her 9 month check up on the >25th.the pulmo guy suspects reflux as well.but with her type of insurance we >need to go back to the ped who can then refer us to the g.i.guys. >what's next? >lynne and livie. > >------------------------------------------------------------------------ >Double your manufacturer's warranty on all computers, >home appliances, and electronics AND win up to $500 >towards your purchase! >1/3749/4/_/689409/_/958048739/ >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
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