Guest guest Posted February 10, 2003 Report Share Posted February 10, 2003 In a message dated 2/10/03 8:14:29 PM Central Standard Time, autism-aspergers writes: >>Hi I just wanted to say that there are a lot of people out here who dont believe in medicating Aspies.<< My four-year old autistic son is unmedicated, and my 37 year-old husband with aspergers has never been medicated either. :-) Why would anyone chose to NOT be medicated? I mean, sure if you try it and it doesnt work or you have problems or side effects , then fine. I knew I had ADHD for a few years now. I am 43 in April. I refused to get myself medicated , but this summer went to the doctor and got diagnosed with ADHD. I am now on medicines and one is an Anti-d and it is really helping me, so since this August, I have been doing far better. My son has been on medications , and is currently on two different ones that he started on in the fall, and they are working much better. He often has to try some and they work and then they stop working after a long time ( sometimes a year or two) and so on to try another. He is now in Puberty. He is suffering the hormones and voice changes and so his meds, as well as those like him ( the moms of many of the ADHD kids told me this ) have not been getting as good of an effect from the meds as this is puberty age. Oh and one more thing.. I know that there are alternatives to medications. Some of these work for some people. Donna, are you still here on this list? Donna, sells a [product and it is Nutritional. IT is called Reliv. My husband just started taking one a year ago called ADvocare. He takes the Spark nutironal drink. some have given testimony that they are benefited from these types of products for ADHD and Aspergers. I am sure that they are, and dont doub them. However, everyone is different. We tried one product for and I tried it too and it didnt work. However, we might not have tried it long. I found when I got on my meds this summer that they felt the same way at first. So, sometimes it is trying the amounts, the kinds, the different sources, and we find something. I just find it hard that anyone could not have any type of help if they have ADHD or Aspergers. If they dont need anything, no therapy, no meds or not even herb or nutritional supplements to help, then I would say a few things -- they are rare, they are maybe mild in how their symptoms affect them and last of all they are lucky. Of course I lived 42 years without meds, but I needed them. I didnt know until I got on them how much of a difference that they make. Believe me., I used to get easily upset and have calmed down about things, and I dont get as depressed over bad situations in my life. So, medications have helped me. I still also need my caffeine though, <G> hugs to all in IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2003 Report Share Posted February 10, 2003 In a message dated 2/10/03 8:14:29 PM Central Standard Time, autism-aspergers writes: My 5 year old aspergers daughter is on prozac for her anxiety issues. I had been against it and fought to not have her put on anything for quite some time but let me tell ya it has made a HUGE different in her ability to communicate and concentrate in school , I just wrote a post about medications. My son is on a form of Ritalin and so am I . He is on a anti D and so am I. the one I just spoke about that has helped me is one just like Prozac and it has helped greatly as you stated. I DIDNT want to get on it, but it has helped. So, how can I complain ? I havent been on any meds in my life, so it took me so long to even consider a medication. My husband of 20 years actually MADE me get something to help me. I think that I am glad that I did. I am ADHD, and my son is ADHD and Aspergers. hugs in IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2003 Report Share Posted February 11, 2003 I just didn't want those of us who trust in medicines for ourselves and our children would not be ridiculed or pushed into running away out of some kind of shame. I never ment to hurt anybody.........just didn't want to be hurt either. heather Re: medications In a message dated 2/10/03 8:14:29 PM Central Standard Time, autism-aspergers writes: My 5 year old aspergers daughter is on prozac for her anxiety issues. I had been against it and fought to not have her put on anything for quite some time but let me tell ya it has made a HUGE different in her ability to communicate and concentrate in school , I just wrote a post about medications. My son is on a form of Ritalin and so am I . He is on a anti D and so am I. the one I just spoke about that has helped me is one just like Prozac and it has helped greatly as you stated. I DIDNT want to get on it, but it has helped. So, how can I complain ? I havent been on any meds in my life, so it took me so long to even consider a medication. My husband of 20 years actually MADE me get something to help me. I think that I am glad that I did. I am ADHD, and my son is ADHD and Aspergers.hugs in IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2003 Report Share Posted February 11, 2003 Again Im totally supportive of what every family decides for themselves. ly I dont have time to worry about what other are doing. I have found too that if you have gone the med route and the meds harned you people are not open to that at all. So the pressure and judgement goes that way too sadly. Anyway I hope we can start about something postive. This list seems too supportive to get off track just because people have opinions of their own. To each ther own ´¨¨)) -:¦:- ¸.·´ .·´¨¨)) ((¸¸.·´ ..·´ -:¦:- Michele E -:¦:- ((¸¸.·´* ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 >>At first he lost about 10 lbs but it didn't hurt him... If Ritalin isn't working like you want it to, then change, and keep changing until you are happy. You will know when your child is at peace -- then you will be, too...<< I should clarify a bit... I'm the one on the Ritalin, not my child. Loosing a few pounds won't hurt me any, so I'm not terribly concerned on that end! *laughs* I've been taking 5mg of ritalin in the morning, but I 'bomb out' by 2pm. Supposedly you don't have the 'up and down' problem with the Adderal. Have you found that to be true? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 In a message dated 4/28/03 4:20:02 AM Central Daylight Time, autism-aspergers writes: They can and they do.Ritalin doesn't work for everyone, even those who are truly ADHD. Ritalin is not necessarily the drug of choice for adults either--tho it can work. For adults it tends to have the opposite effect. I have seen kids on Ritalin and all they do is sit there. As soon as it wears off the rebound is horrible!! Misssy I have studied ADHD for 12 years and have been around many with ADHD, including my students, my son, myself, my dad and others. I have never seen anyone that was like zombie. I have seen many helped by medications such as Ritalin. I am on a form of Ritalin, which is the exact same thing, but with a different manufacturer and name. I have never seen Ritalin not work on an adult just because they are an adult. Some people cant have medications, and some have a difference or a preference with medications as their body works with some and not others. I think it is very fair to say that medications are highly individual. Everyone is different and no one is the exact same. Overall, many see some wonderful effects from Ritalin and medications like it. There are some that have experienced harmful effects. However, we should never let them be the rule , they are the exceptions. It is always best to find the medications that work for you or your child, but it takes time and a trial basis. in IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 >>As I said though, that was when Adderall first came out and there was not a long acting long release of it at that time. I can say one thing, it is always a trial and error and some doses and some medications as well as some different times of the day to take it work for some and not others. My son takes a higher dose than I do as he metabolizes medications faster than I do.<< Thanks... I didn't realize that I would need to specify a long release formula - I'm having the same problem your son did, I just bomb out around 2pm. I'll also be asking for a higher dosage, though probably no more than 10mg. :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 I am not doubting that ritalin works and what I am saying is not specualtion but fact. It worked for my son for a long time until his dosage was maxed out and I refused to go higher. Adderoll worked well for several years. Now we are on Concerta and it seems to be doing alright, Maybe using the word "zombie" was a poor choice of words, but what I am talking about are kids who take ritalin and all they want to do is sit. They don't want to participate in activites. But when it wears off and they rebound they are everywhere. Explain to me why even the experts will tell you that Ritalin can have the opposite affect in adults that it has in kids? Ritalin didn't work for me and it was explained to me that it might not. I totally agree that medication is a trial and error issue.I think this whole post has been totally misunderstood. I never said Ritalin dosen't work and I never said not to try it. I DID say everyone is different and what works for one child may not work for another. The idea is not to give up. Do your research and go with your gut instinct. If something isn't quite right then talk to the doc. If he/she refuses to listen then move on. MISSYSAHM of MANY April is Autism Awareness Month!!Become aware of our special kids!! Excuse Me While I Go Raise Tomorrow's Future. Re: medications In a message dated 4/28/03 4:20:02 AM Central Daylight Time, autism-aspergers writes: They can and they do.Ritalin doesn't work for everyone, even those who are truly ADHD. Ritalin is not necessarily the drug of choice for adults either--tho it can work. For adults it tends to have the opposite effect.I have seen kids on Ritalin and all they do is sit there. As soon as it wears off the rebound is horrible!! MisssyI have studied ADHD for 12 years and have been around many with ADHD, including my students, my son, myself, my dad and others.I have never seen anyone that was like zombie. I have seen many helped by medications such as Ritalin.I am on a form of Ritalin, which is the exact same thing, but with a different manufacturer and name.I have never seen Ritalin not work on an adult just because they are an adult.Some people cant have medications, and some have a difference or a preference with medications as their body works with some and not others. I think it is very fair to say that medications are highly individual. Everyone is different and no one is the exact same.Overall, many see some wonderful effects from Ritalin and medications like it.There are some that have experienced harmful effects. However, we should never let them be the rule , they are the exceptions. It is always best to find the medications that work for you or your child, but it takes time and a trial basis. in IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 I said repeatedly that Ritalin worked for some but not everyone. I am not new to this, as well. I am very familiar with most meds used to treat ADD/ADHD. As far as not including the words "in some" I figured "not all" would have sufficed. The comments I made were from my own observations as well as from talking with several doctors. I do apologize if this caused a problem. I'm glad the Ritalin is working for you, every little bit helps. MISSYSAHM of MANY April is Autism Awareness Month!!Become aware of our special kids!! Excuse Me While I Go Raise Tomorrow's Future. medications In a message dated 4/29/03 2:22:59 PM Central Daylight Time, autism-aspergers writes: Maybe using the word "zombie" was a poor choice of words, but what I am talking about are kids who take ritalin and all they want to do is sit. They don't want to participate in activites. But when it wears off and they rebound they are everywhere.Explain to me why even the experts will tell you that Ritalin can have the opposite affect in adults that it has in kids? Ritalin didn't work for me and it was explained to me that it might not. HI MISSYThe key words that you are missing as you know are " in some adults, and in some children." I have studied ADHD and medications and also Ritalin as well as my son has been on it for 10 years. I am now on Ritalin forms such as concerta and now Metadate. They dont work for some and others it does work. I just dont prefer a blanket statement that says " with adults this or that happens, or doesnt happen" etc. Of course everyone is different. Many experts only say that medications dont work that well on Adults because many adults who are truly ADD or Aspergers or whatever and need the medications, have lived with their problems so long and dont have the hyperactivity anymore. I see a big difference in my focusing and also my self esteem now that I am on medications. I just started on them last summer when I was 42. A in IL :_) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2003 Report Share Posted May 8, 2003 My daughter was originally diagnosed with ADHD and ODD (oppositional defiant disorder) in 2nd grade. She was very active also but could concentrate on her obsessions as your son does. If it's something that intrigues them, they do seem to be able to focus, I've found. Beth was rediagnosed with aspergers/bipolar in 6th grade. She has great anxiety issues too. She's doing very well this year (8th grade) though, thanks to new medications last summer and a new school that meets her needs and helps her to relax and enjoy life! Toodles!>^..^<Maralee Re: medications Hi everyone, I know that ritilan is not the choice for everyone but it does work for some. My daughter who was diagnosed with aspergers at the age of five is on adderall and she has been on ritilan and concerta before. It is the best thing she has been on yet to date. She has tried resperdal and she gained major weight and she was a zombie. She tried paxil for overstiming and she was the worst I've ever seen her. She is hypo sensitive to ssi's . If your kid is being a zombie on ritilan then they are over medicating the child or your child is hypo sensative to it. I know of three children in my daughters social class and all three including my daughter are on adderall it works for them. So you have to treat every child differently what works for one may not work for the other. That's my two cents. Stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2003 Report Share Posted May 9, 2003 Sue, That's the attitude! Just smile sweetly, express your appreciation and ask for a referral to the AS expert. Theresa On Thu, 8 May 2003 22:33:30 +0100 "IAN SULLIVAN" writes: if anyone is going to dx AS, then she is. I am willing to see what they say here and have to bite my tongue i suppose because he's the only one really to help us to get to this other place if we're not happy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2003 Report Share Posted May 9, 2003 In a message dated 5/8/03 4:39:05 AM Central Daylight Time, autism-aspergers writes: The main worry i have at the moment is that Adam will be dx with ADHD. I have heard so many times that kids with AS are firstly dx with ADHD and put on ritalin. In this country we don't seem to medicate AS kids and i am afraid that Adam will be put on a drug which he doesn't need. I honestly believe Adam has AS and a touch of hyperactivity but not ADHD. He is constantly moving but can keep still when carrying out his obsession i.e playstation or gameboy. The first time i read a book on AS it felt like it was called Adam, everything seem to fit into place. I would like any advice on this from parents whose kids were originally dx with ADHD and then AS and what happened. My son was diagnosed at age three with ADHD, that was in 1992. He is now 14, entering high school in August. He is ADHD and AS. He was diagnosed AS in 1999 at age ten. If he is just really AS, that would seem possible, and it may be what he has as they overlap. I am ADHD but not AS. My son has been on Rtialin and other forms since he was small. He needs them. Oh, he can sit and do his obsessions too, such as the computer or TV or one game on the computer, and he has always been able to sit for things like that,. which is typical with ADHD /ADD. My son is very hyper when not on meds. His meds help him concentrate and he has maintained all As on his report card since 5th grade and he is entering 9th in the fall. I am on a form of Rtialin since I FINALLY decided to get on meds this summer at age 42. I wish you the best, but dont shy away from medications. Medications whether is be Antidepressants or Ritalin forms, etc, ALL have a main target and they work on most people. I would bet that you would see a big difference in your child if yoiu find the right meds. Good luck in IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2003 Report Share Posted May 9, 2003 I am quite nervous about the home visit on wed and just hope that Adam is 'himself' on the day i.e hyper but he is always quiet with strangers and only 'himself' when we are on our own in the house. I believe he is very high functioning and and has learned how he can behave infront of others. I know it sounds strange (but i'm sure you'll all understand) i want him to be badly behaved when they come so they can see the problems we have with him and don't dismiss us. Thanks for your time Love Suexx I know exactly what you mean for us the neighbors and grandma thought we had the worse child on the faxe of the planet.........not to mention no-one would listen to me about hurting siblings.........son will probablly never be in a public school setting mainstreamed...........but he have fixed somethings...........long time coming..........but we have to find someone who will just shupup and listen to me.......what happens at school etc........is not the same as home.....it's his comfort zone so to speak.......and once he/she is use to seeing these people on a daily basis they see him/her as you do at home..........not all full blown........but enough for someone else to help speak for......you Sensible Fashions and More Boutique Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2003 Report Share Posted May 9, 2003 Hi Sue... I doubt he'll behave badly in front of guests if he's anything like my daughter. Everyone always wonders what the big fuss is about because she acts just fine when outside of the house, or when company comes in.... Toodles! >^..^< Maralee which is a good thing...... i have new neighbors that know nothing about my son having aspergers/adhd/ocd etc.......peoples first impressions are he is crazy one neighbor before the final dx asked he is by any chance autistic.....well they claim he isn't so a yr a later we were told by another child psycologist he had aspergers as did the school psycologist sandra Sensible Fashions and More Boutique Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2003 Report Share Posted May 9, 2003 Hi Thanks to all who replied. The medical people over here in the UK want to know why i want a dx all the time and don't seem to understand that i want recognition for my son that he has difficulties and he is not just naughty and fussy all the time. They say whats the point as there's no cure or medication to treat the problem, whereas in the US the approach seems very different in that you get meds. I don't have a problem with medicating my son if it helps us all to sleep and him to concentrate at school. I am told he has an avarage IQ yet he is in the lowest sets for maths and english because of his concentration and presentation. I am quite nervous about the home visit on wed and just hope that Adam is 'himself' on the day i.e hyper but he is always quiet with strangers and only 'himself' when we are on our own in the house. I believe he is very high functioning and and has learned how he can behave infront of others. I know it sounds strange (but i'm sure you'll all understand) i want him to be badly behaved when they come so they can see the problems we have with him and don't dismiss us. Thanks for your time Love Suexx medications In a message dated 5/8/03 4:39:05 AM Central Daylight Time, autism-aspergers writes: The main worry i have at the moment is that Adam will be dx with ADHD. I have heard so many times that kids with AS are firstly dx with ADHD and put on ritalin. In this country we don't seem to medicate AS kids and i am afraid that Adam will be put on a drug which he doesn't need. I honestly believe Adam has AS and a touch of hyperactivity but not ADHD. He is constantly moving but can keep still when carrying out his obsession i.e playstation or gameboy.The first time i read a book on AS it felt like it was called Adam, everything seem to fit into place.I would like any advice on this from parents whose kids were originally dx with ADHD and then AS and what happened. My son was diagnosed at age three with ADHD, that was in 1992. He is now 14, entering high school in August. He is ADHD and AS. He was diagnosed AS in 1999 at age ten. If he is just really AS, that would seem possible, and it may be what he has as they overlap. I am ADHD but not AS. My son has been on Rtialin and other forms since he was small. He needs them. Oh, he can sit and do his obsessions too, such as the computer or TV or one game on the computer, and he has always been able to sit for things like that,. which is typical with ADHD /ADD. My son is very hyper when not on meds. His meds help him concentrate and he has maintained all As on his report card since 5th grade and he is entering 9th in the fall.I am on a form of Rtialin since I FINALLY decided to get on meds this summer at age 42.I wish you the best, but dont shy away from medications. Medications whether is be Antidepressants or Ritalin forms, etc, ALL have a main target and they work on most people. I would bet that you would see a big difference in your child if yoiu find the right meds.Good luck in IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2003 Report Share Posted May 9, 2003 My son is just the opposite. At home he hardly seems diferent at all but whne we are out and he doesn't have that " security blanket " of home is when is behavior changes. I always wish people could see him at home to see how typical (though still not quite) he can be. n autism-aspergers , " Maralee " <mparker72@i...> wrote: > Hi Sue... > I doubt he'll behave badly in front of guests if he's anything like my daughter. Everyone always wonders what the big fuss is about because she acts just fine when outside of the house, or when company comes in.... > Toodles! > >^..^< > Maralee > medications > > > In a message dated 5/8/03 4:39:05 AM Central Daylight Time, autism-aspergers writes: > > > The main worry i have at the moment is that Adam will be dx with ADHD. I have heard so many times that kids with AS are firstly dx with ADHD and put on ritalin. In this country we don't seem to medicate AS kids and i am afraid that Adam will be put on a drug which he doesn't need. I honestly believe Adam has AS and a touch of hyperactivity but not ADHD. He is constantly moving but can keep still when carrying out his obsession i.e playstation or gameboy. > The first time i read a book on AS it felt like it was called Adam, everything seem to fit into place. > I would like any advice on this from parents whose kids were originally dx with ADHD and then AS and what happened. > > > My son was diagnosed at age three with ADHD, that was in 1992. He is now 14, entering high school in August. He is ADHD and AS. He was diagnosed AS in 1999 at age ten. If he is just really AS, that would seem possible, and it may be what he has as they overlap. I am ADHD but not AS. My son has been on Rtialin and other forms since he was small. He needs them. Oh, he can sit and do his obsessions too, such as the computer or TV or one game on the computer, and he has always been able to sit for things like that,. which is typical with ADHD /ADD. My son is very hyper when not on meds. His meds help him concentrate and he has maintained all As on his report card since 5th grade and he is entering 9th in the fall. > > I am on a form of Rtialin since I FINALLY decided to get on meds this summer at age 42. > > I wish you the best, but dont shy away from medications. Medications whether is be Antidepressants or Ritalin forms, etc, ALL have a main target and they work on most people. I would bet that you would see a big difference in your child if yoiu find the right meds. > Good luck > in IL > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2003 Report Share Posted May 9, 2003 Hi , You have every reason to be concerned to have your son put on Ritalin if he doesn't need it. My grand daughter is AS and the school dx her with ADHD. I had a complete Neuro psych done on her and found she was not ADHD but Aspergers. Many children with As have SID (Sensory intergration Disorder). This makes them look hyper at times so thats why they are Dx with ADHD. If you are uncomfortable about the Dx then keep looking. I would highly recommend you have him tested by and OT that specialized in SID. My grand daughter's test was three days long. I refuse to medicate her with any drug. I just bumped into a women I used to work with 6 years ago. Her daughter is ADHD and has been on ritalin since she was 6 she is 14 now. At some point they changed her med to adderall. A few weeks ago they uped the dose. She said her dtr started running high fevers and was vomiting. She kept calling the doctor and they kept telling her she had a virus. She finally had to rush her to the emergency room because she fainted. She told me she had lost 10 pounds in two weeks. She said that the ER Doc said if she hadn't brought her in she would most likely have gone into cardiac arrest. Her blood pressure was almost non existant. She now has permanent heart damage due to the adderall. Peggy n autism-aspergers , laha1960@a... wrote: The main worry i have at the moment is that Adam will be dx with ADHD. I have heard so many times that kids with AS are firstly dx with ADHD and put on ritalin. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2003 Report Share Posted June 12, 2003 There are a handful of conditions that drugs are effective with: diabetes, schizophrenia, etc. This is, however, a list that deals mostly with autism and aspergers and there is no drug cure for these two conditions. Unfortunately some charlatan doctors who know very little about autism string the children out on drugs and create additional problems which are then erroneously thought to be due to the autism and more drugs are then prescribed to deal with those gruesome side effects. I was in a large drug store once and measured off the length of shelving for ant-acids: 80 (eighty) meters!!! There is one simple cure for indigestion / reflux that costs nothing: stop eating junk food. Junk food by definition is made from wheat, grease, milk -- Aspergers and autistics should be drug-free so that the root condition can be dealt with. Re: medications Doctors need to drug kids to keep a hook in the parents' pocketbook.*********************************Whatever !! That is the most ridiculous thing I have ever heard. If itwasn't for my dd's meds,the only person that would have a "hook in mypocketbook",would be the funeral home,,because she was sodepressed,having hallucinations,,and jumping out of her own skin,,thatshe wouldn't have survived another year !Kim,mom to Meaghan 13,,,Katelyn 11 Bipolar,OCD,,,Logan 5Aspergers,JRA, & some kind of connective tissue disorder, & last,but notleast,,Ethan 4 & 100% BOY________________________________________________________________The best thing to hit the internet in years - Juno SpeedBand!Surf the web up to FIVE TIMES FASTER!Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2003 Report Share Posted June 14, 2003 Mhev, I myself am bipolar and have found alternative ways of dealing with my ups and downs. While it hasnt gotten rid of my problems they have decressed and I can live with them. FELLOW LIST MEMBERS IM NOT SAYING IF YOU GIVE YOUR CHILD MEDICATION YOU ARE BAD PARENTS. THESE ARE MY FEELINGS AND WHY I DONT MEDICATE MY CHILD. PLEASE DONT START AN ARGUMENT ABOUT WHAT IM ABOUT TO SAY. AGAIN THIS IS WHAT WORKS FOR MY FAMILY AND IM NOT BASHING ANY OF YOU. I UNDERSTAND THAT YOU MAY HAVE DIFFERENT ISSUES WITH YOUR CHILDREN AND THOSE ISSUES ARE NOT BEING CONTROLLED BY NON-MEDICAL INTERVENTIONS. OK? Im deathly afraid of giving my child (aspergers) medication because so much of it has not been tested on these children. Most doctors will say there are not very many side effects of these meds. Like Clondine, its for adults to help with high blood pressure but parents and doctors give this to children all the time and dont even monitor what effects this medication has had on their childs blood pressure. How about Ritalin, recent studies show this med is stronger than COCAINE!!!! We know what effects cocaine have on peoples brains and bodies yet we havent tested this drug for long term effects on children..deductive reasoning tells me that since these two drugs are similar that the same side effects can be seen 5-10-20 years down the road. Then what will happen with these children are walking around partially brain dead , having ulcers, and other problems??? Also, why would I trust the same drug companies that intially could have hurt my child with mercury doses? My sons "autistic" features started showing up exactly 3 days after a round of shots. 3 DAYS!!!! I KNOW this had a huge part to play in my sons life and it really pisses me off that these companies that produce medication to help save lives could possibly hurt so many children and lie to families!!!! So I DONT trust anything that comes out of their money hungary little mouths. Drug companies SPEND MORE ON ADVERTISTING THAN THEY DO ON RESEARCH. What does that say.. money money money..all they want is money!!! As far as you refering to the antacids..yes you are correct that diet can cause problems I also would like to add stress to that list of the cause of acid reflux. -----Original Message-----From: mhev Sent: Thursday, June 12, 2003 11:31 AMTo: autism-aspergers Subject: Re: medications There are a handful of conditions that drugs are effective with: diabetes, schizophrenia, etc. This is, however, a list that deals mostly with autism and aspergers and there is no drug cure for these two conditions. Unfortunately some charlatan doctors who know very little about autism string the children out on drugs and create additional problems which are then erroneously thought to be due to the autism and more drugs are then prescribed to deal with those gruesome side effects. I was in a large drug store once and measured off the length of shelving for ant-acids: 80 (eighty) meters!!! There is one simple cure for indigestion / reflux that costs nothing: stop eating junk food. Junk food by definition is made from wheat, grease, milk -- Aspergers and autistics should be drug-free so that the root condition can be dealt with. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2003 Report Share Posted June 14, 2003 Hello there!!! First of all I would love to know who you are and where you are and how you fit into this list. You have never introduced yourself but feel free to toss out info that isn't entirely true. There is no cure for autism or a medication to treat it. What there is available are medications to help treat the problems that can be associated with autism. If you want to talk about conditions such as reflux?? There are medical conditions that cause this and only medication and/or surgery can fix it. I agree the diet today is full of things we need to get rid of, but diet alone does not fix everything for everyone. We live in a time where people think that medication can be a quick fix for anything and everything. Try one and it doesn't work so you try another then another. The pharmaceutical companies are multi million dollar industries. Without them billions of people would not be alive today. MISSYSAHM to some special kids!!! Excuse Me While I Go Raise Tomorrow's Future. Re: medications Doctors need to drug kids to keep a hook in the parents' pocketbook.*********************************Whatever !! That is the most ridiculous thing I have ever heard. If itwasn't for my dd's meds,the only person that would have a "hook in mypocketbook",would be the funeral home,,because she was sodepressed,having hallucinations,,and jumping out of her own skin,,thatshe wouldn't have survived another year !Kim,mom to Meaghan 13,,,Katelyn 11 Bipolar,OCD,,,Logan 5Aspergers,JRA, & some kind of connective tissue disorder, & last,but notleast,,Ethan 4 & 100% BOY________________________________________________________________The best thing to hit the internet in years - Juno SpeedBand!Surf the web up to FIVE TIMES FASTER!Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2003 Report Share Posted June 14, 2003 mhev insisted: > There are a handful of conditions that drugs are effective with: diabetes, schizophrenia, > etc. > > This is, however, a list that deals mostly with autism and aspergers and there is no > drug cure for these two conditions. > Unfortunately some charlatan doctors who know very little about autism string the > children out on drugs and create additional problems which are then > erroneously thought to be due to the autism and more drugs are then prescribed to deal with > those gruesome side effects. > > I was in a large drug store once and measured off the length of shelving for ant-acids: > 80 (eighty) meters!!! There is one simple cure for indigestion / > reflux that costs nothing: stop eating junk food. Junk food by definition is made from > wheat, grease, milk -- > > Aspergers and autistics should be drug-free so that the root condition can be dealt > with. There are more than a handful of conditions for which drugs are effective. Let me add to your short list: cancer, MS, MD, HCV, tuberculosis, anxiety, bi-polarism, asthma, polio....shall I go on? The dr. my son sees is a specialist in autism, having studied it and treated autistic clients for a while now. Our son was drug free for much of his life; he was even the product of a drug-free pregnancy and delivery. We did not get meds for him until he came up with problems that no amount of therapy was touching; and we tried therapy for several years. We talked to his dr., we and his doc did a lot of research, and we came up with a meds regimen that keeps him stable and does not keep him drugged. We started with one med when he was about 10. The others were added in his late teens. He went from being an unhappy person who could not control his rage, anxiety, and depression to a happy person who can. Now he is a happy and successful person in supported living (and looking to independent living) with a wealth of activities and friends. He loves us, and we love him. Oh, and were he drug-free, no one would be able to deal with his " root condition. " We've been there. We know. BTW, I have reflux; it comes with my HCV. And I am also on a very restricted diet, due to the HCV. We tried dietary intervention for reflux and got nowhere. So now I take Prevacid and I can actually hold down my food and not have a flame in my chest most of the day. It isn't wise to prescribe and recommend for people without a medical degree, you know. Meds are necessary for some of us to maintain a quality of life that is not awful. If you can get along without them, then good for you and I wish you well. But don't expand your experience to everyone. It doesn't work. If nothing else, you must admit that autistic people are atypical. Even from one another. Just like us. So what is good and workable for you is not automatically good and workable for others. My .02 of course. Annie, who loves ya annie@... -- " Some mornings, it's just not worth chewing through the leather straps. " Emo Philips Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2003 Report Share Posted June 14, 2003 No arguments here, loll. I have never been offered anything to treat my son's AS. To treat the ADD part I have and we have tried some. The side effects were awful and I refused to put him thru that. I still believe the brunt of his problems are from the AS. I agree with you Mhev, that you need to get to the root of the problem to adequately treat it. Now if my son had a life threatening condition yes I would search high and low for the best possible medication out there. MISSYSAHM to some special kids!!! Excuse Me While I Go Raise Tomorrow's Future. RE: medications Mhev, I myself am bipolar and have found alternative ways of dealing with my ups and downs. While it hasnt gotten rid of my problems they have decressed and I can live with them. FELLOW LIST MEMBERS IM NOT SAYING IF YOU GIVE YOUR CHILD MEDICATION YOU ARE BAD PARENTS. THESE ARE MY FEELINGS AND WHY I DONT MEDICATE MY CHILD. PLEASE DONT START AN ARGUMENT ABOUT WHAT IM ABOUT TO SAY. AGAIN THIS IS WHAT WORKS FOR MY FAMILY AND IM NOT BASHING ANY OF YOU. I UNDERSTAND THAT YOU MAY HAVE DIFFERENT ISSUES WITH YOUR CHILDREN AND THOSE ISSUES ARE NOT BEING CONTROLLED BY NON-MEDICAL INTERVENTIONS. OK? Im deathly afraid of giving my child (aspergers) medication because so much of it has not been tested on these children. Most doctors will say there are not very many side effects of these meds. Like Clondine, its for adults to help with high blood pressure but parents and doctors give this to children all the time and dont even monitor what effects this medication has had on their childs blood pressure. How about Ritalin, recent studies show this med is stronger than COCAINE!!!! We know what effects cocaine have on peoples brains and bodies yet we havent tested this drug for long term effects on children..deductive reasoning tells me that since these two drugs are similar that the same side effects can be seen 5-10-20 years down the road. Then what will happen with these children are walking around partially brain dead , having ulcers, and other problems??? Also, why would I trust the same drug companies that intially could have hurt my child with mercury doses? My sons "autistic" features started showing up exactly 3 days after a round of shots. 3 DAYS!!!! I KNOW this had a huge part to play in my sons life and it really pisses me off that these companies that produce medication to help save lives could possibly hurt so many children and lie to families!!!! So I DONT trust anything that comes out of their money hungary little mouths. Drug companies SPEND MORE ON ADVERTISTING THAN THEY DO ON RESEARCH. What does that say.. money money money..all they want is money!!! As far as you refering to the antacids..yes you are correct that diet can cause problems I also would like to add stress to that list of the cause of acid reflux. -----Original Message-----From: mhev Sent: Thursday, June 12, 2003 11:31 AMTo: autism-aspergers Subject: Re: medications There are a handful of conditions that drugs are effective with: diabetes, schizophrenia, etc. This is, however, a list that deals mostly with autism and aspergers and there is no drug cure for these two conditions. Unfortunately some charlatan doctors who know very little about autism string the children out on drugs and create additional problems which are then erroneously thought to be due to the autism and more drugs are then prescribed to deal with those gruesome side effects. I was in a large drug store once and measured off the length of shelving for ant-acids: 80 (eighty) meters!!! There is one simple cure for indigestion / reflux that costs nothing: stop eating junk food. Junk food by definition is made from wheat, grease, milk -- Aspergers and autistics should be drug-free so that the root condition can be dealt with. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2003 Report Share Posted June 14, 2003 Hi everyone, things are really hotting up on this list !!!!! I just wanted to add my own little comment about medication, I can not and will not offer an opinion as I feel it would be insulting of me to do this as I know bugger all about the subject !! But as some of you know I mail from the UK and I have never been offered any meds for my son and neither has any of my friends, all our children are on different ends of the spectrum but medication is simply not on offer, I was wondering if any other brits mail to this list who have been offered medication, living in different parts of the country, it is usual to be offered different forms of help and also a question to everyone whos children or themselves are on meds, what, on average is it for, help with sleeping ? anxiety ? I'm very interested, Katy from the uk Missy Feldhaus wrote: No arguments here, loll. I have never been offered anything to treat my son's AS. To treat the ADD part I have and we have tried some. The side effects were awful and I refused to put him thru that. I still believe the brunt of his problems are from the AS. I agree with you Mhev, that you need to get to the root of the problem to adequately treat it. Now if my son had a life threatening condition yes I would search high and low for the best possible medication out there. MISSYSAHM to some special kids!!! Excuse Me While I Go Raise Tomorrow's Future. RE: medications Mhev, I myself am bipolar and have found alternative ways of dealing with my ups and downs. While it hasnt gotten rid of my problems they have decressed and I can live with them. FELLOW LIST MEMBERS IM NOT SAYING IF YOU GIVE YOUR CHILD MEDICATION YOU ARE BAD PARENTS. THESE ARE MY FEELINGS AND WHY I DONT MEDICATE MY CHILD. PLEASE DONT START AN ARGUMENT ABOUT WHAT IM ABOUT TO SAY. AGAIN THIS IS WHAT WORKS FOR MY FAMILY AND IM NOT BASHING ANY OF YOU. I UNDERSTAND THAT YOU MAY HAVE DIFFERENT ISSUES WITH YOUR CHILDREN AND THOSE ISSUES ARE NOT BEING CONTROLLED BY NON-MEDICAL INTERVENTIONS. OK? Im deathly afraid of giving my child (aspergers) medication because so much of it has not been tested on these children. Most doctors will say there are not very many side effects of these meds. Like Clondine, its for adults to help with high blood pressure but parents and doctors give this to children all the time and dont even monitor what effects this medication has had on their childs blood pressure. How about Ritalin, recent studies show this med is stronger than COCAINE!!!! We know what effects cocaine have on peoples brains and bodies yet we havent tested this drug for long term effects on children..deductive reasoning tells me that since these two drugs are similar that the same side effects can be seen 5-10-20 years down the road. Then what will happen with these children are walking around partially brain dead , having ulcers, and other problems??? Also, why would I trust the same drug companies that intially could have hurt my child with mercury doses? My sons "autistic" features started showing up exactly 3 days after a round of shots. 3 DAYS!!!! I KNOW this had a huge part to play in my sons life and it really pisses me off that these companies that produce medication to help save lives could possibly hurt so many children and lie to families!!!! So I DONT trust anything that comes out of their money hungary little mouths. Drug companies SPEND MORE ON ADVERTISTING THAN THEY DO ON RESEARCH. What does that say.. money money money..all they want is money!!! As far as you refering to the antacids..yes you are correct that diet can cause problems I also would like to add stress to that list of the cause of acid reflux. -----Original Message-----From: mhev Sent: Thursday, June 12, 2003 11:31 AMTo: autism-aspergers Subject: Re: medications There are a handful of conditions that drugs are effective with: diabetes, schizophrenia, etc. This is, however, a list that deals mostly with autism and aspergers and there is no drug cure for these two conditions. Unfortunately some charlatan doctors who know very little about autism string the children out on drugs and create additional problems which are then erroneously thought to be due to the autism and more drugs are then prescribed to deal with those gruesome side effects. I was in a large drug store once and measured off the length of shelving for ant-acids: 80 (eighty) meters!!! There is one simple cure for indigestion / reflux that costs nothing: stop eating junk food. Junk food by definition is made from wheat, grease, milk -- Aspergers and autistics should be drug-free so that the root condition can be dealt with. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2003 Report Share Posted June 14, 2003 Missy, I think you are right. Of course when he is 6'4" and raging I may have a totally different outlook on medication But at 5 and barely over 40 pounds I can still handle him .. grrrr!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2003 Report Share Posted June 14, 2003 Bravo, bravo, Annie! I totally agree with your sentiments below. Your son sounds a lot like my 14 year old daughter. As is true with many, she has 'more' than just aspergers: biopolar, high anxiety stuff going on, maybe OCD as well. Her medications have helped her be calmer, happier, and be able to function in life. Before, she was full of rage and physically aggressive and she was scaring us at times. Last spring she refused to go to school even when the police were sent to our house to 'convince' her. So medications, in my opinion, have been a very good thing, and a very effective tool, for us. This past year has been night and day better with a change in meds. And one more point: I think we all, when sharing posts, might want to state that "I think" or "I believe" or "It's my opinion that..." instead of stating things as fact. It's a much nicer place if we do that. : ) Toodles!>^..^<Maralee Re: medications mhev insisted:> There are a handful of conditions that drugs are effective with: diabetes, schizophrenia, > etc. > > This is, however, a list that deals mostly with autism and aspergers and there is no > drug cure for these two conditions. > Unfortunately some charlatan doctors who know very little about autism string the > children out on drugs and create additional problems which are then> erroneously thought to be due to the autism and more drugs are then prescribed to deal with > those gruesome side effects.> > I was in a large drug store once and measured off the length of shelving for ant-acids: > 80 (eighty) meters!!! There is one simple cure for indigestion /> reflux that costs nothing: stop eating junk food. Junk food by definition is made from > wheat, grease, milk -- > > Aspergers and autistics should be drug-free so that the root condition can be dealt > with.There are more than a handful of conditions for which drugs areeffective. Let me add to your short list: cancer, MS, MD, HCV,tuberculosis, anxiety, bi-polarism, asthma, polio....shall I go on?The dr. my son sees is a specialist in autism, having studied it andtreated autistic clients for a while now. Our son was drug free formuch of his life; he was even the product of a drug-free pregnancy anddelivery. We did not get meds for him until he came up with problemsthat no amount of therapy was touching; and we tried therapy for severalyears. We talked to his dr., we and his doc did a lot of research, andwe came up with a meds regimen that keeps him stable and does not keephim drugged. We started with one med when he was about 10. The otherswere added in his late teens. He went from being an unhappy person whocould not control his rage, anxiety, and depression to a happy personwho can. Now he is a happy and successful person in supported living(and looking to independent living) with a wealth of activities andfriends. He loves us, and we love him. Oh, and were he drug-free, noone would be able to deal with his "root condition." We've been there. We know.BTW, I have reflux; it comes with my HCV. And I am also on a veryrestricted diet, due to the HCV. We tried dietary intervention forreflux and got nowhere. So now I take Prevacid and I can actually holddown my food and not have a flame in my chest most of the day. It isn't wise to prescribe and recommend for people without a medicaldegree, you know. Meds are necessary for some of us to maintain aquality of life that is not awful. If you can get along without them,then good for you and I wish you well. But don't expand your experienceto everyone. It doesn't work. If nothing else, you must admit thatautistic people are atypical. Even from one another. Just like us. Sowhat is good and workable for you is not automatically good and workablefor others.My .02 of course.Annie, who loves ya annie@...-- "Some mornings, it's just not worth chewing through the leather straps."Emo Philips Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.