Guest guest Posted August 9, 2005 Report Share Posted August 9, 2005 Hi Kristan welcome to group Its ok to be scared I was at first took time but having the support here made it easier was dx last nov started treatment feb cleared at 4 months and completed this journey last week am rechecked this week again in feb okseven_7 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2005 Report Share Posted August 9, 2005 Hi Kristan welcome to group Its ok to be scared I was at first took time but having the support here made it easier was dx last nov started treatment feb cleared at 4 months and completed this journey last week am rechecked this week again in feb okseven_7 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2005 Report Share Posted August 9, 2005 Well Congrats i am happy for you, thanks for the reply, i am just worried about my future and when I am going to get to take treatment, I would like to start right away but I am new to the area and have no insurance. I am not sure of a good doc yet so if anyone knows of a good one in the tacoma, wa area let me know please. It would help alot. Well once again congrats okseven..... Kristan > Hi Kristan > welcome to group > Its ok to be scared I was at first > took time but having the support here made it easier > was dx last nov started treatment feb > cleared at 4 months and completed this journey last week > am rechecked this week > again in feb > > > > > > > > > > > > > > > okseven_7 > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2005 Report Share Posted August 9, 2005 Well Congrats i am happy for you, thanks for the reply, i am just worried about my future and when I am going to get to take treatment, I would like to start right away but I am new to the area and have no insurance. I am not sure of a good doc yet so if anyone knows of a good one in the tacoma, wa area let me know please. It would help alot. Well once again congrats okseven..... Kristan > Hi Kristan > welcome to group > Its ok to be scared I was at first > took time but having the support here made it easier > was dx last nov started treatment feb > cleared at 4 months and completed this journey last week > am rechecked this week > again in feb > > > > > > > > > > > > > > > okseven_7 > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2005 Report Share Posted August 9, 2005 Well Congrats i am happy for you, thanks for the reply, i am just worried about my future and when I am going to get to take treatment, I would like to start right away but I am new to the area and have no insurance. I am not sure of a good doc yet so if anyone knows of a good one in the tacoma, wa area let me know please. It would help alot. Well once again congrats okseven..... Kristan > Hi Kristan > welcome to group > Its ok to be scared I was at first > took time but having the support here made it easier > was dx last nov started treatment feb > cleared at 4 months and completed this journey last week > am rechecked this week > again in feb > > > > > > > > > > > > > > > okseven_7 > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2005 Report Share Posted August 9, 2005 Dear Kristan: I am glade you are here, we all went trough this. I thought I was given a death sentince at first, then I did some research, I found out that I can get better and the drug company will pay for everything, I am in a research program that I fond on American liver foundations web site. Talk with others and see what they think about this route, it can take some time to find one thats right for you, it toke me 2.5 years to find the one that I am in. Good luck, and my your god be with you. D,J, Parenteau jr. > Hi, > > My name is Kristan and I found out in 2003 that I had Hep C. I was > 18, I am now 20 almost 21 and have done nothing to try and rid of it. > I just moved to Wa and I don't really have anyone here. My dad, who > lives in Tn, has it and has take the treatments he finished after I > had already left and we don't keep in contact. > > I am really scared and I don't really know what to do if any one can > help please do. > > Thanks in advance, > Kristan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 Girl Im in your shoes too. I have to decided to call my dr after the summer and be honest. I need more info and support from him. Sitting and nodding my head isnt working. I need to be proactive. And telling someone close to that will support YOUR DECISONS is a must i decided not to tell my mother who has liver disease and had a liver transplant its too stressful, to tell her i know how she will react. At this time im looking into natural approaches to healing trying to get a better paying job so i can afford them. But you still have to deal with your Dr. Im goin to ask someone to come with me, so i can finally have an out with him. I wrote a bunch of questions i want to ask, you should do the same. how far did you go with your tests? Acting like it never happen doesnt work we have to face it. Blessing and Good Luck > Hi, > > My name is Kristan and I found out in 2003 that I had Hep C. I was > 18, I am now 20 almost 21 and have done nothing to try and rid of it. > I just moved to Wa and I don't really have anyone here. My dad, who > lives in Tn, has it and has take the treatments he finished after I > had already left and we don't keep in contact. > > I am really scared and I don't really know what to do if any one can > help please do. > > Thanks in advance, > Kristan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 Girl Im in your shoes too. I have to decided to call my dr after the summer and be honest. I need more info and support from him. Sitting and nodding my head isnt working. I need to be proactive. And telling someone close to that will support YOUR DECISONS is a must i decided not to tell my mother who has liver disease and had a liver transplant its too stressful, to tell her i know how she will react. At this time im looking into natural approaches to healing trying to get a better paying job so i can afford them. But you still have to deal with your Dr. Im goin to ask someone to come with me, so i can finally have an out with him. I wrote a bunch of questions i want to ask, you should do the same. how far did you go with your tests? Acting like it never happen doesnt work we have to face it. Blessing and Good Luck > Hi, > > My name is Kristan and I found out in 2003 that I had Hep C. I was > 18, I am now 20 almost 21 and have done nothing to try and rid of it. > I just moved to Wa and I don't really have anyone here. My dad, who > lives in Tn, has it and has take the treatments he finished after I > had already left and we don't keep in contact. > > I am really scared and I don't really know what to do if any one can > help please do. > > Thanks in advance, > Kristan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 Well I got my biopsy, there was no damage, had blood tests taken not sure of the names though, found out what my viral load is and I dont remember what it was but I know that it was high. It is just hard for me to go to the dr. I cry everytime that i go in there cause I hate the fact that I have it. Not that anyone like it or anything. I just start thinking that my life couldn't possibly get any worse, although I know that it can, the Hep C can start damaging my liver so I know that I need to do something about it before it does. Thanks for the help..... Kristan > > Hi, > > > > My name is Kristan and I found out in 2003 that I had Hep C. I was > > 18, I am now 20 almost 21 and have done nothing to try and rid of it. > > I just moved to Wa and I don't really have anyone here. My dad, who > > lives in Tn, has it and has take the treatments he finished after I > > had already left and we don't keep in contact. > > > > I am really scared and I don't really know what to do if any one can > > help please do. > > > > Thanks in advance, > > Kristan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 Well I got my biopsy, there was no damage, had blood tests taken not sure of the names though, found out what my viral load is and I dont remember what it was but I know that it was high. It is just hard for me to go to the dr. I cry everytime that i go in there cause I hate the fact that I have it. Not that anyone like it or anything. I just start thinking that my life couldn't possibly get any worse, although I know that it can, the Hep C can start damaging my liver so I know that I need to do something about it before it does. Thanks for the help..... Kristan > > Hi, > > > > My name is Kristan and I found out in 2003 that I had Hep C. I was > > 18, I am now 20 almost 21 and have done nothing to try and rid of it. > > I just moved to Wa and I don't really have anyone here. My dad, who > > lives in Tn, has it and has take the treatments he finished after I > > had already left and we don't keep in contact. > > > > I am really scared and I don't really know what to do if any one can > > help please do. > > > > Thanks in advance, > > Kristan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 Well I got my biopsy, there was no damage, had blood tests taken not sure of the names though, found out what my viral load is and I dont remember what it was but I know that it was high. It is just hard for me to go to the dr. I cry everytime that i go in there cause I hate the fact that I have it. Not that anyone like it or anything. I just start thinking that my life couldn't possibly get any worse, although I know that it can, the Hep C can start damaging my liver so I know that I need to do something about it before it does. Thanks for the help..... Kristan > > Hi, > > > > My name is Kristan and I found out in 2003 that I had Hep C. I was > > 18, I am now 20 almost 21 and have done nothing to try and rid of it. > > I just moved to Wa and I don't really have anyone here. My dad, who > > lives in Tn, has it and has take the treatments he finished after I > > had already left and we don't keep in contact. > > > > I am really scared and I don't really know what to do if any one can > > help please do. > > > > Thanks in advance, > > Kristan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 , Honey I know that it is a big shock to find out you have Hep C. But I am going to share with you okay. Alot of people have hepatitis C for years and never know they have it. Some never develope symptoms. Some do. But the thing is that you think in the positive. Get you a battle plan on how you want to attack this disease. Make a list of questions to talk to your doctor about. What are your treatment opinions? What is your genotype(that helps to know). If you don't have insurance then contact the drug companies compassionate care. Both Scherling and Roche have programs. If you qualify then they will send you the drugs,free of charge or at a very,very minimal charge. Most important as your liver has no damage,take care of it. Avoid all forms of alchohol. Have good nutritional plan for your diet. The healthier you are going into treatment, well lets put it this way. First round of treatment I was not very healthy. Wasn't eating right. and so forth. This round of treatment, I had upped my exercise, had a better diet plan and had a healthier outlook on life. And I am doing really well. Exercise,is important to keep the enegry levels up. Yup is true. You can take things like Milk thistle and that will improve your liver enzymes I have been told. Some of the member here swear by it. But as I say to all the members here. It is important to keep your sense of humor,because laughter is the best medicine. I mean it. When the depression hits, I find jokes to read or watch a funny program and I find the fog lifts. Lots of love and Hugs, Janet > > > Hi, > > > > > > My name is Kristan and I found out in 2003 that I had Hep C. I was > > > 18, I am now 20 almost 21 and have done nothing to try and rid of it. > > > I just moved to Wa and I don't really have anyone here. My dad, who > > > lives in Tn, has it and has take the treatments he finished after I > > > had already left and we don't keep in contact. > > > > > > I am really scared and I don't really know what to do if any one can > > > help please do. > > > > > > Thanks in advance, > > > Kristan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 , Honey I know that it is a big shock to find out you have Hep C. But I am going to share with you okay. Alot of people have hepatitis C for years and never know they have it. Some never develope symptoms. Some do. But the thing is that you think in the positive. Get you a battle plan on how you want to attack this disease. Make a list of questions to talk to your doctor about. What are your treatment opinions? What is your genotype(that helps to know). If you don't have insurance then contact the drug companies compassionate care. Both Scherling and Roche have programs. If you qualify then they will send you the drugs,free of charge or at a very,very minimal charge. Most important as your liver has no damage,take care of it. Avoid all forms of alchohol. Have good nutritional plan for your diet. The healthier you are going into treatment, well lets put it this way. First round of treatment I was not very healthy. Wasn't eating right. and so forth. This round of treatment, I had upped my exercise, had a better diet plan and had a healthier outlook on life. And I am doing really well. Exercise,is important to keep the enegry levels up. Yup is true. You can take things like Milk thistle and that will improve your liver enzymes I have been told. Some of the member here swear by it. But as I say to all the members here. It is important to keep your sense of humor,because laughter is the best medicine. I mean it. When the depression hits, I find jokes to read or watch a funny program and I find the fog lifts. Lots of love and Hugs, Janet > > > Hi, > > > > > > My name is Kristan and I found out in 2003 that I had Hep C. I was > > > 18, I am now 20 almost 21 and have done nothing to try and rid of it. > > > I just moved to Wa and I don't really have anyone here. My dad, who > > > lives in Tn, has it and has take the treatments he finished after I > > > had already left and we don't keep in contact. > > > > > > I am really scared and I don't really know what to do if any one can > > > help please do. > > > > > > Thanks in advance, > > > Kristan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 , Honey I know that it is a big shock to find out you have Hep C. But I am going to share with you okay. Alot of people have hepatitis C for years and never know they have it. Some never develope symptoms. Some do. But the thing is that you think in the positive. Get you a battle plan on how you want to attack this disease. Make a list of questions to talk to your doctor about. What are your treatment opinions? What is your genotype(that helps to know). If you don't have insurance then contact the drug companies compassionate care. Both Scherling and Roche have programs. If you qualify then they will send you the drugs,free of charge or at a very,very minimal charge. Most important as your liver has no damage,take care of it. Avoid all forms of alchohol. Have good nutritional plan for your diet. The healthier you are going into treatment, well lets put it this way. First round of treatment I was not very healthy. Wasn't eating right. and so forth. This round of treatment, I had upped my exercise, had a better diet plan and had a healthier outlook on life. And I am doing really well. Exercise,is important to keep the enegry levels up. Yup is true. You can take things like Milk thistle and that will improve your liver enzymes I have been told. Some of the member here swear by it. But as I say to all the members here. It is important to keep your sense of humor,because laughter is the best medicine. I mean it. When the depression hits, I find jokes to read or watch a funny program and I find the fog lifts. Lots of love and Hugs, Janet > > > Hi, > > > > > > My name is Kristan and I found out in 2003 that I had Hep C. I was > > > 18, I am now 20 almost 21 and have done nothing to try and rid of it. > > > I just moved to Wa and I don't really have anyone here. My dad, who > > > lives in Tn, has it and has take the treatments he finished after I > > > had already left and we don't keep in contact. > > > > > > I am really scared and I don't really know what to do if any one can > > > help please do. > > > > > > Thanks in advance, > > > Kristan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2009 Report Share Posted July 30, 2009 Sorry, I forgot to mention: his curve was at 37 degrees and the RVAD was 25. We still have the appointment for the 14, that's why we need to decide asap. Thanks again! > > Hello all... > > I know being confused is very common around here but I'll try to explain why. > > I'm writing from Ottawa, Canada. Mo 11 month-old son was diagnosed with IS in Marc. MRI was done in June and first we were told it was clean so the scoliosis was diagnosed as idiopathic, then they saw a possible tethered cord. Surgery for TC release was done 2 weeks ago. > > Now, the orthopedic surgeon had decided to do the first cast on August 14th. He wasn't very convinced, didn't seem to agree with serial casting, so we looked for a second opinion. > > We just had an appointment at SickKids in Toronto. They are supposed to be doing serial casting. Now that doctor thinks that an MRI wasn't enough and we should do more testing. Also, and this is was confused us the most: he thinks we should wait until my son is bigger so the ribs are stronger and can take the pressure and the spine can get correction. Now we are worried that our local doctor will do the cast and it might not be the right option. > > On the other hand, I've always heard that even if the scoliosis is not idiopathic, it's better to start treatment ASAP, given that casting is the option anyway. We don't disagree with doing more testing, but we are not sure about the wait. > > What would you do? Go ahead with casting? Does that second doctor have a point? Shouldn't the tethered cord be considered the cause for now? If I look for a third opinion, wouldn't that take too long? > > Our local doctor has been on vacation for 5 weeks and should be back this week. We have to talk to him and see what we do, but we don't know what to do yet!!! Can somebody give us any ideas??? Our thoughts are not taking us anywhere. > > Thank you!!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2009 Report Share Posted July 30, 2009 welcome to the group! I'm also relatively new here, but I can tell you that with an RVAD of 25, more likely than not your little one will have progressive infanitle scoliosis. The " wait and watch " method is never a good one with PIS since PIS doesnt wait! Your son is still young and is growing fast, so the time to act is now. You mentioned that you and your doctor have discussed " serial casting " --is the doctor you are talking to a Mehta trained doctor? Dianna (mommy to Marcela, 14 months in 1st cast) > > > > Hello all... > > > > I know being confused is very common around here but I'll try to explain why. > > > > I'm writing from Ottawa, Canada. Mo 11 month-old son was diagnosed with IS in Marc. MRI was done in June and first we were told it was clean so the scoliosis was diagnosed as idiopathic, then they saw a possible tethered cord. Surgery for TC release was done 2 weeks ago. > > > > Now, the orthopedic surgeon had decided to do the first cast on August 14th. He wasn't very convinced, didn't seem to agree with serial casting, so we looked for a second opinion. > > > > We just had an appointment at SickKids in Toronto. They are supposed to be doing serial casting. Now that doctor thinks that an MRI wasn't enough and we should do more testing. Also, and this is was confused us the most: he thinks we should wait until my son is bigger so the ribs are stronger and can take the pressure and the spine can get correction. Now we are worried that our local doctor will do the cast and it might not be the right option. > > > > On the other hand, I've always heard that even if the scoliosis is not idiopathic, it's better to start treatment ASAP, given that casting is the option anyway. We don't disagree with doing more testing, but we are not sure about the wait. > > > > What would you do? Go ahead with casting? Does that second doctor have a point? Shouldn't the tethered cord be considered the cause for now? If I look for a third opinion, wouldn't that take too long? > > > > Our local doctor has been on vacation for 5 weeks and should be back this week. We have to talk to him and see what we do, but we don't know what to do yet!!! Can somebody give us any ideas??? Our thoughts are not taking us anywhere. > > > > Thank you!!! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2009 Report Share Posted July 30, 2009 Well, doctor # 1 (our local one) I don't think it is. Doctor # 2 (the one in Toronto) is supposed to be, but he wants to wait. We are scheduled to do the first casting in two weeks (with Doctor # 1) but I don't know what type. He is away so I have to wait to ask. Isn't a cast better than nothing? Even if it's not Mehta? > > > > > > Hello all... > > > > > > I know being confused is very common around here but I'll try to explain why. > > > > > > I'm writing from Ottawa, Canada. Mo 11 month-old son was diagnosed with IS in Marc. MRI was done in June and first we were told it was clean so the scoliosis was diagnosed as idiopathic, then they saw a possible tethered cord. Surgery for TC release was done 2 weeks ago. > > > > > > Now, the orthopedic surgeon had decided to do the first cast on August 14th. He wasn't very convinced, didn't seem to agree with serial casting, so we looked for a second opinion. > > > > > > We just had an appointment at SickKids in Toronto. They are supposed to be doing serial casting. Now that doctor thinks that an MRI wasn't enough and we should do more testing. Also, and this is was confused us the most: he thinks we should wait until my son is bigger so the ribs are stronger and can take the pressure and the spine can get correction. Now we are worried that our local doctor will do the cast and it might not be the right option. > > > > > > On the other hand, I've always heard that even if the scoliosis is not idiopathic, it's better to start treatment ASAP, given that casting is the option anyway. We don't disagree with doing more testing, but we are not sure about the wait. > > > > > > What would you do? Go ahead with casting? Does that second doctor have a point? Shouldn't the tethered cord be considered the cause for now? If I look for a third opinion, wouldn't that take too long? > > > > > > Our local doctor has been on vacation for 5 weeks and should be back this week. We have to talk to him and see what we do, but we don't know what to do yet!!! Can somebody give us any ideas??? Our thoughts are not taking us anywhere. > > > > > > Thank you!!! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2009 Report Share Posted July 30, 2009 NO , not just any cast will do(: Read this article: http://www.infantilescoliosis.org/resources/Journal%20Bone%20 & %20Joint%20article\ ..pdf It explains how the Metha method supercedes all other casting methods. Trained docs actually have a specialized table they use to cast the child--in short the whole procedure is different. I'm hoping Tasha or some other ore experienced parent will jump in to clarify better for you than I think I'm doing...Let me know if the article helps! Dianna > > > > > > > > Hello all... > > > > > > > > I know being confused is very common around here but I'll try to explain why. > > > > > > > > I'm writing from Ottawa, Canada. Mo 11 month-old son was diagnosed with IS in Marc. MRI was done in June and first we were told it was clean so the scoliosis was diagnosed as idiopathic, then they saw a possible tethered cord. Surgery for TC release was done 2 weeks ago. > > > > > > > > Now, the orthopedic surgeon had decided to do the first cast on August 14th. He wasn't very convinced, didn't seem to agree with serial casting, so we looked for a second opinion. > > > > > > > > We just had an appointment at SickKids in Toronto. They are supposed to be doing serial casting. Now that doctor thinks that an MRI wasn't enough and we should do more testing. Also, and this is was confused us the most: he thinks we should wait until my son is bigger so the ribs are stronger and can take the pressure and the spine can get correction. Now we are worried that our local doctor will do the cast and it might not be the right option. > > > > > > > > On the other hand, I've always heard that even if the scoliosis is not idiopathic, it's better to start treatment ASAP, given that casting is the option anyway. We don't disagree with doing more testing, but we are not sure about the wait. > > > > > > > > What would you do? Go ahead with casting? Does that second doctor have a point? Shouldn't the tethered cord be considered the cause for now? If I look for a third opinion, wouldn't that take too long? > > > > > > > > Our local doctor has been on vacation for 5 weeks and should be back this week. We have to talk to him and see what we do, but we don't know what to do yet!!! Can somebody give us any ideas??? Our thoughts are not taking us anywhere. > > > > > > > > Thank you!!! > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2009 Report Share Posted July 30, 2009 Thank you for the article. It's all explained very well. I'm just scared of delaying treatment even more. > > > > > > > > > > Hello all... > > > > > > > > > > I know being confused is very common around here but I'll try to explain why. > > > > > > > > > > I'm writing from Ottawa, Canada. Mo 11 month-old son was diagnosed with IS in Marc. MRI was done in June and first we were told it was clean so the scoliosis was diagnosed as idiopathic, then they saw a possible tethered cord. Surgery for TC release was done 2 weeks ago. > > > > > > > > > > Now, the orthopedic surgeon had decided to do the first cast on August 14th. He wasn't very convinced, didn't seem to agree with serial casting, so we looked for a second opinion. > > > > > > > > > > We just had an appointment at SickKids in Toronto. They are supposed to be doing serial casting. Now that doctor thinks that an MRI wasn't enough and we should do more testing. Also, and this is was confused us the most: he thinks we should wait until my son is bigger so the ribs are stronger and can take the pressure and the spine can get correction. Now we are worried that our local doctor will do the cast and it might not be the right option. > > > > > > > > > > On the other hand, I've always heard that even if the scoliosis is not idiopathic, it's better to start treatment ASAP, given that casting is the option anyway. We don't disagree with doing more testing, but we are not sure about the wait. > > > > > > > > > > What would you do? Go ahead with casting? Does that second doctor have a point? Shouldn't the tethered cord be considered the cause for now? If I look for a third opinion, wouldn't that take too long? > > > > > > > > > > Our local doctor has been on vacation for 5 weeks and should be back this week. We have to talk to him and see what we do, but we don't know what to do yet!!! Can somebody give us any ideas??? Our thoughts are not taking us anywhere. > > > > > > > > > > Thank you!!! > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 Hi Lynn! It's good to have somebody close to us in the same situation. At Sick Kids we were told to wait a little bit. SO I will see if I can find another option but otherwise we'll be back there at some point. The doctor there made some suggestions to our doctor here in Ottawa, so maybe we can have it done here (I'm not sure yet if they have the technology) but if the doctor is not confortable with it here, then we'll be back. I would like to know how your son's curve is too!!! Hopefully it's gone down. My email is ppdh72@.... It would be a good idea to be in contact. You can write to me any time. We might have the same doctor! Let's stay in contact! Thanks a lot for writing! > > > Subject: New and confused > To: infantile_scoliosis > Received: Thursday, July 30, 2009, 12:38 PM > > > > > > >  > > > > > > Hello all... > > > > I know being confused is very common around here but I'll try to explain why. > > > > I'm writing from Ottawa, Canada. Mo 11 month-old son was diagnosed with IS in Marc. MRI was done in June and first we were told it was clean so the scoliosis was diagnosed as idiopathic, then they saw a possible tethered cord. Surgery for TC release was done 2 weeks ago. > > > > Now, the orthopedic surgeon had decided to do the first cast on August 14th. He wasn't very convinced, didn't seem to agree with serial casting, so we looked for a second opinion. > > > > We just had an appointment at SickKids in Toronto. They are supposed to be doing serial casting. Now that doctor thinks that an MRI wasn't enough and we should do more testing. Also, and this is was confused us the most: he thinks we should wait until my son is bigger so the ribs are stronger and can take the pressure and the spine can get correction. Now we are worried that our local doctor will do the cast and it might not be the right option. > > > > On the other hand, I've always heard that even if the scoliosis is not idiopathic, it's better to start treatment ASAP, given that casting is the option anyway. We don't disagree with doing more testing, but we are not sure about the wait. > > > > What would you do? Go ahead with casting? Does that second doctor have a point? Shouldn't the tethered cord be considered the cause for now? If I look for a third opinion, wouldn't that take too long? > > > > Our local doctor has been on vacation for 5 weeks and should be back this week. We have to talk to him and see what we do, but we don't know what to do yet!!! Can somebody give us any ideas??? Our thoughts are not taking us anywhere. > > > > Thank you!!! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________________________ > The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Yahoo! Get it Now for Free! at http://downloads.yahoo.com/ca/internetexplorer/ > Quote Link to comment Share on other sites More sharing options...
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