Guest guest Posted August 9, 2005 Report Share Posted August 9, 2005 Thanks I am grateful for my accomplisments I fought hard through my treatment wanted to give up many times but toughed it out Hang in there. it will get easier Sometimes the makers of these treatments will help financially. roche and sherring are the two makers check out www.americanliverfoundation.com, www.hepnet.com are a few any thing in regards to hep or liver may i was able to give ya more info okseven_7 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 Well I supposedly gotten it from my mother during birth. When I first found out that I had it, she got tested. She tested positive, she said the next day she tested again and it came out Neg.. She has been getting tested every other month for it. My dad has it as well and has taken therapy. Thanks so much for the support.... Kristan --- okseven_7 wrote: > -I also suggested that site > It seems ok-- In > Hepatitis_C_Central , " Dudley > Parenteau jr " <dparenteaujr@y...> wrote: > > Dear Kristan: > > I am glade you are here, we all went trough this. > > > > I thought I was given a death sentince at first, > then I did some > > research, I found out that I can get better and > the drug company > will > > pay for everything, I am in a research program > that I fond on > > American liver foundations web site. > > > > Talk with others and see what they think about > this route, it can > > take some time to find one thats right for you, it > toke me 2.5 > years > > to find the one that I am in. > > > > Good luck, and my your god be with you. > > > > D,J, Parenteau jr. > > Kristan I know it nun my biz but can i ask how ya > got it you will > not hurt my feelings with a no answer > It hurt bad when i saw this very young person > looking back at me > yes i referring to you > It touched my heart and so have you > > > > > > > > Hi, > > > > > > My name is Kristan and I found out in 2003 that > I had Hep C. I > was > > > 18, I am now 20 almost 21 and have done nothing > to try and rid > of > > it. > > > I just moved to Wa and I don't really have > anyone here. My > dad, > > who > > > lives in Tn, has it and has take the treatments > he finished > after I > > > had already left and we don't keep in contact. > > > > > > I am really scared and I don't really know what > to do if any one > can > > > help please do. > > > > > > Thanks in advance, > > > Kristan > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 Well I supposedly gotten it from my mother during birth. When I first found out that I had it, she got tested. She tested positive, she said the next day she tested again and it came out Neg.. She has been getting tested every other month for it. My dad has it as well and has taken therapy. Thanks so much for the support.... Kristan --- okseven_7 wrote: > -I also suggested that site > It seems ok-- In > Hepatitis_C_Central , " Dudley > Parenteau jr " <dparenteaujr@y...> wrote: > > Dear Kristan: > > I am glade you are here, we all went trough this. > > > > I thought I was given a death sentince at first, > then I did some > > research, I found out that I can get better and > the drug company > will > > pay for everything, I am in a research program > that I fond on > > American liver foundations web site. > > > > Talk with others and see what they think about > this route, it can > > take some time to find one thats right for you, it > toke me 2.5 > years > > to find the one that I am in. > > > > Good luck, and my your god be with you. > > > > D,J, Parenteau jr. > > Kristan I know it nun my biz but can i ask how ya > got it you will > not hurt my feelings with a no answer > It hurt bad when i saw this very young person > looking back at me > yes i referring to you > It touched my heart and so have you > > > > > > > > Hi, > > > > > > My name is Kristan and I found out in 2003 that > I had Hep C. I > was > > > 18, I am now 20 almost 21 and have done nothing > to try and rid > of > > it. > > > I just moved to Wa and I don't really have > anyone here. My > dad, > > who > > > lives in Tn, has it and has take the treatments > he finished > after I > > > had already left and we don't keep in contact. > > > > > > I am really scared and I don't really know what > to do if any one > can > > > help please do. > > > > > > Thanks in advance, > > > Kristan > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 *BIGHUGS* Kristan. Sometimes it feels like life really sucks doesn't it? Try to take life one day at a time for now. Try not to look too far into the future. I know that's hard but looking too far ahead is what can be very overwhelming and upsetting. Focus on what you can deal with immediately and let the future be for a little while. Knowledge about this disease is important but seek it is small, manageable parcels so you avoid being overwhelmed. Let your curiousity guide you. Perhaps you could start by getting back to your doctor and asking for copies of all your test results. If you feel comfortable, share them with us so we can help you. Above all, do not be hard on yourself. Now is the time to learn to be kind to yourself and take care of yourself. We'll always be here for you Love anne Re: New and Confused Well I got my biopsy, there was no damage, had blood tests taken not sure of the names though, found out what my viral load is and I dont remember what it was but I know that it was high. It is just hard for me to go to the dr. I cry everytime that i go in there cause I hate the fact that I have it. Not that anyone like it or anything. I just start thinking that my life couldn't possibly get any worse, although I know that it can, the Hep C can start damaging my liver so I know that I need to do something about it before it does. Thanks for the help..... Kristan > > Hi, > > > > My name is Kristan and I found out in 2003 that I had Hep C. I was > > 18, I am now 20 almost 21 and have done nothing to try and rid of it. > > I just moved to Wa and I don't really have anyone here. My dad, who > > lives in Tn, has it and has take the treatments he finished after I > > had already left and we don't keep in contact. > > > > I am really scared and I don't really know what to do if any one can > > help please do. > > > > Thanks in advance, > > Kristan It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/ Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 *BIGHUGS* Kristan. Sometimes it feels like life really sucks doesn't it? Try to take life one day at a time for now. Try not to look too far into the future. I know that's hard but looking too far ahead is what can be very overwhelming and upsetting. Focus on what you can deal with immediately and let the future be for a little while. Knowledge about this disease is important but seek it is small, manageable parcels so you avoid being overwhelmed. Let your curiousity guide you. Perhaps you could start by getting back to your doctor and asking for copies of all your test results. If you feel comfortable, share them with us so we can help you. Above all, do not be hard on yourself. Now is the time to learn to be kind to yourself and take care of yourself. We'll always be here for you Love anne Re: New and Confused Well I got my biopsy, there was no damage, had blood tests taken not sure of the names though, found out what my viral load is and I dont remember what it was but I know that it was high. It is just hard for me to go to the dr. I cry everytime that i go in there cause I hate the fact that I have it. Not that anyone like it or anything. I just start thinking that my life couldn't possibly get any worse, although I know that it can, the Hep C can start damaging my liver so I know that I need to do something about it before it does. Thanks for the help..... Kristan > > Hi, > > > > My name is Kristan and I found out in 2003 that I had Hep C. I was > > 18, I am now 20 almost 21 and have done nothing to try and rid of it. > > I just moved to Wa and I don't really have anyone here. My dad, who > > lives in Tn, has it and has take the treatments he finished after I > > had already left and we don't keep in contact. > > > > I am really scared and I don't really know what to do if any one can > > help please do. > > > > Thanks in advance, > > Kristan It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/ Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 *BIGHUGS* Kristan. Sometimes it feels like life really sucks doesn't it? Try to take life one day at a time for now. Try not to look too far into the future. I know that's hard but looking too far ahead is what can be very overwhelming and upsetting. Focus on what you can deal with immediately and let the future be for a little while. Knowledge about this disease is important but seek it is small, manageable parcels so you avoid being overwhelmed. Let your curiousity guide you. Perhaps you could start by getting back to your doctor and asking for copies of all your test results. If you feel comfortable, share them with us so we can help you. Above all, do not be hard on yourself. Now is the time to learn to be kind to yourself and take care of yourself. We'll always be here for you Love anne Re: New and Confused Well I got my biopsy, there was no damage, had blood tests taken not sure of the names though, found out what my viral load is and I dont remember what it was but I know that it was high. It is just hard for me to go to the dr. I cry everytime that i go in there cause I hate the fact that I have it. Not that anyone like it or anything. I just start thinking that my life couldn't possibly get any worse, although I know that it can, the Hep C can start damaging my liver so I know that I need to do something about it before it does. Thanks for the help..... Kristan > > Hi, > > > > My name is Kristan and I found out in 2003 that I had Hep C. I was > > 18, I am now 20 almost 21 and have done nothing to try and rid of it. > > I just moved to Wa and I don't really have anyone here. My dad, who > > lives in Tn, has it and has take the treatments he finished after I > > had already left and we don't keep in contact. > > > > I am really scared and I don't really know what to do if any one can > > help please do. > > > > Thanks in advance, > > Kristan It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/ Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 Well that IS awesome news,, now what is your genotype or do you know that yet? was your VL over 2 million? that is the cutoff point to where the vl leaves the " low " levels,, so if you are under that 2 mil,, you have low vl and that can work in your favor too! Kristan wrote:Well I got my biopsy, there was no damage, had blood tests taken not sure of the names though, found out what my viral load is and I dont remember what it was but I know that it was high. It is just hard for me to go to the dr. I cry everytime that i go in there cause I hate the fact that I have it. Not that anyone like it or anything. I just start thinking that my life couldn't possibly get any worse, although I know that it can, the Hep C can start damaging my liver so I know that I need to do something about it before it does. Thanks for the help..... Kristan > > Hi, > > > > My name is Kristan and I found out in 2003 that I had Hep C. I was > > 18, I am now 20 almost 21 and have done nothing to try and rid of it. > > I just moved to Wa and I don't really have anyone here. My dad, who > > lives in Tn, has it and has take the treatments he finished after I > > had already left and we don't keep in contact. > > > > I am really scared and I don't really know what to do if any one can > > help please do. > > > > Thanks in advance, > > Kristan It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/ Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 Well that IS awesome news,, now what is your genotype or do you know that yet? was your VL over 2 million? that is the cutoff point to where the vl leaves the " low " levels,, so if you are under that 2 mil,, you have low vl and that can work in your favor too! Kristan wrote:Well I got my biopsy, there was no damage, had blood tests taken not sure of the names though, found out what my viral load is and I dont remember what it was but I know that it was high. It is just hard for me to go to the dr. I cry everytime that i go in there cause I hate the fact that I have it. Not that anyone like it or anything. I just start thinking that my life couldn't possibly get any worse, although I know that it can, the Hep C can start damaging my liver so I know that I need to do something about it before it does. Thanks for the help..... Kristan > > Hi, > > > > My name is Kristan and I found out in 2003 that I had Hep C. I was > > 18, I am now 20 almost 21 and have done nothing to try and rid of it. > > I just moved to Wa and I don't really have anyone here. My dad, who > > lives in Tn, has it and has take the treatments he finished after I > > had already left and we don't keep in contact. > > > > I am really scared and I don't really know what to do if any one can > > help please do. > > > > Thanks in advance, > > Kristan It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/ Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 Well that IS awesome news,, now what is your genotype or do you know that yet? was your VL over 2 million? that is the cutoff point to where the vl leaves the " low " levels,, so if you are under that 2 mil,, you have low vl and that can work in your favor too! Kristan wrote:Well I got my biopsy, there was no damage, had blood tests taken not sure of the names though, found out what my viral load is and I dont remember what it was but I know that it was high. It is just hard for me to go to the dr. I cry everytime that i go in there cause I hate the fact that I have it. Not that anyone like it or anything. I just start thinking that my life couldn't possibly get any worse, although I know that it can, the Hep C can start damaging my liver so I know that I need to do something about it before it does. Thanks for the help..... Kristan > > Hi, > > > > My name is Kristan and I found out in 2003 that I had Hep C. I was > > 18, I am now 20 almost 21 and have done nothing to try and rid of it. > > I just moved to Wa and I don't really have anyone here. My dad, who > > lives in Tn, has it and has take the treatments he finished after I > > had already left and we don't keep in contact. > > > > I am really scared and I don't really know what to do if any one can > > help please do. > > > > Thanks in advance, > > Kristan It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/ Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 Well I am not sure of whay genotype I am I don't remember. I think that My VL was above 2 mil but not sure once again...... thanks, Kristan --- Jackie on wrote: > Well that IS awesome news,, now what is your > genotype or do you know that yet? was your VL over 2 > million? that is the cutoff point to where the vl > leaves the " low " levels,, so if you are under that 2 > mil,, you have low vl and that can work in your > favor too! > > Kristan wrote:Well I got > my biopsy, there was no damage, had blood tests > taken not > sure of the names though, found out what my viral > load is and I dont > remember what it was but I know that it was high. > It is just hard for > me to go to the dr. I cry everytime that i go in > there cause I hate > the fact that I have it. Not that anyone like it or > anything. I just > start thinking that my life couldn't possibly get > any worse, although > I know that it can, the Hep C can start damaging my > liver so I know > that I need to do something about it before it does. > Thanks for the help..... > Kristan > > > > > > > Hi, > > > > > > My name is Kristan and I found out in 2003 that > I had Hep C. I was > > > 18, I am now 20 almost 21 and have done nothing > to try and rid of it. > > > I just moved to Wa and I don't really have > anyone here. My dad, who > > > lives in Tn, has it and has take the treatments > he finished after I > > > had already left and we don't keep in contact. > > > > > > I am really scared and I don't really know what > to do if any one can > > > help please do. > > > > > > Thanks in advance, > > > Kristan > > > > > It's a pleasure having you join in our > conversations. We hope you have found the support > you need with us. > > If you are using email for your posts, for easy > access to our group, just click the link-- > http://groups.yahoo.com/group/Hepatitis_C_Central/ > > Happy Posting > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 Well I am not sure of whay genotype I am I don't remember. I think that My VL was above 2 mil but not sure once again...... thanks, Kristan --- Jackie on wrote: > Well that IS awesome news,, now what is your > genotype or do you know that yet? was your VL over 2 > million? that is the cutoff point to where the vl > leaves the " low " levels,, so if you are under that 2 > mil,, you have low vl and that can work in your > favor too! > > Kristan wrote:Well I got > my biopsy, there was no damage, had blood tests > taken not > sure of the names though, found out what my viral > load is and I dont > remember what it was but I know that it was high. > It is just hard for > me to go to the dr. I cry everytime that i go in > there cause I hate > the fact that I have it. Not that anyone like it or > anything. I just > start thinking that my life couldn't possibly get > any worse, although > I know that it can, the Hep C can start damaging my > liver so I know > that I need to do something about it before it does. > Thanks for the help..... > Kristan > > > > > > > Hi, > > > > > > My name is Kristan and I found out in 2003 that > I had Hep C. I was > > > 18, I am now 20 almost 21 and have done nothing > to try and rid of it. > > > I just moved to Wa and I don't really have > anyone here. My dad, who > > > lives in Tn, has it and has take the treatments > he finished after I > > > had already left and we don't keep in contact. > > > > > > I am really scared and I don't really know what > to do if any one can > > > help please do. > > > > > > Thanks in advance, > > > Kristan > > > > > It's a pleasure having you join in our > conversations. We hope you have found the support > you need with us. > > If you are using email for your posts, for easy > access to our group, just click the link-- > http://groups.yahoo.com/group/Hepatitis_C_Central/ > > Happy Posting > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2009 Report Share Posted July 30, 2009 The Mehta method is the only method that should be used..  The docs trained in this have a special table that is used to derotate & straighten the spine and the casts have cut outs that other docs may or may not do.  I would want you to go to someone that knows what they are doing so you don't lose any time and don't harm your child in any way.  From what I've read on here, your child should be old enough to start treatment... the docs like them to be under 50 degrees and 2 years old, that's when they can get the best correction. Patty, mom of Isabella, 23 months old, in 1st cast (Rochester)To: infantile_scoliosis Sent: Thursday, July 30, 2009 3:59:07 PMSubject: Re: New and confused  Well, doctor # 1 (our local one) I don't think it is. Doctor # 2 (the one in Toronto) is supposed to be, but he wants to wait. We are scheduled to do the first casting in two weeks (with Doctor # 1) but I don't know what type. He is away so I have to wait to ask. Isn't a cast better than nothing? Even if it's not Mehta? > > > > > > Hello all... > > > > > > I know being confused is very common around here but I'll try to explain why. > > > > > > I'm writing from Ottawa, Canada. Mo 11 month-old son was diagnosed with IS in Marc. MRI was done in June and first we were told it was clean so the scoliosis was diagnosed as idiopathic, then they saw a possible tethered cord. Surgery for TC release was done 2 weeks ago. > > > > > > Now, the orthopedic surgeon had decided to do the first cast on August 14th. He wasn't very convinced, didn't seem to agree with serial casting, so we looked for a second opinion. > > > > > > We just had an appointment at SickKids in Toronto. They are supposed to be doing serial casting. Now that doctor thinks that an MRI wasn't enough and we should do more testing. Also, and this is was confused us the most: he thinks we should wait until my son is bigger so the ribs are stronger and can take the pressure and the spine can get correction. Now we are worried that our local doctor will do the cast and it might not be the right option. > > > > > > On the other hand, I've always heard that even if the scoliosis is not idiopathic, it's better to start treatment ASAP, given that casting is the option anyway. We don't disagree with doing more testing, but we are not sure about the wait. > > > > > > What would you do? Go ahead with casting? Does that second doctor have a point? Shouldn't the tethered cord be considered the cause for now? If I look for a third opinion, wouldn't that take too long? > > > > > > Our local doctor has been on vacation for 5 weeks and should be back this week. We have to talk to him and see what we do, but we don't know what to do yet!!! Can somebody give us any ideas??? Our thoughts are not taking us anywhere. > > > > > > Thank you!!! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2009 Report Share Posted July 30, 2009 Hi , I believe we have 2 members on here that travel from Cananda to the US for treatment. Perhaps they can help. I don't think they were able to find anyone in Canada that was practicing this method "to the T" so to speak. Maybe post with Canada in the subject line and see if they'll chime in.~Noah 4 years old9 months of casting in SLC; Currently on month 18 of bracingAnd Mariella 6 months old currently waiting and watching at 11* To: infantile_scoliosis From: ppdh72@...Date: Thu, 30 Jul 2009 19:59:07 +0000Subject: Re: New and confused Well, doctor # 1 (our local one) I don't think it is. Doctor # 2 (the one in Toronto) is supposed to be, but he wants to wait.We are scheduled to do the first casting in two weeks (with Doctor # 1) but I don't know what type. He is away so I have to wait to ask.Isn't a cast better than nothing? Even if it's not Mehta?> > >> > > Hello all...> > > > > > I know being confused is very common around here but I'll try to explain why. > > > > > > I'm writing from Ottawa, Canada. Mo 11 month-old son was diagnosed with IS in Marc. MRI was done in June and first we were told it was clean so the scoliosis was diagnosed as idiopathic, then they saw a possible tethered cord. Surgery for TC release was done 2 weeks ago.> > > > > > Now, the orthopedic surgeon had decided to do the first cast on August 14th. He wasn't very convinced, didn't seem to agree with serial casting, so we looked for a second opinion. > > > > > > We just had an appointment at SickKids in Toronto. They are supposed to be doing serial casting. Now that doctor thinks that an MRI wasn't enough and we should do more testing. Also, and this is was confused us the most: he thinks we should wait until my son is bigger so the ribs are stronger and can take the pressure and the spine can get correction. Now we are worried that our local doctor will do the cast and it might not be the right option. > > > > > > On the other hand, I've always heard that even if the scoliosis is not idiopathic, it's better to start treatment ASAP, given that casting is the option anyway. We don't disagree with doing more testing, but we are not sure about the wait.> > > > > > What would you do? Go ahead with casting? Does that second doctor have a point? Shouldn't the tethered cord be considered the cause for now? If I look for a third opinion, wouldn't that take too long?> > > > > > Our local doctor has been on vacation for 5 weeks and should be back this week. We have to talk to him and see what we do, but we don't know what to do yet!!! Can somebody give us any ideas??? Our thoughts are not taking us anywhere.> > > > > > Thank you!!!> > >> >> Windows Live™ Hotmail®: Search, add, and share the web’s latest sports videos. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2009 Report Share Posted July 31, 2009 Hi, is the cord now untethered? If so, I would get an appointment with a Mehta trained doc ASAP. Time is your enemy if it is progressive scoliosis. What is the more testing that they want to do, to look for what? If it's reasonable to you, get those appointments moved up as quickly as possible, into cancellation slots, if you can. I do not think 11 months is too young for casting. In the meantime, don't wait, get your appointment set with a trained doc in EDF casting in Dr. Mehta's method.Heidi, Bexon's Mama, (2 years old, in 3rd cast from Salt Lake City Shriners, currently down from 61 degrees to 25)Subject: Re: New and confusedTo: infantile_scoliosis Date: Thursday, July 30, 2009, 12:44 PM Â Sorry, I forgot to mention: his curve was at 37 degrees and the RVAD was 25. We still have the appointment for the 14, that's why we need to decide asap. Thanks again! > > Hello all... > > I know being confused is very common around here but I'll try to explain why. > > I'm writing from Ottawa, Canada. Mo 11 month-old son was diagnosed with IS in Marc. MRI was done in June and first we were told it was clean so the scoliosis was diagnosed as idiopathic, then they saw a possible tethered cord. Surgery for TC release was done 2 weeks ago. > > Now, the orthopedic surgeon had decided to do the first cast on August 14th. He wasn't very convinced, didn't seem to agree with serial casting, so we looked for a second opinion. > > We just had an appointment at SickKids in Toronto. They are supposed to be doing serial casting. Now that doctor thinks that an MRI wasn't enough and we should do more testing. Also, and this is was confused us the most: he thinks we should wait until my son is bigger so the ribs are stronger and can take the pressure and the spine can get correction. Now we are worried that our local doctor will do the cast and it might not be the right option. > > On the other hand, I've always heard that even if the scoliosis is not idiopathic, it's better to start treatment ASAP, given that casting is the option anyway. We don't disagree with doing more testing, but we are not sure about the wait. > > What would you do? Go ahead with casting? Does that second doctor have a point? Shouldn't the tethered cord be considered the cause for now? If I look for a third opinion, wouldn't that take too long? > > Our local doctor has been on vacation for 5 weeks and should be back this week. We have to talk to him and see what we do, but we don't know what to do yet!!! Can somebody give us any ideas??? Our thoughts are not taking us anywhere. > > Thank you!!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2009 Report Share Posted July 31, 2009 Surely 11 months isnt to young for casting because they were going to cast Isaiah right away when he was 10 months but for the fact that he needs surgery 1st. He will be 13 months when he gets his cast. melissa From: Portas <ppdh72yahoo (DOT) com>Subject: [infantile_scoliosi s] Re: New and confusedTo: infantile_scoliosis @yahoogroups. comDate: Thursday, July 30, 2009, 12:44 PM Sorry, I forgot to mention: his curve was at 37 degrees and the RVAD was 25.We still have the appointment for the 14, that's why we need to decide asap.Thanks again!>> Hello all...> > I know being confused is very common around here but I'll try to explain why. > > I'm writing from Ottawa, Canada. Mo 11 month-old son was diagnosed with IS in Marc. MRI was done in June and first we were told it was clean so the scoliosis was diagnosed as idiopathic, then they saw a possible tethered cord. Surgery for TC release was done 2 weeks ago.> > Now, the orthopedic surgeon had decided to do the first cast on August 14th. He wasn't very convinced, didn't seem to agree with serial casting, so we looked for a second opinion. > > We just had an appointment at SickKids in Toronto. They are supposed to be doing serial casting. Now that doctor thinks that an MRI wasn't enough and we should do more testing. Also, and this is was confused us the most: he thinks we should wait until my son is bigger so the ribs are stronger and can take the pressure and the spine can get correction. Now we are worried that our local doctor will do the cast and it might not be the right option. > > On the other hand, I've always heard that even if the scoliosis is not idiopathic, it's better to start treatment ASAP, given that casting is the option anyway. We don't disagree with doing more testing, but we are not sure about the wait.> > What would you do? Go ahead with casting? Does that second doctor have a point? Shouldn't the tethered cord be considered the cause for now? If I look for a third opinion, wouldn't that take too long?> > Our local doctor has been on vacation for 5 weeks and should be back this week. We have to talk to him and see what we do, but we don't know what to do yet!!! Can somebody give us any ideas??? Our thoughts are not taking us anywhere.> > Thank you!!!> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.