Re: new member intro

Posted April 14, 2006 · April 14, 2006

Welcome Amy,

One of the first places I would suggest you go is to the address after my name.

It is the LBDA site and has lots of info all in one place.

I am sure all the people here will be supportive to you. Lots of good people

here.

One of the first questions often asked is what meds is she on? It is so

important to have the right meds.

Hope you keep with us or let me know if there are any problems.

Donna R

Do you want to read more about Lewy Body? You can also read the Thistle, the

LBD Newsletter. Just click on:

http://www.lewybodydementia.org

new member intro

Posted April 14, 2006 · April 14, 2006

Welcome to the board, Amy. But I'm sorry that you have to be here...

You've taken the first step - and congrats for making the correct

one. You will find tons of answers to your questions on this board.

You can easily type in a word that you have a question about in the

search area and find tons of answers in one quick step... Or pose

your questions and we'll do our best to answer them for you.. Be sure

to take the time to read the database & files on this board. And

visit lbda.org for even more useful info.

What meds is your mom on now?

; loving daughter of Maureen of Boston, MA; finally diagnosed

with LBD on 2/06 after also being diagnosed with everything from AD

to Vascular Dementia caused by mini strokes to Binswengers...; was

victim to rapid decline from Risperidone (or combination of

Risperidone with other drugs OR possibly received another " bad drug "

when she was observed/tested in a hospital in 10/05); in a NH since

11/05. Update: on antidepressant Celexa, 20mg (still teary, but not

as weepy)

>

> Greetings everyone. My name is Amy H. and my mom was DX with LBD

this

> week. She begin having problems in 2002-2003 with remembering

things

> (purse, glasses, things we told her), she was repeating things a

lot

> also. Her symptoms came on so fast...she begin to be totally

> delusional, seeing and hearing things that had not really happened,

> totally paranoid too. She was and is very concerned with time and

> money...I really feel like she is slipping through my fingers like

> sand. My dad is her primary caregiver but as I am the only child,

I

> am also in the caregiver position. My mom is 64 years old.

>

> Thank you so much for letting me join this group. I am desperate

for

> information.

>

> Amy H.

>

Posted April 14, 2006 · April 14, 2006

Hi Amy

I can sense your sadness, as you stated your mom is

slipping through your fingers like sand. I know the

feeling. I was in almost your exact place a few months

back. I am an only child, but my dad passed away in

1991. So all the caregiving has been on me alone. I do

have a husband and great grown kids, so I am not

totally alone. It is just the responsibility of making

the final decisions in on me.

Amy, one of the best things I ever did was join this

group and read the post almost daily. I learned more

than a lot of doctors knew about LBD. Ask questions

and listen and learn. Be cautious with drugs. And know

that we are all here for you. No question is too small

to ask. One of us has probably already been through

it.

Welcome aboard. Fasten your seat belt. And be will go

to through this together.

Dena So CA

Mother (83) End stages LBD, currently taking Cipro for

a UTI. No other drugs. Was on Aricept, Namenda,

Risperdal, Clonzapam, Prozac

--- mom2katiegarland

wrote:

> Greetings everyone. My name is Amy H. and my mom was

> DX with LBD this

> week. She begin having problems in 2002-2003 with

> remembering things

> (purse, glasses, things we told her), she was

> repeating things a lot

> also. Her symptoms came on so fast...she begin to be

> totally

> delusional, seeing and hearing things that had not

> really happened,

> totally paranoid too. She was and is very concerned

> with time and

> money...I really feel like she is slipping through

> my fingers like

> sand. My dad is her primary caregiver but as I am

> the only child, I

> am also in the caregiver position. My mom is 64

> years old.

>

> Thank you so much for letting me join this group. I

> am desperate for

> information.

>

> Amy H.

>

__________________________________________________

Posted April 14, 2006 · April 14, 2006

Amy: Welcome to the club no one wanted to join. You will receive a lot of

information here. I hope you have gone to the webpage as it is constantly

being updated. We are here for you and understand.

Myrna (68) in Missouri

Caregiver for Husband Jerry (70)

Diagnosed AD 1997, LBD 2004

new member intro

> Greetings everyone. My name is Amy H. and my mom was DX with LBD this

> week. She begin having problems in 2002-2003 with remembering things

> (purse, glasses, things we told her), she was repeating things a lot

> also. Her symptoms came on so fast...she begin to be totally

> delusional, seeing and hearing things that had not really happened,

> totally paranoid too. She was and is very concerned with time and

> money...I really feel like she is slipping through my fingers like

> sand. My dad is her primary caregiver but as I am the only child, I

> am also in the caregiver position. My mom is 64 years old.

>

> Thank you so much for letting me join this group. I am desperate for

> information.

>

> Amy H.

>

> Welcome to LBDcaregivers.

>

Posted April 14, 2006 · April 14, 2006

Amy H. Welcome with a warm heart. We all know how you feel, and wish you

didn't have to be here for the reason that you are.

I can tell you up front that Geri Hall is our real mentor, as she has been

in the business since 1978. She has a Ph.D. and all kinds of other

credentials, yet, she is so loving and respectful of all of us that you quickly

know you

can rely on her to help.

You have no idea how much this List, and Geri, has helped me.

I am fairly new to this List, but I love them all, and Like you, I am

thankful to be here.

You will learn like you never thought possible. Just about the time I think

there is no where else to learn on the disease or symptoms, someone sends in

another site to look at.

Just know you are not alone in this terrible time. And, it is bad. But, you

have a lot of love and understanding right here.

Imogene

Caregiver for my True Texas Gentleman husband of 35 years. He has AD and

possibly LBD, is Taking Aricept and Risperdal. Age 72 in May.

In a message dated 4/14/2006 5:48:44 AM Central Daylight Time,

4pairsofchopsticks@... writes:

Greetings everyone. My name is Amy H. and my mom was DX with LBD this

week. She begin having problems in 2002-2003 with remembering things

(purse, glasses, things we told her), she was repeating things a lot

also. Her symptoms came on so fast...she begin to be totally

delusional, seeing and hearing things that had not really happened,

totally paranoid too. She was and is very concerned with time and

money...I really feel like she is slipping through my fingers like

sand. My dad is her primary caregiver but as I am the only child, I

am also in the caregiver position. My mom is 64 years old.

Thank you so much for letting me join this group. I am desperate for

information.

Amy H.

Posted April 14, 2006 · April 14, 2006

Hi Amy. Welcome to the group. I'm pretty new here too. I joined in

February this year when my dad was diagnosed. I guess none of us want

to need to be here, but it's a good place to be if you DO need to be.

There's loads of info and it's a great place to sound off to people

who understand what you're on about. [um .... well, mostly they

understand what you're on about .... though sometimes the english to

american translation breaks down and we get in a muddle ... there's a

helpful glossary somewhere in the archives ]

Áine