Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Bob, My condolences to a very good son who took very good care of his Mom. We hear a lot of us ladies who are here, and it is good to hear about you men who do the caregiving. I am glad your Mom is at peace and didn't linger with this disease. Let us know how you are doing. There is grieving that happens, even when we all do pre-grieving as the disease progresses. Lots of warm hugs as you say good-bye. Donna R Do you want to read more about Lewy Body? You can also read the Thistle, the LBD Newsletter. Just click on: http://www.lewybodydementia.org My Passed Away Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Bob - My condolences to you and your family at this time. Your comment was well put regarding missing your mom, but not this disease. Feel free to continue to vent on this board. It's so therapeutic to write, write, write your thoughts - to get them out of your head...and wonderful to have peoople read and perfectly understand where your coming from. > > My mother passed away this morning, Tuesday, March 21st > @3:30 AM. She went very peacefully. > > I had had a feeling that she would go very quickly. The diagnosis > in December was traumatic - - the doctor did not think she would > last more than 2 years. When she broke her hip on Jan 21, our > family knew it was the beginning of the end. At one point, though, > during her rehab, it appearred she was getting better, but then > she stopped eating and began to withdraw. A hospitalization for > an apparent stroke, which turned out to be the Parkinson's > kicking in, only seemed to accelerate the decline. > > Last Tuesday, March 14th, which was also my birthday, the > decision was made to bring in hospice care. The hospice nurse > came Sunday and assessed and admitted her to hospice. The > next day, March 20th, my mother seemed to be in distress when I > visited her in the morning. An oxygen tube had been placed in > her nose because she had trouble breathing. She spoke to me > and said, " , get me out of here! " I said, " Mom, you can go > anytime you want to, you've done a great job and can let go. " > > The doctor came in to see her, and he asked me out into the > hall, and he told me she only had a few days left. I thought he > might be wrong, but another hospice nurse came out and told > me that my mother was actively dying. > > I really can't believe the rapidity with which this disease took my > mother, but my solace is that she did not suffer for a long time > with the disease. > > My heart goes out to all of you who have been struggling with > loved ones who have had this disease for a longer period of time > than my mother. I cannot imagine how extremely stressful and > draining this disease is on those of us who are caregivers. > > While I will always miss my mother, I will not miss this disease > and what it did to her. > > Take care everyone and thank you for the information and suppor > that I received from this group, Bob > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Dear Bob, Please accept my sincere condolences in the loss of your Mother. May you find Peace and Comfort in knowing that the battle is over and she is in a better place now. More Peace and Prayers to you and your family, Stevie in California Stevie in So. California LO - Mr. B (Uncle) 82 yrs. Lives in my home - 3 yrs. DX Parkinson's 1993 DX LBD 2003 - probably has PDD End stage meds: Hytrin, E.S Tylenol (Hallies have subsided) Was on: Sinemet, Seroguel, Elavil, Lasix, Hytrin, Roxinal, Aciphex, Amitriptyline Was given Ativan in NH for 5 days (Jan '06), hasn't been the same since Daily BP usually 68/52 * * * * * * * * * * My mother passed away this morning, Tuesday, March 21st @3:30 AM. She went very peacefully. I had had a feeling that she would go very quickly. The diagnosis in December was traumatic - - the doctor did not think she would last more than 2 years. When she broke her hip on Jan 21, our family knew it was the beginning of the end. At one point, though, during her rehab, it appearred she was getting better, but then she stopped eating and began to withdraw. A hospitalization for an apparent stroke, which turned out to be the Parkinson's kicking in, only seemed to accelerate the decline. Last Tuesday, March 14th, which was also my birthday, the decision was made to bring in hospice care. The hospice nurse came Sunday and assessed and admitted her to hospice. The next day, March 20th, my mother seemed to be in distress when I visited her in the morning. An oxygen tube had been placed in her nose because she had trouble breathing. She spoke to me and said, " , get me out of here! " I said, " Mom, you can go anytime you want to, you've done a great job and can let go. " The doctor came in to see her, and he asked me out into the hall, and he told me she only had a few days left. I thought he might be wrong, but another hospice nurse came out and told me that my mother was actively dying. I really can't believe the rapidity with which this disease took my mother, but my solace is that she did not suffer for a long time with the disease. My heart goes out to all of you who have been struggling with loved ones who have had this disease for a longer period of time than my mother. I cannot imagine how extremely stressful and draining this disease is on those of us who are caregivers. While I will always miss my mother, I will not miss this disease and what it did to her. Take care everyone and thank you for the information and suppor that I received from this group, Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Hi Bob My condolences to you and your family on your Mom's passing. What a beautiful and loving gift you gave to her by telling her she did a great job and could go. , borough, ON > > My mother passed away this morning, Tuesday, March 21st > @3:30 AM. She went very peacefully. > > I had had a feeling that she would go very quickly. The diagnosis > in December was traumatic - - the doctor did not think she would > last more than 2 years. When she broke her hip on Jan 21, our > family knew it was the beginning of the end. At one point, though, > during her rehab, it appearred she was getting better, but then > she stopped eating and began to withdraw. A hospitalization for > an apparent stroke, which turned out to be the Parkinson's > kicking in, only seemed to accelerate the decline. > > Last Tuesday, March 14th, which was also my birthday, the > decision was made to bring in hospice care. The hospice nurse > came Sunday and assessed and admitted her to hospice. The > next day, March 20th, my mother seemed to be in distress when I > visited her in the morning. An oxygen tube had been placed in > her nose because she had trouble breathing. She spoke to me > and said, " , get me out of here! " I said, " Mom, you can go > anytime you want to, you've done a great job and can let go. " > > The doctor came in to see her, and he asked me out into the > hall, and he told me she only had a few days left. I thought he > might be wrong, but another hospice nurse came out and told > me that my mother was actively dying. > > I really can't believe the rapidity with which this disease took my > mother, but my solace is that she did not suffer for a long time > with the disease. > > My heart goes out to all of you who have been struggling with > loved ones who have had this disease for a longer period of time > than my mother. I cannot imagine how extremely stressful and > draining this disease is on those of us who are caregivers. > > While I will always miss my mother, I will not miss this disease > and what it did to her. > > Take care everyone and thank you for the information and suppor > that I received from this group, Bob > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Bob, I'm sorry to hear about your mother. It does sound like she went very quickly, I suppose that can be a blessing as well as a problem with no time to adjust. Your feeling was right, sometimes our intuition tells us more than we think at the time. In either case, I'm glad she is free of suffering anymore. My thoughts are with you and your family. > > My mother passed away this morning, Tuesday, March 21st > @3:30 AM. She went very peacefully. > > I had had a feeling that she would go very quickly. The diagnosis > in December was traumatic - - the doctor did not think she would > last more than 2 years. When she broke her hip on Jan 21, our > family knew it was the beginning of the end. At one point, though, > during her rehab, it appearred she was getting better, but then > she stopped eating and began to withdraw. A hospitalization for > an apparent stroke, which turned out to be the Parkinson's > kicking in, only seemed to accelerate the decline. > > Last Tuesday, March 14th, which was also my birthday, the > decision was made to bring in hospice care. The hospice nurse > came Sunday and assessed and admitted her to hospice. The > next day, March 20th, my mother seemed to be in distress when I > visited her in the morning. An oxygen tube had been placed in > her nose because she had trouble breathing. She spoke to me > and said, " , get me out of here! " I said, " Mom, you can go > anytime you want to, you've done a great job and can let go. " > > The doctor came in to see her, and he asked me out into the > hall, and he told me she only had a few days left. I thought he > might be wrong, but another hospice nurse came out and told > me that my mother was actively dying. > > I really can't believe the rapidity with which this disease took my > mother, but my solace is that she did not suffer for a long time > with the disease. > > My heart goes out to all of you who have been struggling with > loved ones who have had this disease for a longer period of time > than my mother. I cannot imagine how extremely stressful and > draining this disease is on those of us who are caregivers. > > While I will always miss my mother, I will not miss this disease > and what it did to her. > > Take care everyone and thank you for the information and suppor > that I received from this group, Bob > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 You said that so well, Kath. It's exactly how we all feel. > > > > My mother passed away this morning, Tuesday, March 21st > > @3:30 AM. She went very peacefully. > > > > I had had a feeling that she would go very quickly. The diagnosis > > in December was traumatic - - the doctor did not think she would > > last more than 2 years. When she broke her hip on Jan 21, our > > family knew it was the beginning of the end. At one point, though, > > during her rehab, it appearred she was getting better, but then > > she stopped eating and began to withdraw. A hospitalization for > > an apparent stroke, which turned out to be the Parkinson's > > kicking in, only seemed to accelerate the decline. > > > > Last Tuesday, March 14th, which was also my birthday, the > > decision was made to bring in hospice care. The hospice nurse > > came Sunday and assessed and admitted her to hospice. The > > next day, March 20th, my mother seemed to be in distress when I > > visited her in the morning. An oxygen tube had been placed in > > her nose because she had trouble breathing. She spoke to me > > and said, " , get me out of here! " I said, " Mom, you can go > > anytime you want to, you've done a great job and can let go. " > > > > The doctor came in to see her, and he asked me out into the > > hall, and he told me she only had a few days left. I thought he > > might be wrong, but another hospice nurse came out and told > > me that my mother was actively dying. > > > > I really can't believe the rapidity with which this disease took > my > > mother, but my solace is that she did not suffer for a long time > > with the disease. > > > > My heart goes out to all of you who have been struggling with > > loved ones who have had this disease for a longer period of time > > than my mother. I cannot imagine how extremely stressful and > > draining this disease is on those of us who are caregivers. > > > > While I will always miss my mother, I will not miss this disease > > and what it did to her. > > > > Take care everyone and thank you for the information and suppor > > that I received from this group, Bob > > > > > > > > > > Welcome to LBDcaregivers. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Dear Bob My sincerest condolences to you and your family. I know it is hard to look at death as a blessing, but I believe it to be so. May you relieve all the wonderful memories that you have with your Mom over and over. God Bless Dena Mother (83) LBD dx April 05 Now bedridden, feet have dropped, eating puree foods. Forever end stages. No meds at this time --- robertbarto wrote: > My mother passed away this morning, Tuesday, March > 21st > @3:30 AM. She went very peacefully. > > I had had a feeling that she would go very quickly. > The diagnosis > in December was traumatic - - the doctor did not > think she would > last more than 2 years. When she broke her hip on > Jan 21, our > family knew it was the beginning of the end. At one > point, though, > during her rehab, it appearred she was getting > better, but then > she stopped eating and began to withdraw. A > hospitalization for > an apparent stroke, which turned out to be the > Parkinson's > kicking in, only seemed to accelerate the decline. > > Last Tuesday, March 14th, which was also my > birthday, the > decision was made to bring in hospice care. The > hospice nurse > came Sunday and assessed and admitted her to > hospice. The > next day, March 20th, my mother seemed to be in > distress when I > visited her in the morning. An oxygen tube had been > placed in > her nose because she had trouble breathing. She > spoke to me > and said, " , get me out of here! " I said, > " Mom, you can go > anytime you want to, you've done a great job and can > let go. " > > The doctor came in to see her, and he asked me out > into the > hall, and he told me she only had a few days left. I > thought he > might be wrong, but another hospice nurse came out > and told > me that my mother was actively dying. > > I really can't believe the rapidity with which this > disease took my > mother, but my solace is that she did not suffer for > a long time > with the disease. > > My heart goes out to all of you who have been > struggling with > loved ones who have had this disease for a longer > period of time > than my mother. I cannot imagine how extremely > stressful and > draining this disease is on those of us who are > caregivers. > > While I will always miss my mother, I will not miss > this disease > and what it did to her. > > Take care everyone and thank you for the information > and suppor > that I received from this group, Bob > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 > Bob, Please accept my sincere condolences in the loss of your mom. It never is easy to lose someone you love, but may you find peace and comfort in knowing she is now at rest. God bless you and your family. April Ga. > My mother passed away this morning, Tuesday, March 21st > @3:30 AM. She went very peacefully. > > I had had a feeling that she would go very quickly. The diagnosis > in December was traumatic - - the doctor did not think she would > last more than 2 years. When she broke her hip on Jan 21, our > family knew it was the beginning of the end. At one point, though, > during her rehab, it appearred she was getting better, but then > she stopped eating and began to withdraw. A hospitalization for > an apparent stroke, which turned out to be the Parkinson's > kicking in, only seemed to accelerate the decline. > > Last Tuesday, March 14th, which was also my birthday, the > decision was made to bring in hospice care. The hospice nurse > came Sunday and assessed and admitted her to hospice. The > next day, March 20th, my mother seemed to be in distress when I > visited her in the morning. An oxygen tube had been placed in > her nose because she had trouble breathing. She spoke to me > and said, " , get me out of here! " I said, " Mom, you can go > anytime you want to, you've done a great job and can let go. " > > The doctor came in to see her, and he asked me out into the > hall, and he told me she only had a few days left. I thought he > might be wrong, but another hospice nurse came out and told > me that my mother was actively dying. > > I really can't believe the rapidity with which this disease took my > mother, but my solace is that she did not suffer for a long time > with the disease. > > My heart goes out to all of you who have been struggling with > loved ones who have had this disease for a longer period of time > than my mother. I cannot imagine how extremely stressful and > draining this disease is on those of us who are caregivers. > > While I will always miss my mother, I will not miss this disease > and what it did to her. > > Take care everyone and thank you for the information and suppor > that I received from this group, Bob > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Hi Bob, My condolences to you and your family on the passing of your mother. I pray for your comfort and peace during this difficult time. Although, it must be hard for you that your mother progressed into the disease so fast, it is a blessing that she did not have to suffer long with this " Beast " of a disease. She was very fortunate to have a caring son like you. I know your birthday was not what you would have liked it to be, but I wish you a belated birthday and pray that the rest of this year brings better days for you. Jan Colello, wife of Jim, diagnosed with Parkinsons 1993 and diagnosed with Lewy Body Disease 2003 Residence: San Francisco Bay Area, California --- robertbarto wrote: > My mother passed away this morning, Tuesday, March > 21st > @3:30 AM. She went very peacefully. > > I had had a feeling that she would go very quickly. > The diagnosis > in December was traumatic - - the doctor did not > think she would > last more than 2 years. When she broke her hip on > Jan 21, our > family knew it was the beginning of the end. At one > point, though, > during her rehab, it appearred she was getting > better, but then > she stopped eating and began to withdraw. A > hospitalization for > an apparent stroke, which turned out to be the > Parkinson's > kicking in, only seemed to accelerate the decline. > > Last Tuesday, March 14th, which was also my > birthday, the > decision was made to bring in hospice care. The > hospice nurse > came Sunday and assessed and admitted her to > hospice. The > next day, March 20th, my mother seemed to be in > distress when I > visited her in the morning. An oxygen tube had been > placed in > her nose because she had trouble breathing. She > spoke to me > and said, " , get me out of here! " I said, > " Mom, you can go > anytime you want to, you've done a great job and can > let go. " > > The doctor came in to see her, and he asked me out > into the > hall, and he told me she only had a few days left. I > thought he > might be wrong, but another hospice nurse came out > and told > me that my mother was actively dying. > > I really can't believe the rapidity with which this > disease took my > mother, but my solace is that she did not suffer for > a long time > with the disease. > > My heart goes out to all of you who have been > struggling with > loved ones who have had this disease for a longer > period of time > than my mother. I cannot imagine how extremely > stressful and > draining this disease is on those of us who are > caregivers. > > While I will always miss my mother, I will not miss > this disease > and what it did to her. > > Take care everyone and thank you for the information > and suppor > that I received from this group, Bob > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Bob, My condlences to you and your family on the passing of your mom. I am sending you and yours strength. Courage Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 bob, i am so so sorry for the loss of your mother, i am glad tho she is no longer battling the lbd war anymore. please find comfort in my belief that those we love become our guardian angels and are always with us, watching and guiding us for HIM. hugs, sharon m Date: 2006/03/21 Tue PM 11:37:15 EST To: LBDcaregivers Subject: My Passed Away My mother passed away this morning, Tuesday, March 21st @3:30 AM. She went very peacefully. I had had a feeling that she would go very quickly. The diagnosis in December was traumatic - - the doctor did not think she would last more than 2 years. When she broke her hip on Jan 21, our family knew it was the beginning of the end. At one point, though, during her rehab, it appearred she was getting better, but then she stopped eating and began to withdraw. A hospitalization for an apparent stroke, which turned out to be the Parkinson's kicking in, only seemed to accelerate the decline. Last Tuesday, March 14th, which was also my birthday, the decision was made to bring in hospice care. The hospice nurse came Sunday and assessed and admitted her to hospice. The next day, March 20th, my mother seemed to be in distress when I visited her in the morning. An oxygen tube had been placed in her nose because she had trouble breathing. She spoke to me and said, " , get me out of here! " I said, " Mom, you can go anytime you want to, you've done a great job and can let go. " The doctor came in to see her, and he asked me out into the hall, and he told me she only had a few days left. I thought he might be wrong, but another hospice nurse came out and told me that my mother was actively dying. I really can't believe the rapidity with which this disease took my mother, but my solace is that she did not suffer for a long time with the disease. My heart goes out to all of you who have been struggling with loved ones who have had this disease for a longer period of time than my mother. I cannot imagine how extremely stressful and draining this disease is on those of us who are caregivers. While I will always miss my mother, I will not miss this disease and what it did to her. Take care everyone and thank you for the information and suppor that I received from this group, Bob Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
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