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Jan, I too, was very confused about meds when mom had a bad cold but we

gave her Robi and she didn't seem any worse for it. You can try it and

if Jim gets worse then take him off it. Wish I could be more helpful.

Courage

Janet Colello wrote:

>

> I have seen where Robitussin has been the recommended

> cold/flu medication for congestion, stuffy nose,

> coughing, sneezing for LBD. Jim has a horrible cold,

> so I went to the pharmacy to pick up some Robitussin,

> but every box of Robitussin I looked at had a warning

> not to give to persons with Parkinsons. What is the

> recommended one? Thanks, Jan

>

>

>

> __________________________________________

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>

> Welcome to LBDcaregivers.

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  • 8 months later...

Hey Darcy,

I am in Ohio. I will hopefully be working before too long and will have

insurance but for now, I need to get some kind of treatment before I crack.

Thank you for your empathy. And yes, you are correct, the pain could stem

from somewhere other than my back.

I was diagnosed with Degenerative Disc Disease and also have bone spurs on my

spine, but I really don't think that is what is causing the pain. The disc

disease is just starting and the bone spurs on located along my spine in the

upper region of my back. My pain is mostly lower back, neck, and arms. It's

almost like having really weak muscles.

I'll figure something out. Thank you for your help.

Have a good day,

Amy

We need to see each other's suffering as our own.

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Hello,

I am truly sorry about the kind of pain you are having to life with. I can't

begin to imagine. The only pain that I have in in my neck, back and neck. I

don't have any leg pain or feet pain. I think it has to do with my muscles. You

have helped me out tremendously. I am thinking I probably don't have Fibro

after all. But will try to find a free medical clinic to be checked out. I will

go to the site's you gave me and read more about it. I know that I have

Degenerative Disc Disease and bone spurs along my spine, but I don't think the

pain I

have is caused from this.

Again, thank you so much for writing. I pray that someday soon there will be

a cure for Fibro and I am sorry for all the other problems you have to face on

a daily basis.

Brightest Blessings,

Amy

We need to see each other's suffering as our own.

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Hi Darcy,

You have been so kind. I went and seached for Free Medical Clinic and there

is one that is down the road from my house! Who would have thought...I have

there number and think I will call them yet today. Not sure how much help they

will be, but some help is better than no help.

You said your muscle's and joints are deteriorating? What is this caused from

Darcy? I was diagnosed last year with DDD and it was just starting. I feel

like my muscle's are not working as they are supposed to. I wonder if that could

be happening to me. I just want to get to the bottom of it and get some help

so I CAN go and get a job and be able to get up in the am and go to work. I

don't sleep because I am tossing and turning all night trying to stay out of

pain. I can barely roll over or get out of bed because I feel so stiff. I just

don't know how much a person is expected to be put through. It's sad...and I

don't see myself as " that bad " .

Thanks again,

Amy

We need to see each other's suffering as our own.

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Hi Amy

I am so sorry to hear about your pain.Where are you from? alot of times there

are free clinics in bigger cities which you can go to.Have you tried to get on

medical assistance.Because i tried to diagnos my back for 5 yrs and when i

finally got insurance i was totally wrong with my diagnosis. my dr said your

back is the worse thing to try and diagnos because it can stem from other

places.Please becare diagnosing your back.Now i am getting good at diagnosing

myself but when i first started i was way off to what was wrong.

Darcy

Amy wrote:

Hello,

I have a question for the group. I have been in alot of pain, mostly

my back since April of this year. I am unemployed, no insurance,

therefore no doctor visit.

I am trying to research what could my pain be due from. I have all the

symtoms of Fibromyalgia, but it could be a number of other illnesses

also.

Does anybody in this group have Fibromyaligia or suffer from chronic

muscle pain? I would like to know what your symtoms are so I can rule

out the thought that I may have Fibromyaligia.

Thanks!

Amy

Darcy

---------------------------------

Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+

countries) for 2¢/min or less.

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Hello,

I have fibromyalgia and there are great clinics here in Georgia. Where are you?

--

Charlene Reeves

2525 Tara Lane #143

Brunswick, Georgia 31520

---- Darcy wrote:

>Hi Amy

>I am so sorry to hear about your pain.Where are you from? alot of times there

are free clinics in bigger cities which you can go to.Have you tried to get on

medical assistance.Because i tried to diagnos my back for 5 yrs and when i

finally got insurance i was totally wrong with my diagnosis. my dr said your

back is the worse thing to try and diagnos because it can stem from other

places.Please becare diagnosing your back.Now i am getting good at diagnosing

myself but when i first started i was way off to what was wrong.

>Darcy

>

>Amy wrote:

>Hello,

>

>I have a question for the group. I have been in alot of pain, mostly

>my back since April of this year. I am unemployed, no insurance,

>therefore no doctor visit.

>I am trying to research what could my pain be due from. I have all the

>symtoms of Fibromyalgia, but it could be a number of other illnesses

>also.

>

>Does anybody in this group have Fibromyaligia or suffer from chronic

>muscle pain? I would like to know what your symtoms are so I can rule

>out the thought that I may have Fibromyaligia.

>

>Thanks!

>

>Amy

>

>

>

>

>

>

>Darcy

>

>

>---------------------------------

>Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+

countries) for 2¢/min or less.

>

>

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I have Fibro/Myofacial Pain and spasms along with

osteoarthritis. It was a long time before I knew it

was fibro...didn't even know what it was.

I do know it's hell trying to explain to a doctor and

be believed. Trouble with Fibro it has what seems to

be at least 50 symptoms and some docs and nurses have

the " old " training.. " If they have more then 5

symptoms, they are faking it. " That was one of the

worst lessons I've ever heard of in my life.

One of the things that is very Fibro, is you wake up

with the flu...or what seems like the flu..but it's

not the flu. Feels like it. You swear it is. And

then it goes away very unflu-like. Sometimes the

soles of your feet feel like broken glass is inside

them. Joint and muscle pain can be found in arthritis

as well as fibro and you're not sure what is what.

Fibro robs us of stage 4 sleep a lot of the times.

The doctor will usually use something like Elavil or

like me, Trazadon. Most commenly used for depression

but also used to help with stages of sleep. I'm not

depressed but the trazadon does help the sleep once I

get there instead of waking up with a start 5 minutes

after falling to sleep.

What pain docs/doctors that know what fibro

is...determine if you have fibro and myofacial pain

syndrome is trigger points (myofacial pain) and tender

points (fibromyagia).

http://www.mwilliamson.com/tndr-pts.htm

http://www.fibromyalgia-symptoms.org/fibromyalgia_diagnosis.html

Trigger points:

http://hometown.aol.com/fibroworld/mps.htm

http://www.aafp.org/afp/20020215/653.html

When a pain doc went after my trigger points I almost

went thru the roof and a great, big nurse had to hold

me down. That bad. It's where the spasms that

originally alerted me to a problem started out. I've

now had that spaz for 16 years....and it takes an

opiate to control them (messes up the signals). This

is not always the case with that kind of spasm but in

myofacial spazes it's not uncommon to have antispasm

meds do absolutely nothing. I can't even give a good

description of the pain they cause. Intense and deep

as hell is one way to describe it. Each spaz will last

about 24 or more hours at a time. They spent years

trying to stop them using conventional drugs.

Anway...it took time. The clinics I had to go to,

because I was knocked out of the work force by the

spasms...didn't even try to diagnose fibro/myofacial

pain.

It was after I got disability that I got to go to my

regular doc and his PA sent me to the pain doc who

went after the trigger points and was able to

diagnose. My family doc and I do the pain managment.

You can never really make it all go away but enuff to

function. No known cause and no known cure.

If you have a free clinic you can give it a shot and

make it a point to have tender/trigger points checked

out. I would have if I'd have known about it.

*¬*.¸¸.·´¨`»*«´¨`·.¸¸.*¬*

" First, ye rubs somethin' furry t' build up a charge,

then ye picks yer target! "

~StrykerMom~

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

--- Amy wrote:

> Hello,

>

> I have a question for the group. I have been in alot

> of pain, mostly

> my back since April of this year. I am unemployed,

> no insurance,

> therefore no doctor visit.

> I am trying to research what could my pain be due

> from. I have all the

> symtoms of Fibromyalgia, but it could be a number of

> other illnesses

> also.

>

> Does anybody in this group have Fibromyaligia or

> suffer from chronic

> muscle pain? I would like to know what your symtoms

> are so I can rule

> out the thought that I may have Fibromyaligia.

>

> Thanks!

>

> Amy

>

>

>

>

>

Lotacats >^.^<

http://www.cafepress.com/lotacatspix/549000

__________________________________________________

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Hi Amy

Try in your search engines to look up free medical clinics near where u

live they go by your income and if you have insurance.the one thing is you cant

choose the drs u want to see its up to the free clinic to send you to drs who

work within the clinics you go to.

OshunWater@... wrote:

I am in Ohio.

Amy

We need to see each other's suffering as our own.

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