A heads up to caregivers of news that should let the LBDA expand their help

[Guest guest]

LEWY BODY DEMENTIA ASSOCIATION AWARDED $500,000 GRANT

programs. I will be putting this in the next newsletter and thought

it only fair that members of this board be aware of a new level of

funding. In the past funding was a very small percentage of this

amount.

Sandy (Ohio)

ATLANTA, GEORGIA, USA, January 16, 2006 ? The Lewy Body Dementia

Association (LBDA) has rece ntly been awarded a $500,000 grant from

the Harry T. Mangurian, Jr. Foundation to further its work in

building awareness and support for 800,000 U.S. families facing Lewy

body dementia (LBD) and to help promote research for an eventual

cure for this disease.

Harry T. Mangurian, Jr. learned first-hand about the plight facing

LBD patients and their families and wanted to help bring this

disease out of its shadows. ?From the information available through

the LB DA, I was surprised by the general lack of recognition and

awareness of this disease, even within the medical profession.

Hopefully, this grant will help solve this problem and will provide

caregivers guidance in assisting those with this debilitating

disease,? said Mangurian.

Mr. Mangurian?s business ventures span many industries, including

owner of the 1981 champion Boston Celtics and other professional

sports teams, such as the Memphis Rogues soccer franchise; owner of

Mockingbird Farm in Ocala, Florida, where he was North America?s

leading thoroughbred breeder; real estate development and

construction; national furniture retailing; and charter jet

aviation.

Dr. Ian Mc who serves on the LBDA Scientific Advisory Council,

shared his enthusiasm about the grant, ?There are great medical

management benefits for people with LBD and their families if this

condition is recognized early and treated effectively. The LBDA,

supported by this special donation, will play a key role in

increasing the awareness of this generally unrecognized disease and

will help make a real difference in patient outcomes.?

LBD, while largely unknown to the general public, is now recognized

by the international medical community as the second-most common

form of degenerative dementia in the United States. Symptoms

include fluctuating cognitive abilities, hallucinations, Parkinson?s-

like symptoms, REM Sleep Behavior Disorder (a sleep disorder

characterized by frightening dreams and physically thrashing about),

and a life-threatening sensitivity to certain medications. Early,

accurate diagnosis provides families with the opportunity for

treatment with cholinest erase inhibitors, which can significantly

reduce cognitive impairment and psychiatric features of LBD and thus

improve their quality of life. It also allows clinicians and

families to minimize the use of antipsychotic medications, as up to

50% of LBD patients show an extreme sensitivity that can potentially

be fatal. Symptom management is complex, as many medications used

to treat the Parkinson-like symptoms, behavioral problems, and mood

disorders can exacerbate other LBD symptoms.

Studies in specialized dementia clinics show that LBD patients are

incorrectly diagnosed with Parkinson?s Disease and Alzheimer?s

Disease as often as 70% of the time. However, preliminary brain

imaging tests are now providing greater than 80% diagnostic accuracy.

This grant will help launch the LBDA from an all-volunteer

organization to that of a nationally recognized non-profit health

organization. Families and medical professionals seeking

information on LBD are encouraged to visit the LBDA website at

www.lewybodydementia.org.

About the Lewy Body Dementia Association

The Lewy Body Dementia Association (LBDA) is a national 501©(3)

charitable organization dedicated to raising awareness of Lewy body

dementia (LBD), assisting caregivers and families and encouraging

scientific advancement towards a cure. The LBDA Scientific Advisory

Council is comprised of some of the world?s leading experts in LBD

from multiple disciplines. Cont act info: www.lewybodydementia.org,

or PO Box 451429, Atlanta, Georgia 31145-9429

[Guest guest]

Sandy,

This is excellent news. You have made my day! Hope all is well

with you.

Hugs,

Donna P.

>

> LEWY BODY DEMENTIA ASSOCIATION AWARDED $500,000 GRANT

>

>

> programs. I will be putting this in the next newsletter and

thought

> it only fair that members of this board be aware of a new level of

> funding. In the past funding was a very small percentage of this

> amount.

>

> Sandy (Ohio)

>

>

> ATLANTA, GEORGIA, USA, January 16, 2006 ? The Lewy Body Dementia

> Association (LBDA) has rece ntly been awarded a $500,000 grant

from

> the Harry T. Mangurian, Jr. Foundation to further its work in

> building awareness and support for 800,000 U.S. families facing

Lewy

> body dementia (LBD) and to help promote research for an eventual

> cure for this disease.

>

> Harry T. Mangurian, Jr. learned first-hand about the plight facing

> LBD patients and their families and wanted to help bring this

> disease out of its shadows. ?From the information available

through

> the LB DA, I was surprised by the general lack of recognition and

> awareness of this disease, even within the medical profession.

> Hopefully, this grant will help solve this problem and will

provide

> caregivers guidance in assisting those with this debilitating

> disease,? said Mangurian.

>

> Mr. Mangurian?s business ventures span many industries, including

> owner of the 1981 champion Boston Celtics and other professional

> sports teams, such as the Memphis Rogues soccer franchise; owner

of

> Mockingbird Farm in Ocala, Florida, where he was North America?s

> leading thoroughbred breeder; real estate development and

> construction; national furniture retailing; and charter jet

> aviation.

>

> Dr. Ian Mc who serves on the LBDA Scientific Advisory

Council,

> shared his enthusiasm about the grant, ?There are great medical

> management benefits for people with LBD and their families if this

> condition is recognized early and treated effectively. The LBDA,

> supported by this special donation, will play a key role in

> increasing the awareness of this generally unrecognized disease

and

> will help make a real difference in patient outcomes.?

>

> LBD, while largely unknown to the general public, is now

recognized

> by the international medical community as the second-most common

> form of degenerative dementia in the United States. Symptoms

> include fluctuating cognitive abilities, hallucinations, Parkinson?

s-

> like symptoms, REM Sleep Behavior Disorder (a sleep disorder

> characterized by frightening dreams and physically thrashing

about),

> and a life-threatening sensitivity to certain medications. Early,

> accurate diagnosis provides families with the opportunity for

> treatment with cholinest erase inhibitors, which can significantly

> reduce cognitive impairment and psychiatric features of LBD and

thus

> improve their quality of life. It also allows clinicians and

> families to minimize the use of antipsychotic medications, as up

to

> 50% of LBD patients show an extreme sensitivity that can

potentially

> be fatal. Symptom management is complex, as many medications used

> to treat the Parkinson-like symptoms, behavioral problems, and

mood

> disorders can exacerbate other LBD symptoms.

>

> Studies in specialized dementia clinics show that LBD patients are

> incorrectly diagnosed with Parkinson?s Disease and Alzheimer?s

> Disease as often as 70% of the time. However, preliminary brain

> imaging tests are now providing greater than 80% diagnostic

accuracy.

>

> This grant will help launch the LBDA from an all-volunteer

> organization to that of a nationally recognized non-profit health

> organization. Families and medical professionals seeking

> information on LBD are encouraged to visit the LBDA website at

> www.lewybodydementia.org.

>

> About the Lewy Body Dementia Association

> The Lewy Body Dementia Association (LBDA) is a national 501©(3)

> charitable organization dedicated to raising awareness of Lewy

body

> dementia (LBD), assisting caregivers and families and encouraging

> scientific advancement towards a cure. The LBDA Scientific

Advisory

> Council is comprised of some of the world?s leading experts in LBD

> from multiple disciplines. Cont act info:

www.lewybodydementia.org,

> or PO Box 451429, Atlanta, Georgia 31145-9429

>