Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 Hello All, I have been having a hard few days. I know most of it has to do with a wicked head cold that just won't quit and my inability to keep busy and leave the house - cabin fever setting in. Anyway, I haven't been able to see mom in over a week and I feel bad about that but I don't want her or the other folks at the NH to catch what I've got. I also wish our visits were " deeper " but I'll take what I can get. I had a big discussion with my best friend about how unreal it is in the caregiving process when you get to the point where you are now praying that God remembers to take your parent. She isn't anywhere near this and I never thought I'd get to this point. Life sure is odd sometimes. On another note, I thought I would share the following. My son came over yesterday and was asking me for something that belong to him and for the life of me I couldn't remember where it went. He smiled at me at said " its ok mom, grandma has Alzheimer's disease and you have Sometimer's disease " . I thought it was cute and a good new classification of the memory problems we sometimes have. I am sending out strength to everyone cause I know you all are going to be sending me some too. Courage Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 > Hello Courage, I really like that- sometimers disease!We all can relate to that! You know, when Mom was living with me, I had to stop and get on her wavelenght so that I could understand her. After being on her wavelength for any extended period of time, I found it hard to get off it, and back to normal. I chalk it up to stress and communication styles, but frankly, it scared me. I felt like I was getting sucked into a vortex where lewy was the language and the hallucinations were worthy of acknowledgement. It was weird, and there was a real sense of relief when she had moved out, because I wasn't 24/7 on her wavelength, and lost on the lewy ride. I think, of all the difficulties associated with caregiving, this one bothered me the most. I was really concerned about not being able to " get back " . Any one else experience this, or am I really weird???!!! Leigh > Hello All, > > I have been having a hard few days. I know most of it has to do with a > wicked head cold that just won't quit and my inability to keep busy and > leave the house - cabin fever setting in. > Anyway, I haven't been able to see mom in over a week and I feel bad > about that but I don't want her or the other folks at the NH to catch > what I've got. I also wish our visits were " deeper " but I'll take what > I can get. I had a big discussion with my best friend about how unreal > it is in the caregiving process when you get to the point where you are > now praying that God remembers to take your parent. She isn't anywhere > near this and I never thought I'd get to this point. Life sure is odd > sometimes. > > On another note, I thought I would share the following. My son came > over yesterday and was asking me for something that belong to him and > for the life of me I couldn't remember where it went. He smiled at me > at said " its ok mom, grandma has Alzheimer's disease and you have > Sometimer's disease " . I thought it was cute and a good new > classification of the memory problems we sometimes have. > > I am sending out strength to everyone cause I know you all are going to > be sending me some too. > Courage > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 I know how you feel. I have been down for about 2 weeks fighting a bug, so I have not been able to visit my father, for fear of passing it on to him. The guilt can be overwhelming at times. I also have Sometimers disease. It is nice to know I am not the only one! Sending you strength and get well wishes! A new classification Hello All, I have been having a hard few days. I know most of it has to do with a wicked head cold that just won't quit and my inability to keep busy and leave the house - cabin fever setting in. Anyway, I haven't been able to see mom in over a week and I feel bad about that but I don't want her or the other folks at the NH to catch what I've got. I also wish our visits were " deeper " but I'll take what I can get. I had a big discussion with my best friend about how unreal it is in the caregiving process when you get to the point where you are now praying that God remembers to take your parent. She isn't anywhere near this and I never thought I'd get to this point. Life sure is odd sometimes. On another note, I thought I would share the following. My son came over yesterday and was asking me for something that belong to him and for the life of me I couldn't remember where it went. He smiled at me at said " its ok mom, grandma has Alzheimer's disease and you have Sometimer's disease " . I thought it was cute and a good new classification of the memory problems we sometimes have. I am sending out strength to everyone cause I know you all are going to be sending me some too. Courage Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 Count me as a member of the " Sometimers Disease " Club too. Jan --- wrote: > I know how you feel. I have been down for about 2 > weeks fighting a bug, so I have not been able to > visit my father, for fear of passing it on to him. > The guilt can be overwhelming at times. > > I also have Sometimers disease. It is nice to know > I am not the only one! > > Sending you strength and get well wishes! > > > A new classification > > > Hello All, > > I have been having a hard few days. I know most > of it has to do with a > wicked head cold that just won't quit and my > inability to keep busy and > leave the house - cabin fever setting in. > Anyway, I haven't been able to see mom in over a > week and I feel bad > about that but I don't want her or the other folks > at the NH to catch > what I've got. I also wish our visits were > " deeper " but I'll take what > I can get. I had a big discussion with my best > friend about how unreal > it is in the caregiving process when you get to > the point where you are > now praying that God remembers to take your > parent. She isn't anywhere > near this and I never thought I'd get to this > point. Life sure is odd > sometimes. > > On another note, I thought I would share the > following. My son came > over yesterday and was asking me for something > that belong to him and > for the life of me I couldn't remember where it > went. He smiled at me > at said " its ok mom, grandma has Alzheimer's > disease and you have > Sometimer's disease " . I thought it was cute and a > good new > classification of the memory problems we sometimes > have. > > I am sending out strength to everyone cause I know > you all are going to > be sending me some too. > Courage > > > > Welcome to LBDcaregivers. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 Courage, I already had a cold and I don't envy you. I am a " Sometimer " also. Love your family creativity. Donna R Do you want to read more about Lewy Body? You can also read the Thistle, the LBD Newsletter. Just click on: http://www.lewybodydementia.org A new classification Hello All, I have been having a hard few days. I know most of it has to do with a wicked head cold that just won't quit and my inability to keep busy and leave the house - cabin fever setting in. Anyway, I haven't been able to see mom in over a week and I feel bad about that but I don't want her or the other folks at the NH to catch what I've got. I also wish our visits were " deeper " but I'll take what I can get. I had a big discussion with my best friend about how unreal it is in the caregiving process when you get to the point where you are now praying that God remembers to take your parent. She isn't anywhere near this and I never thought I'd get to this point. Life sure is odd sometimes. On another note, I thought I would share the following. My son came over yesterday and was asking me for something that belong to him and for the life of me I couldn't remember where it went. He smiled at me at said " its ok mom, grandma has Alzheimer's disease and you have Sometimer's disease " . I thought it was cute and a good new classification of the memory problems we sometimes have. I am sending out strength to everyone cause I know you all are going to be sending me some too. Courage Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 Leigh, After Mom died I could hardly wait to get some rest at night. Yeah, well. It is 3 years later and my nights and days are as messed up or more so than they were when she slept every other night. I guess I just got in the habit and habits are hard to break. Donna R Do you want to read more about Lewy Body? You can also read the Thistle, the LBD Newsletter. Just click on: http://www.lewybodydementia.org Re: A new classification > Hello Courage, I really like that- sometimers disease!We all can relate to that! You know, when Mom was living with me, I had to stop and get on her wavelenght so that I could understand her. After being on her wavelength for any extended period of time, I found it hard to get off it, and back to normal. I chalk it up to stress and communication styles, but frankly, it scared me. I felt like I was getting sucked into a vortex where lewy was the language and the hallucinations were worthy of acknowledgement. It was weird, and there was a real sense of relief when she had moved out, because I wasn't 24/7 on her wavelength, and lost on the lewy ride. I think, of all the difficulties associated with caregiving, this one bothered me the most. I was really concerned about not being able to " get back " . Any one else experience this, or am I really weird???!!! Leigh > Hello All, > > I have been having a hard few days. I know most of it has to do with a > wicked head cold that just won't quit and my inability to keep busy and > leave the house - cabin fever setting in. > Anyway, I haven't been able to see mom in over a week and I feel bad > about that but I don't want her or the other folks at the NH to catch > what I've got. I also wish our visits were " deeper " but I'll take what > I can get. I had a big discussion with my best friend about how unreal > it is in the caregiving process when you get to the point where you are > now praying that God remembers to take your parent. She isn't anywhere > near this and I never thought I'd get to this point. Life sure is odd > sometimes. > > On another note, I thought I would share the following. My son came > over yesterday and was asking me for something that belong to him and > for the life of me I couldn't remember where it went. He smiled at me > at said " its ok mom, grandma has Alzheimer's disease and you have > Sometimer's disease " . I thought it was cute and a good new > classification of the memory problems we sometimes have. > > I am sending out strength to everyone cause I know you all are going to > be sending me some too. > Courage > Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 Okay, here's what happened to me on Tuesday. I left the daycare to go to my car to meet with a parent at her home. She is the personnel chair and we needed to chat. I get to the parking lot and realize that I have left my keys in the daycare. I am driven to the front (because it is closer) by my ECE teacher and a caretaker lets me in to the daycare as I have no keys. I get the keys go to the car and drive to her house. I get out and rush up to the door as I am now late, and I am knocking and knocking and no one is responding. This is weird because I phoned before I left the first time. I look around and see her car is in the driveway... I knock again and then it hits me...I am at the wrong house!!! Thank goodness no one was home. I realize the car is on the wrong side of the driveway and so I go to the right house etc. That night, the same parent arrives to the daycare and is upset with me because her child doesn't have a coat on (it is pretty mild out and the kids like to remove the clothing when they are running around.) My rule is that they must have a coat to put on when outside, but allow them to make their own decisions about whether they are cold or hot etc. Anyway, this parent tells my staff (as I was not outside at the time) that she has already spoken to me about this, and that she wants her son to keep his coat on at all times. I thought all night about this and I have ABSOLUTELY NO RECOLLECTION about this conversation. NADDA. I reassured her that it is now written in the message book and all staff are aware but boy, did this cause me to fret about whether or not I am developing something weird like LBD...now I have the term for it!! Sometimers disease....hahahaha! Courage I hope you feel better soon. Thanks for the laugh. Kath Janet Colello wrote: Count me as a member of the " Sometimers Disease " Club too. Jan --- wrote: > I know how you feel. I have been down for about 2 > weeks fighting a bug, so I have not been able to > visit my father, for fear of passing it on to him. > The guilt can be overwhelming at times. > > I also have Sometimers disease. It is nice to know > I am not the only one! > > Sending you strength and get well wishes! > > > A new classification > > > Hello All, > > I have been having a hard few days. I know most > of it has to do with a > wicked head cold that just won't quit and my > inability to keep busy and > leave the house - cabin fever setting in. > Anyway, I haven't been able to see mom in over a > week and I feel bad > about that but I don't want her or the other folks > at the NH to catch > what I've got. I also wish our visits were > " deeper " but I'll take what > I can get. I had a big discussion with my best > friend about how unreal > it is in the caregiving process when you get to > the point where you are > now praying that God remembers to take your > parent. She isn't anywhere > near this and I never thought I'd get to this > point. Life sure is odd > sometimes. > > On another note, I thought I would share the > following. My son came > over yesterday and was asking me for something > that belong to him and > for the life of me I couldn't remember where it > went. He smiled at me > at said " its ok mom, grandma has Alzheimer's > disease and you have > Sometimer's disease " . I thought it was cute and a > good new > classification of the memory problems we sometimes > have. > > I am sending out strength to everyone cause I know > you all are going to > be sending me some too. > Courage > > > > Welcome to LBDcaregivers. > > > > > > Quote Link to comment Share on other sites More sharing options...
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