Guest guest Posted October 18, 2001 Report Share Posted October 18, 2001 I finally got a doctor to prescribe the biaxin she needs and will give it to her long term. I will keep you posted as to how she is doing. Thanks for listening Kathy Kathy, I'm glad you were able to find someone! I read the whole article for which you sent the link. It was very interesting. Thanks for the information and the link! Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2001 Report Share Posted October 18, 2001 finally got a doctor to prescribe the biaxin she needs and will give it to her long term. I will keep you posted as to how she is doing. please let me know how she gets on Gwen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2001 Report Share Posted October 19, 2001 > I finally got a doctor to prescribe the biaxin she needs and will > give it to her long term. > I will keep you posted as to how she is doing. > > Thanks for listening > Kathy Greetings Kathy, I am so glad that you and your mom have started to see some positive changes. I am also greatful for the information you have provided. I hope that your mom continues to progress in this positve way. Please continue to let us know. Peace, Ed Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2001 Report Share Posted October 20, 2001 Kathy, THANK YOU SO MUCH for sharing this information. I will anxiously look forward io news about your mother. I'm just curious, what type of Lyme Test did they do on her? I've read these things aren't very accurate. I think there are a couple of tests; the ELISA test and the Western Blot test. I've read several accounts online of people who had to be tested several times before it showed Lyme. Although I would think that as long as your mother has been ill (29 years) that if it was Lyme it would definitely show up on a test by now. You might consider trying to find a Lyme Specialist in your area, if there is such a thing. The following are a couple of Lyme links you might look at. http://members.aol.com/webmedic4u/index.htm http://www.angelfire.com/ny2//index.html Once again thanks for giving this small glimmer of hope. I say small because I doubt many doctors are going to jump on the bandwagon and start prescribing antibiotics for MS. Funny how restrained they can be about this sort of thing when they aren't the ones suffering. Please keep us posted. Yappy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2001 Report Share Posted October 20, 2001 .. Of all the stuff I've looked at on the internet I've never heard of anyone using antibiotics to treat MS. Yappy and Kathy, There are some doctors who use antibiotics to treat MS - Dr. Sriram is one of them. There used to be a guy on this List or Karan's Korner, who was on antibiotics for MS. I can't remember the name of his doctor, but he was well known. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2001 Report Share Posted October 20, 2001 Kathy, I really hope you get some attention focused on this. Have you considered contacting Dr. Sriram at Vanderbilt University with your story? Your situation with your mother is a fantastic example. I'm just sorry you have to be in that situation to begin with. You may be right about doctors being aware of this but I'm pretty sure they aren't taking it seriously. Of all the stuff I've looked at on the internet I've never heard of anyone using antibiotics to treat MS. Wouldn't it be something if they discovered it would take something as simple as long term, high level doses of antibiotics to treat it? It would make the so-called experts look pretty silly. I guess I'm a cynic but even if it slapped them in the face they probably would poo-poo it. It's sort of like the article about Dr. Sriram says; somebody wants to make a name for themselves (and big bucks) by finding the cure. I still wish you the best of luck. Yappy __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2001 Report Share Posted October 21, 2001 Kathy, How long is she going to have to take the antibiotics? Thanks for the info about Vanderbilt. What did they tell you when you called them? Do you think you might end up going there to get the Rifampin? I think the idea about Montel is good also. Yappy __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 HELLO, I WAS READING THE E-MAILS ON BIAXIN AND ANTIBIOTICS. I HAVE BEEN GETTING ANTIBIOTICS FOR YEARS BY JUST CALLING MY NEUROLOGIST AND TELLING HIM I AM SICK (SORE THROAT, SINUS, ETC) AND HE PRESCRIBES THEM. JUST BECAUSE HE DOES NOT AGREE WITH WHAT I AM TREATING AND HOW IT MAKES ME FEEL DOES NOT STOP ME FROM GETTING WHAT I NEED. WHAT EVER IT TAKES TO TREAT MY M.S. I DONT LET ANYONE GET IN MY WAY, INCLUDING DOCTORS. TAKE CARE KIM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2001 Report Share Posted December 12, 2001 My Mom has been on Biaxin now for 51 days. She is doing great. She went from doing nothing ... not talking or even knowing what is going on around her to talking... Sentenances now..reading and she is starting to remember things now too. She is beginning to use her hands and arms a little too. We are doing physical therapy for those things. We are also considering speech therapy since it has been about 10 years since she talked. So she is talking but you can't always understand what she is trying to say. She will repeat it however till you figure it out. For those of you who want to see what we are following check out these links http://weeklywire.com/ww/02-14-00/nash_cover.html http://home.earthlink.net/~robert016/ref16-1.htm Its really going well ! I think we will be going public (more public then this) soon. I am really excited about her results. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2001 Report Share Posted December 13, 2001 In mscured@y..., " kat583 " <wiztech@b...> wrote: > My Mom has been on Biaxin now for 51 days. She is doing great. This is fabulous news, I am so happy for you and your Mom. Continue the great work and my prayers are for your Mom's continued improvement. Peace, Ed Quote Link to comment Share on other sites More sharing options...
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