Re: Re: Question

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Tks Stan, I appreciate the advice. She'll have

zithromax in her system for a few more days, but will

take the antifungal for ringworm for 6 weeks. She's

also on a maintenance dose of nizoral twice a week.

I know I have to get her back on the diet. I'll have a

chat with her father.

So many things going on with these kids, it' s such a

maze of information and treatment. I'm soaking it up

as fast as I can. I appreciate everyone's input and

stories.

Vicki

--- Stan Kurtz wrote:

> In my opinion ringworm is both fungal and autoimmune

> related. I see it sometimes when

> we are working on gut issues. I know a child that

> had sypmtoms of ADHD and acute

> agressive flair ups. When they went on antifungals

> and started dietary interventions the

> child had a fantastic recovery and was a lovely

> little child... and then mom said the diet

> was too much of a pain and reintroduced the foods

> shortly before graduating Kindergarten

> and about two weeks later had ringworm on the scalp.

> They stopped in the other day...

> now 8 months later and still off the diet and still

> battling with the ringworm.

>

> I have some other similar stories with happier

> endings when parents take the diet more

> seriously. The problem with ringworm, like many

> bacterial/fungal/autoimmine issues is

> that you do not know what other organs are effected

> (similar to my belief about eczema).

>

> TAKE RINGWORM SERIOUSLY. I would get OFF

> antibiotics, ON antifungals, and ON an SCD

> type diet and take out the IGG reactive foods from a

> IGG Comp 93 (Great Plains, Doctors

> Data, etc).

>

> We have resolved every case of ringworm we've seen

> except for the ones where diet is not

> taken seriously.

>

> - Stan

>

>

> >

> > About 2 months ago we had to treat my daughter for

> > ringworm on her scalp. She was on an antifungal

> for 6

> > weeks (Gris-peg). This week she has it again, and

> we

> > are treating it again, with the same thing.

> >

> > She is on a maintenance dose of Nizoral, 1/2 tab

> twice

> > a week, and I shampoo her hair with Nizoral

> shampoo.

> > She has always had a very dry flaky scalp.

> >

> > I have to tell you, the more I read about all of

> this

> > stuff, I'm amazed, enlightenend and confused.

> >

> > Background info. is 15, has Downs and autism

> and

> > is non-verbal. She was fully vaccinated and had

> > frequent ear infections as a child. I had her on a

> > GFCF diet a few years ago and noticed a big

> decrease

> > in her aggressiveness. We have gradually let her

> have

> > those foods again and she seems to be ok with them

> > now. However, her recent testing did show some

> yeast

> > in the gut. She also has a Gamma Strep of 1+.

> >

> > We started with a DAN! doc about 5 mos ago. We are

> > using CLO, Taurine, GABA, Acetyl-L-Carnitine, 2

> > probiotics, Folapro, SNT and MB12. We just started

> > using the nasal spray in the last 4 days. Also

> TD-DMPS

> > and LDN.

> >

> > Because she has Downs, her progress has been

> slower. I

> > haven't noticed any real difference with the MB12

> > spray. We give it in each nostril, once a day.

> > However, I do think it and the other things we are

> > doing ARE making a difference. She has much better

> > focus and concentration. We have been teaching her

> > sign language for years. We could get her to sign

> back

> > to us, but only when prompted. Now she is signing

> > spontaneously (for about 3 mos). When I go through

> > drills with her, she is whipping out those signs

> > almost as fast as I can turn the cards. She also

> used

> > to have nystagmus, and that has gotten

> dramatically

> > better.

> >

> > When she was about 3, she did have about a 20 word

> > vocabulary. I haven't seen that return, but she is

> > making more vocalizations.

> >

> > She frequently has a fine bumpy rash over her

> skin,

> > which seems to get better when we use antibiotics.

> Go

> > figure.

> >

> > I don't know if she would be a candidate for

> Valtrex

> > or not. Part of my problem is her father. We are

> > divorced and split visitation 50/50. He is not

> > consistent with her treatment. Last week I sent

> over 2

> > syringes of MB12 and they both came back at the

> end of

> > the week. It frustrates me immensely. I am afraid

> even

> > if we did try Valtrex, at the first sign of

> > regression, he would quit.

> >

> > She doesn't have diarhea, but he complains she has

> > frequent constipation. If he would get the CLO

> down

> > her daily, I'm sure that would go away.

> >

> > From this info, is there anything anyone would

> suggest

> > that I should be doing or considering? Besides a

> hit

> > man? LOL

> >

> > Vicki

> >

> >

> >

> >

> > __________________________________

> > Yahoo! Mail - PC Magazine Editors' Choice 2005

> > http://mail.yahoo.com

> >

>

>

>

>

>

__________________________________

Yahoo! Mail - PC Magazine Editors' Choice 2005

http://mail.yahoo.com

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Thanks!StacieSent via BlackBerry by AT&TDate: Sat, 02 Aug 2008 02:04:42 -0000To: <AutismBehaviorProblems >Subject: Re: question It sounds like a visual processing issue to me. My son goes to Dr. Margolis in Arlington Hts. Here is his website. He is very well known in the Chicago area. It takes a few months to get in to see him but well worth the wait. http://www.ledererandmargolis.com/ HTH, > > > I have been noticing something about my son who is 5 and I wanted to > see if anyone has experienced this problem. OK, so if I tell to get his > shoes, he will say he cant find them. I wil go in his room and point them out > to him and say they are right by your bed and point and he still says he > cant find them and then throws a fit and has a meltdown becaues I tell him he > needs to get them to go outside and I am pointing right at them and he says he > does not see them or cant find this. What could that be? It has happened > several times now. Any ideas? > > Stacie B > Aurora IL > > > > > ____________________________________ > Get fantasy football with free live scoring. _Sign up for FanHouse Fantasy > Football today_ > (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020) . > > > > > > > > > > > > > > > ____________________________________ > Get fantasy football with free live scoring. _Sign up for FanHouse Fantasy > Football today_ > (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020) . > > > > > > > > > > > > > > _Messages in this topic _ > (http://groups.yahoo.com/group/AutismBehaviorProblems/message/271;_ylc =X3oDMTM0ZGU1YmtiBF9TAzk3MzU5NzE0BGdycElkAzQxMjU3MjEEZ3Jwc3 > BJZAMxNzA1MDYxNjE2BG1zZ0lkAzE1MTEyBHNlYwNmdHIEc2xrA3Z0cGMEc3RpbWUDMTIx NzQ0MTk0 > NwR0cGNJZAMyNzE-) (17) _Reply (via web post) _ > (http://groups.yahoo.com/group/AutismBehaviorProblems/post;_ylc=X3oDMT JxMTQzNzBrBF9TAzk3MzU5NzE0BGdycElkAzQxM > jU3MjEEZ3Jwc3BJZAMxNzA1MDYxNjE2BG1zZ0lkAzE1MTEyBHNlYwNmdHIEc2xrA3JwbHk Ec3RpbWU > DMTIxNzQ0MTk0Nw--?act=reply & messageNum=15112) | _Start a new topic _ > (http://groups.yahoo.com/group/AutismBehaviorProblems/post;_ylc=X3oDMT JldmdqbnE1BF9TAz > k3MzU5NzE0BGdycElkAzQxMjU3MjEEZ3Jwc3BJZAMxNzA1MDYxNjE2BHNlYwNmdHIEc2xr A250cGME > c3RpbWUDMTIxNzQ0MTk0Nw--) > _Messages_ > (http://groups.yahoo.com/group/AutismBehaviorProblems/messages;_ylc=X3 oDMTJlbWo0ZXRvBF9TAzk3MzU5NzE0BGdycElkAzQxMjU3MjEEZ3Jwc3BJZAMxNzA1MDYx NjE2B > HNlYwNmdHIEc2xrA21zZ3MEc3RpbWUDMTIxNzQ0MTk0Nw--) | _Database_ > (http://groups.yahoo.com/group/AutismBehaviorProblems/database;_ylc=X3 oDMTJjYnJqNnI5BF9TAzk3 > MzU5NzE0BGdycElkAzQxMjU3MjEEZ3Jwc3BJZAMxNzA1MDYxNjE2BHNlYwNmdHIEc2xrA2 RiBHN0aW > 1lAzEyMTc0NDE5NDc-) | _Polls_ > (http://groups.yahoo.com/group/AutismBehaviorProblems/polls;_ylc=X3oDM TJmcTVmYTZjBF9TAzk3MzU5NzE0BGdycElkAzQxMjU3MjEEZ3Jwc3B > JZAMxNzA1MDYxNjE2BHNlYwNmdHIEc2xrA3BvbGxzBHN0aW1lAzEyMTc0NDE5NDc- ) > > > (http://groups.yahoo.com/;_ylc=X3oDMTJkcHFhMzYwBF9TAzk3NDc2NTkwBGdycEl kAzQxMjU3MjEEZ3Jwc3BJZAMxNzA1MDYxNjE2BHNlYwNmdHIEc2xrA2dmcARzdGltZQMxM jE3NDQxOTQ3) > _Change settings via the Web_ > (http://groups.yahoo.com/group/AutismBehaviorProblems/join;_ylc=X3oDMT Jma3Rtc3J1BF9TAzk3NDc2NTkwBGdycElkAzQxMjU3MjEEZ3Jwc3BJZ > AMxNzA1MDYxNjE2BHNlYwNmdHIEc2xrA3N0bmdzBHN0aW1lAzEyMTc0NDE5NDc-) (Yahoo! 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Health > _Asthma Triggers_ > (http://us.ard.yahoo.com/SIG=13rmi76ha/M=493064.12016303.12582636.9706 571/D=grphealth/S=1705061616:NC/Y=YAHOO/EXP=1217449147/L=/B=S8qxB0L > aX.8- /J=1217441947379193/A=5191949/R=0/SIG=12teb63n5/*http://health.yahoo.c om/ > asthma-overview/identifying-asthma-triggers/healthwise-- aa6768.html) > How you can > identify them. > > Meditation and > _Lovingkindness_ > (http://us.ard.yahoo.com/SIG=13rrn40vl/M=493064.12016231.12582634.9706 571/D=grphealth/S=1705061616:NC/Y=YAHOO/EXP=1217449147/L=/B=TMqxB0LaX > .8- /J=1217441947379193/A=5191951/R=0/SIG=11iiaadso/*http://new.groups.yah oo.co > m/giftoflovingkindness) > A Yahoo! Group > to share and learn. > > Real Food Group > _Share recipes_ > (http://us.ard.yahoo.com/SIG=13r5hgt40/M=493064.12016243.13036160.8674 578/D=grphealth/S=1705061616:NC/Y=YAHOO/EXP=1217449147/L=/B=TcqxB0LaX > .8- /J=1217441947379193/A=5379224/R=0/SIG=11gatb1qb/*http://advision.webev ents. > yahoo.com/hellmanns/) > and favorite meals > w/ Real Food lovers. > > > . > > 0.0.0 > > > **************Get fantasy football with free live scoring. Sign up for > FanHouse Fantasy Football today. > (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020) >

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Next time that happens...Point to something else in the room and ask him what it is...go around the room to several things making your way to the shoes. Tell him you'll give him a dime for every correct item he can name. Just see if he's playing a game with you.

Subject: Re: questionTo: AutismBehaviorProblems Date: Friday, August 1, 2008, 3:04 PM

It sounds like a visual processing issue to me. My son goes to Dr. Margolis in Arlington Hts. Here is his website. He is very well known in the Chicago area. It takes a few months to get in to see him but well worth the wait.http://www.lederera ndmargolis. com/HTH,> > > I have been noticing something about my son who is 5 and I wanted to > see if anyone has experienced this problem. OK, so if I tell to get his > shoes, he will say he cant find them. I wil go in his room and point them out > to him and say they are right by your bed and point and he still says he > cant find them and then throws a fit and has a meltdown becaues I tell him he > needs to get them to go outside and I am pointing right at them and he says he >

does not see them or cant find this. What could that be? It has happened > several times now. Any ideas?> > Stacie B> Aurora IL> > > > > ____________ _________ _________ ______> Get fantasy football with free live scoring. _Sign up for FanHouse Fantasy > Football today_ > (http://www.fanhouse .com/fantasyaffa ir?ncid=aolspr00 050000000020) .> > > > > > > > > > > > > > > ____________ _________ _________ ______> Get fantasy football with free live scoring. _Sign up for FanHouse Fantasy > Football today_ > (http://www.fanhouse

..com/fantasyaffa ir?ncid=aolspr00 050000000020) .> > > > > > > > > > > > > > _Messages in this topic _ > (http://groups. yahoo.com/ group/AutismBeha viorProblems/ message/271; _ylc=X3oDMTM0ZGU1YmtiBF 9TAzk3MzU5NzE0BG dycElkAzQxMjU3Mj EEZ3Jwc3> BJZAMxNzA1MDYxNjE2B G1zZ0lkAzE1MTEyB HNlYwNmdHIEc2xrA 3Z0cGMEc3RpbWUDM TIxNzQ0MTk0> NwR0cGNJZAMyNzE- ) (17) _Reply (via web post) _ > (http://groups. yahoo.com/ group/AutismBeha viorProblems/ post;_ylc= X3oDMTJxMTQzNzBrBF9TAzk3M zU5NzE0BGdycElkA zQxM> jU3MjEEZ3Jwc3BJZAMx NzA1MDYxNjE2BG1z Z0lkAzE1MTEyBHNl YwNmdHIEc2xrA3Jw

bHkEc3RpbWU> DMTIxNzQ0MTk0Nw- -?act=reply & messageNum= 15112) | _Start a new topic _ > (http://groups. yahoo.com/ group/AutismBeha viorProblems/ post;_ylc= X3oDMTJldmdqbnE1BF9TAz> k3MzU5NzE0BGdycElkA zQxMjU3MjEEZ3Jwc 3BJZAMxNzA1MDYxN jE2BHNlYwNmdHIEc 2xrA250cGME> c3RpbWUDMTIxNzQ0MTk 0Nw--) > _Messages_ > (http://groups. yahoo.com/ group/AutismBeha viorProblems/ messages; _ylc=X3oDMTJlbWo0ZXRvBF9TA zk3MzU5NzE0BGdyc ElkAzQxMjU3MjEEZ 3Jwc3BJZAMxNzA1M DYxNjE2B> HNlYwNmdHIEc2xrA21z Z3MEc3RpbWUDMTIx NzQ0MTk0Nw- -) | _Database_ > (http://groups. yahoo.com/ group/AutismBeha viorProblems/ database; _ylc=X3oDMTJjYnJqNnI5BF9TA zk3> MzU5NzE0BGdycElkAzQ xMjU3MjEEZ3Jwc3B JZAMxNzA1MDYxNjE 2BHNlYwNmdHIEc2x rA2RiBHN0aW> 1lAzEyMTc0NDE5NDc- ) | _Polls_ > (http://groups. yahoo.com/ group/AutismBeha viorProblems/ polls;_ylc= X3oDMTJmcTVmYTZjBF9TAzk3 MzU5NzE0BGdycElk AzQxMjU3MjEEZ3Jw c3B> JZAMxNzA1MDYxNjE2BH NlYwNmdHIEc2xrA3 BvbGxzBHN0aW1lAz EyMTc0NDE5NDc-) > > > (http://groups. yahoo.com/ ;_ylc=X3oDMTJkcH FhMzYwBF9TAzk3ND c2NTkwBGdycElkAzQxMjU3MjEEZ3Jwc3 BJZAMxNzA1MDYxNj E2BHNlYwNmdHIEc2 xrA2dmcARzdGltZQ MxMjE3NDQxOTQ3) > _Change settings via the Web_ > (http://groups. yahoo.com/ group/AutismBeha viorProblems/ join;_ylc= X3oDMTJma3Rtc3J1BF9TAzk3N Dc2NTkwBGdycElkA zQxMjU3MjEEZ3Jwc 3BJZ> AMxNzA1MDYxNjE2BHNl YwNmdHIEc2xrA3N0 bmdzBHN0aW1lAzEy MTc0NDE5NDc- ) (Yahoo! ID > required) > Change settings via email: _Switch delivery to Daily Digest_ > (mailto:AutismBehaviorProbl ems-digest@ yahoogroups. com?subject=Email Delivery: Digest) | > _Switch format to Traditional_ > (mailto:AutismBehaviorProbl ems-traditional@ yahoogroups. com?subject=Change Delivery Format: Traditional) > _Visit Your Group _ > (http://groups. yahoo.com/ group/AutismBeha viorProblems; _ylc=X3oDMTJkZGQzc3QwBF9TAzk3NDc2NT kwBGdycElkAzQxMj U3MjEEZ3Jwc3BJZA MxNzA1MDYxNjE2> BHNlYwNmdHIEc2xrA2h wZgRzdGltZQMxMjE 3NDQxOTQ3) | _Yahoo! Groups Terms of Use _ > (http://docs. yahoo.com/ info/terms/) | _Unsubscribe _ > (mailto:AutismBehaviorProbl ems-unsubscribe@ yahoogroups. com?subject=) > > > > > Recent Activity> * 2> _New Members_ > (http://groups. yahoo.com/ group/AutismBeha viorProblems/ members;_

ylc=X3oDMTJmZXJxazZ1BF9TAz k3MzU5NzE0BGdycE lkAzQxMjU3MjEEZ3 Jwc3BJZAMxNzA1MD YxNj> E2BHNlYwN2dGwEc2xrA 3ZtYnJzBHN0aW1lA zEyMTc0NDE5NDc- ) > > _Visit Your Group _ > (http://groups. yahoo.com/ group/AutismBeha viorProblems; _ylc=X3o> DMTJlbnVqdDY4BF9TAz k3MzU5NzE0BGdycE lkAzQxMjU3MjEEZ3 Jwc3BJZAMxNzA1MD YxNjE2BHNlYwN2dGwEc2xr A3ZnaHAEc3RpbWUD MTIxNzQ0MTk0Nw- -) > > > Yahoo! Health> _Asthma Triggers_ > (http://us.ard. yahoo.com/ SIG=13rmi76ha/ M=493064. 12016303. 12582636. 9706571/D=grphealth/ S=1705061616: NC/Y=YAHOO/ EXP=1217449147/ L=/B=S8qxB0L> aX.8-/J=1217441947379193 /A=5191949/ R=0/SIG=12teb63n 5/*http://health. yahoo.com/> asthma-overview/ identifying- asthma-triggers/ healthwise- -aa6768.html) > How you can > identify them.> > Meditation and> _Lovingkindness_ > (http://us.ard. yahoo.com/ SIG=13rrn40vl/ M=493064. 12016231. 12582634. 9706571/D=grphealth/ S=1705061616: NC/Y=YAHOO/ EXP=1217449147/ L=/B=TMqxB0LaX> .8-/J=1217441947379193 /A=5191951/ R=0/SIG=11iiaads o/*http://new.groups. yahoo.co> m/giftoflovingkindn ess) > A Yahoo! Group > to share and learn.> > Real Food Group> _Share recipes_ > (http://us.ard.

yahoo.com/ SIG=13r5hgt40/ M=493064. 12016243. 13036160. 8674578/D=grphealth/ S=1705061616: NC/Y=YAHOO/ EXP=1217449147/ L=/B=TcqxB0LaX> .8-/J=1217441947379193 /A=5379224/ R=0/SIG=11gatb1q b/*http://advision. webevents.> yahoo.com/hellmanns /) > and favorite meals > w/ Real Food lovers.> > > .> > 0.0.0> > > ************ **Get fantasy football with free live scoring. Sign up for > FanHouse Fantasy Football today. > (http://www.fanhouse .com/fantasyaffa ir?ncid=aolspr00 050000000020)>

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Very good idea! Thanks?Stacie BAurora ILSent via BlackBerry by AT&TDate: Sat, 2 Aug 2008 09:34:02 -0700 (PDT)To: <AutismBehaviorProblems >Subject: Re: Re: question Next time that happens...Point to something else in the room and ask him what it is...go around the room to several things making your way to the shoes. Tell him you'll give him a dime for every correct item he can name. Just see if he's playing a game with you. From: mrmilik <qtmsoupgmail>Subject: Re: questionTo: AutismBehaviorProblems Date: Friday, August 1, 2008, 3:04 PMIt sounds like a visual processing issue to me. My son goes to Dr. Margolis in Arlington Hts. Here is his website. He is very well known in the Chicago area. It takes a few months to get in to see him but well worth the wait.http://www.lederera ndmargolis. com/HTH,> > > I have been noticing something about my son who is 5 and I wanted to > see if anyone has experienced this problem. OK, so if I tell to get his > shoes, he will say he cant find them. I wil go in his room and point them out > to him and say they are right by your bed and point and he still says he > cant find them and then throws a fit and has a meltdown becaues I tell him he > needs to get them to go outside and I am pointing right at them and he says he > does not see them or cant find this. What could that be? It has happened > several times now. Any ideas?> > Stacie B> Aurora IL> > > > > ____________ _________ _________ ______> Get fantasy football with free live scoring. _Sign up for FanHouse Fantasy > Football today_ > (http://www.fanhouse .com/fantasyaffa ir?ncid=aolspr00 050000000020) .> > > > > > > > > > > > > > > ____________ _________ _________ ______> Get fantasy football with free live scoring. _Sign up for FanHouse Fantasy > Football today_ > (http://www.fanhouse .com/fantasyaffa ir?ncid=aolspr00 050000000020) .> > > > > > > > > > > > > > _Messages in this topic _ > (http://groups. yahoo.com/ group/AutismBeha viorProblems/ message/271; _ylc=X3oDMTM0ZGU1YmtiBF 9TAzk3MzU5NzE0BG dycElkAzQxMjU3Mj EEZ3Jwc3> BJZAMxNzA1MDYxNjE2B G1zZ0lkAzE1MTEyB HNlYwNmdHIEc2xrA 3Z0cGMEc3RpbWUDM TIxNzQ0MTk0> NwR0cGNJZAMyNzE- ) (17) _Reply (via web post) _ > (http://groups. yahoo.com/ group/AutismBeha viorProblems/ post;_ylc= X3oDMTJxMTQzNzBrBF9TAzk3M zU5NzE0BGdycElkA zQxM> jU3MjEEZ3Jwc3BJZAMx NzA1MDYxNjE2BG1z Z0lkAzE1MTEyBHNl YwNmdHIEc2xrA3Jw bHkEc3RpbWU> DMTIxNzQ0MTk0Nw- -?act=reply & messageNum= 15112) | _Start a new topic _ > (http://groups. yahoo.com/ group/AutismBeha viorProblems/ post;_ylc= X3oDMTJldmdqbnE1BF9TAz> k3MzU5NzE0BGdycElkA zQxMjU3MjEEZ3Jwc 3BJZAMxNzA1MDYxN jE2BHNlYwNmdHIEc 2xrA250cGME> c3RpbWUDMTIxNzQ0MTk 0Nw--) > _Messages_ > (http://groups. yahoo.com/ group/AutismBeha viorProblems/ messages; _ylc=X3oDMTJlbWo0ZXRvBF9TA zk3MzU5NzE0BGdyc ElkAzQxMjU3MjEEZ 3Jwc3BJZAMxNzA1M DYxNjE2B> HNlYwNmdHIEc2xrA21z Z3MEc3RpbWUDMTIx NzQ0MTk0Nw- -) | _Database_ > (http://groups. yahoo.com/ group/AutismBeha viorProblems/ database; _ylc=X3oDMTJjYnJqNnI5BF9TA zk3> MzU5NzE0BGdycElkAzQ xMjU3MjEEZ3Jwc3B JZAMxNzA1MDYxNjE 2BHNlYwNmdHIEc2x rA2RiBHN0aW> 1lAzEyMTc0NDE5NDc- ) | _Polls_ > (http://groups. yahoo.com/ group/AutismBeha viorProblems/ polls;_ylc= X3oDMTJmcTVmYTZjBF9TAzk3 MzU5NzE0BGdycElk AzQxMjU3MjEEZ3Jw c3B> JZAMxNzA1MDYxNjE2BH NlYwNmdHIEc2xrA3 BvbGxzBHN0aW1lAz EyMTc0NDE5NDc-) > > > (http://groups. yahoo.com/ ;_ylc=X3oDMTJkcH FhMzYwBF9TAzk3ND c2NTkwBGdycElkAzQxMjU3MjEEZ3Jwc3 BJZAMxNzA1MDYxNj E2BHNlYwNmdHIEc2 xrA2dmcARzdGltZQ MxMjE3NDQxOTQ3) > _Change settings via the Web_ > (http: //groups. yahoo.com/ group/AutismBeha viorProblems/ join;_ylc= X3oDMTJma3Rtc3J1BF9TAzk3N Dc2NTkwBGdycElkA zQxMjU3MjEEZ3Jwc 3BJZ> AMxNzA1MDYxNjE2BHNl YwNmdHIEc2xrA3N0 bmdzBHN0aW1lAzEy MTc0NDE5NDc- ) (Yahoo! 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[Guest guest]

This is not normal. I would

recommend getting a neck collar for andria, so she doesn’t strain her

muscles or hurt her self. Call up the local ortho, or perhaps a

medical supply place. Definitely, inform SLC.

About the cast sores……hmmmm…..Is

it skin breakdown or actual cast pressure sores? If the skin issue is

minimal (not open wounds) I would use the Calendula. If the sores are

open, contact SLC.

I am at the office and available, if you

want to chat.

HTH,

HRH

x1120

From: infantile_scoliosis [mailto:infantile_scoliosis ] On Behalf Of

Sent: Thursday, April 09, 2009

6:43 PM

To: infantile_scoliosis

Subject: Re:

Question

But her head wants to fall backwards, like a newborn,

is this normal? will it wear off?

thanks

>

>

> From: <poulsenjosh@ aol.com>

> Subject: [infantile_scoliosi s] Question

> To: infantile_scoliosis @yahoogroups. com

> Date: Thursday, April 9, 2009, 4:22 PM

>

>

>

>

> has a cast sores any Ideas of what to put on them? Also she is very

flopy, is this normal?

>

> THanks in advance

>

> Josh, and andria

>

[Guest guest]

Oh brother…….. If a

scoliosis surgeon can examine a baby with a cast (for scoli), why cant a

geneticist perform an exam?

My prayers are with your too, Josh.

Wish we could all just get some answers ~and~ a break.

HRH

From: infantile_scoliosis [mailto:infantile_scoliosis ] On Behalf Of

Sent: Thursday, April 09, 2009

8:42 PM

To: infantile_scoliosis

Subject: Re:

Question

The Geneticist here in ALbuquerque told us he could

not test her with a cast on and told us if we want their help to come back with

out the cast. Yes me and my wife are persitened. The lady at shiners temple

told us sorry you have to go to LA, nothing I can do for you, we said ok lets

us talk to your boss, that is how we got the flight. I try to research as much

as I can to find what I can. But right now I am overwhelmed, tired, and worn

out. I am ready for a break. Any way thanks for the prayer, and the help.

Josh

> > >

> > >

> > > From: <poulsenjosh@ aol.com>

> > > Subject: [infantile_scoliosi s] Question

> > > To: infantile_scoliosis @yahoogroups. com

> > > Date: Thursday, April 9, 2009, 4:22 PM

> > >

> > >

> > >

> > >

> > > has a cast sores any Ideas of what to put on them? Also she

is very flopy, is this normal?

> > >

> > > THanks in advance

> > >

> > > Josh, and andria

> > >

> >

>

[Guest guest]

When we were in SLC and they asked us to take Keira to a geneticist, they also told us that he/she most likely wouldn't exam her with a cast on. The theory being they needed to see all the skin. Again, this was the theory!!LizSubject: RE: Re: QuestionTo: infantile_scoliosis Date: Friday, April 10, 2009, 7:40 AM

Oh brother…….. If a

scoliosis surgeon can examine a baby with a cast (for scoli), why cant a

geneticist perform an exam?

My prayers are with your too, Josh.

Wish we could all just get some answers ~and~ a break.

HRH

From: infantile_scoliosis @yahoogroups. com [mailto:infantile_ scoliosis@ yahoogroups. com] On Behalf Of

Sent: Thursday, April 09, 2009

8:42 PM

To: infantile_scoliosis @yahoogroups. com

Subject: [infantile_scoliosi s] Re:

Question

The Geneticist here in ALbuquerque told us he could

not test her with a cast on and told us if we want their help to come back with

out the cast. Yes me and my wife are persitened. The lady at shiners temple

told us sorry you have to go to LA, nothing I can do for you, we said ok lets

us talk to your boss, that is how we got the flight. I try to research as much

as I can to find what I can. But right now I am overwhelmed, tired, and worn

out. I am ready for a break. Any way thanks for the prayer, and the help.

Josh

> > >

> > >

> > > From: <poulsenjosh@ aol.com>

> > > Subject: [infantile_scoliosi s] Question

> > > To: infantile_scoliosis @yahoogroups. com

> > > Date: Thursday, April 9, 2009, 4:22 PM

> > >

> > >

> > >

> > >

> > > has a cast sores any Ideas of what to put on them? Also she

is very flopy, is this normal?

> > >

> > > THanks in advance

> > >

> > > Josh, and andria

> > >

> >

>

[Guest guest]

It sounds like the walker has helped. I might mention it to my PT and OT and see what they think for when Peyton gets older. Did you find your daughter to be extremely fussy due to her limited mobility? And, how did you cope with having to be "hands on" when your daughter is awake. I find that with Peyton when he is up from his naps we have to be with him and hold him up (when sitting) or carry him around etc otherwise he will just scream and appear very uncomfortable.

Lynn

Subject: Re: QuestionTo: infantile_scoliosis Received: Wednesday, June 17, 2009, 7:34 AM

ANy thing is alot of help when you are trying to find out what is wrong. My daughter was not weight bearing either. But the PT, OT, and Development have helped her. One of the biggest things that has helped her start to weight bear is a walker. Most of the time the PT says she dose not recommend this to her clients, but with the cast needed freedoom and some movment. So it has given her both, but a walker is not meant as a long term solution, and she is wearing hers out. Almost abel to step out of it. Any way thanks for the help,Josh > > > From: <poulsenjosh@ ...>> Subject: [infantile_scoliosi s] Question> To: infantile_scoliosis @yahoogroups. com> Received: Tuesday, June 16, 2009, 12:49 PM> > > > > > > > > My

daughter andria, is realy doing well with her cast. He has shot up, 36 inchs tall. But I am woried. Alot of people I have read in this group with the cast can sit on their own, walk, and even crawl. My daughter still cant walk on her own with out a walker, cant sit up by her self with the cast, and dose not crawl. She is 20 months, and from what I hear she should do this. SHe not even really talking yet. Has any one had a similar problem? > > Any way head back July 14th, for third cast, getting cast taken off her in Albuquerque on the 9th. Cant wait to see her back. ANy way talk to every one soon. > > God Bless > > Josh> > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _> The new Internet Explorer® 8 - Faster, safer, easier.

Optimized for Yahoo! Get it Now for Free! at http://downloads. yahoo.com/ ca/internetexplo rer/>

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[Guest guest]

Hi

You mentioned that you have been to a geneticist with Noelle, we are due to go see one in August and don't really know what to expect. Can you give me a little info. on what excatly they do or are looking for. Should I be prepared for some scary news???

Lynn

From: <poulsenjosh@ aol.com>Subject: [infantile_scoliosi s] Re: QuestionTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, June 17, 2009, 4:31 AM

Been going to PT and seeing doc, all feel that she is behind on her milestones. No one knows why. The thing that really confuses us is that with out her cast she can crawl, try to due transitions, but with it, it is like she regress and forgets what she learned. I am just tired. I want her to walk to try to point, to reach her milestones. It is hard when every one tells you your baby is behinde the curve. Thanks for all the information,Josh> > > From: <poulsenjosh@ ...>> Subject: [infantile_scoliosi s] Question> To: infantile_scoliosis @yahoogroups. com> Date: Tuesday, June 16, 2009, 7:49 PM> > > > > > > > > My daughter

andria, is realy doing well with her cast. He has shot up, 36 inchs tall. But I am woried. Alot of people I have read in this group with the cast can sit on their own, walk, and even crawl. My daughter still cant walk on her own with out a walker, cant sit up by her self with the cast, and dose not crawl. She is 20 months, and from what I hear she should do this. SHe not even really talking yet. Has any one had a similar problem? > > Any way head back July 14th, for third cast, getting cast taken off her in Albuquerque on the 9th. Cant wait to see her back. ANy way talk to every one soon. > > God Bless > > Josh>

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[Guest guest]

It can bring relief as well.... - Noelle's mommy, 2 1/2 years old and in 7th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

From: <poulsenjosh@ aol.com>Subject: [infantile_scoliosi s] Re: QuestionTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, June 17, 2009, 4:31 AM

Been going to PT and seeing doc, all feel that she is behind on her milestones. No one knows why. The thing that really confuses us is that with out her cast she can crawl, try to due transitions, but with it, it is like she regress and forgets what she learned. I am just tired. I want her to walk to try to point, to reach her milestones. It is hard when every one tells you your baby is behinde the curve. Thanks for all the information,Josh> > > From: <poulsenjosh@ ...>> Subject: [infantile_scoliosi s] Question> To: infantile_scoliosis @yahoogroups. com> Date: Tuesday, June 16, 2009, 7:49 PM> > > > > > > > > My daughter

andria, is realy doing well with her cast. He has shot up, 36 inchs tall. But I am woried. Alot of people I have read in this group with the cast can sit on their own, walk, and even crawl. My daughter still cant walk on her own with out a walker, cant sit up by her self with the cast, and dose not crawl. She is 20 months, and from what I hear she should do this. SHe not even really talking yet. Has any one had a similar problem? > > Any way head back July 14th, for third cast, getting cast taken off her in Albuquerque on the 9th. Cant wait to see her back. ANy way talk to every one soon. > > God Bless > > Josh>

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