A proposition for you all.

[Guest guest]

I know that there once was a soft sound sensitivity website-- I am

proposing that we get one back up. I am very talented in webdesign and

all the workings of maintaining a website, as I've had a few of my own

in the past to display my artwork. If most of us donated a dollar,

that would be enough for a year of hosting, and if not, I would gladly

pay the rest out of my own pocket.

I'm thinking...

- we could compile an extensive survey for suffers to complete, and

with the results we would have statistics and graphs and comparisons

more organized than throwing them together in these messages.

- we could have written accounts from suffers like ourselves for

people to read and feel that they are not alone.

- we could advertise gatherings in several parts of the US and beyond

for us to get together and talk (suffers of SSSS and they're loved

ones that are trying to learn)

- a lot of people say that they give this website to their husbands

and wives and family to read through the messages to try to

understand--- a website would be a more organized way of them doing that.

- links and information for Marsha's treatment possibilities

- more ideas are welcomed of course.

Everyone lately is trying to think of a way to get this out there, I

think a website like this would be the first big step. We all found

this one, so many more could likely stumble upon that one and find

relief. I think of it as kind of a stepping stone... so when we send

our letters to Oprah (and the like) we have a place for them to look

and find information and accounts of sufferers.

Does anyone else think this a good idea? Let's talk. I'd really really

love to start compliling information to put it all together.

Thanks

Savannah

[Guest guest]

Count me in Savannah. Seems like you have a more organized way of putting

these things together.

Just tell me what to do to help like with $$.

Thanks

Pia

>

>Reply-To: Soundsensitivity

>To: Soundsensitivity

>Subject: A proposition for you all.

>Date: Mon, 01 May 2006 23:37:42 -0000

>

>I know that there once was a soft sound sensitivity website-- I am

>proposing that we get one back up. I am very talented in webdesign and

>all the workings of maintaining a website, as I've had a few of my own

>in the past to display my artwork. If most of us donated a dollar,

>that would be enough for a year of hosting, and if not, I would gladly

>pay the rest out of my own pocket.

>

>I'm thinking...

>

>- we could compile an extensive survey for suffers to complete, and

>with the results we would have statistics and graphs and comparisons

>more organized than throwing them together in these messages.

>

>- we could have written accounts from suffers like ourselves for

>people to read and feel that they are not alone.

>

>- we could advertise gatherings in several parts of the US and beyond

>for us to get together and talk (suffers of SSSS and they're loved

>ones that are trying to learn)

>

>- a lot of people say that they give this website to their husbands

>and wives and family to read through the messages to try to

>understand--- a website would be a more organized way of them doing that.

>

>- links and information for Marsha's treatment possibilities

>

>- more ideas are welcomed of course.

>

>Everyone lately is trying to think of a way to get this out there, I

>think a website like this would be the first big step. We all found

>this one, so many more could likely stumble upon that one and find

>relief. I think of it as kind of a stepping stone... so when we send

>our letters to Oprah (and the like) we have a place for them to look

>and find information and accounts of sufferers.

>

>Does anyone else think this a good idea? Let's talk. I'd really really

>love to start compliling information to put it all together.

>

>Thanks

>

>Savannah

>

>

>

[Guest guest]

Great idea!!

Kathy Howe

A proposition for you all.

I know that there once was a soft sound sensitivity website-- I am

proposing that we get one back up. I am very talented in webdesign and

all the workings of maintaining a website, as I've had a few of my own

in the past to display my artwork. If most of us donated a dollar,

that would be enough for a year of hosting, and if not, I would gladly

pay the rest out of my own pocket.

I'm thinking...

- we could compile an extensive survey for suffers to complete, and

with the results we would have statistics and graphs and comparisons

more organized than throwing them together in these messages.

- we could have written accounts from suffers like ourselves for

people to read and feel that they are not alone.

- we could advertise gatherings in several parts of the US and beyond

for us to get together and talk (suffers of SSSS and they're loved

ones that are trying to learn)

- a lot of people say that they give this website to their husbands

and wives and family to read through the messages to try to

understand--- a website would be a more organized way of them doing that.

- links and information for Marsha's treatment possibilities

- more ideas are welcomed of course.

Everyone lately is trying to think of a way to get this out there, I

think a website like this would be the first big step. We all found

this one, so many more could likely stumble upon that one and find

relief. I think of it as kind of a stepping stone... so when we send

our letters to Oprah (and the like) we have a place for them to look

and find information and accounts of sufferers.

Does anyone else think this a good idea? Let's talk. I'd really really

love to start compliling information to put it all together.

Thanks

Savannah