Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 Then a year and a half ago I discovered the MP, and just finished a web page on it: http://web.mit.edu/london/www/universe.htmlWow! It will take me a while to digest this, but it looks like many of us could learn something useful from it.- Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 I am reviewing this document. The first few sentences caught my eye saying avoiding all forms of Vitamin D. As a woman diagnosed with MS, I didn’t understand avoidance of vitamin D anyway will continue to review this but wondered about that specifically From: infections [mailto:infections ] On Behalf Of Kate Sent: Sunday, May 28, 2006 8:50 PM infections Subject: Re: [infections] Fwd: My web pages on Recuperat-ion, MP, & guaifenesin. Then a year and a half ago I discovered the MP, and just finished a web page on it: http://web.mit.edu/london/www/universe.html Wow! It will take me a while to digest this, but it looks like many of us could learn something useful from it. - Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 My cousin has MS and the first thing he started doing religiously was adding in HUGE amounts of vitamin D and that hasn't helped squat for him.I think inflammtion affects D levels and using bandaid measures trying to add D as opposed to STOPPING OR SLOWING inflammtion is doing things the wrong way IMO>>> > > I am reviewing this document. The first few > sentences caught my eye saying avoiding all forms > of Vitamin D. As a woman diagnosed with MS, I > didn't understand avoidance of vitamin D anyway > will continue to review this but wondered about > that specifically > > > > _____ > > From: infections > [mailto:infections ] > On Behalf Of Kate > Sent: Sunday, May 28, 2006 8:50 PM > infections > Subject: Re: [infections] Fwd: My > web pages on Recuperat-ion, MP, & guaifenesin. > > > > Then a year and a half ago I discovered the MP, > and just finished a > web page on it: > > http://web.mit.edu/london/www/universe.html > > > > Wow! It will take me a while to digest this, but > it looks like many of us could learn something > useful from it. > > > > - Kate > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 I haven't read it all yet myself, but I think Mark is very fair and objective and often gives new insights into things, so I'm looking forward to siitting down and really reading it. I've already found some of the things he says on the Blasi protocol to be really interesting. For instance the idea that sodium reduces Angiotensin II (just like benicar!) and THAT could be why people are getting pain relief from it. I bought some, I think I"ll get more diligent about taking it. It would be nice to substitute benicar with salt. :-) pennyKate <KateDunlay@...> wrote: Then a year and a half ago I discovered the MP, and just finished a web page on it:http://web.mit.edu/london/www/universe.html Wow! It will take me a while to digest this, but it looks like many of us could learn something useful from it. - Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 This is specifically a claim made by the marshall protocol. So far it's been hard to justify it for any group other than perhaps sarcoidosis patients. However, I do know 2 people who say they feel much better avoiding the sun. Whether this is because of vitamin D, I can't say. Personally, I'm thinking that strict avoidance of D that's called for in the official protocol could be harmful. Especially based on all the science to the contrary as well as talking to vitamin D experts who say the D ratio that's used in the protocol is not reliable as a marker of inflammation. pennyjulie levitt <knightshotter@...> wrote: I am reviewing this document. The first few sentences caught my eye saying avoiding all forms of Vitamin D. As a woman diagnosed with MS, I didn’t understand avoidance of vitamin D anyway will continue to review this but wondered about that specifically From: infections [mailto:infections ] On Behalf Of KateSent: Sunday, May 28, 2006 8:50 PMinfections Subject: Re: [infections] Fwd: My web pages on Recuperat-ion, MP, & guaifenesin. Then a year and a half ago I discovered the MP, and just finished a web page on it:http://web.mit.edu/london/www/universe.html Wow! It will take me a while to digest this, but it looks like many of us could learn something useful from it. - Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 I have been majorly impressed with Mark’s work. I’ve been taking Recuperation since November, and it has helped me as much as anything I have done except for taking Zithromax. It definitely adjusts pH levels. For me that could explain why it is helping because it is allowing my body to keep more magnesium and calcium. Some of you may recall that I had severe tendon damage from the quinolones I was given for Lyme disease. Recuperation is the first thing that has even touched the tendon pain. I am also taking magnesium taurinate in high doses and still can get muscle cramps, so Recuperation seems to be the way to go for me. I also have high cortisol levels. Since I started Recup I have felt so much less depressed and anxious – again, according to Mark’s study this would make perfect sense with reduced cortisol levels. a Carnes I haven't read it all yet myself, but I think Mark is very fair and objective and often gives new insights into things, so I'm looking forward to siitting down and really reading it. I've already found some of the things he says on the Blasi protocol to be really interesting. For instance the idea that sodium reduces Angiotensin II (just like benicar!) and THAT could be why people are getting pain relief from it. I bought some, I think I " ll get more diligent about taking it. It would be nice to substitute benicar with salt. :-) penny Kate <KateDunlay@...> wrote: Then a year and a half ago I discovered the MP, and just finished a web page on it: http://web.mit.edu/london/www/universe.html Wow! It will take me a while to digest this, but it looks like many of us could learn something useful from it. - Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 I hope what I am going to write here will be helpful. Take it for what it is worth – scuttlebutt. I know two doctors who are very gung ho about the MP. BUT they do not have their patients avoid sunlight or fish for very long – we are talking six months to year and then not very strict. Also, I think the Benicar at that high dose is very iffy in some cases – it certainly was in mine. So that leaves us back with the choice of antibiotics – not living in caves for YEARS. I do have reason to believe that there are Lyme patients recovering on the MP, but it is not clear to me which part of the treatment is helping them. I tend to think it is the antibiotics. IMO, for what it is worth, avoiding D for 2-4 years is neither healthy or safe. I mean, theoretically if you get the bacteria level down you would be killing yourself to never get any vitamin D. a Carnes This is specifically a claim made by the marshall protocol. So far it's been hard to justify it for any group other than perhaps sarcoidosis patients. However, I do know 2 people who say they feel much better avoiding the sun. Whether this is because of vitamin D, I can't say. Personally, I'm thinking that strict avoidance of D that's called for in the official protocol could be harmful. Especially based on all the science to the contrary as well as talking to vitamin D experts who say the D ratio that's used in the protocol is not reliable as a marker of inflammation. penny julie levitt <knightshotter@...> wrote: I am reviewing this document. The first few sentences caught my eye saying avoiding all forms of Vitamin D. As a woman diagnosed with MS, I didn’t understand avoidance of vitamin D anyway will continue to review this but wondered about that specifically From: infections [mailto:infections ] On Behalf Of Kate Sent: Sunday, May 28, 2006 8:50 PM infections Subject: Re: [infections] Fwd: My web pages on Recuperat-ion, MP, & guaifenesin. Then a year and a half ago I discovered the MP, and just finished a web page on it: http://web.mit.edu/london/www/universe.html Wow! It will take me a while to digest this, but it looks like many of us could learn something useful from it. - Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 a All benicar has done for me and some others is left us with busted arses.I get excited when something clamps inflammation but when it stopped and never worked again(tried several probes on later occasions) I felt the trash heap was all the protocol was good for.I was also not bashfull to try all the other antiogensin drugs in the group to see if there was any inflammation clamping potential after it disappeared on the benicar. I feel like all that group of drugs- the mechanism of action can be beaten by the group of circumstances in the body they are trying to intervene on- also if they got it right they wouldn't keep bringing newer and newer antiogensin drugs into the market. > > I am reviewing this document. The first few sentences caught my eye saying > avoiding all forms of Vitamin D. As a woman diagnosed with MS, I didn't > understand avoidance of vitamin D anyway will continue to review this but > wondered about that specifically > > > > > _____ > > > From: infections > [mailto:infections ] On Behalf Of Kate > Sent: Sunday, May 28, 2006 8:50 PM > infections > Subject: Re: [infections] Fwd: My web pages on Recuperat-ion, > MP, & guaifenesin. > > > > Then a year and a half ago I discovered the MP, and just finished a > web page on it: > > http://web.mit.edu/london/www/universe.html > > > > Wow! It will take me a while to digest this, but it looks like many of us > could learn something useful from it. > > > > - Kate > > _____ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 You know Penny Avapro that is popular here in aus ain't a bad drug. I think our drug testing agency evaluates which drugs actually save lives and do as there supposed to before putting them on the public purse. avapro seems to fit the criteria and is 99 out of 100 scripts written for ARB " S.-My uncle just got so excited with avapro when he was having a hard tiome with all the other options- giving him too many side effects in his trying to reduce blood pressure. So in the case of using an arb for it's intended purpose in healthy folk which I feel strongly overlaps our own scenario's (inflammation), the drug performs well in it's arena. -- In infections , Penny Houle <pennyhoule@...> wrote: > > But Tony, didn't your uncle feel much improved on his ARB? I think it has something to do with the way our disease manifests whether we get results or not. > > I would love if the salt could do the same thing for me that benicar does. I'm going to try getting more serious about that now that I've read Mark London's analysis of the MP as well as the 2 salt protocols that people are raving about. > > But as we've discussed many times, Benicar has been a huge life saver for me. You know I don't tolerate drugs that don't get results, and the fact that I still spend $200 a month on Benicar almost 2 years later must tell you something. > > I've also defied the official protocol by increasing my D intake rather than decreasing it, and I know with certaintly that I feel best IN the sun, not out of it (except when I have a migraine - a symptom which has decreased 5 fold since starting benicar, by the way. I see there's a study on that interesting phenomenon, which Mark cited in his piece). > > As you know, I'm also one of the people who absolutely cannot tolerate minocycline which is the mainstay of the MP. I was so happy to see Mark point out that some people, healthy or not, cannot tolerate this drug. It gives me the horrible symptoms of psuedotumor cerebri, which is a well established side effect of the drug. (I also noticed that Burrascano was not extremely impressed with the drug during his talk at the lyme conference.) > > All in all, I thought Mark put together a very balanced analysis of the mp and all the science out there that either supports or disputes it. And I'm happy to see that he's compiled evidence which may support Benicar's effectiveness, but not necessarily for the reasons stated in the MP. > > He did the same for guaifenisen, which I found amazingly insightful. Reading the official protocol site for gaui, you get a completely different idea about the reasons for using the drug. After reading Mark's elegant, yet simply stated analysis of the drug, I now realize that it's an analgesic, a muscle relaxer, and a blood thinner, derived from tree bark, and has been used for centuries for these purposes. Makes way more sense to me now, why some people benefit from it, and why it can be tolerated for long term with no side effects. > > penny > > > > dumbaussie2000 <dumbaussie2000@...> wrote: > a > All benicar has done for me and some others is left us with busted > arses.I get excited when something clamps inflammation but when it > stopped and never worked again(tried several probes on later > occasions) I felt the trash heap was all the protocol was good for.I > was also not bashfull to try all the other antiogensin drugs in the > group to see if there was any inflammation clamping potential after > it disappeared on the benicar. I feel like all that group of drugs- > the mechanism of action can be beaten by the group of circumstances > in the body they are trying to intervene on- also if they got it > right they wouldn't keep bringing newer and newer antiogensin drugs > into the market. > > > > > > > > > > I am reviewing this document. The first few sentences caught my > eye saying > > avoiding all forms of Vitamin D. As a woman diagnosed with MS, I > didn't > > understand avoidance of vitamin D anyway will continue to review > this but > > wondered about that specifically > > > > > > > > > > _____ > > > > > > From: infections > > [mailto:infections ] On Behalf Of > Kate > > Sent: Sunday, May 28, 2006 8:50 PM > > infections > > Subject: Re: [infections] Fwd: My web pages on > Recuperat-ion, > > MP, & guaifenesin. > > > > > > > > Then a year and a half ago I discovered the MP, and just finished > a > > web page on it: > > > > http://web.mit.edu/london/www/universe.html > > > > > > > > Wow! It will take me a while to digest this, but it looks like > many of us > > could learn something useful from it. > > > > > > > > - Kate > > > > _____ > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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