RE: how do I handle the am I still allergic to that antibiotic issue?

[Guest guest]

I had severe hives and rash with the last

time times I took cipro and levaquin about a year ago. The hives and rash were

later believed to be part of the chronic shingles problem I have had now for

past 2 years. I am considering asking doc to put me back on levaquin trial

tomorrow vs hospital admission. My peakflows are not very good, below red zone

but rise quickly when I do a breathing treatment. I have a whole slew of

antibiotics which I reacted to at a time that I was reacting to every food on

the planet and so on. And I wonder if now I might not be allergic to them….this

is frustrating. The MSRA recent results showed very few antibiotics that showed

susceptible to my recent MSRA tests.

From:

infections

[mailto:infections ] On Behalf Of julie levitt

Sent: Thursday, May 11, 2006 9:23

AM

infections

Subject: RE:

[infections] could Bactroban be put in a nebulizer

Cipro and levaquin used to be my

mainstays. I am now very allergic to them…..You can see why I am having

trouble. A concern I have is that some of the antibiotics labeled as

allergic may not be so but may have been taken and discarded at times of

extreme inflammation and MCS stuff going on and may not be true allergies but

certainly I have been on cipro many times. For years, it was the only thing I

could take….

From:

infections [mailto:infections ]

On Behalf Of Colourbleu

Sent: Thursday, May 11, 2006 2:35

AM

To:

infections

Subject: Re:

[infections] could Bactroban be put in a nebulizer

have you ever tried

Cipro?

bleu

On 10 May 2006, at 22:48, julie levitt wrote:

I just

left the docs a few hours ago and they demanded I go in the hospital (I

refused) stating I have a lung infection and am allergic to any oral

antibiotics etc etc. I am currently on bactroban irrigation and she thinks I

may have aspirated this into my lungs. My peak flows are bad, about 100 way

worse than red zone. Can I put bactroban in the nebulizer versus this albuterol

or on top of?

From:

infections [mailto:infections ]

On Behalf Of julie

levitt

Sent:

Wednesday, May 10, 2006 4:02 PM

To:

jkemail2004-opps@...; infections

Subject:

RE: [infections] MSRA positive, opportunitistic pathogens,

I

am MSRA positive consistently in every culture taken for past 4 years including

c-sec incision, numerous central lines and other incisions for example to

repair a pneumothorax and in nasal, eye, and respiratory cultures. I am

resistant to most every antibiotic now. At this moment, I am now starting my 7

th

week

on Bactrobahn nasal irrigation to clear some of this.

At

my last hospitalization due to gram negative staph and other infection of my

inborne catheter removed during my hospital stay, I was given vancomycin for

5 days. I still test gram negative and doctors simply don’t care. I

will spike a fever of 102-103 every 2 weeks or so, start coughing up putrid

color stuff and then fever dies down and I at least on the surface appear to be

better. Infectious disease docs seem unconcerned except to label my room when I

am hospitalized due to exacerbations of diagnosed multiple sclerosis and so

forth.

I

saw your post and I am allergic to penicillin not to mention my staph cultures

demonstrate being resistant to penicillin, methicillin and others. I am also

diagnosed with fibromyalgia and an unusual autoimmune disorder known as

Behcet’s which is believed to have turned into Neuro-Behcet’s along

with the progressive relapsing form of Multiple Sclerosis. I believe this all

stems from viral and inflammatory problems which began in my childhood.

I

assume I acquired the MRSA during my c-section in 2001 but I do not known

exactly. It was not mentioned until that time.

From:

infections [mailto:infections ]

On Behalf Of dumbaussie2000

Sent:

Wednesday, May 10, 2006 2:45 AM

To:

infections

Subject:

[infections] Re: asks for help

?

KAte

Pseudonomads

is a gram negative that's highly resistant and almost

alway's

culturable in the autoimmune groups.I like the idea of

getting

into darkfioeld and looking at your blood if you wanna go

the

serious route of lyme diagnosis and treatment, BUT don't be

surprised

that if your blood is no longer swirming you still maybe

sick

to the OPPURTUNISTIC PATHOGENS that bought there time to get

there

pound of your flesh.

rest

snipped to cut length

[Guest guest]

I was treated with diflucan about 8 months

ago for a few days based on a pap smear and culture. My GI testing showed no

fungal issues or yeast. I agree with you re allergies and abx but scary because

I am anaphylactic reactive to certain antibx and others cause severe asthma and

so it is scary to “try again” just to see what happens…..I am very reactive around

swimming pools, feels like lungs are closing up and on fire and I no longer

swim but at one time decades ago did all the time.

You asked if I had done any antifungal

first…..and that was my answer…..Is there a reason to be concerned about trying

amphotercine B and/or Lamisil. Are these in a specific family I might have

reacted to. I will discuss these with my natural minded neuro and natural

minded ENT who I see respectively in the next 10 day assuming I can stay out of

the hospital…..but you are suggesting to then go back on cipro after that…..ok….

From: infections [mailto:infections ] On Behalf Of Colourbleu

Sent: Thursday, May 11, 2006 1:48

PM

infections

Subject: Re:

[infections] how do I handle the " am I still allergic to

that antibiotic issue? "

Im skeptical of the

allergy, in the true sense of the word and suspect that you might have a fungal

issue that is worsened by the abx. Thus the sympoms of allergy. This is what I

have found myself. I have had MCS myself too and when I took cipro this was one

of the tools that helped me clear this up. I remember being so bad that going

swimming in a pool with clorine really upset me. I had a nasty rash, and I used

to go before all the time.

I also found something that you might find interesting with abx. If you use an

abx for too long it seems to loose its ground against the bacteria, they get

clever. So you stop and think that one is no good anymore. Actually what I have

found is if you leave it 6 months (not sure on the actual time frame) and then

use the same abx again, they work again. It seems the bacteria revert to

another state, thus become susceptible again.

I would ask if you had done any anti fungal, and consider this as a probe to

see if this might be what is causing your sensitivities. It could well be In my

experience.

In your boat this is what I think I would try, an antifungal first, I am

getting great results with amphotercine B, (oral) and Lamisil. I would then see

how that settled and then try adding the cipro back, this is in a perfect world

where you have all the time to play.

Hope this helps.

Be careful of assumptions such as allergy, and abx not working, this is all

like shifting sands and we can jump to the wrong conclusion without the

necessary history and experience.

bleu

On 11 May 2006, at 15:34, julie levitt wrote:

I

had severe hives and rash with the last time times I took cipro and levaquin

about a year ago. The hives and rash were later believed to be part of the

chronic shingles problem I have had now for past 2 years. I am considering

asking doc to put me back on levaquin trial tomorrow vs hospital admission. My

peakflows are not very good, below red zone but rise quickly when I do a

breathing treatment. I have a whole slew of antibiotics which I reacted to at a

time that I was reacting to every food on the planet and so on. And I wonder if

now I might not be allergic to them….this is frustrating. The MSRA recent

results showed very few antibiotics that showed susceptible to my recent MSRA

tests.

From:

infections

[mailto:infections ]

On Behalf Of julie

levitt

Sent:

Thursday, May 11, 2006 9:23 AM

To:

infections

Subject:

RE: [infections] could Bactroban be put in a nebulizer

Cipro

and levaquin used to be my mainstays. I am now very allergic to them…..You can

see why I am having trouble. A concern I have is that some of the

antibiotics labeled as allergic may not be so but may have been taken and

discarded at times of extreme inflammation and MCS stuff going on and may not

be true allergies but certainly I have been on cipro many times. For years, it

was the only thing I could take….

From:

infections

[mailto:infections ]

On Behalf Of Colourbleu

Sent:

Thursday, May 11, 2006 2:35 AM

To:

infections

Subject:

Re: [infections] could Bactroban be put in a nebulizer

have you ever tried

Cipro?

bleu

On

10 May 2006, at 22:48, julie levitt wrote:

I just left the docs a

few hours ago and they demanded I go in the hospital (I refused) stating

I have a lung infection and am allergic to any oral antibiotics etc etc. I am

currently on bactroban irrigation and she thinks I may have aspirated this into

my lungs. My peak flows are bad, about 100 way worse than red zone. Can I put

bactroban in the nebulizer versus this albuterol or on top of?

From:infections

[mailto:infections ]

On Behalf Of julie levitt

Sent:Wednesday,

May 10, 2006 4:02 PM

To:jkemail2004-opps@...;

infections

Subject:RE:

[infections] MSRA positive, opportunitistic pathogens,

I

am MSRA positive consistently in every culture taken for past 4 years including

c-sec incision, numerous central lines and other incisions for example to

repair a pneumothorax and in nasal, eye, and respiratory cultures. I am

resistant to most every antibiotic now. At this moment, I am now starting my 7

th

week

on Bactrobahn nasal irrigation to clear some of this.

At

my last hospitalization due to gram negative staph and other infection of my

inborne catheter removed during my hospital stay, I was given vancomycin for

5 days. I still test gram negative and doctors simply don’t care. I will

spike a fever of 102-103 every 2 weeks or so, start coughing up putrid color

stuff and then fever dies down and I at least on the surface appear to be

better. Infectious disease docs seem unconcerned except to label my room when I

am hospitalized due to exacerbations of diagnosed multiple sclerosis and so

forth.

I

saw your post and I am allergic to penicillin not to mention my staph cultures

demonstrate being resistant to penicillin, methicillin and others. I am also

diagnosed with fibromyalgia and an unusual autoimmune disorder known as

Behcet’s which is believed to have turned into Neuro-Behcet’s along with the

progressive relapsing form of Multiple Sclerosis. I believe this all stems from

viral and inflammatory problems which began in my childhood.

I

assume I acquired the MRSA during my c-section in 2001 but I do not known

exactly. It was not mentioned until that time.

From:infections

[mailto:infections ]

On Behalf Of dumbaussie2000

Sent:Wednesday,

May 10, 2006 2:45 AM

To:infections

Subject:[infections]

Re: asks for help

?KAte

Pseudonomads

is a gram negative that's highly resistant and almost

alway's

culturable in the autoimmune groups.I like the idea of

getting

into darkfioeld and looking at your blood if you wanna go

the

serious route of lyme diagnosis and treatment, BUT don't be

surprised

that if your blood is no longer swirming you still maybe

sick

to the OPPURTUNISTIC PATHOGENS that bought there time to get

there

pound of your flesh.

rest snipped to cut

length

[Guest guest]

EXCEPT that they can get your cultures to the lab more quickly if you're in the hospital. What kind of lab is your doc using for your tests? Best bet is a hospital lab, not commerical lab like Lab Corp. pennyjulie levitt <knightshotter@...> wrote: Obviously need an RX for this so will take all the info from your emails to my doc I see Tues and I still say no hospital admission for me. I don’t see any of them treating me properly this time either…. From: infections [mailto:infections ] On Behalf Of ColourbleuSent: Thursday, May 11, 2006 2:13 PMinfections Subject: Re: [infections] how do I handle the "am I still allergic to that antibiotic issue?" I think amb b and lamisil are not too expensive, nothing to loose from a trial. I dont see these like the abx, they seem very mild in comparasion. No big shocks like when you first take an abx. not for me at least.Im sure amp b should not be too hard to get. its like dirt cheap. 5€ a bottle here, lasts about 3 days.On 11 May 2006, at 20:05, julie levitt wrote: You said Sounds like this could be a fungal problem, the more you say. Still agree….who will treat me?????now? why didn’t fungus grow out in cultures that were positive for MRSA….and plain old staph?? From: infections [mailto:infections ] On Behalf Of julie levittSent: Thursday, May 11, 2006 1:56 PMinfections Subject: RE: [infections] how do I handle the "am I still allergic to that antibiotic issue?" I was treated with diflucan about 8 months ago for a few days based on a pap smear and culture. My GI testing showed no fungal issues or yeast. I agree with you re allergies and abx but scary because I am anaphylactic reactive to certain antibx and others cause severe asthma and so it is scary to “try again†just to see what happens…..I am very reactive around

swimming pools, feels like lungs are closing up and on fire and I no longer swim but at one time decades ago did all the time. You asked if I had done any antifungal first…..and that was my answer…..Is there a reason to be concerned about trying amphotercine B and/or Lamisil. Are these in a specific family I might have reacted to. I will discuss these with my natural minded neuro and natural minded ENT who I see respectively in the next 10 day assuming I can stay out of the hospital…..but you are suggesting to then go back on cipro after that…..ok…. From: infections [mailto:infections ] On Behalf Of ColourbleuSent: Thursday, May 11, 2006 1:48

PMinfections Subject: Re: [infections] how do I handle the "am I still allergic to that antibiotic issue?" Im skeptical of the allergy, in the true sense of the word and suspect that you might have a fungal issue that is worsened by the abx. Thus the sympoms of allergy. This is what I have found myself. I have

had MCS myself too and when I took cipro this was one of the tools that helped me clear this up. I remember being so bad that going swimming in a pool with clorine really upset me. I had a nasty rash, and I used to go before all the time. I also found something that you might find interesting with abx. If you use an abx for too long it seems to loose its ground against the bacteria, they get clever. So you stop and think that one is no good anymore. Actually what I have found is if you leave it 6 months (not sure on the actual time frame) and then use the same abx again, they work again. It seems the bacteria revert to another state, thus become susceptible again.I would ask if you had done any anti fungal, and consider this as a probe to see if this might be what is causing your

sensitivities. It could well be In my experience.In your boat this is what I think I would try, an antifungal first, I am getting great results with amphotercine B, (oral) and Lamisil. I would then see how that settled and then try adding the cipro back, this is in a perfect world where you have all the time to play. Hope this helps.Be careful of assumptions such as allergy, and abx not working, this is all like shifting sands and we can jump to the wrong conclusion without the necessary history and experience.bleuOn 11 May 2006, at 15:34, julie levitt wrote:I had severe hives and rash with the last time times I took cipro and levaquin about a year ago. The hives and rash were later believed to be part of the chronic shingles problem I have had now for past 2 years. I am considering asking doc to put me back on levaquin trial tomorrow vs hospital admission. My peakflows are not very good, below red zone but rise quickly when I do a breathing treatment. I have a whole slew of antibiotics which I reacted to at a time that I was reacting to every food on the planet and so on. And I wonder if now I might not be allergic to them….this is frustrating. The MSRA recent results showed very few antibiotics that showed susceptible to my recent MSRA tests. From:infections [mailto:infections ] On Behalf Of julie levittSent:Thursday, May 11, 2006 9:23 AMTo:infections Subject:RE: [infections] could Bactroban be put in a nebulizer Cipro and levaquin used to be my mainstays. I am now very allergic to them…..You can see why I am having trouble. A concern I have is that some of the antibiotics labeled as allergic may not be so but may have been taken and discarded at times of extreme inflammation and MCS stuff going on and may not be true allergies but certainly I have been on cipro

many times. For years, it was the only thing I could take…. From:infections [mailto:infections ] On Behalf Of ColourbleuSent:Thursday, May 11, 2006 2:35 AMTo:infections Subject:Re: [infections] could Bactroban be put in a nebulizer have you ever tried Cipro?bleuOn 10 May 2006, at

22:48, julie levitt wrote:I just left the docs a few hours ago and they demanded I go in the hospital (I refused) stating I have a lung infection and am allergic to any oral antibiotics etc etc. I am currently on bactroban irrigation and she thinks I may have aspirated this into my lungs. My peak flows are bad, about 100 way worse than red zone. Can I put bactroban in the nebulizer versus this albuterol or on top of? From:infections [mailto:infections ] On Behalf Of julie levittSent:Wednesday, May 10, 2006 4:02 PMTo:jkemail2004-opps@...; infections Subject:RE: [infections] MSRA positive, opportunitistic pathogens, I am MSRA positive consistently in every culture taken for past 4 years including c-sec incision, numerous central lines and other incisions for example to repair a pneumothorax and in nasal, eye, and respiratory cultures. I am resistant to most every antibiotic now. At this moment, I am now starting my 7thweek on

Bactrobahn nasal irrigation to clear some of this. At my last hospitalization due to gram negative staph and other infection of my inborne catheter removed during my hospital stay, I was given vancomycin for 5 days. I still test gram negative and doctors simply don’t care. I will spike a fever of 102-103 every 2 weeks or so, start coughing up putrid color stuff and then fever dies down and I at least on the surface appear to be better. Infectious disease docs seem unconcerned except to label my room when I am hospitalized due to exacerbations of diagnosed multiple sclerosis and so forth. I

saw your post and I am allergic to penicillin not to mention my staph cultures demonstrate being resistant to penicillin, methicillin and others. I am also diagnosed with fibromyalgia and an unusual autoimmune disorder known as Behcet’s which is believed to have turned into Neuro-Behcet’s along with the progressive relapsing form of Multiple Sclerosis. I believe this all stems from viral and inflammatory problems which began in my childhood. I assume I acquired the MRSA during my c-section in 2001 but I do not known exactly. It was not mentioned until that time. From:infections [mailto:infections ] On Behalf Of dumbaussie2000Sent:Wednesday, May 10, 2006 2:45 AMTo:infections Subject:[infections] Re: asks for help ?KAtePseudonomads is a gram negative that's highly resistant and almostalway's culturable in the autoimmune groups.I like the idea ofgetting into

darkfioeld and looking at your blood if you wanna gothe serious route of lyme diagnosis and treatment, BUT don't besurprised that if your blood is no longer swirming you still maybesick to the OPPURTUNISTIC PATHOGENS that bought there time to getthere pound of your flesh.rest snipped to cut length

[Guest guest]

the plain old staph is producing it's own highly effective

antibiotics/fungals that won't allow anything to grow near it.So

looking for fungus in a landscape that's not only highly toxic to

the host but also highly toxic to many other things.

>

> I just left the docs a few hours ago and they

> demanded I go in the hospital (I refused) stating

> I have a lung infection and am allergic to any

> oral antibiotics etc etc. I am currently on

> bactroban irrigation and she thinks I may have

> aspirated this into my lungs. My peak flows are

> bad, about 100 way worse than red zone. Can I put

> bactroban in the nebulizer versus this albuterol

> or on top of?

>

>

>

> From:infections

> [mailto:infections ]

> On Behalf Of julie levitt

> Sent:Wednesday, May 10, 2006 4:02 PM

> To:jkemail2004-opps@...;

> infections

> Subject:RE: [infections] MSRA

> positive, opportunitistic pathogens,

>

>

> I am MSRA positive consistently in every culture

> taken for past 4 years including c-sec incision,

> numerous central lines and other incisions for

> example to repair a pneumothorax and in nasal,

> eye, and respiratory cultures. I am resistant to

> most every antibiotic now. At this moment, I am

> now starting my 7

>

> th

> week on Bactrobahn nasal irrigation to clear some

> of this.

>

> At my last hospitalization due to gram negative

> staph and other infection of my inborne catheter

> removed during my hospital stay, I was given

> vancomycin for 5 days. I still test gram negative

> and doctors simply don't care. I will spike a

> fever of 102-103 every 2 weeks or so, start

> coughing up putrid color stuff and then fever dies

> down and I at least on the surface appear to be

> better. Infectious disease docs seem unconcerned

> except to label my room when I am hospitalized due

> to exacerbations of diagnosed multiple sclerosis

> and so forth.

>

> I saw your post and I am allergic to penicillin

> not to mention my staph cultures demonstrate being

> resistant to penicillin, methicillin and others. I

> am also diagnosed with fibromyalgia and an unusual

> autoimmune disorder known as Behcet's which is

> believed to have turned into Neuro-Behcet's along

> with the progressive relapsing form of Multiple

> Sclerosis. I believe this all stems from viral and

> inflammatory problems which began in my childhood.

>

> I assume I acquired the MRSA during my c-section

> in 2001 but I do not known exactly. It was not

> mentioned until that time.

>

>

> From:infections

> [mailto:infections ]

> On Behalf Of dumbaussie2000

> Sent:Wednesday, May 10, 2006 2:45 AM

> To:infections

> Subject:[infections] Re: asks

> for help

>

> ?KAte

> Pseudonomads is a gram negative that's highly

> resistant and almost

> alway's culturable in the autoimmune groups.I like

> the idea of

> getting into darkfioeld and looking at your blood

> if you wanna go

> the serious route of lyme diagnosis and treatment,

> BUT don't be

> surprised that if your blood is no longer swirming

> you still maybe

> sick to the OPPURTUNISTIC PATHOGENS that bought

> there time to get

> there pound of your flesh.

>

> rest snipped to cut length

>

>

>

>

>

>

>

>

[Guest guest]

Can you elaborate what people with this situation might do. I have antibiotic resistant staph colonizing in my nasal cavity. Resistant to seven antibiotics. My doctor doesn't want to try any other antibiotics.My eyes are also very compromised. In two years after mold exposure no antibiotic drops or steroids will resolve my extremely sore painful eyes. Not sure if the eyes are related to the staph colonization or not. I'm going to a doctor who specializes in his own compounded antifungal spray.Is this only a bandaid for this situation? Do I need to try two antibiotics that aren't resistant plus an oral antifungal to resolve this problem? Again the question is who to go to? Sounds like infectious disease patients want mold patients to go away. Christidumbaussie2000 <dumbaussie2000@...> wrote: the plain old

staph is producing it's own highly effective antibiotics/fungals that won't allow anything to grow near it.So looking for fungus in a landscape that's not only highly toxic to the host but also highly toxic to many other things.> > I just left the docs a few hours ago and they> demanded I go in the hospital (I refused) stating> I have a lung infection and am allergic to any> oral antibiotics etc etc. I am currently on> bactroban irrigation and she thinks I may have> aspirated this into my lungs. My peak flows are> bad, about 100 way worse than red zone. Can I put> bactroban in the nebulizer versus this albuterol> or on top of?> > > > From:infections > [mailto:infections ]> On Behalf Of julie levitt> Sent:Wednesday, May 10, 2006 4:02 PM> To:jkemail2004-opps@...;> infections > Subject:RE: [infections] MSRA> positive, opportunitistic pathogens,> > > I am MSRA

positive consistently in every culture> taken for past 4 years including c-sec incision,> numerous central lines and other incisions for> example to repair a pneumothorax and in nasal,> eye, and respiratory cultures. I am resistant to> most every antibiotic now. At this moment, I am> now starting my 7> > th> week on Bactrobahn nasal irrigation to clear some> of this.> > At my last hospitalization due to gram negative> staph and other infection of my inborne catheter> removed during my hospital stay, I was given> vancomycin for 5 days. I still test gram negative> and doctors simply don't care. I will spike a> fever of 102-103 every 2 weeks or so, start> coughing up putrid color stuff and then fever dies> down and I at least on the surface appear to be> better. Infectious disease docs seem unconcerned> except to label

my room when I am hospitalized due> to exacerbations of diagnosed multiple sclerosis> and so forth.> > I saw your post and I am allergic to penicillin> not to mention my staph cultures demonstrate being> resistant to penicillin, methicillin and others. I> am also diagnosed with fibromyalgia and an unusual> autoimmune disorder known as Behcet's which is> believed to have turned into Neuro-Behcet's along> with the progressive relapsing form of Multiple> Sclerosis. I believe this all stems from viral and> inflammatory problems which began in my childhood.> > I assume I acquired the MRSA during my c-section> in 2001 but I do not known exactly. It was not> mentioned until that time.> > > From:infections > [mailto:infections ]> On Behalf Of

dumbaussie2000> Sent:Wednesday, May 10, 2006 2:45 AM> To:infections > Subject:[infections] Re: asks> for help> > ?KAte> Pseudonomads is a gram negative that's highly> resistant and almost> alway's culturable in the autoimmune groups.I like> the idea of> getting into darkfioeld and looking at your blood> if you wanna go> the serious route of lyme diagnosis and treatment,> BUT don't be> surprised that if your blood is no longer swirming> you still maybe> sick to the OPPURTUNISTIC PATHOGENS that bought> there time to get> there pound of your flesh.> > rest snipped to cut length> > > > > > > >

[Guest guest]

Christi

Over the years we have learned that what is truly going on when you

peel the face back is a disaster. We have heard stories of people

having been cut from ear to ear and everything pulled back and

there's a major interlinking problems so your eyes would definately

tie in IMO .So this compounding stuff is worth a try but MOST PEOPLE

NEITHER CARE OR BASICALLY UNDERAPPRECIATE THE MAGNITUDE OF THE

PROBLEM so it continues to grow and worsen so everything you trial

and error is definately worth while.I like bleu's

lamisil/amphotecerin B approach or possably a nystatin lamisil

combo -may be a lot better- as the nystatin is possably the best and

safest drug ever made IMO, also the action of the ampho B and

nystatin is very similar yet the amphotecerin is a very, very toxic

drug but well worthg a probe if it gives good relief on it's own

definately use it, but if the lamisil is doing the good work and the

ampho isn't, it's a good time to change.

> >

> > I just left the docs a few hours ago and they

> > demanded I go in the hospital (I refused) stating

> > I have a lung infection and am allergic to any

> > oral antibiotics etc etc. I am currently on

> > bactroban irrigation and she thinks I may have

> > aspirated this into my lungs. My peak flows are

> > bad, about 100 way worse than red zone. Can I put

> > bactroban in the nebulizer versus this albuterol

> > or on top of?

> >

> >

> >

> > From:infections

> > [mailto:infections ]

> > On Behalf Of julie levitt

> > Sent:Wednesday, May 10, 2006 4:02 PM

> > To:jkemail2004-opps@;

> > infections

> > Subject:RE: [infections] MSRA

> > positive, opportunitistic pathogens,

> >

> >

> > I am MSRA positive consistently in every culture

> > taken for past 4 years including c-sec incision,

> > numerous central lines and other incisions for

> > example to repair a pneumothorax and in nasal,

> > eye, and respiratory cultures. I am resistant to

> > most every antibiotic now. At this moment, I am

> > now starting my 7

> >

> > th

> > week on Bactrobahn nasal irrigation to clear some

> > of this.

> >

> > At my last hospitalization due to gram negative

> > staph and other infection of my inborne catheter

> > removed during my hospital stay, I was given

> > vancomycin for 5 days. I still test gram negative

> > and doctors simply don't care. I will spike a

> > fever of 102-103 every 2 weeks or so, start

> > coughing up putrid color stuff and then fever dies

> > down and I at least on the surface appear to be

> > better. Infectious disease docs seem unconcerned

> > except to label my room when I am hospitalized due

> > to exacerbations of diagnosed multiple sclerosis

> > and so forth.

> >

> > I saw your post and I am allergic to penicillin

> > not to mention my staph cultures demonstrate being

> > resistant to penicillin, methicillin and others. I

> > am also diagnosed with fibromyalgia and an unusual

> > autoimmune disorder known as Behcet's which is

> > believed to have turned into Neuro-Behcet's along

> > with the progressive relapsing form of Multiple

> > Sclerosis. I believe this all stems from viral and

> > inflammatory problems which began in my childhood.

> >

> > I assume I acquired the MRSA during my c-section

> > in 2001 but I do not known exactly. It was not

> > mentioned until that time.

> >

> >

> > From:infections

> > [mailto:infections ]

> > On Behalf Of dumbaussie2000

> > Sent:Wednesday, May 10, 2006 2:45 AM

> > To:infections

> > Subject:[infections] Re: asks

> > for help

> >

> > ?KAte

> > Pseudonomads is a gram negative that's highly

> > resistant and almost

> > alway's culturable in the autoimmune groups.I like

> > the idea of

> > getting into darkfioeld and looking at your blood

> > if you wanna go

> > the serious route of lyme diagnosis and treatment,

> > BUT don't be

> > surprised that if your blood is no longer swirming

> > you still maybe

> > sick to the OPPURTUNISTIC PATHOGENS that bought

> > there time to get

> > there pound of your flesh.

> >

> > rest snipped to cut length

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

--- dumbaussie2000 <dumbaussie2000@...>

wrote:

Thank you so much for this. I've been to so many

doctors, toxicologist, biotoxin doctors, specialists,

opthomologists and NONE have suggested anti fungals

for a person known to have toxic mold exposure. I find

that crazy! Thousands of dollars later and I'm still

struggling for a solution. Is it because the ampho. B

is so toxic? What are some side effect from the amp.

B? Can my twelve year old try the same combos earlier

posted? He's a mold victim as well. Is Nizoral approx.

the same as nystatin? Thank God for people who have

already pioneered before us and can tell us what lies

ahead and can direct us toward a plausible path for

healing.

Christi

__________________________________________________

[Guest guest]

I've been told that ampho b tablet form is very hard on the kidneys. The kidneys are one thing I'm not keen on messing with. After my surgery, I couldn't empty my bladder, even though I had to go really bad. That's not a good sign for the kidneys, so I'm hesitant to take ampho b. Will the nasal spray work? How about lamisil? Is that also hard on the kidneys? I'm willing to take more risk with my liver since it seems to be holding up okay. pennydumbaussie2000 <dumbaussie2000@...> wrote: ChristiOver the years we have learned that what is truly going on when you peel the face back is a disaster. We have heard stories of people having been cut from ear to ear and everything pulled back and there's a major interlinking problems so your

eyes would definately tie in IMO .So this compounding stuff is worth a try but MOST PEOPLE NEITHER CARE OR BASICALLY UNDERAPPRECIATE THE MAGNITUDE OF THE PROBLEM so it continues to grow and worsen so everything you trial and error is definately worth while.I like bleu's lamisil/amphotecerin B approach or possably a nystatin lamisil combo -may be a lot better- as the nystatin is possably the best and safest drug ever made IMO, also the action of the ampho B and nystatin is very similar yet the amphotecerin is a very, very toxic drug but well worthg a probe if it gives good relief on it's own definately use it, but if the lamisil is doing the good work and the ampho isn't, it's a good time to change.> > > > I just left the docs a few hours ago and they> > demanded I go in the hospital (I refused) stating> > I have a lung infection and am allergic to any> > oral antibiotics etc etc. I am currently on> >

bactroban irrigation and she thinks I may have> > aspirated this into my lungs. My peak flows are> > bad, about 100 way worse than red zone. Can I put> > bactroban in the nebulizer versus this albuterol> > or on top of?> > > > > > > > From:infections > > [mailto:infections ]> > On Behalf Of julie levitt> > Sent:Wednesday, May 10, 2006 4:02 PM> > To:jkemail2004-opps@;> > infections > > Subject:RE: [infections] MSRA> > positive, opportunitistic pathogens,> > > > > > I am MSRA positive consistently in every culture> > taken for past 4 years including c-sec incision,> > numerous central lines and other incisions for> > example to repair a

pneumothorax and in nasal,> > eye, and respiratory cultures. I am resistant to> > most every antibiotic now. At this moment, I am> > now starting my 7> > > > th> > week on Bactrobahn nasal irrigation to clear some> > of this.> > > > At my last hospitalization due to gram negative> > staph and other infection of my inborne catheter> > removed during my hospital stay, I was given> > vancomycin for 5 days. I still test gram negative> > and doctors simply don't care. I will spike a> > fever of 102-103 every 2 weeks or so, start> > coughing up putrid color stuff and then fever dies> > down and I at least on the surface appear to be> > better. Infectious disease docs seem unconcerned> > except to label my room when I am hospitalized due> > to exacerbations of diagnosed multiple

sclerosis> > and so forth.> > > > I saw your post and I am allergic to penicillin> > not to mention my staph cultures demonstrate being> > resistant to penicillin, methicillin and others. I> > am also diagnosed with fibromyalgia and an unusual> > autoimmune disorder known as Behcet's which is> > believed to have turned into Neuro-Behcet's along> > with the progressive relapsing form of Multiple> > Sclerosis. I believe this all stems from viral and> > inflammatory problems which began in my childhood.> > > > I assume I acquired the MRSA during my c-section> > in 2001 but I do not known exactly. It was not> > mentioned until that time.> > > > > > From:infections > > [mailto:infections ]> > On Behalf Of

dumbaussie2000> > Sent:Wednesday, May 10, 2006 2:45 AM> > To:infections > > Subject:[infections] Re: asks> > for help> > > > ?KAte> > Pseudonomads is a gram negative that's highly> > resistant and almost> > alway's culturable in the autoimmune groups.I like> > the idea of> > getting into darkfioeld and looking at your blood> > if you wanna go> > the serious route of lyme diagnosis and treatment,> > BUT don't be> > surprised that if your blood is no longer swirming> > you still maybe> > sick to the OPPURTUNISTIC PATHOGENS that bought> > there time to get> > there pound of your flesh.> > > > rest snipped to cut length> > > > > > > > > > > >

> > > >

[Guest guest]

I have not had so far any problems with amp b (oral) in 5 months. 12

bottles a month.

NONE so far..

On 12 May 2006, at 03:11, Christi Howarth wrote:

> s it because the ampho. B

> is so toxic?

[Guest guest]

Penny, you've been told wrong, Amphotericin B is a very safe drug when taken orally. The kidneys filter the blood ,Amph B doesn't get into the blood , it stays in the gut it is not a systemic drug. Nysatin is the same. Kidney pain associated with the drug could be the toxins released by the drugs action , they certainly will get into the blood ... Lamisil is also considered a very safe drug [i have the stats] obviously monitor your response all times.. But the bottom line is the drugs are not considered to be problematic .. Sprays & other topical treatments for fungi are in my opinion doomed to failure , Fungi " root" they spread by hyphae topical treatments do not reach the hyphea.. Hence the need for a systemic alongside Amph or Nysatin....

[infections] Re: asks> > for help> > > > ?KAte> > Pseudonomads is a gram negative that's highly> > resistant and almost> > alway's culturable in the autoimmune groups.I like> > the idea of> > getting into darkfioeld and looking at your blood> > if you wanna go> > the serious route of lyme diagnosis and treatment,> > BUT don't be> > surprised that if your blood is no longer swirming> > you still maybe> > sick to the OPPURTUNISTIC PATHOGENS that bought> > there time to get> > there pound of your flesh.> > > > rest snipped to cut length> > > > > > > > > > > > > > > >

[Guest guest]

, I just did a google search. Every single site said Amp B can cause kidney damage. It's important that people know this is a listed side effect of the drug. I'm not saying it's not worth taking the risk, but you can't tell people it's not going to hurt your kidneys, if the drug manufacturer plainly says it definitely can. penny Jaep <Jaep@...> wrote: Penny, you've been told wrong, Amphotericin B is a very safe drug when taken orally. The kidneys filter the blood ,Amph B doesn't get into the blood , it stays in the gut it is not a systemic drug. Nysatin is the same. Kidney pain

associated with the drug could be the toxins released by the drugs action , they certainly will get into the blood ... Lamisil is also considered a very safe drug [i have the stats] obviously monitor your response all times.. But the bottom line is the drugs are not considered to be problematic .. Sprays & other topical treatments for fungi are in my opinion doomed to failure , Fungi " root" they spread by hyphae topical treatments do not reach the hyphea.. Hence the need for a systemic alongside Amph or Nysatin.... [infections] Re: asks> > for help> > > > ?KAte> > Pseudonomads is a gram negative that's highly> > resistant and almost> > alway's culturable in the autoimmune groups.I like> > the idea of> > getting into darkfioeld and looking at your blood> > if you wanna go> > the serious route of lyme diagnosis and treatment,> > BUT don't be> > surprised that if your blood is no longer swirming> > you still maybe> > sick to the OPPURTUNISTIC PATHOGENS that bought> > there time to get> > there pound of your flesh.> >

> > rest snipped to cut length> > > > > > > > > > > > > > > >