RE: Re: So what started 4S in us all?

[Guest guest]

Adah--

I do think that 4s is genetic because many people have said that a sister or mother or father also had it. I am so sorry that you had such a sad and abusive childhood. It's probably very hard for you to know what problems you have are physical vs psychological. I think that you were an unfortunate victim of abuse, but also even more unfortunate to also have inherited 4s. My daughter was never abused, and led a happy, healthy life up until a year ago when she got 4s. And it sounds like she got all the same symptoms you got except the esses.

This condition is horrible enough by itself, but I feel horrible for people like you that endured other traumatic life experiences on top of it.

Take care--

Kathy Howe

-----Original Message-----From: Soundsensitivity [mailto:Soundsensitivity ]On Behalf Of adah_123Sent: Thursday, July 20, 2006 12:51 PMTo: Soundsensitivity Subject: Re: So what started 4S in us all?

Hi - I too have done my "why" and "how" searching about this for a long time. I think I have a much different set of circumstances than most people here so it's been easier for me as I always thought my 4S was psychologically based but I do wonder about the majority and then wonder about myself again as we all must fit into the physiological group since not everyone has been through a hell that would cause psychological injury. (Hope I was clear there - sorry for the contorted expression of difficult thought.)I was badly abused for the first 16 years of my life so I always kinda' based myself on a Pavlov's dogs basis. The sounds of breathing, footsteps, screaming, throat clearing, the "esses" when there are large groups talking and no one conversation can be distinguished, silverware, loud bass, any mouth noises at all etc etc . . . well you can pretty much draw the connections. I always figured I was hard-wired by the trauma (stimulus and subsequent response) and can connect specific traumatic events to specific triggers. Traditional psychotherapy (Talk-Therapy) only reduces the sting of the past - it does not address the physical issue: and there IS one.I too find it fascinating that people without trauma would experience rage and anxiety. May I ask if there is terror in the mix for you? How about any sadness? I also always wondered if there is a genetic link - I know the father had 4S because a lot of the beatings were from making mouth noises and from stored up rage - but children are sponges and perhaps I learned it . . . I do agree that it may feel like a bit of autism because of the inability to connect but there is such a broad spectrum with any label, and I do not know what autism feels like!I had all the usual immunizations (I'm 47 yrs old) - 4S onset was at approx 7 yrs old. I had measles twice and chicken pox twice: once each in childhood and once each in my early 20's. Was I underimmunized? Did my body not keep the defenses it supposedly created from the first go-'round? I still have my tonsils. I was chronically anemic as a child but that also has a "real" reason.I really appreciate this discussion and am interested in knowing what we all have in common. Do you remember your childhood?Thank you for being here. -Adah>> Hi> > I have been going round and round trying to fiqure out what started 4S > in me, ive gone from strep throat to defense mechanisms to ADD and > everything in-between.> > So, my latest theory stems back to one that was brought up a while ago.> > Childhood Immunizations, this is already linked to things like Autism > and quite possibly ADD/ADHD but i dont have any proof on that. > > Maybe 4S is a watered down version of something like them, if studies > suggest that some vaccinations in some children can bring on Autism, > then it wouldnt be wrong to say that some vaccinations in some > children would bring on 4S. > > I guess its about changing brain receptors and how they are either > altered permanently by 'Mumps' for example or recover back to normal. > I think i had mumps as a child, maybe the vaccination is as good as > getting mumps from a brain change point of view in some children.> > Anyway i am in no way an expert on vaccinations or what mumps is to be > honest, but thought i would throw it out there.> > It seems like with the strep throat debate, some viruses and diseases > can infiltrate to the brain and alter how it works.> > The majority dont get effected, but some do (Autism, ADD/ADHD, 4S etc) > most probably due to a Vunerable Immune System (Strep Throat can do > that) When i finally had my tonsils out at age 30 the doctor said they > were so infected your immune system would of suffered because it was > constantly keeping your tonsils in check. - (I havent been ill since > they were taken out)> > So is it a vunerable immune system that when you have your > vaccinations or get viruses, diseases in childhood the body lets > things through because it cant cope with the workload.> > And finally just one point if i may on 4S being Physiological v > Psychological (apart from Physiological seems to be easier to spell > for some reason )> > I know Marsha believes it originates from a > Physiological background, but i cant understand how it can be, now > lets not get confused with me saying Psychological as in "Its all in > the mind, just get over it" Thats not what i mean by Psychological, > what i mean is an involuntary reaction that comes from your brain that > you simply can not help and you certainly would rather not have.> > With Physiological you would experience Pain, like in Hypercusis.> With Psychological you would experience Anxiety, Rage, Nervousnes etc> > Marsha wrote this in a very recent post.> "Many times, the 4S patient, for example, does not retain improvement > over longer periods of time, the same triggers still bother them as > opposed to the classic hyperacusic who expands their sound tolerance > fairly rapidly."> > Is that because one is Physiological and 4S Psychological?> > I just dont understand the Physiological argument (Sorry Marsha ) > with 4S.> > Does a person with an OCD get diagnosed with a Physiological illness > because they have to physically clean, count steps, walk between > cracks, lock doors etc?>

[Guest guest]

Thanks, Adah. I will definitely go on the website. We have tried accupressure and dealing with the energy flow. It has worked for other ailments and I believe it's a wonderful, underutilized form of medicine, but it didn't seem to help Becca's SSS.

Thanks so much--

Kathy Howe

So what started 4S in us all?> > > Hi> > I have been going round and round trying to fiqure out what started 4S> in me, ive gone from strep throat to defense mechanisms to ADD and> everything in-between.> > So, my latest theory stems back to one that was brought up a while ago.> > Childhood Immunizations, this is already linked to things like Autism> and quite possibly ADD/ADHD but i dont have any proof on that.> > Maybe 4S is a watered down version of something like them, if studies> suggest that some vaccinations in some children can bring on Autism,> then it wouldnt be wrong to say that some vaccinations in some> children would bring on 4S.> > I guess its about changing brain receptors and how they are either> altered permanently by 'Mumps' for example or recover back to normal.> I think i had mumps as a child, maybe the vaccination is as good as> getting mumps from a brain change point of view in some children.> > Anyway i am in no way an expert on vaccinations or what mumps is to be> honest, but thought i would throw it out there.> > It seems like with the strep throat debate, some viruses and diseases> can infiltrate to the brain and alter how it works.> > The majority dont get effected, but some do (Autism, ADD/ADHD, 4S etc)> most probably due to a Vunerable Immune System (Strep Throat can do> that) When i finally had my tonsils out at age 30 the doctor said they> were so infected your immune system would of suffered because it was> constantly keeping your tonsils in check. - (I havent been ill since> they were taken out)> > So is it a vunerable immune system that when you have your> vaccinations or get viruses, diseases in childhood the body lets> things through because it cant cope with the workload.> > And finally just one point if i may on 4S being Physiological v> Psychological (apart from Physiological seems to be easier to spell> for some reason )> > I know Marsha believes it originates from a> Physiological background, but i cant understand how it can be, now> lets not get confused with me saying Psychological as in "Its all in> the mind, just get over it" Thats not what i mean by Psychological,> what i mean is an involuntary reaction that comes from your brain that> you simply can not help and you certainly would rather not have.> > With Physiological you would experience Pain, like in Hypercusis.> With Psychological you would experience Anxiety, Rage, Nervousnes etc> > Marsha wrote this in a very recent post.> "Many times, the 4S patient, for example, does not retain improvement> over longer periods of time, the same triggers still bother them as> opposed to the classic hyperacusic who expands their sound tolerance> fairly rapidly."> > Is that because one is Physiological and 4S Psychological?> > I just dont understand the Physiological argument (Sorry Marsha )> with 4S.> > Does a person with an OCD get diagnosed with a Physiological illness> because they have to physically clean, count steps, walk between> cracks, lock doors etc?>

[Guest guest]

Adah,

If she's playing at home with her sister she will be "shocked" by a sound that someone makes because she wasn't expecting it--she was just playing and having a good time, but someone might have accidentally lipsmacked or sniffled. That immediately makes her say angrily, "SHHHHH. Gosh, can you stop making noises?!!!" And of course her sister feels bad and frustrated because she didn't mean to, or sometimes doesn't even know what noise she's making that are offensive.

When we're out in public, or she's at school, however, she is constantly alert and aware of all noises, afraid because she knows they are all around her. I don't know how she was able to even learn in class last year.

I feel badly for you and your mom. It must have been hard on her because she didn't have the internet to refer to and find info on SSS. I know that before I knew what it was, I got irritated with Becca for being so grumpy and annoyed by "silly chewing sounds." When I read for the first time that it's a condition, I remember sobbing at the computer, feeling so guilty for getting angry with her. Then, it took a while for my husband to come to terms with her rage-filled outbursts. Now I think he's more patient than I am. It is a horrible condition for a child, and their families. Other illnesses are hard, but this affects the family so much because they have to watch their noises, and the family itself is the cause of the child's suffering. It's a horrible situation for everyone and some days I fall into a very deep depression wondering what happened?

Well take care,

Kathy

-----Original Message-----From: Soundsensitivity [mailto:Soundsensitivity ]On Behalf Of adah_123Sent: Thursday, July 20, 2006 4:14 PMTo: Soundsensitivity Subject: Re: So what started 4S in us all?

Kathy - I'm sorry your daughter has this crazy-making "thing", but I know she's fortunate to have a mom who doesn't take it personally and who knew something was wrong that her child needed help with, and then got help. My mother's mouth sounds were intolerable: she thought I just hated her so she hated me back. I don't worry too much about which problems came from where - I'm just trying to be average!!!! I do however have an intense curiosity about how someone like your daughter - an innocent - and me, a survivor - could be triggered by exactly the same things!?!?! I'd love to see brain scans of us to see exactly what's going on and what the differences are. I'm so sorry she feels rage with NO REASON. It must be so confusing to her. At least I had some ideas about why I was pissed off all the time! Could you please tell me if she is able to anticipate it? I remember that when it started, it was like there was nothing wrong with me and I'd end up being triggered out of nowhere. It took some time (months I believe) before I could remember that I couldn't stand a sound so I could try to avoid it. I hope that makes sense.Thakn you again - Adah > >> > Hi> >> > I have been going round and round trying to fiqure out what started> 4S> > in me, ive gone from strep throat to defense mechanisms to ADD and> > everything in-between.> >> > So, my latest theory stems back to one that was brought up a while> ago.> >> > Childhood Immunizations, this is already linked to things like> Autism> > and quite possibly ADD/ADHD but i dont have any proof on that.> >> > Maybe 4S is a watered down version of something like them, if> studies> > suggest that some vaccinations in some children can bring on> Autism,> > then it wouldnt be wrong to say that some vaccinations in some> > children would bring on 4S.> >> > I guess its about changing brain receptors and how they are either> > altered permanently by 'Mumps' for example or recover back to> normal.> > I think i had mumps as a child, maybe the vaccination is as good as> > getting mumps from a brain change point of view in some children.> >> > Anyway i am in no way an expert on vaccinations or what mumps is to> be> > honest, but thought i would throw it out there.> >> > It seems like with the strep throat debate, some viruses and> diseases> > can infiltrate to the brain and alter how it works.> >> > The majority dont get effected, but some do (Autism, ADD/ADHD, 4S> etc)> > most probably due to a Vunerable Immune System (Strep Throat can do> > that) When i finally had my tonsils out at age 30 the doctor said> they> > were so infected your immune system would of suffered because it> was> > constantly keeping your tonsils in check. - (I havent been ill> since> > they were taken out)> >> > So is it a vunerable immune system that when you have your> > vaccinations or get viruses, diseases in childhood the body lets> > things through because it cant cope with the workload.> >> > And finally just one point if i may on 4S being Physiological v> > Psychological (apart from Physiological seems to be easier to spell> > for some reason )> >> > I know Marsha believes it originates from a> > Physiological background, but i cant understand how it can be, now> > lets not get confused with me saying Psychological as in "Its all> in> > the mind, just get over it" Thats not what i mean by Psychological,> > what i mean is an involuntary reaction that comes from your brain> that> > you simply can not help and you certainly would rather not have.> >> > With Physiological you would experience Pain, like in Hypercusis.> > With Psychological you would experience Anxiety, Rage, Nervousnes> etc> >> > Marsha wrote this in a very recent post.> > "Many times, the 4S patient, for example, does not retain> improvement> > over longer periods of time, the same triggers still bother them as> > opposed to the classic hyperacusic who expands their sound> tolerance> > fairly rapidly."> >> > Is that because one is Physiological and 4S Psychological?> >> > I just dont understand the Physiological argument (Sorry Marsha )> > with 4S.> >> > Does a person with an OCD get diagnosed with a Physiological> illness> > because they have to physically clean, count steps, walk between> > cracks, lock doors etc?> >>

[Guest guest]

This is an overly simplistic view. Just as my eyes are seperate from my head,

part of it, my thoughts are a seperate part of my body though a connected one.

Just as I can have a problem with my eyes and not the rest of my head, I can

have a problem with my thoughts not caused by my body. This is the extreme of

the Nurture vs. Nature debate, and ultimately it says that we are not

responsible for the things we do because " it was a disease that he didn't have

control of. " Our thoughts aren't triggered by electrical signals: they cause

electrical charges to be sent. Perhaps a little chicken or the egg in nature,

but it remains clear we CONTROL our thought processes, and so they can't be

controlled purely by chemistry. That's silly. If we have a problem with how we

think- depending on its origin- we don't turn to pills or surgery- we work out

thought problems on their own. It's silly to think that there is a physical

abnormality in the brain (or more so, the ear) that causes 4S. Why? The whole

disorder has to do with our reactions to very specific sounds. Do you honestly

think there is an abnormality in the ear or brain that causes us to be annoyed

by these sounds? We're not talking about pain or anything of that nature, we're

talking about an extreme reaction to distasteful sounds. When there are

physical abnormalities in the ear, they are not specific. They cause a

sensitivity to ALL sounds. It simply isn't possible for a nerve to be damaged

and for that nerve to select crunching sounds. It is so illogical as to be

laughable. The only thing capable of producing the anxiety related to the

specific trigger sounds we hate is Cognition. It really is the only process

that can do so.

If I'm wrong, I'd love to hear how, but so far I haven't heard any hypothesis as

to how 4S could be connected to Hyperacusis or any other ear disorder. The

first step to finding a cure is finding a logical cause.

And the first step toward finding that logical cause, is to look- with an *open*

mind, at the potential, logical causes; we can't just look at the ones that'll

benefit our pocketbook- not if we're honest about our desire to help others and

help ourselves.

Could being immunized cause this? It's extremely unlikely. Why? Most vaccines

are unable to cross the Blood-Brain-Barrier, and unless you still think the ear

could cause it, they're ruled out. Even the miniscule amount that can, they're

extremely unlikely. Why? Well, consider the fact that no drug on the planet

causes this sort of problem. Of all the drugs ever consumed, recreationally or

legally, not one of them causes a long term personality change from such

short-term use. Sure, LSD may cause some pretty major personality changes from

long term uses, but for a single use, there are essentially none. It just

doesn't happen. Could vaccines be the one thing that does? Sure, but it seems

ultra-incredibly unlikely.

Could this be caused by too much dopamine or norephinephrine or serotonin or

glutamine or NMDA? Too little? Sure, maybe for some reasons our brain cells

don't work quite right. That seems to make sense. Would that cause us to focus

in on this? No, but it could potentially make us more prone to obsessive

thinking and anxious responses to things. That would make sense. It could be

caused by some complex routes of behaviourist-type conditioning. We know there

are psychological problems caused by that.

Maybe I'm wrong, maybe I've missed something, maybe there's some logic that

explains the other suggestions, but I can't see any. If there are, like I said,

I'd be incredibly happy to hear about them. Anything to have my problems fixed.

Mathew Pankratz

Re: So what started 4S in us all?

ADD or ADHD are not 4 S.

These are different problems, different etiologies, onset, effects,

and more.

You could potentially have both. Or one. Or neither.

I do not believe in 'emotional' diseases. We do not lie in our

bodies, our feelings and thoughts are directly related to physiologic

processes. When we cry, we release proteins in our tears, our brain

wave patterns change, and we KNOW we are experiencing inner changes

beyond that, too. What do you think instructs your tear glands to

produce liquid, turns your mouth muscles down, and reddens the

capillaries in your eyes.

All of your thoughts, including simple intentions, i.e., shall I life

my arm, are instantly reflected in brain chemistry changes, sugar

uptake, electrical or water flow, neural network firing, even if you

DO NOT Lift your arm. Just your INTENTION.

Please do not divorce your body from your mind. This is not possible

nor is it a healthy way to look at ourselves. We are one-being.

Many 'emotional' diseases have been shown to be very dependent on

changes in brain chemistry. This is becoming more obvious as time

passes.

4S is also related, I am sure, to brain chemistry changes.

Marsha

[Guest guest]

hi ,, don't know your name. my name is bonnie. i don't have the sound problem u have ,, allthough i thought i did, when first joined this group. i have menieres disease which is an inner ear problem., i am deaf in the rt. ear & going in the lf. but i have hyperacasis,which means sounds appear louder to my ear than the normal ear. AND i can tell you, that yes,, the brain ,,eyes,,ears all have a lot in common.,, i didn't realize how much ,,till i got this disease., how much they send signals to each other. this is a very hard mental disease to live with,,as i'm sure yours is too. my heart goes out to all who have this problem. you might try using an mp3 player,,--even though our problem is different ,,it's been helping me when i go to stores,,like

wal-mart. especially when they use the P.A. system. i just play soft music with no words.,,only thing is i can't hear what the person that is talking to me///but it drowns out background noise. hope this has helped you some. WISHING YOU A RAIBOW BONNIEkikino70115 wrote: Concerning reaction to specific noises:I've thought a lot about what kinds of noises set me off. I wish I had the vocabulary to describe this better, but something they seem

to have in common is an intense popping quality, almost like click. It's there in synthetic bass (acoustic music almost never bothers me). It's present in gum smacking, in nail clipping, in open-mouth chewing.So, does the brain process different types of noises in different ways? I don't know, but if it does, then the selective response makes sense.Soundsensitivity , "anthro_pop" wrote:>> Do you honestly> think there is an abnormality in the ear or brain that causes us to be > annoyed> by these sounds?> > > YES. I do.> > > Marsha , M.S., CCC-A, FAAA> > PS, you do not have to agree with me! : )>

[Guest guest]

Severely edited response...

>

>

>You can say that it isn't psychological all you want (and apparently some

>people are so afraid of the stigma of a psychological illness that they'll

>accept what you say without any explanation) but that doesn't make it true.

> I think that charging people to have the problem fixed without any

>explanation for your hypothesis is immoral.

Firstly, I can't remember - although I stand to be corrected - anybody on

here saying that there is not a psychological *element* to SSSS.

Secondly, I don't think anybody here accepts what Marsha says without any

explanation. Marsha has set this site up and came up with a name for this

problem: therefore we see her as a person who we can work with to help

address the issues we face. She is - for many - the only person who is

seriously investigating this problem and therefore we want to work with her.

If you can provide other names then feel free to post them on here so that

we - and Marsha - can see what they have to say about this and discuss their

approaches with them.

Thirdly, charging people to have the problem fixed. I believe that Marsha is

a professional who can - as she is in the US - charge for consultations.

That's the way you do things over there. Here in the UK consultations about

*most* things are done on the National Health Service and are free - we can

pay to see other people but that is our choice. As far as I am concernec, if

anyone wants to meet up with Marsha - and pay her for the meeting - then

there is nothing wrong with that. If you want to say that it is immoral then

campaign to your government about the way your health service operates.

>Their impressions of the " phsyical-ness of the symptoms " ? I've not heard

>anyone once claim that >they had a physical response to the sounds.

There is a physical response to this, although it is probably partly

psychological. I hear a noise that causes me distress and I can have a

*physical* reaction.

>Never heard anyone claim pain or increased intensity of the sounds. I have

>heard repeatedly that the sounds cause irritation, extreme anxiety,

>terribly annoying.

I accept that - no actual pain involved but major irritation.

>No one ever said the sounds were markedly louder- beyond what could be

>expected by shiftiing the focus on them.

Maybe it hasn't been explicitly stated on here, but these sounds *are*

louder to us (or at least to me). I hear sounds that other people *cannot*

hear - even when I explain what these sounds are and they start listening

out for them! It is NOT just a case of shifting my attention onto these

sounds.

>If you mean their belief that it is physical in nature the whole comment

>seems irrelevant since people can BELIEVE anything, especially when they're

>being lied to.

I really think you ought to tone down your language on this - 'being lied

to' is far too strong a term to use.

[Guest guest]

mathew~ i just wanted to explain what *my* physical reactions to bothersome sounds are. i don't always feel this way, only when something is really bothering me. i feel a tightening in my throat, and i can feel my pulse beating strongly in my throat. i sometimes feel a rush through my whole body, wanting to run away from the sound. i don't think it gets any more physical than that. ~liz

[Guest guest]

Thanks, Adah. I feel so horrible for you and your childhood. I don't know how a parent could hurt their own child like that. Thank you for all your input--it means a lot to me. I will look into EFT--another doctor told me about it.

I'm glad you are finding some relief from your symptoms. My prayers are with you.

Take care,

Kathy Howe

-----Original Message-----From: Soundsensitivity [mailto:Soundsensitivity ]On Behalf Of adah_123Sent: Saturday, July 22, 2006 5:13 PMTo: Soundsensitivity Subject: Re: So what started 4S in us all?

Kathy -We do live in a much more enlightened age than even just 30 years ago. The abuse many of us endured and everyone else who endured worse would have a much better chance of being "rescued" if it were happening today. Just to clarify - the mother was also a pedophile. Not as sadistic as the father, but a sick woman indeed. I doubt she would have searched the net to find out what was wrong with me - there was nothing wrong with me - I was just a hateful child!!About your daughter - I can only say this because I remember it from when I was a child: school was hell but since no one knew I hated the sounds I had to keep the rage inside. I was not allowed to express myself at home in front of my parents, I could only mock them when I could no longer tolerate the sounds and then take the beatings.I could however speak out to my siblings. The reason I made it through school was because it was too frightening for me to let normal people know I had a problem. I had to be as normal as I could because I wouldn't be good enough. Also, the triggers were much more intense with my family than with schoolmates. PLEASE do not be so hard on yourself for not recognizing 4S in your daughter - why would any normal person even think something like this could exist? The end result is that you did the research and you're getting help for her and you are loving her in spite of herself which I'm sure is just what she needs most on a daily basis. That you love her in spite of her rage. I wrote in another post here that EFT is making me change the "habit" of rage and maybe will change the whole thing . . . maybe it would allow her to teach herself a more positive way to react - I can guarantee you that she hates the anger too. Affirmations and accupressure - she's young - it should be easier, no?I send you my best . . . -Adah> > >> > > Hi> > >> > > I have been going round and round trying to fiqure out what> started> > 4S> > > in me, ive gone from strep throat to defense mechanisms to ADD> and> > > everything in-between.> > >> > > So, my latest theory stems back to one that was brought up a> while> > ago.> > >> > > Childhood Immunizations, this is already linked to things like> > Autism> > > and quite possibly ADD/ADHD but i dont have any proof on that.> > >> > > Maybe 4S is a watered down version of something like them, if> > studies> > > suggest that some vaccinations in some children can bring on> > Autism,> > > then it wouldnt be wrong to say that some vaccinations in some> > > children would bring on 4S.> > >> > > I guess its about changing brain receptors and how they are> either> > > altered permanently by 'Mumps' for example or recover back to> > normal.> > > I think i had mumps as a child, maybe the vaccination is as> good as> > > getting mumps from a brain change point of view in some> children.> > >> > > Anyway i am in no way an expert on vaccinations or what mumps> is to> > be> > > honest, but thought i would throw it out there.> > >> > > It seems like with the strep throat debate, some viruses and> > diseases> > > can infiltrate to the brain and alter how it works.> > >> > > The majority dont get effected, but some do (Autism, ADD/ADHD,> 4S> > etc)> > > most probably due to a Vunerable Immune System (Strep Throat> can do> > > that) When i finally had my tonsils out at age 30 the doctor> said> > they> > > were so infected your immune system would of suffered because it> > was> > > constantly keeping your tonsils in check. - (I havent been ill> > since> > > they were taken out)> > >> > > So is it a vunerable immune system that when you have your> > > vaccinations or get viruses, diseases in childhood the body lets> > > things through because it cant cope with the workload.> > >> > > And finally just one point if i may on 4S being Physiological v> > > Psychological (apart from Physiological seems to be easier to> spell> > > for some reason )> > >> > > I know Marsha believes it originates from a> > > Physiological background, but i cant understand how it can be,> now> > > lets not get confused with me saying Psychological as in "Its> all> > in> > > the mind, just get over it" Thats not what i mean by> Psychological,> > > what i mean is an involuntary reaction that comes from your> brain> > that> > > you simply can not help and you certainly would rather not have.> > >> > > With Physiological you would experience Pain, like in> Hypercusis.> > > With Psychological you would experience Anxiety, Rage,> Nervousnes> > etc> > >> > > Marsha wrote this in a very recent post.> > > "Many times, the 4S patient, for example, does not retain> > improvement> > > over longer periods of time, the same triggers still bother> them as> > > opposed to the classic hyperacusic who expands their sound> > tolerance> > > fairly rapidly."> > >> > > Is that because one is Physiological and 4S Psychological?> > >> > > I just dont understand the Physiological argument (Sorry> Marsha )> > > with 4S.> > >> > > Does a person with an OCD get diagnosed with a Physiological> > illness> > > because they have to physically clean, count steps, walk between> > > cracks, lock doors etc?> > >> >>

[Guest guest]

,

I think that it is hard to totally prove what causes SSSS, however I believe

that it's easy to prove it is definitely not psychological in nature.

Although many of you who have suffered with it for many years do have

psychological responses that have developed over many years of being

tortured by SSSS, there are several children on this site who just recently

developed it and are very valuable when examining what causes SSSS. They

are somewhat still in the pure beginnings of the disorder.

Therefore, I think it can't be psychological because: (This refers to 3

sufferers on this site, all 9 years old)

1. Each of them got it when they were 8 years old.

2. Each of them noticed one morning that their sibling or parent's chewing

at the breakfast table was bothering them.

3. Over that year, each slowly progressed from being bothered by just

chewing sounds, to lipsmacking sounds, then breathing, then flip flop

smacking, then paper rustling....

My question is this: How did all 3 of these children, living in totally

separate parts of the country, each get this strange condition at the exact

same age, with the exact same progression of symptoms if this is

psychological????? That's just absurd!

Plus, most people on this site said they got it around age 8!! To me that

is a MAJOR CLUE! What is changing in the body at this age?

Also, when you say that drugs can't have a lasting affect on personality is

crazy. If a child's brain is subjected to different drugs it can totally

affect its development. That is why women shouldn't drink when they are

pregnant! I don't know if immunizations (containing mercury) had something

to do with SSSS, but it definitely can have an affect on a child's brain

development!

I personally think that SSSS is a sort of like an OCD which can be caused by

viruses which damage part of the basal ganglia. It is well known that strep

viruses have caused some OCDs. The brain takes sensory input and the signal

is screwed up. This is a neurological manlfunction--not psychological! It

would be strange to say it is a virus since most sufferers got SSSS around

age 8, so it was probably something else that caused a neurological

malfunction. Maybe hormonal like Marsha said.

That's what I think...

Thanks,

Kathy Howe

Re: So what started 4S in us all?

The body (which includes the " mind " )cannot be separated because it

is too complex. You make it sound like thoughts to a body are

separate like a soul is to a body. Thoughts are physical

manifestations and productions of the brain. Cognition has a

phyical, biological origin. It is a biological phenomena.

-----Exactly. You cannot separate the human being into little

parts. That is a more modern scientific view that is much more

related to industrialism, Darwinism, and objective machine-thinking,

and actually, takes away from our human dignity.

We are also not just the sum of our parts, either. As a whole being,

we are unique and fragile and miraculous and reactive.......also

reflective.

If you truly believe 4S is a purely psychological disorder, then you

uphold the pervasive nonsense that MDs tell people with 4S, or

hyperacusis of any type, that their impressions of the physical-ness

of the symptoms of this condition, are invalid. A lie.

And that is quite immoral, in my point of view, like telling a

patient, oh well see you are so high stressed you caused your fatal

disease.........be less stressed!

Right.

Marsha , MS