Guest guest Posted November 7, 2006 Report Share Posted November 7, 2006 add my son to the list of children not able to tolerate mb12 (any form!). same reaction as your son. another parent on another list group wrote to try hydroxy b12. people with MTHFR mutations do better with hydroxy mb12. i plan on giving that a try before i throw in the towel. vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2006 Report Share Posted November 7, 2006 My son does well on MB12 but has been more stimmy/aggressive lately (after a year on MB12). His genetics came back and he is COMT +/- and i have been wanting to try hydroxy B12 but every time I go to her site to order its out of stock,and it lists an alternative which is out of stock too. Any other sources for this?? Kerrie Per Dr Yasko, who does genetic testing to decide whichform of B12 a child needs and how much a childneeds....A CHILD who has the genetic mutation COMT ++should not have METHYL b12 but instead hydroxy B12. mMaybe this could be your childs concren. In my veryhuble opinion I suggest you look atwww.autismanswer.com Read all of the beginningarticles/tests/info and decide if your child couldbenefit from this protocol. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2006 Report Share Posted November 7, 2006 Per Dr Yasko, who does genetic testing to decide which form of B12 a child needs and how much a child needs....A CHILD who has the genetic mutation COMT ++ should not have METHYL b12 but instead hydroxy B12. m Maybe this could be your childs concren. In my very huble opinion I suggest you look at www.autismanswer.com Read all of the beginning articles/tests/info and decide if your child could benefit from this protocol. Best wishes --- heygot2gonow wrote: > Hello everyone, > > I am a bit frustrated! I have tried MB-12 nasal > spray--all forms of > it: with Folinic, w/o, dosing once a week only > instead of every > other day; and I have found that my child seems to > not be able to > tolerate it. He becomes stimmy and perseverative, > defiant with a > smile on his face (ah!) and can be also aggressive. > This is not the > norm for him. After a 6 month break, I decided to > do a last trial of > MB-12 spray w/o Folinic (6 months ago this is > exactly what we tried > right after giving up on the one with Folinic) and > his behaviors were > awful. I started dosing two weeks ago, only TWICE > within that two > week period, and the above mentioned behaviors have > started to slowly > crop up. Things are not out of control at this > point, but I am very > worried because he was doing fabulously well at > school up until now > that some behaviors have slowly started to appear > for no apparent > reason other than having yeast (taking Diflucan) and > starting the MB- > 12 spray. He has hit other kids " just for fun and > extra attention " > and seems to be temperamental, stimmy and lacking > usual focus/drive. > This is normally a child eager to learn and follow > directions/instructions quite well. I am frustrated > because he could > also not tolerate the MB-12 shots two years ago. > The only form of MB- > 12 he could tolerate was transdermal, as long as I > dosed once every > other day which I did for 8 months but then stopped > after not seeing > much happening at all. > > Are any of your kids out there unable to tolerate > MB-12? I am sure > with methylation problems, MB-12 is essential for > our kids, so this > is why I have kept trying... It looks like I may > have to finally > give up. This is just one kid who just can't work > well with MB- > 12... Anyone having same experience? > > Thanks! > > > ________________________________________________________________________________\ ____ Sponsored Link $200,000 mortgage for $660/mo - 30/15 yr fixed, reduce debt, home equity - Click now for info http://yahoo.ratemarketplace.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2006 Report Share Posted November 7, 2006 To take this a little further, if your other supplements are methyl donors (again look at Yasko to make that determination) your MB-12 might very well be the proverbial straw that breaks the camel's back. Cutting back on some other methyl based supplementation might enable your child to tolerate the much needed B-12, methyl or other. Gayatri > > > Hello everyone, > > > > I am a bit frustrated! I have tried MB-12 nasal > > spray--all forms of > > it: with Folinic, w/o, dosing once a week only > > instead of every > > other day; and I have found that my child seems to > > not be able to > > tolerate it. He becomes stimmy and perseverative, > > defiant with a > > smile on his face (ah!) and can be also aggressive. > > This is not the > > norm for him. After a 6 month break, I decided to > > do a last trial of > > MB-12 spray w/o Folinic (6 months ago this is > > exactly what we tried > > right after giving up on the one with Folinic) and > > his behaviors were > > awful. I started dosing two weeks ago, only TWICE > > within that two > > week period, and the above mentioned behaviors have > > started to slowly > > crop up. Things are not out of control at this > > point, but I am very > > worried because he was doing fabulously well at > > school up until now > > that some behaviors have slowly started to appear > > for no apparent > > reason other than having yeast (taking Diflucan) and > > starting the MB- > > 12 spray. He has hit other kids " just for fun and > > extra attention " > > and seems to be temperamental, stimmy and lacking > > usual focus/drive. > > This is normally a child eager to learn and follow > > directions/instructions quite well. I am frustrated > > because he could > > also not tolerate the MB-12 shots two years ago. > > The only form of MB- > > 12 he could tolerate was transdermal, as long as I > > dosed once every > > other day which I did for 8 months but then stopped > > after not seeing > > much happening at all. > > > > Are any of your kids out there unable to tolerate > > MB-12? I am sure > > with methylation problems, MB-12 is essential for > > our kids, so this > > is why I have kept trying... It looks like I may > > have to finally > > give up. This is just one kid who just can't work > > well with MB- > > 12... Anyone having same experience? > > > > Thanks! > > > > > > > > > > > > _____________________________________________________________________ _______________ > Sponsored Link > > $200,000 mortgage for $660/mo - 30/15 yr fixed, reduce debt, home equity - > Click now for info http://yahoo.ratemarketplace.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 Yes, for some kids MB12 is not very effective. This was the case with my boy. Have you checked your child for high testosterone? MB12 (and other ASD protocals like chelation) may not work if your child has high testosterone. Suggest you test for high testosterone.heygot2gonow wrote: Hello everyone,I am a bit frustrated! I have tried MB-12 nasal spray--all forms of it: with Folinic, w/o, dosing once a week only instead of every other day; and I have found that my child seems to not be able to tolerate it. He becomes stimmy and perseverative, defiant with a smile on his face (ah!) and can be also aggressive. This is not the norm for him. After a 6 month break, I decided to do a last trial of MB-12 spray w/o Folinic (6 months ago this is exactly what we tried right after giving up on the one with Folinic) and his behaviors were awful. I started dosing two weeks ago, only TWICE within that two week period, and the above mentioned behaviors have started to slowly crop up. Things are not out of control at this point, but I am very worried because he was doing fabulously well at school up until now that some behaviors have slowly started to appear for no apparent reason other than having yeast (taking Diflucan) and starting the MB-12 spray. He has hit other kids "just for fun and extra attention" and seems to be temperamental, stimmy and lacking usual focus/drive. This is normally a child eager to learn and follow directions/instructions quite well. I am frustrated because he could also not tolerate the MB-12 shots two years ago. The only form of MB-12 he could tolerate was transdermal, as long as I dosed once every other day which I did for 8 months but then stopped after not seeing much happening at all. Are any of your kids out there unable to tolerate MB-12? I am sure with methylation problems, MB-12 is essential for our kids, so this is why I have kept trying... It looks like I may have to finally give up. This is just one kid who just can't work well with MB-12... Anyone having same experience?Thanks! Sponsored LinkGet a free Motorola Razr! Today Only! Choose Cingular, Sprint, Verizon, Alltel, or T-Mobile. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 Hi, Yes, we just recently tested for high testosterone--and all levels are normal in that area. No concerns whatsoever from our DAN Dr. This is why I asked to test for it because of my battles with MB-12, etc. I just thought that after a long time without MB-12, I'd give the spray one last try, and having had a previous history of not tolerating it well leads to my conclusion that MB-12, at least in this form, is simply detrimental for him. Everything was going really well up to this point. So now, I guess I have to ride it out: do daily Epsom Salt Baths, use activated charcoal when possible, continue antifungals and start rotating probiotics and hopefully things will be back to normal in a few days. My child really never had any yeast concerns until we started MB-12, Glutathione, Valtrex, OLE/Virastop. So I knew what could be in store for him, but I just kept trying with the MB-12 hoping that his system would finally be able to tolerate it. He's a very sensitive kid to supps. so I have to compound most of them... Any other tips will be greatly appreciated. Thanks again for everyone's input! > > Yes, for some kids MB12 is not very effective. This was the case with my boy. > > Have you checked your child for high testosterone? MB12 (and other ASD protocals like chelation) may not work if your child has high testosterone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 Your son sounds similar to mine. Last weekend we too decided to try MB12 nasal spray - no folinic (after having bad reactions to shots several years ago). He gets folinic in capsule form. My son went progressively downhill within 4 days of starting the MB12 NASAL SPRAY. I was doing only half the dose but after 3 doses all therapists started hinting that something's up. Defiant, whiney, tired, loss of sleep, aggressive. I stopped it yesterday. He seems to be coming back to normal. My son too is very sensitive to supplements so we compounD most of them. He can tolerate IV-GLUT (but not oral) and TD-DMPS without any issues. Our conclusion is that he's an overmethylator and thus can't tolerate MB12. We won't be trying it again for him. I plan on trying it for myself though. I have CFS/fibromyalgia. HTH > > > > Yes, for some kids MB12 is not very effective. This was the case > with my boy. > > > > Have you checked your child for high testosterone? MB12 (and other > ASD protocals like chelation) may not work if your child has high > testosterone. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 We tried the hydroxy too. Same reaction unfortunately. So do it with caution. > > add my son to the list of children not able to tolerate mb12 (any form!). > same reaction as your son. another parent on another list group wrote to try > hydroxy b12. people with MTHFR mutations do better with hydroxy mb12. i > plan on giving that a try before i throw in the towel. > > vicki > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2006 Report Share Posted November 9, 2006 Hi, i had the same problem, and i mailed them : the regular " hydroxyB12 " (1mg) is no longer out of stock, but they didn't corrected the website yet, so you can order it... The " perque " (2mg OH-B12) will be there next week. But perhaps your son doesn't need that much B12 at all (only 1 or 2mg/day ???). I don't know much about it, but for me (asperger and disorganized schizophrenia) i need much more folinic/methyl-THF than any B12... MB12 make me psychotic, what i'm not usually. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2006 Report Share Posted November 9, 2006 > > Yes, for some kids MB12 is not very effective. This was the case with my boy. > > Have you checked your child for high testosterone? MB12 (and other ASD protocals like chelation) may not work if your child has high testosterone. > Hello, i have very high testosterone, due to Partial Androgen Insensitivity syndrome. My Androgen-receptor are less efficient, so overall T activity is a little week (i look like a 16 years old, i'm 23). Do you have any informations on what T does ? I've read some on " Lupron " and " mercury binding testosterone " but i wasn't really convinced... I know it's OT, but if you have any comments on that, and what not-receptor mediated effect high Testosterone has, that would be very useful to me ! Thanks, Guillaume. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2006 Report Share Posted November 9, 2006 My son does well on MB12 but has been more stimmy/aggressive lately (after a year on MB12). His genetics came back and he is COMT +/- and i have been wanting to try hydroxy B12 but every time I go to her site to order its out of stock,and it lists an alternative which is out of stock too. Any other sources for this?? have you tried: www.holisticheal.com (dr amy yasko's site) hydroxycobalamin.....1000 mcg vicki Quote Link to comment Share on other sites More sharing options...
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