Re: Ready to start - need advice

[Guest guest]

Thanks for the honest response. I am not sure that we can do screamy and agitated and keep our school placement. This treatment may have to wait until summer. I hate to lose all that time if ultimately the valtrex works, but I can't have him worse than he is now either. ::sigh::

We did Diflucan for about 2-3 weeks before the Valtrex. Got significant more die-off from the Diflucan (had to slow down and then back up) in the form of spacey behavior and red rashes on face than with the adding of Valtrex. Then saw major amounts of yeast/ bacteria after the Valtrex. My son is these days screamy and agitated beyond measure and he still isn't upto full recommended dose of Valtrex. BMs range from liquidy to soft pudding consistency. Sorry for the long winded mail but what I was trying to say that given the likelihood of greater yeast/bacteria AFTER Valtrex (going by our experience), it might help kill off some fungus prior to the Valtrex esp for an older child.Gayatri

[Guest guest]

We did Diflucan for about 2-3 weeks before the Valtrex. Got

significant more die-off from the Diflucan (had to slow down and

then back up) in the form of spacey behavior and red rashes on face

than with the adding of Valtrex. Then saw major amounts of yeast/

bacteria after the Valtrex. My son is these days screamy and

agitated beyond measure and he still isn't upto full recommended

dose of Valtrex. BMs range from liquidy to soft pudding consistency.

Sorry for the long winded mail but what I was trying to say that

given the likelihood of greater yeast/bacteria AFTER Valtrex (going

by our experience), it might help kill off some fungus prior to the

Valtrex esp for an older child.

Gayatri

>

> Hi everyone.

>

> I have in my hands a prescription for valtrex and a prescription

for

> diflucan from our doc. My son is 8 and just started 3rd grade. I

am

> so nervous about starting him on the valtrex - I can't afford to

have

> him completely crash and lose his school placement - on the other

hand,

> this may be the key to my son's issues.

>

> I am looking for advice/reassurance from anyone who has started

this

> protocol with an older child. Should I start the diflucan first

and

> then the valtrex? Has anyone done valtrex and seen gains without

a

> horrible regression?

>

> MB12 was the one intervention that we have done that I can

honestly say

> made a measurable difference for my son. Everything else has been

a

> push. I know I need to bite the bullet and get going with the

valtrex,

> but I think I need a push on this one.

>

> Thanks,

>

>

[Guest guest]

-My son turned 8 in July and he started third grade this Sept. in a

new school (aged out from the previous one; and this new one was

even hesitant to accept him during his interview last April). He is

Day 19 on the Valtrex (1000 mg, divided in 3 doses) and Diflucan

(120 mg, divided in 2 doses)which was started simultaneously. He

weighs 52 lbs. So far, I've seen a slow improvement in compliance,

no major tantrums, and he appears to be more aware of his

environment. He gets hyperactive and unfocused (usual old self)1-2

hrs after the medication, and then he calms down. Still minimally

verbal (usual self), no dramatic changes, but certainly he has come

a long way from Dec.'05 when we first got started on the biomedical

treatments. I have no regrets getting started on it; and wished I

did it sooner. He is GF/CF/soy free/corn free; digestive enzymes;

probiotics; Fish oil; vitamins and minerals; Glutathione TD 2X/day;

on DMSA TD 3 days on/11 days off, in between Allithiamine TD 2X/day.

Good luck with what ever you decide.

Pearl

-- In mb12 valtrex , Trish64@... wrote:

>

> Thanks for the honest response. I am not sure that we can do

screamy and

> agitated and keep our school placement. This treatment may have

to wait until

> summer. I hate to lose all that time if ultimately the valtrex

works, but I

> can't have him worse than he is now either. ::sigh::

>

>

>

> In a message dated 9/10/2006 3:33:36 PM Eastern Standard Time,

> gayatri_rampal@... writes:

> We did Diflucan for about 2-3 weeks before the Valtrex. Got

> significant more die-off from the Diflucan (had to slow down and

> then back up) in the form of spacey behavior and red rashes on

face

> than with the adding of Valtrex. Then saw major amounts of yeast/

> bacteria after the Valtrex. My son is these days screamy and

> agitated beyond measure and he still isn't upto full recommended

> dose of Valtrex. BMs range from liquidy to soft pudding

consistency.

>

> Sorry for the long winded mail but what I was trying to say that

> given the likelihood of greater yeast/bacteria AFTER Valtrex

(going

> by our experience), it might help kill off some fungus prior to

the

> Valtrex esp for an older child.

>

> Gayatri

>

[Guest guest]

Hi -,

although I am a newbie too,I had to respond to you because I feel

like I am in the exact same boat as you. I also have a 8 year old who

just started third grade this last week. I have been studying these

postings and am anxious to get started, but have the same concerns as

you do in terms of disrupting his school time, progress, etc. My son

just made " a friend " (ANSWERED PRAYER-BIG TIME!) and I'm

thinking " Can't mess that up! " However, I want him well and am

obsessing about when to treat with this antiviral protocol. I'm

thinking perhaps a few weeks before x-mas break-if he gets sick, then

he can be off two weeks and then have the 2 week break. I had my son

on OLE for about 20 days and he definately regressed to things I

hadn't seen for a long time.Mostly just very unreasonalbe and

irrational.. I just got his yeast under control with Candex right

before school started (I didn't know that OLE stirred up

yeast..otherwise I would have been doing it prior to.)...so the other

listmate who recomended you have the yeast fighter in place prior to

starting valtrex is right on, based on all posts I have read.Plus, I

think, one die of at a time, esp with school. Anyway, I'm right there

with you, still looking for " the key " and thinking this might be the

last rock to look under. Is your son pretty high functioning? I

wonder if the more affected asd kids have more severe reactions than

the less effected kids? By the way, what dosage did you get for your

son on the diflucan and Valtrex? My DAN doesn't know mcuh about this

type of intervention and I don't have a guideline for my 85 lbs 8

year old. We'll learn together!

Thanks!

-- In mb12 valtrex , " tweeter1964 " wrote:

>

> Hi everyone.

>

> I have in my hands a prescription for valtrex and a prescription

for

> diflucan from our doc. My son is 8 and just started 3rd grade. I

am

> so nervous about starting him on the valtrex - I can't afford to

have

> him completely crash and lose his school placement - on the other

hand,

> this may be the key to my son's issues.

>

> I am looking for advice/reassurance from anyone who has started

this

> protocol with an older child. Should I start the diflucan first

and

> then the valtrex? Has anyone done valtrex and seen gains without a

> horrible regression?

>

> MB12 was the one intervention that we have done that I can honestly

say

> made a measurable difference for my son. Everything else has been

a

> push. I know I need to bite the bullet and get going with the

valtrex,

> but I think I need a push on this one.

>

> Thanks,

>

>

[Guest guest]

Is your son pretty high functioning? I wonder if the more affected asd kids have more severe reactions than the less effected kids? By the way, what dosage did you get for your son on the diflucan and Valtrex? My DAN doesn't know mcuh about this type of intervention and I don't have a guideline for my 85 lbs 8 year old. We'll learn together!Thanks!

If I understand the prescription right, it is for 500 mg. capsules. My son weighs 60 lbs.

He is what most people would consider high functioning (PDD-NOS) but light years away from typical in terms of language/social abilities. His language development was never normal. You probably wouldn't pick him out of a crowd unless he opened his mouth. He is in a typical Catholic school class with an aide (we joke that he is the most "special" of any special needs student at this school ever, although there are other children there with similar dx). He has problems with anxiety and attention, in addition to his language issues.

Our doc wanted us to start the valtrex right away, after doing the diflucan for 10 days. I picked up the diflucan today...still thinking about it.

What's going on with your son?

[Guest guest]

Not all kids have a bad reaction.

>

> Thanks for the honest response. I am not sure that we can do

screamy and

> agitated and keep our school placement. This treatment may have

to wait until

> summer. I hate to lose all that time if ultimately the valtrex

works, but I

> can't have him worse than he is now either. ::sigh::

>

>

>

> In a message dated 9/10/2006 3:33:36 PM Eastern Standard Time,

> gayatri_rampal@... writes:

> We did Diflucan for about 2-3 weeks before the Valtrex. Got

> significant more die-off from the Diflucan (had to slow down and

> then back up) in the form of spacey behavior and red rashes on

face

> than with the adding of Valtrex. Then saw major amounts of yeast/

> bacteria after the Valtrex. My son is these days screamy and

> agitated beyond measure and he still isn't upto full recommended

> dose of Valtrex. BMs range from liquidy to soft pudding

consistency.

>

> Sorry for the long winded mail but what I was trying to say that

> given the likelihood of greater yeast/bacteria AFTER Valtrex

(going

> by our experience), it might help kill off some fungus prior to

the

> Valtrex esp for an older child.

>

> Gayatri

>

[Guest guest]

I feel that even the bad reactions are good because bad stuff is

coming out and one day should go away. I was merely stating what we

were seeing, and yes it is aggravating to deal with it, more for the

child than the parents. But far better to get it out than keep it

festering inside. And yes I boil with rage these days at the CDC and

the AAP for doing this and continuing to do this to our kids. I

think it is really really stupid to give several live vaccines at

the same time (kind of like that mercury slogan).

Gayatri

> >

> > Thanks for the honest response. I am not sure that we can do

> screamy and

> > agitated and keep our school placement. This treatment may have

> to wait until

> > summer. I hate to lose all that time if ultimately the valtrex

> works, but I

> > can't have him worse than he is now either. ::sigh::

> >

> >

> >

> > In a message dated 9/10/2006 3:33:36 PM Eastern Standard Time,

> > gayatri_rampal@ writes:

> > We did Diflucan for about 2-3 weeks before the Valtrex. Got

> > significant more die-off from the Diflucan (had to slow down and

> > then back up) in the form of spacey behavior and red rashes on

> face

> > than with the adding of Valtrex. Then saw major amounts of

yeast/

> > bacteria after the Valtrex. My son is these days screamy and

> > agitated beyond measure and he still isn't upto full recommended

> > dose of Valtrex. BMs range from liquidy to soft pudding

> consistency.

> >

> > Sorry for the long winded mail but what I was trying to say that

> > given the likelihood of greater yeast/bacteria AFTER Valtrex

> (going

> > by our experience), it might help kill off some fungus prior to

> the

> > Valtrex esp for an older child.

> >

> > Gayatri

> >

>

[Guest guest]

Here are Stan's guidelines: How to get started A simple strategy is to first decision about your antifungal strategy. Personally I believe the safest, simplest and most effective agents for this is using oral Diflucan, or Nizoral (and I sometimes mention amphotericin . They are very effective and they have a proven track record of safety to

not be relatively non-toxic. Others opt to try naturals and some have success with products like Candex, or Caprilic Acid, Biotin, Grape Seed Extract (GSE) and a growing list of things that I will put in my introduction letter I will hopefully finish this weekend. Personally, if I was just getting started today, based on my personal philosophy of going what is most effective and not caring what the administration was, meaning I don't mind using a medicine as long as it's one that is science based, safe, proven, non-toxic, and effective, then I would start with either Diflucan or

Nizoral (or my third choice Amphotericin . Additionally, there is recent research that shows that these medicines are helping a large set of our kids who have testosterone issues, and I won't get into the details in this post, but normalizing testosterone seems to be a major factor in lowering bacteria levels, raising glutathione levels and this activity may be a very important element of a good portion of our children's recovery. So bascially, IMO, you are safely covering two bases with one therapy. If you are one of those folks who wants to go all natural, and don't mind the

risk that some of the naturals may not work as well for your child, then exploring the list of naturals may make sense to you. I feel we will come up with a list of naturals to use and figure out what works best for what child, but right now it's a bit of a trial and error scenario, but an important one because if we can figure it out it will save a lot of people money and headaches in dealing with doctors... Rx's etc. But, again... today if I was just getting started I would go with Diflucan or Nizoral. Next is the antiviral agent. After a lot of thinking... today I believe the place to start if you can afford it or have insurance is Valtrex. While we have seen gains with natural agents, we do not have more than handful of possible recoveries from them yet. Yes, we have a growing list of improvements, but comparatively I have 50 pages of children who have greatly improved or recovered from

the use of Valtex. My son being one of them. He continually improved on Valtrex and was off the spectrum in a matter of months. He was on Valtrex for a total of 9 months and has been free of any biomedical therapies for more than year now. And this was a metals toxic child with physical and behavioral impairments, so he not only recovered virally but he also detoxed and cleared his gut issues in a more natural way, through antiviral therapy. In the last few months we've confirmed that there is a metals dumping effect with Valtrex for at least some people, my son was one, we have test results of before and after on others. We also know that Valtrex modulated adenosine. Many of our kids have high or low adenosine levels and prior to Dr. Sid Baker publishing his study results about acyclovir and adenosine, we didn't have another therapy for this. Valtrex quickly converts into acyclovir, but the added values of Valtrex is that it is less toxic, more bioavailable and it crosses the blood brain barrier, which is where our kids often have inflammation, (according to the 's Hopkins study that came out last year and also mentioned recently in Time Magazine). Both Valtrex and the Naturals often result in what we call a healing-regression, which is a period of time when the child is healing but looks like they are regressing. It is similar to a die off effect, but at the same time we believe there is metals detox going on as well as immune system and metabolic restoration from the methylation changes and the lessening of the viral load. There also seems to be an increase in fungus during antiviral therapy and initially there is probably a kill off of this new fungus. The process is often greatly lessened by having the antifungal in place prior to starting the antiviral. This healing-regression typically lasts 20 to 40 days. Some folks also report never see a regression and only see gains... A SMALLER MINORITY of folks experience the regression for more than 40 days and folks in that situation often go to a lower dosage, take a break and return later, or possibly the best option move to

another agent like Famvir or Acyclovir which seem to work more slowly and then try Valtrex again after a period of time. We've seen some nice posts from parents who worked through really difficult cases with this strategy and I applaud them. What you don't want to IMO, is try an agent like Famvir or Acyclovir first, because you may trigger the virus to mutate or build a bit of resistance (this is just my observation). Lastly, some of these folks who have had a healing regression

longer than 40 days might move off of Valtrex at that point, switch to an Natural like OLE or Virastop for while and then move back to Valtrex (or try both) if their child doesn't have a full recovery with the Natural (which I have not seen a report of a recovery from a natural yet... although we've seen nice improvements). After the healing-regression and the typical gains we see thereafter, if you see consistent gains that look like you are recovery bound, like in the case of my son, I would not change anything. If you see gains and then a plateau, I would consider ADDING a natural like OLE. Then if you continue to see gains I would not change anything or I might try adding Virastop and seeing what happens. One you have this part of your viral strategy under control, the next step would be to consider therapies that flush out Measles virus, which include a two day High Dose Vitamin A trial, and then Lauricidin. The group (and

hopefully your good DAN! doc) will help you with the nuances of each strategy, but I think this is a good framework to start with. I'm not a doctor. I'm not a PhD., but I do have the unique perspective of having the position of reading the thousands of posts and hundreds of trials from this group, and also of having a recovered child. Thank you for your question. It helped me clear up some of my thinking and I'll use some of this post in my framework for a "How to get started" document. Welcome, good luck, and keep us posted on your progress and questions. All the best, - Stan Trish64@... wrote: In a message dated 9/11/2006 2:02:33 AM Eastern Standard Time, rphiggearthlink (DOT) net writes: Is your son pretty high functioning? I wonder if the more affected asd kids have more severe reactions than the less effected kids? By the way, what dosage did you get for your son on the diflucan and Valtrex? My DAN doesn't know mcuh about this type of intervention and I don't have a guideline for my 85 lbs 8 year old. We'll learn together!Thanks! If I understand the prescription right, it is for 500 mg.

capsules. My son weighs 60 lbs. He is what most people would consider high functioning (PDD-NOS) but light years away from typical in terms of language/social abilities. His language development was never normal. You probably wouldn't pick him out of a crowd unless he opened his mouth. He is in a typical Catholic school class with an aide (we joke that he is the most "special" of any special needs student at this school ever, although there are other children there with similar dx). He has problems with anxiety and attention, in addition to his language issues. Our doc wanted us to start the valtrex right away, after doing the diflucan for 10 days. I picked up the diflucan today...still thinking about it. What's going on with your son?

Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

[Guest guest]

A little OT, but how did you get your son into a Catholic school. Most Catholic schools are not equipped to handle special needs? And, also, most Catholic schools do not allow full-time aids in the room. Just wondering.....Thanks,Anne

I've learned in this journey that there are no absolutes. My son has been in this same school since preschool...his twin brother and older sister are also there and his baby sister starts preschool there today. Let's just say that they have made a commitment to our son that is truly Christian.

If you want to know more, feel free to email me offlist, since this is way off topic.

[Guest guest]

A little OT, but how did you get your son into a Catholic school. Most

Catholic schools

are not equipped to handle special needs? And, also, most Catholic schools do

not allow

full-time aids in the room. Just wondering.....

Thanks,

Anne

> He is what most people would consider high functioning (PDD-NOS) but light

> years away from typical in terms of language/social abilities. His language

> development was never normal. You probably wouldn't pick him out of a crowd

> unless he opened his mouth. He is in a typical Catholic school class with an

aide

> (we joke that he is the most " special " of any special needs student at this

> school ever, although there are other children there with similar dx). He has

> problems with anxiety and attention, in addition to his language issues.

>

> Our doc wanted us to start the valtrex right away, after doing the diflucan

> for 10 days. I picked up the diflucan today...still thinking about it.

>

> What's going on with your son?

>

>

>