200 days of Valtrex ~ Our Update

[Guest guest]

Hi listmates,

Dylan Age: 8 years 7 months

Valtrex has been an incredible little miracle for my son. Within the

first 3 months he went from sitting in his classroom for 5 minutes to

being able to tolerate the classroom for an hour or more. He went

from needing his aide to repeat and breakdown everything the teacher

instructed to being able to look at the teacher while she instructed

the class and being able to follow through with the task. He used to

need sensory breaks so frequently that some days he never even made

it into the classroom. After a few weeks of valtrex he only would

need just a few minutes (SI) to begin his day and then enters the

classroom. He is nonverbal, but after valtrex he finally began to

make real sounds, from just sing songing to actually pronouncing

letters (hold up a flashcard of a P and he will say " pu " sound....

all letters, A - Z). He went from struggling with addition, even

with counters, to being able to add complex problems, ie 4321 + 5298

even knowing how to carry. The last 3 weeks of the school year last

year his class was introduced to fractions, it took the class 3 weeks

to do this, it took Dylan 1 day. He started the year last year in

the first grade classroom trying to catch up as he was behind

(started the year at a Kindergarten level though in the 1st grade

room) by the end of the year he was doing 2nd grade work!! That

means last year, in one year he finished kindergarten, completed 1st

grade, and began 2nd grade. He moved so swiftly that the principal,

his teachers and the autism specialist all agreed he skip second

grade and be placed in 3rd this year. He is still nonverbal but has

such a strong grasp on sound and the purpose of communication that

for the first time in 5 years I actually believe that this child will

some day talk. He reads, writes, adds, subtracts, tells time, potty

trained, has a stronger understanding of safety, self help and

communication skills. Has finally become age appropriate in his toy

selection and play, sat through a full length movie for the first

time and is so much more aware of himself, his surroundings and his

peers. He is showing hobbies and interests/preferences and is

healthier than I have ever seen him. Everyone who sees him comments

on how healthy he appears, how golden his once pasty skin tone is,

how his eyes look happy and not bruised, how his hair even looks

shiny and not frail and how he looks so in control of his limbs and

not so weak in his arms.

I hope this may help others who are considering valtrex, we did no

titers testing, we saw all the soft signs and did a 30 day trial.

After 30 days the improvement in his mood and behavior was so

incredible that his pediatrician agreed we should continue. We used

along with diflucan and LiverLife to keep yeast under control. We

even saw such great gains that we discontinued TD DMSA after that

first month.

We have a long way to go still, I hope to get this kid verbal ; ) and

we have had recent issues with yeast and his diet (going back to

school and staying SCD has proven challenging to say the least).

I do wonder if I should continue as I have not seen any gains or wows

in quite some time. Maybe a break and restart again in the winter???

Good luck to all,

Colleen

Mom of Dylan 8 autism non verbal

Valtrex 200 days

[Guest guest]

Colleen,

I always look forward to your updates,

they are soooo inspirational!! Congratulations! If you have seen a leveling off

in skills, I think that’s when Stan started to remove the valtrex and watch

for changes. I forgot how long he has been on the valtrex. Since you have a recent

yeast outbreak maybe you should get that in control 1st to make sure

his further gains aren’t being hidden. I had to take my son off of valtrex

for a few weeks to get the yeast under control but will go back on as soon as we

kick it. Take care and again congrats! -

From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of abelcstkd

Sent: Monday, September 18, 2006

10:25 AM

To: mb12 valtrex

Subject: 200 days of

Valtrex ~ Our Update

Hi listmates,

Dylan Age: 8 years 7 months

Valtrex has been an incredible little miracle for my son. Within the

first 3 months he went from sitting in his classroom for 5 minutes to

being able to tolerate the classroom for an hour or more. He went

from needing his aide to repeat and breakdown everything the teacher

instructed to being able to look at the teacher while she instructed

the class and being able to follow through with the task. He used to

need sensory breaks so frequently that some days he never even made

it into the classroom. After a few weeks of valtrex he only would

need just a few minutes (SI) to begin his day and then enters the

classroom. He is nonverbal, but after valtrex he finally began to

make real sounds, from just sing songing to actually pronouncing

letters (hold up a flashcard of a P and he will say " pu " sound....

all letters, A - Z). He went from struggling with addition, even

with counters, to being able to add complex problems, ie 4321 + 5298

even knowing how to carry. The last 3 weeks of the school year last

year his class was introduced to fractions, it took the class 3 weeks

to do this, it took Dylan 1 day. He started the year last year in

the first grade classroom trying to catch up as he was behind

(started the year at a Kindergarten level though in the 1st grade

room) by the end of the year he was doing 2nd grade work!! That

means last year, in one year he finished kindergarten, completed 1st

grade, and began 2nd grade. He moved so swiftly that the principal,

his teachers and the autism specialist all agreed he skip second

grade and be placed in 3rd this year. He is still nonverbal but has

such a strong grasp on sound and the purpose of communication that

for the first time in 5 years I actually believe that this child will

some day talk. He reads, writes, adds, subtracts, tells time, potty

trained, has a stronger understanding of safety, self help and

communication skills. Has finally become age appropriate in his toy

selection and play, sat through a full length movie for the first

time and is so much more aware of himself, his surroundings and his

peers. He is showing hobbies and interests/preferences and is

healthier than I have ever seen him. Everyone who sees him comments

on how healthy he appears, how golden his once pasty skin tone is,

how his eyes look happy and not bruised, how his hair even looks

shiny and not frail and how he looks so in control of his limbs and

not so weak in his arms.

I hope this may help others who are considering valtrex, we did no

titers testing, we saw all the soft signs and did a 30 day trial.

After 30 days the improvement in his mood and behavior was so

incredible that his pediatrician agreed we should continue. We used

along with diflucan and LiverLife to keep yeast under control. We

even saw such great gains that we discontinued TD DMSA after that

first month.

We have a long way to go still, I hope to get this kid verbal ; ) and

we have had recent issues with yeast and his diet (going back to

school and staying SCD has proven challenging to say the least).

I do wonder if I should continue as I have not seen any gains or wows

in quite some time. Maybe a break and restart again in the winter???

Good luck to all,

Colleen

Mom of Dylan 8 autism non verbal

Valtrex 200 days

[Guest guest]

Hi Colleen,

This is so wonderful to hear (and to wake up to on a rainy morning in Oregon).

What doseage are you using for Valtrex?

Thanks so much,

Tricia

200 days of Valtrex ~ Our Update

Hi listmates,Dylan Age: 8 years 7 monthsValtrex has been an incredible little miracle for my son. Within the first 3 months he went from sitting in his classroom for 5 minutes to being able to tolerate the classroom for an hour or more. He went from needing his aide to repeat and breakdown everything the teacher instructed to being able to look at the teacher while she instructed the class and being able to follow through with the task. He used to need sensory breaks so frequently that some days he never even made it into the classroom. After a few weeks of valtrex he only would need just a few minutes (SI) to begin his day and then enters the classroom. He is nonverbal, but after valtrex he finally began to make real sounds, from just sing songing to actually pronouncing letters (hold up a flashcard of a P and he will say "pu" sound.... all letters, A - Z). He went from struggling with addition, even with counters, to being able to add complex problems, ie 4321 + 5298 even knowing how to carry. The last 3 weeks of the school year last year his class was introduced to fractions, it took the class 3 weeks to do this, it took Dylan 1 day. He started the year last year in the first grade classroom trying to catch up as he was behind (started the year at a Kindergarten level though in the 1st grade room) by the end of the year he was doing 2nd grade work!! That means last year, in one year he finished kindergarten, completed 1st grade, and began 2nd grade. He moved so swiftly that the principal, his teachers and the autism specialist all agreed he skip second grade and be placed in 3rd this year. He is still nonverbal but has such a strong grasp on sound and the purpose of communication that for the first time in 5 years I actually believe that this child will some day talk. He reads, writes, adds, subtracts, tells time, potty trained, has a stronger understanding of safety, self help and communication skills. Has finally become age appropriate in his toy selection and play, sat through a full length movie for the first time and is so much more aware of himself, his surroundings and his peers. He is showing hobbies and interests/preferences and is healthier than I have ever seen him. Everyone who sees him comments on how healthy he appears, how golden his once pasty skin tone is, how his eyes look happy and not bruised, how his hair even looks shiny and not frail and how he looks so in control of his limbs and not so weak in his arms.I hope this may help others who are considering valtrex, we did no titers testing, we saw all the soft signs and did a 30 day trial. After 30 days the improvement in his mood and behavior was so incredible that his pediatrician agreed we should continue. We used along with diflucan and LiverLife to keep yeast under control. We even saw such great gains that we discontinued TD DMSA after that first month.We have a long way to go still, I hope to get this kid verbal ; ) and we have had recent issues with yeast and his diet (going back to school and staying SCD has proven challenging to say the least).I do wonder if I should continue as I have not seen any gains or wows in quite some time. Maybe a break and restart again in the winter???Good luck to all,ColleenMom of Dylan 8 autism non verbalValtrex 200 days

[Guest guest]

Hi Colleen, Congrats on your child's progress. Hope he continues to improve. I just started my boy (5.5 yers old, ASD, almost nonverbal) on Valtrex. Today is day 3. We have not noticed much of anything. When will I see something? What will I see? I'm anxious and trying to put a timeline or expected milestones on this. Thank you.abelcstkd wrote: Hi listmates,Dylan Age: 8 years 7 monthsValtrex has been an incredible little miracle for my son. Within the first 3 months he went from sitting in his classroom for 5 minutes to being able to tolerate the classroom for an hour or more. He went from needing his aide to repeat and breakdown everything the teacher instructed to being able to look at the teacher while she instructed the class and being able to follow through with the task. He used to need sensory breaks so frequently that some days he never even made it into the classroom. After a few weeks of valtrex he only would need just a few minutes (SI) to begin his day and then enters the classroom. He is nonverbal, but after valtrex he finally began to make real sounds, from just sing songing to actually pronouncing letters (hold up a flashcard of a P and he will say "pu" sound.... all letters, A - Z). He went from struggling with

addition, even with counters, to being able to add complex problems, ie 4321 + 5298 even knowing how to carry. The last 3 weeks of the school year last year his class was introduced to fractions, it took the class 3 weeks to do this, it took Dylan 1 day. He started the year last year in the first grade classroom trying to catch up as he was behind (started the year at a Kindergarten level though in the 1st grade room) by the end of the year he was doing 2nd grade work!! That means last year, in one year he finished kindergarten, completed 1st grade, and began 2nd grade. He moved so swiftly that the principal, his teachers and the autism specialist all agreed he skip second grade and be placed in 3rd this year. He is still nonverbal but has such a strong grasp on sound and the purpose of communication that for the first time in 5 years I actually believe that this child will some day talk. He reads, writes, adds,

subtracts, tells time, potty trained, has a stronger understanding of safety, self help and communication skills. Has finally become age appropriate in his toy selection and play, sat through a full length movie for the first time and is so much more aware of himself, his surroundings and his peers. He is showing hobbies and interests/preferences and is healthier than I have ever seen him. Everyone who sees him comments on how healthy he appears, how golden his once pasty skin tone is, how his eyes look happy and not bruised, how his hair even looks shiny and not frail and how he looks so in control of his limbs and not so weak in his arms.I hope this may help others who are considering valtrex, we did no titers testing, we saw all the soft signs and did a 30 day trial. After 30 days the improvement in his mood and behavior was so incredible that his pediatrician agreed we should continue. We used along

with diflucan and LiverLife to keep yeast under control. We even saw such great gains that we discontinued TD DMSA after that first month.We have a long way to go still, I hope to get this kid verbal ; ) and we have had recent issues with yeast and his diet (going back to school and staying SCD has proven challenging to say the least).I do wonder if I should continue as I have not seen any gains or wows in quite some time. Maybe a break and restart again in the winter???Good luck to all,ColleenMom of Dylan 8 autism non verbalValtrex 200 days

All-new Yahoo! Mail - Fire up a more powerful email and get things done faster.

[Guest guest]

I think Stan also recommends vitamin A after coming off of Valtrex -- not totally sure of that. Someone jump in and correct me.Chap 'n Ali wrote: Colleen, I

always look forward to your updates, they are soooo inspirational!! Congratulations! If you have seen a leveling off in skills, I think that’s when Stan started to remove the valtrex and watch for changes. I forgot how long he has been on the valtrex. Since you have a recent yeast outbreak maybe you should get that in control 1st to make sure his further gains aren’t being hidden. I had to take my son off of valtrex for a few weeks to get the yeast under control but will go back on as soon as we kick it. Take care and again congrats! - From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of abelcstkdSent: Monday, September 18, 2006 10:25 AMTo: mb12 valtrex Subject: 200 days of Valtrex ~ Our Update Hi

listmates,Dylan Age: 8 years 7 monthsValtrex has been an incredible little miracle for my son. Within the first 3 months he went from sitting in his classroom for 5 minutes to being able to tolerate the classroom for an hour or more. He went from needing his aide to repeat and breakdown everything the teacher instructed to being able to look at the teacher while she instructed the class and being able to follow through with the task. He used to need sensory breaks so frequently that some days he never even made it into the classroom. After a few weeks of valtrex he only would need just a few minutes (SI) to begin his day and then enters the classroom. He is nonverbal, but after valtrex he finally began to make real sounds, from just sing songing to actually pronouncing letters (hold up a flashcard of a P and he will say "pu" sound.... all letters, A - Z). He went from struggling with addition, even with

counters, to being able to add complex problems, ie 4321 + 5298 even knowing how to carry. The last 3 weeks of the school year last year his class was introduced to fractions, it took the class 3 weeks to do this, it took Dylan 1 day. He started the year last year in the first grade classroom trying to catch up as he was behind (started the year at a Kindergarten level though in the 1st grade room) by the end of the year he was doing 2nd grade work!! That means last year, in one year he finished kindergarten, completed 1st grade, and began 2nd grade. He moved so swiftly that the principal, his teachers and the autism specialist all agreed he skip second grade and be placed in 3rd this year. He is still nonverbal but has such a strong grasp on sound and the purpose of communication that for the first time in 5 years I actually believe that this child will some day talk. He reads, writes, adds, subtracts, tells time, potty

trained, has a stronger understanding of safety, self help and communication skills. Has finally become age appropriate in his toy selection and play, sat through a full length movie for the first time and is so much more aware of himself, his surroundings and his peers. He is showing hobbies and interests/preferences and is healthier than I have ever seen him. Everyone who sees him comments on how healthy he appears, how golden his once pasty skin tone is, how his eyes look happy and not bruised, how his hair even looks shiny and not frail and how he looks so in control of his limbs and not so weak in his arms.I hope this may help others who are considering valtrex, we did no titers testing, we saw all the soft signs and did a 30 day trial. After 30 days the improvement in his mood and behavior was so incredible that his pediatrician agreed we should continue. We used along with diflucan and LiverLife to

keep yeast under control. We even saw such great gains that we discontinued TD DMSA after that first month.We have a long way to go still, I hope to get this kid verbal ; ) and we have had recent issues with yeast and his diet (going back to school and staying SCD has proven challenging to say the least).I do wonder if I should continue as I have not seen any gains or wows in quite some time. Maybe a break and restart again in the winter???Good luck to all,ColleenMom of Dylan 8 autism non verbalValtrex 200 days

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[Guest guest]

Wow!! Fantastic and congratulations. Thanks so much for taking the time to share. Would you mind elaborating a bit on what "soft signs" you had seen prior to starting?

Appreciative,

Christi

-----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of abelcstkdSent: Monday, September 18, 2006 10:25 AMTo: mb12 valtrex Subject: 200 days of Valtrex ~ Our Update

Hi listmates,Dylan Age: 8 years 7 monthsValtrex has been an incredible little miracle for my son. Within the first 3 months he went from sitting in his classroom for 5 minutes to being able to tolerate the classroom for an hour or more. He went from needing his aide to repeat and breakdown everything the teacher instructed to being able to look at the teacher while she instructed the class and being able to follow through with the task. He used to need sensory breaks so frequently that some days he never even made it into the classroom. After a few weeks of valtrex he only would need just a few minutes (SI) to begin his day and then enters the classroom. He is nonverbal, but after valtrex he finally began to make real sounds, from just sing songing to actually pronouncing letters (hold up a flashcard of a P and he will say "pu" sound.... all letters, A - Z). He went from struggling with addition, even with counters, to being able to add complex problems, ie 4321 + 5298 even knowing how to carry. The last 3 weeks of the school year last year his class was introduced to fractions, it took the class 3 weeks to do this, it took Dylan 1 day. He started the year last year in the first grade classroom trying to catch up as he was behind (started the year at a Kindergarten level though in the 1st grade room) by the end of the year he was doing 2nd grade work!! That means last year, in one year he finished kindergarten, completed 1st grade, and began 2nd grade. He moved so swiftly that the principal, his teachers and the autism specialist all agreed he skip second grade and be placed in 3rd this year. He is still nonverbal but has such a strong grasp on sound and the purpose of communication that for the first time in 5 years I actually believe that this child will some day talk. He reads, writes, adds, subtracts, tells time, potty trained, has a stronger understanding of safety, self help and communication skills. Has finally become age appropriate in his toy selection and play, sat through a full length movie for the first time and is so much more aware of himself, his surroundings and his peers. He is showing hobbies and interests/preferences and is healthier than I have ever seen him. Everyone who sees him comments on how healthy he appears, how golden his once pasty skin tone is, how his eyes look happy and not bruised, how his hair even looks shiny and not frail and how he looks so in control of his limbs and not so weak in his arms.I hope this may help others who are considering valtrex, we did no titers testing, we saw all the soft signs and did a 30 day trial. After 30 days the improvement in his mood and behavior was so incredible that his pediatrician agreed we should continue. We used along with diflucan and LiverLife to keep yeast under control. We even saw such great gains that we discontinued TD DMSA after that first month.We have a long way to go still, I hope to get this kid verbal ; ) and we have had recent issues with yeast and his diet (going back to school and staying SCD has proven challenging to say the least).I do wonder if I should continue as I have not seen any gains or wows in quite some time. Maybe a break and restart again in the winter???Good luck to all,ColleenMom of Dylan 8 autism non verbalValtrex 200 days

[Guest guest]

Hi Colleen, miracle is the right word for it. I am so happy for you

and for Dylan, he must be feeling so much better about himself. Just

to climb out of chronic failure and get the motivation to get out of

himself and do things is immense. For any kid to skip a grade is

huge and for a child on the spectrum its nothing short of

phenomenal. I am sure he will be talking so much one day that you

will beg him to stop :-). If you have videos documenting your

progress you could possibly show at the DAN conference, motivate

other parents to try the therapy perhaps?

Gayatri

>

> Hi listmates,

>

> Dylan Age: 8 years 7 months

> Valtrex has been an incredible little miracle for my son. Within

the

> first 3 months he went from sitting in his classroom for 5 minutes

to

> being able to tolerate the classroom for an hour or more. He went

> from needing his aide to repeat and breakdown everything the

teacher

> instructed to being able to look at the teacher while she

instructed

> the class and being able to follow through with the task. He used

to

> need sensory breaks so frequently that some days he never even

made

> it into the classroom. After a few weeks of valtrex he only would

> need just a few minutes (SI) to begin his day and then enters the

> classroom. He is nonverbal, but after valtrex he finally began to

> make real sounds, from just sing songing to actually pronouncing

> letters (hold up a flashcard of a P and he will say " pu " sound....

> all letters, A - Z). He went from struggling with addition, even

> with counters, to being able to add complex problems, ie 4321 +

5298

> even knowing how to carry. The last 3 weeks of the school year

last

> year his class was introduced to fractions, it took the class 3

weeks

> to do this, it took Dylan 1 day. He started the year last year in

> the first grade classroom trying to catch up as he was behind

> (started the year at a Kindergarten level though in the 1st grade

> room) by the end of the year he was doing 2nd grade work!! That

> means last year, in one year he finished kindergarten, completed

1st

> grade, and began 2nd grade. He moved so swiftly that the

principal,

> his teachers and the autism specialist all agreed he skip second

> grade and be placed in 3rd this year. He is still nonverbal but

has

> such a strong grasp on sound and the purpose of communication that

> for the first time in 5 years I actually believe that this child

will

> some day talk. He reads, writes, adds, subtracts, tells time,

potty

> trained, has a stronger understanding of safety, self help and

> communication skills. Has finally become age appropriate in his

toy

> selection and play, sat through a full length movie for the first

> time and is so much more aware of himself, his surroundings and

his

> peers. He is showing hobbies and interests/preferences and is

> healthier than I have ever seen him. Everyone who sees him

comments

> on how healthy he appears, how golden his once pasty skin tone is,

> how his eyes look happy and not bruised, how his hair even looks

> shiny and not frail and how he looks so in control of his limbs

and

> not so weak in his arms.

>

> I hope this may help others who are considering valtrex, we did no

> titers testing, we saw all the soft signs and did a 30 day trial.

> After 30 days the improvement in his mood and behavior was so

> incredible that his pediatrician agreed we should continue. We

used

> along with diflucan and LiverLife to keep yeast under control. We

> even saw such great gains that we discontinued TD DMSA after that

> first month.

>

> We have a long way to go still, I hope to get this kid verbal ; )

and

> we have had recent issues with yeast and his diet (going back to

> school and staying SCD has proven challenging to say the least).

>

> I do wonder if I should continue as I have not seen any gains or

wows

> in quite some time. Maybe a break and restart again in the

winter???

>

> Good luck to all,

>

> Colleen

> Mom of Dylan 8 autism non verbal

> Valtrex 200 days

>

[Guest guest]

That's good advice.

>

> Colleen,

>

> I always look forward to your updates, they are soooo inspirational!!

> Congratulations! If you have seen a leveling off in skills, I think that's

> when Stan started to remove the valtrex and watch for changes. I forgot how

> long he has been on the valtrex. Since you have a recent yeast outbreak

> maybe you should get that in control 1st to make sure his further gains

> aren't being hidden. I had to take my son off of valtrex for a few weeks to

> get the yeast under control but will go back on as soon as we kick it. Take

> care and again congrats! -

>

>

[Guest guest]

We started with a fraction of his dose, so we did not see anything

until he was taking 750 mg daily (about 1 week into the therapy). We

saw at that time, a low fever that lasted less than 12 hours, a SMALL

rash (the size of a jelly bean) that lasted a few hours, chapped lips

and cheeks (this was pretty severe) that lasted about one week. All

while making significant gains at the same time. First major wows

were in behavior and in compliance as well as self awareness.

Please keep us posted on your progress, good luck and blessings,

Colleen

>

> Hi Colleen,

>

> Congrats on your child's progress. Hope he continues to improve.

>

> I just started my boy (5.5 yers old, ASD, almost nonverbal) on

Valtrex. Today is day 3. We have not noticed much of anything.

When will I see something? What will I see?

>

> I'm anxious and trying to put a timeline or expected milestones

on this.

>

> Thank you.

>

[Guest guest]

Gayatri,

Thank you so much for your response, we are sooooo happy for Dylan

and very proud of the little guy!!! OY!!! I wish I had videos!

Colleen

>

> Hi Colleen, miracle is the right word for it. I am so happy for you

> and for Dylan, he must be feeling so much better about himself.

Just

> to climb out of chronic failure and get the motivation to get out

of

> himself and do things is immense. For any kid to skip a grade is

> huge and for a child on the spectrum its nothing short of

> phenomenal. I am sure he will be talking so much one day that you

> will beg him to stop :-). If you have videos documenting your

> progress you could possibly show at the DAN conference, motivate

> other parents to try the therapy perhaps?

>

> Gayatri

>

[Guest guest]

Hi Christi,

Thanks! Dylan's soft signs were nearly identical to those of Stan's

son, Ethan, so I knew I had to at least trial valtrex. Those signs

were:

non-verbal

SID

little eye contact

pale skin

puffy eyes (Dylan's were also black underneath and sunken in)

food sensitivities

thrush

sound sensitivities (extreme for Dylan)

gross and fine motor delays

perceverate on water, glue, clocks (just like Ethan)

Dylan also regressed after the MMR, always had ear and head

sensitivities, rashes/eczema, and was not fully potty trained yet at

8 years old (now he is!!! YEAH!!!)

Hope this helps,

Colleen

>

> Wow!! Fantastic and congratulations. Thanks so much for taking the

time

> to share. Would you mind elaborating a bit on what " soft signs " you

had

> seen prior to starting?

>

> Appreciative,

>

> Christi

>

[Guest guest]

That does sound a lot like Ethan was. Ethan's eyes were puffy though.

- Stan

> >

> > Wow!! Fantastic and congratulations. Thanks so much for taking the

> time

> > to share. Would you mind elaborating a bit on what " soft signs " you

> had

> > seen prior to starting?

> >

> > Appreciative,

> >

> > Christi

> >

>

[Guest guest]

Thanks!!! I've been on this group for a while and just trying to get my son in a good place gut-wise before trying. He has a lot of those symptoms, other than no current thrush, and now verbal after a year of chelating. He's perseverative on different things, but I imagine the subject matter isn't really the issue?.

Thanks again!!! This encourages me.

Christi

-----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of abelcstkdSent: Monday, September 18, 2006 5:40 PMTo: mb12 valtrex Subject: Re: 200 days of Valtrex ~ Our Update

Hi Christi,Thanks! Dylan's soft signs were nearly identical to those of Stan's son, Ethan, so I knew I had to at least trial valtrex. Those signs were:non-verbalSIDlittle eye contactpale skinpuffy eyes (Dylan's were also black underneath and sunken in)food sensitivitiesthrushsound sensitivities (extreme for Dylan)gross and fine motor delaysperceverate on water, glue, clocks (just like Ethan)Dylan also regressed after the MMR, always had ear and head sensitivities, rashes/eczema, and was not fully potty trained yet at 8 years old (now he is!!! YEAH!!!)Hope this helps,Colleen>> Wow!! Fantastic and congratulations. Thanks so much for taking the time> to share. Would you mind elaborating a bit on what "soft signs" you had> seen prior to starting?> > Appreciative,> > Christi>

[Guest guest]

>

> Hi listmates,

>

> Dylan Age: 8 years 7 months

> Valtrex has been an incredible little miracle for my son. Within

the

> first 3 months he went from sitting in his classroom for 5 minutes

to

> being able to tolerate the classroom for an hour or more. He went

> from needing his aide to repeat and breakdown everything the

teacher

> instructed to being able to look at the teacher while she

instructed

> the class and being able to follow through with the task. He used

to

> need sensory breaks so frequently that some days he never even

made

> it into the classroom. After a few weeks of valtrex he only would

> need just a few minutes (SI) to begin his day and then enters the

> classroom. He is nonverbal, but after valtrex he finally began to

> make real sounds, from just sing songing to actually pronouncing

> letters (hold up a flashcard of a P and he will say " pu " sound....

> all letters, A - Z). He went from struggling with addition, even

> with counters, to being able to add complex problems, ie 4321 +

5298

> even knowing how to carry. The last 3 weeks of the school year

last

> year his class was introduced to fractions, it took the class 3

weeks

> to do this, it took Dylan 1 day. He started the year last year in

> the first grade classroom trying to catch up as he was behind

> (started the year at a Kindergarten level though in the 1st grade

> room) by the end of the year he was doing 2nd grade work!! That

> means last year, in one year he finished kindergarten, completed

1st

> grade, and began 2nd grade. He moved so swiftly that the

principal,

> his teachers and the autism specialist all agreed he skip second

> grade and be placed in 3rd this year. He is still nonverbal but

has

> such a strong grasp on sound and the purpose of communication that

> for the first time in 5 years I actually believe that this child

will

> some day talk. He reads, writes, adds, subtracts, tells time,

potty

> trained, has a stronger understanding of safety, self help and

> communication skills. Has finally become age appropriate in his

toy

> selection and play, sat through a full length movie for the first

> time and is so much more aware of himself, his surroundings and

his

> peers. He is showing hobbies and interests/preferences and is

> healthier than I have ever seen him. Everyone who sees him

comments

> on how healthy he appears, how golden his once pasty skin tone is,

> how his eyes look happy and not bruised, how his hair even looks

> shiny and not frail and how he looks so in control of his limbs

and

> not so weak in his arms.

>

> I hope this may help others who are considering valtrex, we did no

> titers testing, we saw all the soft signs and did a 30 day trial.

> After 30 days the improvement in his mood and behavior was so

> incredible that his pediatrician agreed we should continue. We

used

> along with diflucan and LiverLife to keep yeast under control. We

> even saw such great gains that we discontinued TD DMSA after that

> first month.

>

> We have a long way to go still, I hope to get this kid verbal ; )

and

> we have had recent issues with yeast and his diet (going back to

> school and staying SCD has proven challenging to say the least).

>

> I do wonder if I should continue as I have not seen any gains or

wows

> in quite some time. Maybe a break and restart again in the

winter???

>

> Good luck to all,

>

> Colleen

> Mom of Dylan 8 autism non verbal

> Valtrex 200 days

>

[Guest guest]

what dose of diflucan is Dylon on? thanks

>

> Hi listmates,

>

> Dylan Age: 8 years 7 months

> Valtrex has been an incredible little miracle for my son. Within

the

> first 3 months he went from sitting in his classroom for 5 minutes

to

> being able to tolerate the classroom for an hour or more. He went

> from needing his aide to repeat and breakdown everything the

teacher

> instructed to being able to look at the teacher while she

instructed

> the class and being able to follow through with the task. He used

to

> need sensory breaks so frequently that some days he never even

made

> it into the classroom. After a few weeks of valtrex he only would

> need just a few minutes (SI) to begin his day and then enters the

> classroom. He is nonverbal, but after valtrex he finally began to

> make real sounds, from just sing songing to actually pronouncing

> letters (hold up a flashcard of a P and he will say " pu " sound....

> all letters, A - Z). He went from struggling with addition, even

> with counters, to being able to add complex problems, ie 4321 +

5298

> even knowing how to carry. The last 3 weeks of the school year

last

> year his class was introduced to fractions, it took the class 3

weeks

> to do this, it took Dylan 1 day. He started the year last year in

> the first grade classroom trying to catch up as he was behind

> (started the year at a Kindergarten level though in the 1st grade

> room) by the end of the year he was doing 2nd grade work!! That

> means last year, in one year he finished kindergarten, completed

1st

> grade, and began 2nd grade. He moved so swiftly that the

principal,

> his teachers and the autism specialist all agreed he skip second

> grade and be placed in 3rd this year. He is still nonverbal but

has

> such a strong grasp on sound and the purpose of communication that

> for the first time in 5 years I actually believe that this child

will

> some day talk. He reads, writes, adds, subtracts, tells time,

potty

> trained, has a stronger understanding of safety, self help and

> communication skills. Has finally become age appropriate in his

toy

> selection and play, sat through a full length movie for the first

> time and is so much more aware of himself, his surroundings and

his

> peers. He is showing hobbies and interests/preferences and is

> healthier than I have ever seen him. Everyone who sees him

comments

> on how healthy he appears, how golden his once pasty skin tone is,

> how his eyes look happy and not bruised, how his hair even looks

> shiny and not frail and how he looks so in control of his limbs

and

> not so weak in his arms.

>

> I hope this may help others who are considering valtrex, we did no

> titers testing, we saw all the soft signs and did a 30 day trial.

> After 30 days the improvement in his mood and behavior was so

> incredible that his pediatrician agreed we should continue. We

used

> along with diflucan and LiverLife to keep yeast under control. We

> even saw such great gains that we discontinued TD DMSA after that

> first month.

>

> We have a long way to go still, I hope to get this kid verbal ; )

and

> we have had recent issues with yeast and his diet (going back to

> school and staying SCD has proven challenging to say the least).

>

> I do wonder if I should continue as I have not seen any gains or

wows

> in quite some time. Maybe a break and restart again in the

winter???

>

> Good luck to all,

>

> Colleen

> Mom of Dylan 8 autism non verbal

> Valtrex 200 days

>