Re: Valtrex ingredients? bethanechol; cassein and detox

[Guest guest]

BTW, bethanechol also reportedly contains trace amounts of lactose which could explain why a subset of children have severe allergic reactions to bethanechol. My son was a huge responder to both, but he also did not have high levels of cassein peptides in his urine and was only moderately sensitive to cassein (as compared to wheat, blue dye, sweet potatoes, etc) on a food IgG blood allergy test. BTW, a while back I posted that cassein is reported to block the detox process for mercury (many people asked me for the link and I could not remember so I never responded). I found the source -- it is the DAN position paper on chelation that can be found on the Autism Research Institute website (ARI). It is an overview of the DAN detox protocol, written by "professionals with over 90 years of experience in toxicology". In the middle of the paper, it states about cassein and mercury

detox. Much as changed since that paper was written, but to the best of my knowledge, not their position on cassein and mercury toxicity. All of that being said, many homeopaths who have a long history of chelation, strongly disagree and feel that raw milk is an essential component of good health and have recovered individuals while on raw milk. I am not taking sides. I know that before we saw an ENT for chronic ear infections when was about 2, we had him on raw milk (pre diagnosis for autism -- never heard of DAN). The ENT told us to take him off milk, and immediately started to improve and never had another ear infection. We were able to cancel his appointment to have tubes put in the ears. But that is one child who could not tolerate large amounts of cassein. So each kid is differenct. One of my dearest friends is highly mercury toxic (diagnosed with lupus)

and she sees a homeopath who has most of his patients on raw milk. She beat a death sentence and is recovering so I'm not taking sides. Verasargeantdriscoll wrote: >> Can anyone tell me all the ingredients in commercial Valtrex? My son > is very allergic and we need to consider whether he can take

these. > > If he is allergic to say, the tiny amounts of casein in the lactose > that may be in the pills, or any soy-derived ingredients, what options > are there? Am I correct in understanding that Valtrex is still under > patent and cannot be compounded? Has anyone had a transdermal > formulation made?> > Thanks,> Suzannejust ask your pharmacist to look it up through his supplier and contacts in the product info packs we as patients are not given this info and we are not given listed ingredients on the bottles. you are right you would want the real med we do this with diflucan b/c of the lactose but valtrex is still under patent so research it with your local pharm they should be willing to do that.>

[Guest guest]

Bethanechol can be compunded without the lactose filler which is in

the pills. My son is extremely sensitive to casein (IgE allergy),

and he was fine with it. However, bethanechol provoked possible

seizures in him and we had to stop. It is known to lower the seizure

threshold.

Suzanne

the

> >

> > Can anyone tell me all the ingredients in commercial Valtrex? My

son

> > is very allergic and we need to consider whether he can take

these.

> >

> > If he is allergic to say, the tiny amounts of casein in the

lactose

> > that may be in the pills, or any soy-derived ingredients, what

> options

> > are there? Am I correct in understanding that Valtrex is still

under

> > patent and cannot be compounded? Has anyone had a transdermal

> > formulation made?

> >

> > Thanks,

> > Suzanne

> just ask your pharmacist to look it up through his supplier and

> contacts in the product info packs we as patients are not given

this

> info and we are not given listed ingredients on the bottles. you

are

> right you would want the real med we do this with diflucan b/c of

the

> lactose but valtrex is still under patent so research it with your

> local pharm they should be willing to do that.

> >

>

[Guest guest]

We do have it compounded, supposedly without lactose. But is it totally lactose free? I can not say. A lot of people have asked why we have it compounded, and I was told it was because we wanted it cassein free. I have never asked if he pharmacist simply takes the pills and then grinds them up with stevia. Maybe I should. For us it does not matter, we tried to take him off for the third time last month, and he has not regressed. So after 2.5 years, maybe we are done. Before we always got regression -- this time no. VeraSuzanne wrote: Bethanechol can be compunded without the lactose filler which is in the pills. My son is extremely sensitive to casein (IgE allergy), and he was fine with it. However, bethanechol provoked possible seizures in him and we had to stop. It is known to lower the seizure threshold.Suzannethe > >> > Can anyone tell me all the ingredients in commercial Valtrex? My son > > is very allergic and we need to consider whether he can take these. > > > > If he is allergic to say, the tiny amounts of casein in the lactose > > that may be in the pills, or any soy-derived ingredients, what > options > > are there? Am I correct in understanding that Valtrex is still under > > patent and cannot be compounded? Has anyone had a transdermal > > formulation made?> > > > Thanks,> > Suzanne> just ask your pharmacist to look it up through his supplier and > contacts in the product info packs we as patients are not given this > info and we are not given listed ingredients on the bottles. you are > right you would want the real med we do this with diflucan b/c of

the > lactose but valtrex is still under patent so research it with your > local pharm they should be willing to do that.> >>

[Guest guest]

Our daughter also had seizures associated with bethanechol- bfore I

knew of the lactose!

> > >

> > > Can anyone tell me all the ingredients in commercial Valtrex?

My

> son

> > > is very allergic and we need to consider whether he can take

> these.

> > >

> > > If he is allergic to say, the tiny amounts of casein in the

> lactose

> > > that may be in the pills, or any soy-derived ingredients, what

> > options

> > > are there? Am I correct in understanding that Valtrex is still

> under

> > > patent and cannot be compounded? Has anyone had a transdermal

> > > formulation made?

> > >

> > > Thanks,

> > > Suzanne

> > just ask your pharmacist to look it up through his supplier and

> > contacts in the product info packs we as patients are not given

> this

> > info and we are not given listed ingredients on the bottles. you

> are

> > right you would want the real med we do this with diflucan b/c of

> the

> > lactose but valtrex is still under patent so research it with

your

> > local pharm they should be willing to do that.

> > >

> >

>

[Guest guest]

Hearing stories of parents that figured out how to avoid ear infections and stop

the tubes

being inserted... we'll it never gets old.

- Stan

> >

> > Can anyone tell me all the ingredients in commercial Valtrex? My son

> > is very allergic and we need to consider whether he can take these.

> >

> > If he is allergic to say, the tiny amounts of casein in the lactose

> > that may be in the pills, or any soy-derived ingredients, what

> options

> > are there? Am I correct in understanding that Valtrex is still under

> > patent and cannot be compounded? Has anyone had a transdermal

> > formulation made?

> >

> > Thanks,

> > Suzanne

> just ask your pharmacist to look it up through his supplier and

> contacts in the product info packs we as patients are not given this

> info and we are not given listed ingredients on the bottles. you are

> right you would want the real med we do this with diflucan b/c of the

> lactose but valtrex is still under patent so research it with your

> local pharm they should be willing to do that.

> >

>

[Guest guest]

I'm curious. Did you try the compounded bethanechol without any issues? I'm

curious if it

really was the traces of lactose or the bethanechol itself.

Thanks.

- Stan

>

> Our daughter also had seizures associated with bethanechol- bfore I

> knew of the lactose!

>

[Guest guest]

Lactose issues aside, one of the known side effects of bethanechol

is a lowering of the seizure threshold. This is per Dr. Megson,

probably the most knowledgeable DAN doctor regarding bethanechol. It

was not listed among the side effects in the medication profile

provided by the pharmacy however. We did not know about it until we

were in the ER with possible seizures, and even then we only found

out through a phone call to Dr. Megson. The ER staff did not know

this.

Suzanne

> > > >

> > > > Can anyone tell me all the ingredients in commercial

Valtrex?

> My

> > son

> > > > is very allergic and we need to consider whether he can take

> > these.

> > > >

> > > > If he is allergic to say, the tiny amounts of casein in the

> > lactose

> > > > that may be in the pills, or any soy-derived ingredients,

what

> > > options

> > > > are there? Am I correct in understanding that Valtrex is

still

> > under

> > > > patent and cannot be compounded? Has anyone had a

transdermal

> > > > formulation made?

> > > >

> > > > Thanks,

> > > > Suzanne

> > > just ask your pharmacist to look it up through his supplier

and

> > > contacts in the product info packs we as patients are not

given

> > this

> > > info and we are not given listed ingredients on the bottles.

you

> > are

> > > right you would want the real med we do this with diflucan b/c

of

> > the

> > > lactose but valtrex is still under patent so research it with

> your

> > > local pharm they should be willing to do that.

> > > >

> > >

> >

>

[Guest guest]

Stan, it is the bethanechol itself. Per Dr. Megson. We used the

compounded version, so no lactose. This is apparently a known but not

well publicized side effect.

Suzanne

> >

> > Our daughter also had seizures associated with bethanechol- bfore

I

> > knew of the lactose!

> >

>

[Guest guest]

We never tried the compounded form-I had no clue at the time and was

just grasping for straws. Our D stools looked like a plate of the

food she ate sometimes so I knew that pancreatic function was amiss.

As Suzanne says, Dr. Megson is convinced that it lowers the

threshold. I'm a believer.

> > >

> > > Our daughter also had seizures associated with bethanechol-

bfore

> I

> > > knew of the lactose!

> > >

> >

>

[Guest guest]

Very interesting. Thanks for the post.

- Stan

> > > > >

> > > > > Can anyone tell me all the ingredients in commercial

> Valtrex?

> > My

> > > son

> > > > > is very allergic and we need to consider whether he can take

> > > these.

> > > > >

> > > > > If he is allergic to say, the tiny amounts of casein in the

> > > lactose

> > > > > that may be in the pills, or any soy-derived ingredients,

> what

> > > > options

> > > > > are there? Am I correct in understanding that Valtrex is

> still

> > > under

> > > > > patent and cannot be compounded? Has anyone had a

> transdermal

> > > > > formulation made?

> > > > >

> > > > > Thanks,

> > > > > Suzanne

> > > > just ask your pharmacist to look it up through his supplier

> and

> > > > contacts in the product info packs we as patients are not

> given

> > > this

> > > > info and we are not given listed ingredients on the bottles.

> you

> > > are

> > > > right you would want the real med we do this with diflucan b/c

> of

> > > the

> > > > lactose but valtrex is still under patent so research it with

> > your

> > > > local pharm they should be willing to do that.

> > > > >

> > > >

> > >

> >

>