Guest guest Posted September 27, 2006 Report Share Posted September 27, 2006 Hi and welcome. I'm a fairly new member to this group as well. I think that you need to get a doc who will take you seriously. Having a nodule that grows and shrinks and grows again along with antibodies can be treated. It's great that the kelp is working for you but hashi's can go from hypo to hyper and you need monitoring and a doc in your court if it does. I understand your feeling down about your body attacking itself. Mine attqacked my thyroid recently after years of attacking my joints and my rproductive system. I still have a " phantom " ovary that despite having been removed grows back (ovarian tissue and cysts) they have been in htree times since the hysto and still it comes back. Kind of like your nodule. Hang in there, find a good doc and read as much as time, with two small kids, will let you about thyroid problems so you'll know when something is worse or better. It's your body, who better than you to advocate for it. Judy > > Hello everyone. > > I am 32 and think I have Hashimoto's Thyroiditis. > My Mum was very poorly for a number of years and eventually > diagnosed in her 30's, my Nana and my aunt also have it. > Me. I always had loads of energy, did a physical job and went to the > gym on top. My weight always hung around 8 stone and I never got > poorly. At 28 I fell pregnant with my first child and had a TSH test > which was middle of the range. At 30 I fell pregnant again and in > March 2005 had my second child. It was hard work looking after 2 and > I was tired but I expected that. By December I'd started to feel > more like me again and was really looking forward to 2006. I got a > gym membership and was ready for action. However, in January I got a > chest infection and although antibiotics made a slight improvement I > never seemed to recover fully. By April I was starting to worry. I > was so exhausted I was concerned about my childrens safety, I was > cold despite being dressed like the mitchelin man and my bones ached > so I went to the gp and told him everything. I gave blood and then > awaited results. Eventually I phoned the receptionist because I > hadn't heard anything and she told me there was nothing wrong with > me and I don't need to go back. At the beginning of June I developed > a lump in my neck. It started as a pea sized lump and grew to about > an inch long in the space of 3 days although it constantly changes > size. I went to another gp who refered me to see and ear, nose and > throat specialist. He took a biopsy, I gave more blood and had an > ultra sound. The sonographer said it looked like a cyst, I asked why > it kept getting bigger and smaller and she said maybe it bled. The > consultant said I had a goitre but my thyroid levels where all > normal so there was nothing to do. He couldn't tell me why I had it > or what had triggered it, he said it wasn't anything I did or do and > there was nothing I could do to make it go away, my tiredness and > other symptoms were totally unrelated so I'd need to return to my gp > for those. He didn't seem to understand my question about why it > changes size. As I was about to leave he added almost as an > afterthought that I had the antibodies but there was nothing I could > do about that. > As I didn't want to do nothing I changed my diet. I've almost given > up wheat, dairy and coffee and eat lots of fruit, veg, nuts, seeds, > brown rice etc and also take a kelp supplement. Almost straight away > my energy levels returned and I started losing weight (10lb in 6wks). > I have so many questions about it all. I don't like the thought that > my body is attacking itself and can't believe there is nothing I can > do about it. Does anyone have any inspirational stories? > Thanks for listening. > Lucy X > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2006 Report Share Posted September 27, 2006 Lucy, I do not blame you for feeling frustrated. I went thru years of frustration regarding thyroid symptoms. I was dx with a thyroid condition at 16. I felt fine even after giving birth to three children in seven years. Then my medication was switched and symptoms returned. Do you have copies of your tests results? The reason I am asking is a number of doctors said my labs were fine when they were not. Some labs/doctors use a high normals. This happened to me. Many doctors here consider a TSH range of 4-5 normal. That left me to contend with unexplained symptoms for years until I saw my sister's endo. She explained a normal TSH is around 2. Mine TSH was 6. She treated me for two months and instructed my doctor about continued treatment. My internist ignored her treatment suggestions and I became worse. A few months later, I found and began treating with a good endo here and am getting better. Some doctors do not treat Hashimoto. Others do. Continue looking for a helpful doctor. It took 10 years for me to find them, but was worth it. I asked people and doctors for referrals. Congratulations of losing weight and determining what works for you. In spite of Hashimoto treatment, diet and exercise, I have been successful in losing weight. Hello everyone. I am 32 and think I have Hashimoto's Thyroiditis. My Mum was very poorly for a number of years and eventually diagnosed in her 30's, my Nana and my aunt also have it. Me. I always had loads of energy, did a physical job and went to the gym on top. My weight always hung around 8 stone and I never got poorly. At 28 I fell pregnant with my first child and had a TSH test which was middle of the range. At 30 I fell pregnant again and in March 2005 had my second child. It was hard work looking after 2 and I was tired but I expected that. By December I'd started to feel more like me again and was really looking forward to 2006. I got a gym membership and was ready for action. However, in January I got a chest infection and although antibiotics made a slight improvement I never seemed to recover fully. By April I was starting to worry. I was so exhausted I was concerned about my childrens safety, I was cold despite being dressed like the mitchelin man and my bones ached so I went to the gp and told him everything. I gave blood and then awaited results. Eventually I phoned the receptionist because I hadn't heard anything and she told me there was nothing wrong with me and I don't need to go back. At the beginning of June I developed a lump in my neck. It started as a pea sized lump and grew to about an inch long in the space of 3 days although it constantly changes size. I went to another gp who refered me to see and ear, nose and throat specialist. He took a biopsy, I gave more blood and had an ultra sound. The sonographer said it looked like a cyst, I asked why it kept getting bigger and smaller and she said maybe it bled. The consultant said I had a goitre but my thyroid levels where all normal so there was nothing to do. He couldn't tell me why I had it or what had triggered it, he said it wasn't anything I did or do and there was nothing I could do to make it go away, my tiredness and other symptoms were totally unrelated so I'd need to return to my gp for those. He didn't seem to understand my question about why it changes size. As I was about to leave he added almost as an afterthought that I had the antibodies but there was nothing I could do about that. As I didn't want to do nothing I changed my diet. I've almost given up wheat, dairy and coffee and eat lots of fruit, veg, nuts, seeds, brown rice etc and also take a kelp supplement. Almost straight away my energy levels returned and I started losing weight (10lb in 6wks). I have so many questions about it all. I don't like the thought that my body is attacking itself and can't believe there is nothing I can do about it. Does anyone have any inspirational stories? Thanks for listening. Lucy X Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2006 Report Share Posted September 29, 2006 Hi Judy, Thanks for replying. I'm sorry to hear things have been hard for so long for you. Do you mind me asking about this comment? > Having a nodule that grows and shrinks and grows again along with > antibodies can be treated. Can it? Do you know how? Do other peoples grow and shrink? I thought if I knew what caused it to grow and shrink I'd be able to control it and shrink it and maybe even it would go away. Thanks Lucy X Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2006 Report Share Posted September 29, 2006 Hi Do you have copies of your > tests results? I have the TSH one taken a couple of months before the lump came when I was feeling my worst, I'll find it and look. > I found and began treating with a good endo here and am getting better. I'm glad things are getting better for you, it really good to hear that people don't just get worse and worse. > Some doctors do not treat Hashimoto. Others do. How is Hashimotos treated? With thyroxine tablets? Or is there another way? In > spite of Hashimoto treatment, diet and exercise, I have been successful in losing weight. Well done , Weight loss is hard enough without extra difficulties. Thanks, Lucy X Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2006 Report Share Posted September 29, 2006 Lucy, My nodule shunk and enlarged. Taking the correct dose of thyroid medication caused it to shrink and too much medication caused it to enlarge. Shrinking and enlarging may have to do with hormonal imbalance. My sister had one nodule refused to take medication and developed a second one. Nan >Having a nodule that grows and shrinks and grows again along with >antibodies can be treated. Can it? Do you know how? Do other peoples grow and shrink? I thought if I knew what caused it to grow and shrink I'd be able to control it and shrink it and maybe even it would go away. Thanks Lucy X Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2006 Report Share Posted September 30, 2006 Hi , Thank-you for answering me and telling me about your nodule enlarging and shrinking as well. I've not been able to find any information about it and thought either I was the only one, or I was making it up. Before I saw the consultant my nodule was getting quite large and sometimes when I was in bed it felt like something was tight round my neck I didn't know if that was psychological or not. Although I have felt depressed at times I am not depressed, its the first thing the drs ask about though and I'm sure they are all trying to pin PND on me, they are very quick to prescribe anti-depressants here. Thanks for the information on the other vitamins. I kind of have this hope that if I take the right supplements my body will be able to balance itself and become healthy, I'm not sure if thats possible but I want to hold off on thyroid pills if I can. Hope the test results are what you are hoping on Monday. And sorry for the weight loss blunder. Lucy X Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2006 Report Share Posted October 14, 2006 Hi Lucy, I am 32 years old and have just been diagnosed with Hashimotos Thyroiditis. I would definately advise you to go to another doctor and get them to check for antibodies, just to know if you have hashimotos or not? I think it does not matter if I take a kelp supplement or not as i have an autoimmune disease and it won't help my thyroid as it is being attacked by my immune system, my naturopath told me not to take it. Do you take Selenium, I was told that Hashimotos and Selenium go hand in hand, it is vital for healthy function of the immune system. I have just started a bowel detox, a healthy diet that consists of alot of fruit & vege juices, nuts, seeds, gluten and dairy free. I have all the symptoms but do not have a lump in my throat... I'd like to know if you do get diagnosed with Hashimotos as my sister also has a lump in her throat and told that she has nothing to worry about. Look forward to hearing more from you > > Hello everyone. > > I am 32 and think I have Hashimoto's Thyroiditis. > My Mum was very poorly for a number of years and eventually > diagnosed in her 30's, my Nana and my aunt also have it. > Me. I always had loads of energy, did a physical job and went to the > gym on top. My weight always hung around 8 stone and I never got > poorly. At 28 I fell pregnant with my first child and had a TSH test > which was middle of the range. At 30 I fell pregnant again and in > March 2005 had my second child. It was hard work looking after 2 and > I was tired but I expected that. By December I'd started to feel > more like me again and was really looking forward to 2006. I got a > gym membership and was ready for action. However, in January I got a > chest infection and although antibiotics made a slight improvement I > never seemed to recover fully. By April I was starting to worry. I > was so exhausted I was concerned about my childrens safety, I was > cold despite being dressed like the mitchelin man and my bones ached > so I went to the gp and told him everything. I gave blood and then > awaited results. Eventually I phoned the receptionist because I > hadn't heard anything and she told me there was nothing wrong with > me and I don't need to go back. At the beginning of June I developed > a lump in my neck. It started as a pea sized lump and grew to about > an inch long in the space of 3 days although it constantly changes > size. I went to another gp who refered me to see and ear, nose and > throat specialist. He took a biopsy, I gave more blood and had an > ultra sound. The sonographer said it looked like a cyst, I asked why > it kept getting bigger and smaller and she said maybe it bled. The > consultant said I had a goitre but my thyroid levels where all > normal so there was nothing to do. He couldn't tell me why I had it > or what had triggered it, he said it wasn't anything I did or do and > there was nothing I could do to make it go away, my tiredness and > other symptoms were totally unrelated so I'd need to return to my gp > for those. He didn't seem to understand my question about why it > changes size. As I was about to leave he added almost as an > afterthought that I had the antibodies but there was nothing I could > do about that. > As I didn't want to do nothing I changed my diet. I've almost given > up wheat, dairy and coffee and eat lots of fruit, veg, nuts, seeds, > brown rice etc and also take a kelp supplement. Almost straight away > my energy levels returned and I started losing weight (10lb in 6wks). > I have so many questions about it all. I don't like the thought that > my body is attacking itself and can't believe there is nothing I can > do about it. Does anyone have any inspirational stories? > Thanks for listening. > Lucy X > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2006 Report Share Posted October 14, 2006 , Funny you should mention "Glandular Fever" - I had to look it up too, we call it Mononucleosis in the States. Yes, I DID have a very serious case of this at 21. At 24 my body went nuts - gained weight, got acne, periods went crazy. No one diagnosed me with anything back then though I knew something was wrong. I've often wondered if that's what started all of this. I wasn't diagnosed with Hashi's until this summer - at 36. My endocrinologist also put me on selenium and Acidophalus and a bunch of other stuff. SHe also said that it's believe now that the bowel helps regulate / control the immune system. So a bowel cleanse seems to fit into that. I'll have to check out that book and see what it says. Sounds interesting. I'll also be curious to see who else has had Mono. Re: Hello, introduction. Sorry its so long. Hi Lucy,I am 32 years old and have just been diagnosed with Hashimotos Thyroiditis. I would definately advise you to go to another doctor and get them to check for antibodies, just to know if you have hashimotos or not? I think it does not matter if I take a kelp supplement or not as i have an autoimmune disease and it won't help my thyroid as it is being attacked by my immune system, my naturopath told me not to take it. Do you take Selenium, I was told that Hashimotos and Selenium go hand in hand, it is vital for healthy function of the immune system. I have just started a bowel detox, a healthy diet that consists of alot of fruit & vege juices, nuts, seeds, gluten and dairy free. I have all the symptoms but do not have a lump in my throat...I'd like to know if you do get diagnosed with Hashimotos as my sister also has a lump in her throat and told that she has nothing to worry about.Look forward to hearing more from you>> Hello everyone.> > I am 32 and think I have Hashimoto's Thyroiditis. > My Mum was very poorly for a number of years and eventually > diagnosed in her 30's, my Nana and my aunt also have it.> Me. I always had loads of energy, did a physical job and went to the > gym on top. My weight always hung around 8 stone and I never got > poorly. At 28 I fell pregnant with my first child and had a TSH test > which was middle of the range. At 30 I fell pregnant again and in > March 2005 had my second child. It was hard work looking after 2 and > I was tired but I expected that. By December I'd started to feel > more like me again and was really looking forward to 2006. I got a > gym membership and was ready for action. However, in January I got a > chest infection and although antibiotics made a slight improvement I > never seemed to recover fully. By April I was starting to worry. I > was so exhausted I was concerned about my childrens safety, I was > cold despite being dressed like the mitchelin man and my bones ached > so I went to the gp and told him everything. I gave blood and then > awaited results. Eventually I phoned the receptionist because I > hadn't heard anything and she told me there was nothing wrong with > me and I don't need to go back. At the beginning of June I developed > a lump in my neck. It started as a pea sized lump and grew to about > an inch long in the space of 3 days although it constantly changes > size. I went to another gp who refered me to see and ear, nose and > throat specialist. He took a biopsy, I gave more blood and had an > ultra sound. The sonographer said it looked like a cyst, I asked why > it kept getting bigger and smaller and she said maybe it bled. The > consultant said I had a goitre but my thyroid levels where all > normal so there was nothing to do. He couldn't tell me why I had it > or what had triggered it, he said it wasn't anything I did or do and > there was nothing I could do to make it go away, my tiredness and > other symptoms were totally unrelated so I'd need to return to my gp > for those. He didn't seem to understand my question about why it > changes size. As I was about to leave he added almost as an > afterthought that I had the antibodies but there was nothing I could > do about that. > As I didn't want to do nothing I changed my diet. I've almost given > up wheat, dairy and coffee and eat lots of fruit, veg, nuts, seeds, > brown rice etc and also take a kelp supplement. Almost straight away > my energy levels returned and I started losing weight (10lb in 6wks).> I have so many questions about it all. I don't like the thought that > my body is attacking itself and can't believe there is nothing I can > do about it. Does anyone have any inspirational stories?> Thanks for listening.> Lucy X> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2006 Report Share Posted October 14, 2006 Hi , I've just started taking Selenium (about a week I think) and my skin seems so much smoother! I do have anti-bodies but I don't know how many and was told as all my blood tests were 'normal' it didn't matter. I've just been reading everything I can find about it on the net. Do you avoid goitrogens like brocolli, cabbage etc? I eat huge amounts of this type of veg and have done for ages thinking it was good for me. My lump gets bigger and smaller. Last week I really fell off the wagon and binge on crisps, potatoes and cheese and other things bad. In the night I woke up and my lump was sticking out and as big as an egg. My period came the next day so I don't know whether it was the bad food or the hormones that made it like it. It hasn't been going as small as it can since. I'm seeing the consultant again in November for monitoring (more bloods I guess) and will try and get some sense out of him or a referral to someone else. He is the Ears, Nose and Throat dr but I don't know if that covers thyroid or not. Lucy X > > > > Hello everyone. > > > > I am 32 and think I have Hashimoto's Thyroiditis. > > My Mum was very poorly for a number of years and eventually > > diagnosed in her 30's, my Nana and my aunt also have it. > > Me. I always had loads of energy, did a physical job and went to > the > > gym on top. My weight always hung around 8 stone and I never got > > poorly. At 28 I fell pregnant with my first child and had a TSH > test > > which was middle of the range. At 30 I fell pregnant again and in > > March 2005 had my second child. It was hard work looking after 2 > and > > I was tired but I expected that. By December I'd started to feel > > more like me again and was really looking forward to 2006. I got a > > gym membership and was ready for action. However, in January I got > a > > chest infection and although antibiotics made a slight improvement > I > > never seemed to recover fully. By April I was starting to worry. I > > was so exhausted I was concerned about my childrens safety, I was > > cold despite being dressed like the mitchelin man and my bones > ached > > so I went to the gp and told him everything. I gave blood and then > > awaited results. Eventually I phoned the receptionist because I > > hadn't heard anything and she told me there was nothing wrong with > > me and I don't need to go back. At the beginning of June I > developed > > a lump in my neck. It started as a pea sized lump and grew to about > > an inch long in the space of 3 days although it constantly changes > > size. I went to another gp who refered me to see and ear, nose and > > throat specialist. He took a biopsy, I gave more blood and had an > > ultra sound. The sonographer said it looked like a cyst, I asked > why > > it kept getting bigger and smaller and she said maybe it bled. The > > consultant said I had a goitre but my thyroid levels where all > > normal so there was nothing to do. He couldn't tell me why I had it > > or what had triggered it, he said it wasn't anything I did or do > and > > there was nothing I could do to make it go away, my tiredness and > > other symptoms were totally unrelated so I'd need to return to my > gp > > for those. He didn't seem to understand my question about why it > > changes size. As I was about to leave he added almost as an > > afterthought that I had the antibodies but there was nothing I > could > > do about that. > > As I didn't want to do nothing I changed my diet. I've almost given > > up wheat, dairy and coffee and eat lots of fruit, veg, nuts, seeds, > > brown rice etc and also take a kelp supplement. Almost straight > away > > my energy levels returned and I started losing weight (10lb in > 6wks). > > I have so many questions about it all. I don't like the thought > that > > my body is attacking itself and can't believe there is nothing I > can > > do about it. Does anyone have any inspirational stories? > > Thanks for listening. > > Lucy X > > > Quote Link to comment Share on other sites More sharing options...
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