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I still gasp for breath at night. I don't really *snore*, as the tonsillectomey and laser surgery of my nose and sinuses have removed most of the skin that would cause snoring.

But I have extreme fatigue when I wake and have to take a nap every day...if I don't, I'm pretty much shot for the next day. I really only have about 4-5 hours a day when I am fully alert and able to function.

This all started with a case of Lyme Disease that was misdiagosed for four years and now my immune system is shot. The Lyme disrupted my sleep apparatus.

I found my last sleep study (from 1998, five years after my surgery) and am taking it to my doctor on Wednesday. I hope to find my first one from '93 also for him to check out.

The more I think about it, the more I think the Klonopin mercifully knocks me out, but I'm still not getting the deep sleep I need. It's better than when I didn't sleep at all, but not as good as it should be.

Again, if you can refer me to any medical studies on Klonopin and it's failure to allow deep sleep or other problems, I'd appreciate it.

-------------- Original message from : --------------

Do you snore? Do you have trouble breathing?

That is why, with this latest sleep study done end of last year, they allowed me to take the K while in the sleep lab. Even with the K I had breathing obstructions and this explained why I still did not feel rested.

I went to a major hospital in Boston MA.

I just got my breathing CPAP machine and mask and I'm going to see if that helps. The point of this exercise to is to wean me off the K this coming year.

Curious, what were your symptoms?

copeland.cole@... wrote:

Hmmm, interesting news on Klonopin. You wouldn't have any studies you could refer me to, would you?

I found one of my old sleep studies from 1998 and am looking for my original one from 1993 when I first got sick. I guess one of the problems is that both times they told me *not* to take sleep meds to take the study...now why is that when you take them every other night? It didn't make a lot of sense to me, then or now.

So maybe my doc is right if your doc also says the same about Klonopin. Perhaps it still doesn't allow me to reach deep sleep, but I dont' know what I would do without it. The few times I have forgotten to take it or gone out of town without it, I have not been able to sleep....PERIOD. I know I am dependent on it.

So, it's obviously better than the alternative, but our docs may be right, I may *still* not be getting the actual sleep I need to get by on.

-------------- Original message from : --------------

OK, OK. My husband is a Saint. I should give him more credit. He listens, absorbs and then 2 weeks later admits that it now makes sense. Absorption factor here is 2 weeks.

News on Klonopin. I have been on K since 1989. New diagnosis (second opinion in 6 years) says that K only masks the impact of various sleep disorders allowing one to be oblivious to said disorders.....and YES one doesn't really sleep deeply. You just think you are. Better to resolve real issues that are causing lack of deep sleep than go with another palliative drug...I say. But that's just me.

Let me know how it goes,

Mcopeland.cole@... wrote:

Hey, hey, hey, it's not all guys now...my ex-wife tired rather quickly of *me* being tired which led to her affair and our divorce.

I really think it's just the chronic illness aspect of it all. After awhile, it takes a saint to be able to even *try* to understand what we go through every day. Men may be worse than women, but it goes both ways.

Just FYI, the MS Society did a study that showed that 80% of MS patients get divorced. Now note that 50% of *all* couples get divorced, but it's obviously statistically significant.

Imagine the type of people the remaining 20% are. Are they all saints or do they just suffer because they don't want a divorce? I wonder.

FYI II, I take klonopin for sleep also and it knocks me out, but now my doctor is beginning to wonder if I actually reach deep sleep with it. Klonopin also is known for repairing the brain, as it is primarily used to prevent epilepsy attacks. He wants me to try Xyrem, which was the date-rape drug, or a very close sibling to it. He claims it induces deep sleep and has worked with many of his patients who *thought* they were getting good sleep but now wake up more refreshed.

OK, I've had my say for a few months...back to lurking!!!

-------------- Original message from : --------------

Had same reaction from my husband in the past year. He's starting to think I'm a hypochondriac!

Now I pass on literature to him to read - even a book. If he doesn't read it, I read it out loud to him.

Men have no patience for things that take time to change.

Rita Garvey wrote:

Hi ,So glad to hear from you. I, too, have Hashimoto'sand was diagnosed in October after being admitted tothe hospital with an abnormal EKG, heart rate of 44and an almost non-existent blood pressure.Take 88mch of Levoxyl and still have not been feelingany better. Called the endo the other day to tell herof my vision being blurred and tired eyes. I went forblood work and do not have the results as of yet. I was so happy to hear that someone else has blurredvision. I thought I was having a stroke !!I also take an anti depressant...Prozac 60 mg everyday. Endo does not seem to think that is affectingmedication. Don't know about Zoloft though.Sometimes I think I am going crazy. My husband is notsupportive at all. "you take a pill, you should feelbetter" mentality.That causes me more stress and I already feel lousy.Thanks for sharing your story with us. We all need tosupport each other through this chronic disease. Amazing how Hashi affects everyone just a littledifferently.Rita G--- moniquetreschic wrote:> Hello, my name is .> > I was recently diagnosed with Hashi's (8 weeks). > Hoping to connect > with you and gather information on making this new> journey > successful.> > I offer a succinct history of my medical journey,> because to go into > details would be condusive to sleep (for you and> me).> > - Age ten developed Alopecia Universalis (have had> it ever since). > I've coped well,thank you. Married twice to two> lovely men and very > confident in my lifework and interaction with the> world. I wear > beautiful wigs and I don't have to shave my legs. Ha> ha.> > - Age 45 developed breast cancer. Had masectomy> (left side) and > quickly had a clean bill of health. (3 years and> counting!) No chemo > and no radiation treatment. (Side note: my second> husband had > prostate cancer same time I had breast cancer -> needless to say, > that was not the sunfilled rosy chapter of life so> far). All is > better now.> > - Age 48 had HUGE fibroid tumors in uterus and had> uterus removed > due to one fibroid pushing into stomach wall and> causing lots of > strange dining experiences.> > - Age 49 (tada! well 49 in a few weeks) I have been> on slow uptake > of levothyroxine for 8 weeks. 25mg start. TSH> originally 7.5 and > GP questioned if I should be treated! I said> ABSOLUTELY. WHY?> > 1. I have gained 50 lbs in 5 years...though husband> and I became > vegans 3 years ago!!! Doctor's always questioning> my diet????? > Hello! What else could I remove from said diet?? I> live near > fishing village on east coast of Massachusetts and> do eat fresh fish > (OK, pesco vegan wino).> > 2. Became so excessively tired that my husband> sometimes drove me > home from work as I lay in the backseat of the car.> > 3. Eye's water constantly as though I am crying> excessivly. > > 3a. Vision blurred. Eyes constantly tired. Vision> has been > improving dramatically since taking levothyroxine. > > 4. On antidepressants for several years (Zoloft -> now I'm reading > that this may combat effectiveness of levothyroxine> - yes????)> > 5. Developed sleep apnea, diagnosed in sleep clinic> and I'm > receiving breathing mask tomorrow.> > 6. Never had children because of "supposed"> infertility issue. Moot > point now.> > Diagnosed with Hashi's by pure chance, pre-breast> reconstructions > surgeon did pre-op immunity diagnosis. I cancelled> reconstruction > to deal with Hashi's.> > Does anyone see a pattern here??? Could I have been> a carrier of a > more subtle form of Hashimoto since childhood? Has> everything I've > experienced been a product of this???> > Seeing endo (after requesting referral from GP and> receiving > approval) in 3 weeks. Excited of new journey> because I want to lose > weight, get of antidepressants and klonopin I take> for sleep apnea.> > What should I ask my endo? What key questions must> I bring to my > first meeting so that I can beat this??? That do> you think of > levothyroxine?> > Other bit of info, in case you can tell me why this> is, after taking > 25mg of levothyroxine for six weeks TSH dropped to> only 6.75. > Doctor disappointed. Is this indicative of Zoloft> effect?> > Would love to hear about your successes, struggles> and incredible > breakthroughs.> > My heart goes out to all of you because I still have> one,> > > > > > __________________________________________________

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Sorry. I don't have the study, just the word of the Director of the sleep study clinic I went to in Boston. She said that in the past she would prescribe Klonopin for sleep problems until recently when the diagnosis became dependant on 1. A visit to an Eye, Ear, Nose specialist (who I did see and he said I had 95% closage when I block my nose and breathe - its a test he did with a scope in my throat - took about 15 seconds). 2. Two sleep studies with and without a breathing mask. It's the size of my tongue, throat, etc. and when lying down creates a closed breathing passage - it has nothing to do with my nose. I've been on the cpap breathing device for a week now and i'm getting used to it. I am definitely NOT waking up with a sore throat and feeling a little less tired. They said it would take a while for the benefit to kick in completely.

Hope this helps. Mcopeland.cole@... wrote: I still gasp for breath at night. I don't really *snore*, as the tonsillectomey and laser surgery of my nose and sinuses have removed most of the skin that would cause snoring. But I have extreme fatigue when I wake and have to take a nap every day...if I don't, I'm pretty much shot for the next day. I really only have about 4-5 hours a day when I am fully alert and able to function. This all started with a case of Lyme Disease that was misdiagosed for four years and now my immune system is shot. The Lyme disrupted my sleep apparatus. I found my last sleep study (from 1998,

five years after my surgery) and am taking it to my doctor on Wednesday. I hope to find my first one from '93 also for him to check out. The more I think about it, the more I think the Klonopin mercifully knocks me out, but I'm still not getting the deep sleep I need. It's better than when I didn't sleep at all, but not as good as it should be. Again, if you can refer me to any medical studies on Klonopin and it's failure to allow deep sleep or other problems, I'd appreciate it. -------------- Original message from : -------------- Do you snore? Do you have trouble breathing? That is why, with this latest sleep study done end of last year, they allowed me to take the K while in the sleep lab. Even with the K

I had breathing obstructions and this explained why I still did not feel rested. I went to a major hospital in Boston MA. I just got my breathing CPAP machine and mask and I'm going to see if that helps. The point of this exercise to is to wean me off the K this coming year. Curious, what were your symptoms? copeland.cole@... wrote: Hmmm, interesting news on Klonopin. You wouldn't have any studies you could refer me to, would you? I found one of my old sleep studies from 1998 and am looking for my original one from 1993 when I first got sick. I guess one of the problems is that

both times they told me *not* to take sleep meds to take the study...now why is that when you take them every other night? It didn't make a lot of sense to me, then or now. So maybe my doc is right if your doc also says the same about Klonopin. Perhaps it still doesn't allow me to reach deep sleep, but I dont' know what I would do without it. The few times I have forgotten to take it or gone out of town without it, I have not been able to sleep....PERIOD. I know I am dependent on it. So, it's obviously better than the alternative, but our docs may be right, I may *still* not be getting the actual sleep I need to get by on. -------------- Original message from : -------------- OK, OK. My husband is a Saint. I should give him more

credit. He listens, absorbs and then 2 weeks later admits that it now makes sense. Absorption factor here is 2 weeks. News on Klonopin. I have been on K since 1989. New diagnosis (second opinion in 6 years) says that K only masks the impact of various sleep disorders allowing one to be oblivious to said disorders.....and YES one doesn't really sleep deeply. You just think you are. Better to resolve real issues that are causing lack of deep sleep than go with another palliative drug...I say. But that's just me. Let me know how it goes, Mcopeland.cole@... wrote: Hey, hey, hey, it's not all guys now...my ex-wife tired rather quickly of

*me* being tired which led to her affair and our divorce. I really think it's just the chronic illness aspect of it all. After awhile, it takes a saint to be able to even *try* to understand what we go through every day. Men may be worse than women, but it goes both ways. Just FYI, the MS Society did a study that showed that 80% of MS patients get divorced. Now note that 50% of *all* couples get divorced, but it's obviously statistically significant. Imagine the type of people the remaining 20% are. Are they all saints or do they just suffer because they don't want a divorce? I wonder. FYI II, I take klonopin for sleep also and it knocks me out, but now my doctor is beginning to wonder if I actually reach deep sleep with it. Klonopin also is known for repairing the brain, as it is primarily used to prevent epilepsy

attacks. He wants me to try Xyrem, which was the date-rape drug, or a very close sibling to it. He claims it induces deep sleep and has worked with many of his patients who *thought* they were getting good sleep but now wake up more refreshed. OK, I've had my say for a few months...back to lurking!!! -------------- Original message from : -------------- Had same reaction from my husband in the past year. He's starting to think I'm a hypochondriac! Now I pass on literature to him to read - even a book. If he doesn't read it, I read it out loud to him. Men have no patience for things that take time to change. Rita Garvey

wrote: Hi ,So glad to hear from you. I, too, have Hashimoto'sand was diagnosed in October after being admitted tothe hospital with an abnormal EKG, heart rate of 44and an almost non-existent blood pressure.Take 88mch of Levoxyl and still have not been feelingany better. Called the endo the other day to tell herof my vision being blurred and tired eyes. I went forblood work and do not have the results as of yet. I was so happy to hear that someone else has blurredvision. I thought I was having a stroke !!I also take an anti depressant...Prozac 60 mg everyday. Endo does not seem to think that is affectingmedication. Don't know about Zoloft though.Sometimes I think I am going crazy. My husband is notsupportive at all. "you

take a pill, you should feelbetter" mentality.That causes me more stress and I already feel lousy.Thanks for sharing your story with us. We all need tosupport each other through this chronic disease. Amazing how Hashi affects everyone just a littledifferently.Rita G--- moniquetreschic wrote:> Hello, my name is .> > I was recently diagnosed with Hashi's (8 weeks). > Hoping to connect > with you and gather information on making this new> journey > successful.> > I offer a succinct history of my medical journey,> because to go into > details would be condusive to sleep (for you and> me).> > - Age ten developed Alopecia Universalis (have had> it ever since). > I've coped well,thank you. Married twice to two> lovely men and very > confident in my

lifework and interaction with the> world. I wear > beautiful wigs and I don't have to shave my legs. Ha> ha.> > - Age 45 developed breast cancer. Had masectomy> (left side) and > quickly had a clean bill of health. (3 years and> counting!) No chemo > and no radiation treatment. (Side note: my second> husband had > prostate cancer same time I had breast cancer -> needless to say, > that was not the sunfilled rosy chapter of life so> far). All is > better now.> > - Age 48 had HUGE fibroid tumors in uterus and had> uterus removed > due to one fibroid pushing into stomach wall and> causing lots of > strange dining experiences.> > - Age 49 (tada! well 49 in a few weeks) I have been> on slow uptake > of levothyroxine for 8 weeks. 25mg start. TSH> originally 7.5 and > GP

questioned if I should be treated! I said> ABSOLUTELY. WHY?> > 1. I have gained 50 lbs in 5 years...though husband> and I became > vegans 3 years ago!!! Doctor's always questioning> my diet????? > Hello! What else could I remove from said diet?? I> live near > fishing village on east coast of Massachusetts and> do eat fresh fish > (OK, pesco vegan wino).> > 2. Became so excessively tired that my husband> sometimes drove me > home from work as I lay in the backseat of the car.> > 3. Eye's water constantly as though I am crying> excessivly. > > 3a. Vision blurred. Eyes constantly tired. Vision> has been > improving dramatically since taking levothyroxine. > > 4. On antidepressants for several years (Zoloft -> now I'm reading > that this may combat

effectiveness of levothyroxine> - yes????)> > 5. Developed sleep apnea, diagnosed in sleep clinic> and I'm > receiving breathing mask tomorrow.> > 6. Never had children because of "supposed"> infertility issue. Moot > point now.> > Diagnosed with Hashi's by pure chance, pre-breast> reconstructions > surgeon did pre-op immunity diagnosis. I cancelled> reconstruction > to deal with Hashi's.> > Does anyone see a pattern here??? Could I have been> a carrier of a > more subtle form of Hashimoto since childhood? Has> everything I've > experienced been a product of this???> > Seeing endo (after requesting referral from GP and> receiving > approval) in 3 weeks. Excited of new journey> because I want to lose > weight, get of antidepressants and klonopin I take> for sleep

apnea.> > What should I ask my endo? What key questions must> I bring to my > first meeting so that I can beat this??? That do> you think of > levothyroxine?> > Other bit of info, in case you can tell me why this> is, after taking > 25mg of levothyroxine for six weeks TSH dropped to> only 6.75. > Doctor disappointed. Is this indicative of Zoloft> effect?> > Would love to hear about your successes, struggles> and incredible > breakthroughs.> > My heart goes out to all of you because I still have> one,> > > > > > __________________________________________________

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  • 2 years later...

Thats great info for me! I have done the sleep study but am waiting for the results. The dr said they would probably give me a machine that does the puff of air when it notices your not breathing but the study guy who set me up in the room TRIED giving me the constant air and i couldnt exhale! Thanks i will ask about it!

CAROL CARUSO

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ladyvamp5489@...

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To: asthma Sent: Thursday, January 8, 2009 5:33:46 PMSubject: sleep apnea

Did I see a post about a connection with sleep apnea and asthma? Ithought I had, but I can't find it now. I just wanted to say I wasdiagnosed with sleep apnea after doing a sleep study in October 2007.It only took a couple of nights to get used to the CPAP machine andnow I can't get to sleep without it. The only time it ever aggravatesme is when I am having a big flare up. Then I will wake up feelinglike I am fighting to exhale. So, for those of you who are beingassessed for sleep apnea, if you are diagnosed ask about a bi-papmachine rather than a c-pap. A c-pap uses continuous pressure and abi-pap adjusts according to your breathing patterns. Although, like Isaid I rarely have any issues with the c-pap. My husband says thecpap and xanax have saved our marriage. LOL!Madeline

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This is timely! I am having a sleep study one week from tonight, I've had them in the past and beeh diagnosed with apnea but no one has put me on a bi- or c-pap. We'll see what happens. Glad you are home.

Mike

To: asthma Sent: Thursday, January 8, 2009 4:33:46 PMSubject: sleep apnea

Did I see a post about a connection with sleep apnea and asthma? Ithought I had, but I can't find it now. I just wanted to say I wasdiagnosed with sleep apnea after doing a sleep study in October 2007.It only took a couple of nights to get used to the CPAP machine andnow I can't get to sleep without it. The only time it ever aggravatesme is when I am having a big flare up. Then I will wake up feelinglike I am fighting to exhale. So, for those of you who are beingassessed for sleep apnea, if you are diagnosed ask about a bi-papmachine rather than a c-pap. A c-pap uses continuous pressure and abi-pap adjusts according to your breathing patterns. Although, like Isaid I rarely have any issues with the c-pap. My husband says thecpap and xanax have saved our marriage. LOL!Madeline

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