Guest guest Posted March 5, 2010 Report Share Posted March 5, 2010 Hello and welcome to the 'Hummingbirds' Foundation for Myalgic Encephalomyelitis' e-newsletter for February 2010 We have one main new project to tell you about this month, two site updates and a brief informal survey. ------- A new paper is available: XMRV, 'CFS' and M.E. by Shenk There has been much media publicity lately over a small research study that claims to have made a connection between " CFS, " or " ME/CFS " , and a retrovirus. While many are touting this as a huge medical breakthrough, or even claiming that 'our battle is over' there is a group of doctors, scientists, patients and advocates who question why this research is being said to apply to M.E., when the patients studied merely qualified for a 'CFS' misdiagnosis and who view this information and the claims made about it with tempered enthusiasm or even significant concern and worry. Please read this brief paper to find out WHY. This page also includes a new short paper entitled: Understanding M.E. and CFS - A Brief History. Shenk is a severe M.E. patient (and patient advocate) from the USA. This is the first solo paper she has written for the HFME, but hopefully (health permitting) it will not be the last. See: _http://www.hfme.org/xmrvcfsandme.htm_ (http://www.hfme.org/xmrvcfsandme.htm) Quote Link to comment Share on other sites More sharing options...
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