Re: my thinking on the articles and on cures/leaving

[Guest guest]

To Sondra & Kassiane:

This is a group about support, not to argue back and forth. For many on this

list-includeing myself, you are both the ONLY links that we have to get in our

daughters mind and help to understand them. Since Sondra's post and now

Kassiana's I have cried. I feel like I am going to loose my insight to get to

Abby.

You both have NO IDEA how important you are. No group is perfect and there

are stupid people whereever you go that will say something to offend you. Some

people say things just to get a rise out of someone. Dont let them control you.

If offended then contact the moderator and let them take care of it. I know

that sounds to simple but if that doesnt work then just delete or dont read

posts. I know thats easier said then done.

To Sondra: You have opened up doors for many people and made them aware of so

much. I feel that you are part of my family. You have helped me to understand

Abby better and how to ease some of her sensory issues. You are such a asite

to this group. I feel like by you leaving that another door has been shut in

my face when I am trying to help my daughter.Just when I start to understand

her, I will loose that again. Sondra you are SO IMPORTANT to this group, all the

people that matter love you for who you are and wouldnt have you anyother

way. You are an inspiration to all of us.

To:Kassiane: You stayed with my family for 6 days and it was an honor and a

priviledge to have you here. You are my friend and I wouldnt have it any other

way. You are such a strong person and you always voice your opinion. That is

what the group is for. You are a wonderful advocate for our children. I was

brought to tears when I saw your post that you were leaving. You of all people

should know that we need someone like you to tell us whats it like from your

view point. People will be stupid and you shouldnt let them get the best of you.

You are better then that. You know in your heart that you are. You were teased

horribly in school and you still have trama from that. DONT LET OTHER PEOPLE

CONTROL YOU! You and Sondra are differant people with differant opinions,

thats what makes the world go round. I only hope that the people that matter

most

to you and Sondra will be enough to get you both to stay.

I love you both,

Pennie

Abby's Mom

[Guest guest]

Tomorrow I am unsubscribing. I am done with parent lists. Who I am isnt

ok here, and Im not allowed to be pissed about it.

I feel very threatened and disrespected as a human with TAAP here.

Between the only messages from that email being cure crap, and the way

one of their representatives treated me at the ASA conference, I cannot

share list space with them any longer.

Anyone who wants to get ahold of me otherwise, its

Missasparagus@...

, AIM is Kamikazekassi.

I wont share a list with an organization who saw fit to tell me and

another that we arent autistic, to condescend at me, and to allow a

member to send her husband to yell at me. I have more dignity than that.

Kassiane

< Re: my thinking on the articles and on cures

Please stop all the attacks of others , it to makes an uncomfortable

setting

here for me and much others. I to not like of disputes such as this if

one

does not like the postings of others then please to not say you thinking

just hit delete.

While I to be of one with autism too and I to be to not agree to all

things

in the media or NET I to be to feel in part much work is needed in that

areas of research as much voice in that areas is showing much

biomedically a

mess in our systems and when properly addressed it supports the ASD

person

at higher levels of ability to become more able to be self suffient. It

does

not always mean cure it means to discover the issues that is within us

and

help repair those issues such as the leaky gut syndrome and such. I to

be to

surly not like to be with much stomach issues and much headaches and

such of

constant. I to be to not want to have bloating and gas and to be of much

uncomfortable daily, these people are supporting the issues that

research is

pointing too, nothing more. They to have a right to know and to voice

their

thinkings as well as we since they too are parents of autistic children

who

are by far more challenged that we to be of now in life. Lets respect

that

in them and to know that they too are pained to see their child be so

not

understood as many like the preacher too lure after their children in

wants

of to cure to fix them in ways , it pains the parents to see the child

be

degraded and stared at in less than human ways and any parent who can

say

they proudly enjoy that and do not want to make life better for their

Childs

is a parent who does not love thems child. It is harder when you have a

child of kanners who is not able to voice and yet they painfully want of

acceptance and to be of understood too. Some are so affected they are in

constant self abuse and aggressions and nothing seems to help them, they

have beaten thems head so severely they aren't facially deformed , these

parents would pay all they have to cure their child and hear hims/her

voice

and such this is not unselfish this is called I to love my child. If all

children of ASD eventually come out as functional as the very highest

functioning peoples of ASD who like the article to say is just a

personality

style then no one would be of seeking cures and or treatments, but it is

for

many much more profound than a personality style, if one is thathigh

functioning that it is just a personality style then they should not be

labeled as ASD. I to have much challenges that can at times much out

weigh

my ability and for this and the knowing that my ASD is pervasive enough

to

cause me much issues in life such as safe factors and being able to be

of

complete independent person, this is why I to be to spend much of life

locked in mental institutions and restrained like an animal and over

drugged

by professionals and misdx, mistreated simply because I to be with ASD

and

not just a personality style.If it was of just personality style I

tothink

as much aggressive treatments I to had in past would have cured my of my

inner will to be of different it has not which means it is not of

personality it is of much more profound.

Sondra ( who supports much of what TAAP is doing and know it is not

because

they do not accept and or love their children , but because they DO love

and

respect their children's dignity in life. April is one who as I to

shared

has lost of her precious baby girl of autism , her child is gone so why

does

she still work in this field, because she does want what is best for the

children's who are of severe impaired due to autism. She wants to give

them

hope that society does not hold for them at their current state of

being. It

isn't because she does not accept us as we are she just wants to offer

some

a hope of being all they can be as adults. Please do not condemn one who

is

working hard in an areas that is being researched for autism by many ,

many

researchers, as I to know she has not sent her article with anyone's

names

on it stating that to needed a cure.

Sondra who is also much of angry and upset with the constant upsets and

such

here on this matter. I to think maybe my thinking is of better else

where.

Sondra who does not seek a cure for self but understand the needs for

cures

or treatments that support those with Kanners and that have more

challenges

that prevent them from having a life that is of happy and successful due

to

society views.

Please to set no mail.

Sondra

Autism_in_Girls-subscribe

------------------------

Autism_in_Girls-unsubscribe

[Guest guest]

I agree. The two of you are key in how I learn to understand my daughter

who is still not quite 3. I have a long way to go and many years ahead.

Hopefully, with the insights you both provide, it will be easier for us

to help our child be the best that she can be. That's all I can hope

for. I don't believe there is a cure or even that there should be, I

can't think too deep or too far into the future, for my own sake, but I

do know that I will do all it takes to help my child adjust in a world

that is not always accepting of other's differences.

Here's hoping you change your minds and stick around.

Rhonda

Olivia's mom

[Guest guest]

Wow Pennie, you sure know how to guilt-trip a girl.

I'll think about staying. But if I leave, I will stay in contact with

you. You are a friend, a great friend, and I dont want to lose that.

K.

< Re: my thinking on the articles and on

cures/leaving

To Sondra & Kassiane:

This is a group about support, not to argue back and forth. For many on

this

list-includeing myself, you are both the ONLY links that we have to get

in our

daughters mind and help to understand them. Since Sondra's post and now

Kassiana's I have cried. I feel like I am going to loose my insight to

get to Abby.

You both have NO IDEA how important you are. No group is perfect and

there

are stupid people whereever you go that will say something to offend

you. Some

people say things just to get a rise out of someone. Dont let them

control you.

If offended then contact the moderator and let them take care of it. I

know

that sounds to simple but if that doesnt work then just delete or dont

read

posts. I know thats easier said then done.

To Sondra: You have opened up doors for many people and made them aware

of so

much. I feel that you are part of my family. You have helped me to

understand

Abby better and how to ease some of her sensory issues. You are such a

asite

to this group. I feel like by you leaving that another door has been

shut in

my face when I am trying to help my daughter.Just when I start to

understand

her, I will loose that again. Sondra you are SO IMPORTANT to this group,

all the

people that matter love you for who you are and wouldnt have you

anyother

way. You are an inspiration to all of us.

To:Kassiane: You stayed with my family for 6 days and it was an honor

and a

priviledge to have you here. You are my friend and I wouldnt have it any

other

way. You are such a strong person and you always voice your opinion.

That is

what the group is for. You are a wonderful advocate for our children. I

was

brought to tears when I saw your post that you were leaving. You of all

people

should know that we need someone like you to tell us whats it like from

your

view point. People will be stupid and you shouldnt let them get the best

of you.

You are better then that. You know in your heart that you are. You were

teased

horribly in school and you still have trama from that. DONT LET OTHER

PEOPLE

CONTROL YOU! You and Sondra are differant people with differant

opinions,

thats what makes the world go round. I only hope that the people that

matter most

to you and Sondra will be enough to get you both to stay.

I love you both,

Pennie

Abby's Mom

[Guest guest]

Did it work? <grin>

Pennie

Abby's Mom

[Guest guest]

Guess I shall have to instill more guilt huh? LOL

Pennie

Abby's Mom

[Guest guest]

Hi - I usually just read posts and do not write too much, but today I really

feel the need. I live in Duluth Minnesota. My daughter Ally is 3-3/4 years

old. I have had so much frustration trying to get her any kind of therapy.

As of now she is on 4 waiting lists for speech therapy and occupational

therapy. I have been " playing " this game for two YEARS. She is high

functioning, and I have done as much home therapy with her as I know how.

Over the last 6 months or so we have made a LOT of progress. She went from

nonverbal at 3 to now speaking around 200 words. She now interacts with

people. She is learning that other people have names other then boy or

girl!!!!!!! I have had to learn how to be a teacher. In my area there is

THREE large hospitals all with therapy departments. A big college that

offers free therapy. Skotish Rite with free therapy, and a rehab place. I

am still on the waiting list for all of them!!!!!!!!!!!! I am now trying

to get her in a preschool that is for PDD kids. I am too afraid to put her

in a regular preschool, as people do NOT understand autism. You have to be

able to understand the autstic way of thinking to be able to help them grow

and learn as best they can. I do not think this is something that can be

taught in a school. I think all of the parents reading this know exactly

what I mean by saying this. Can anyone give me some ideas on how to start

my own group in Duluth. Maybe a daycare for autistic children. Or a group

where all of the parents are " allowed " to bring thier kids to play with

other children who have simular problems. Something to help my Ally and

other kids who are on these damn waiting lists. Waiting to get into therapy

being taught by people who REALLY do not understand autism. Not by thier

own fault. It just cannot be taught. The only way you can know is have it

or live everyday with someone who does. Thanks for letting me vent.

>From: Ploveabby@...

>Reply-To: Autism_in_Girls

>To: Autism_in_Girls

>Subject: Re: my thinking on the articles and on

>cures/leaving

>Date: Tue, 2 Sep 2003 07:52:26 EDT

>

>Did it work? <grin>

>

>Pennie

>Abby's Mom

>

>

>

[Guest guest]

Havent decided yet.

< Re: my thinking on the articles and on

cures/leaving

Did it work?

Pennie

Abby's Mom

[Guest guest]

i dnot know what the laws are like there. (im in michigan) are there lions

clubs or such organizations that could help. try to file for a non-profit org.

also get tramplaines sit and spins and big 'rolling' balls. i know these

things have helped my daughter switch from pinching and hitting to talking

feelings. the therapy realy helps her with the sensory issues. do you use same

for your kid? or other ideas?

eric

[Guest guest]

Come on, please stay? I'll give ya 5 bucks! hehe, thought I'd throw a

little bribery in for good measure!

Rhonda

Olivia's mom

[Guest guest]

Kassiane- you cant, Fefe is in a better place now......

For all that dont know we had a rodent named Fefe that bite Kassiane the

within the first 10 minutes she was at my house. Hence the bite drew lots of

blood

and left permanant stains on the bathroom carpet. LOL

Pennie

Abby's Mom

[Guest guest]

NO MORE GUILT!

I'll come bleed on your carpet again...

Kassiane

< Re: my thinking on the articles and on

cures/leaving

Guess I shall have to instill more guilt huh? LOL

Pennie

Abby's Mom

[Guest guest]

well i could REALLY use the money....

< Re: my thinking on the articles and on

cures/leaving

Come on, please stay? I'll give ya 5 bucks! hehe, thought I'd throw a

little bribery in for good measure!

Rhonda

Olivia's mom

Autism_in_Girls-subscribe

------------------------

Autism_in_Girls-unsubscribe

[Guest guest]

Kassiane

Please don't leave this group. The input you and Sondra give us is incredibly

valuable to us all. It has given me so much hope for the future my daughter can

have. You give us unique insight into our girls and I know it has helped me

tremendously. You and Sondra are a definate gift to all of us and to your

communities. It would be a shame to lose you and valued opinions.

Tracey

Re: my thinking on the articles and on

cures/leaving

To Sondra & Kassiane:

This is a group about support, not to argue back and forth. For many on

this

list-includeing myself, you are both the ONLY links that we have to get

in our

daughters mind and help to understand them. Since Sondra's post and now

Kassiana's I have cried. I feel like I am going to loose my insight to

get to Abby.

You both have NO IDEA how important you are. No group is perfect and

there

are stupid people whereever you go that will say something to offend

you. Some

people say things just to get a rise out of someone. Dont let them

control you.

If offended then contact the moderator and let them take care of it. I

know

that sounds to simple but if that doesnt work then just delete or dont

read

posts. I know thats easier said then done.

To Sondra: You have opened up doors for many people and made them aware

of so

much. I feel that you are part of my family. You have helped me to

understand

Abby better and how to ease some of her sensory issues. You are such a

asite

to this group. I feel like by you leaving that another door has been

shut in

my face when I am trying to help my daughter.Just when I start to

understand

her, I will loose that again. Sondra you are SO IMPORTANT to this group,

all the

people that matter love you for who you are and wouldnt have you

anyother

way. You are an inspiration to all of us.

To:Kassiane: You stayed with my family for 6 days and it was an honor

and a

priviledge to have you here. You are my friend and I wouldnt have it any

other

way. You are such a strong person and you always voice your opinion.

That is

what the group is for. You are a wonderful advocate for our children. I

was

brought to tears when I saw your post that you were leaving. You of all

people

should know that we need someone like you to tell us whats it like from

your

view point. People will be stupid and you shouldnt let them get the best

of you.

You are better then that. You know in your heart that you are. You were

teased

horribly in school and you still have trama from that. DONT LET OTHER

PEOPLE

CONTROL YOU! You and Sondra are differant people with differant

opinions,

thats what makes the world go round. I only hope that the people that

matter most

to you and Sondra will be enough to get you both to stay.

I love you both,

Pennie

Abby's Mom

[Guest guest]

-I am fairly new to the group. I have to tell you it will be a shame

if you leave the group as I have obtained helpful information from

your post for my daughter. I do hope you will reconsider.

Sincerely,

Gerri

-- In Autism_in_Girls , Ploveabby@a... wrote:

> Kassiane- you cant, Fefe is in a better place now......

>

> For all that dont know we had a rodent named Fefe that bite

Kassiane the

> within the first 10 minutes she was at my house. Hence the bite

drew lots of blood

> and left permanant stains on the bathroom carpet. LOL

>

> Pennie

> Abby's Mom

>

>

>

[Guest guest]

Kassiane, Fefe went back to the pet store and then they took her to " A better

place " . She is, lets just say-free to roam in little " Degu-happy hunting

grounds " LOL

Pennie

Abby's Mom

[Guest guest]

Charlene, I will say that I will back Kassiana;s thoughts on this one. Yep,

she was a lovely shade of white ( at least it was before labor day!LOL) Wouldnt

want her to break those fashion laws. I actually thought that we were going

to have an ER trip on the first day. One of my first questions to her was " Do

you have insurace? " LOL!

Pennie

Abby's Mom

[Guest guest]

Kassiane, I am so glad that you are amused-Now.LOL!!!

Pennie

Abby's Mom

[Guest guest]

and put some, I believe it was duct tape to hold the gauze on. LOL!!!!

Pennie

Abby's Mom

[Guest guest]

Bye Fefe, I will never forget you...the scar wont let me!

I cant commit a crime anymore, she gave me a very distinctive left

forefinger print.

Kassiane

< Re: my thinking on the articles and on

cures/leaving

Kassiane, Fefe went back to the pet store and then they took her to " A

better

place " . She is, lets just say-free to roam in little " Degu-happy hunting

grounds " LOL

Pennie

Abby's Mom

[Guest guest]

Ah yes. The insurance. Yes I have insurance. But I would have refused to

go were I concious...had they wanted to stitch me up I wouldnt have been

able to tumble!

Kassiane

< Re: my thinking on the articles and on

cures/leaving

Charlene, I will say that I will back Kassiana;s thoughts on this one.

Yep,

she was a lovely shade of white ( at least it was before labor day!LOL)

Wouldnt

want her to break those fashion laws. I actually thought that we were

going

to have an ER trip on the first day. One of my first questions to her

was " Do

you have insurace? " LOL!

Pennie

Abby's Mom

[Guest guest]

Wearing all white couldnt of had a better color on with blood.

She seemed to have taken it well and I am glad everything went well

Charlene

-- Re: my thinking on the articles and on

cures/leaving

Charlene, I will say that I will back Kassiana;s thoughts on this one. Yep,

she was a lovely shade of white ( at least it was before labor day!LOL)

Wouldnt

want her to break those fashion laws. I actually thought that we were going

to have an ER trip on the first day. One of my first questions to her was

Do

you have insurace? " LOL!

Pennie

Abby's Mom

[Guest guest]

IT amazes me how the little wounds can bleed so much. By how much

blood ones looses youd feel its a huge clear to the bone wound LOL

Charlene

-- Re: my thinking on the articles and on

cures/leaving

Me? I turned a lovely shade of white. And nearly passed out. And thought

for sure the family would regret inviting me to stay with them.

And i continued bleeding on their carpet.

K

[Guest guest]

I was WEARING violent yellow. I turned paper-white (except Id imagine my

freckles didnt).

Now I find the whole thing kinda funny. But at the time I was too busy

trying to not pass out.

Kassiane

< Re: my thinking on the articles and on

cures/leaving

Charlene, I will say that I will back Kassiana;s thoughts on this one.

Yep,

she was a lovely shade of white ( at least it was before labor day!LOL)

Wouldnt

want her to break those fashion laws. I actually thought that we were

going

to have an ER trip on the first day. One of my first questions to her

was

Do

you have insurace? " LOL!

Pennie

Abby's Mom

[Guest guest]

*nods*

It was aLOT of blood...I was embarrassed...and it wouldnt stop bleeding!

Filled up a bandaid in less than 30 seconds.

Kassiane

< Re: my thinking on the articles and on

cures/leaving

Me? I turned a lovely shade of white. And nearly passed out. And thought

for sure the family would regret inviting me to stay with them.

And i continued bleeding on their carpet.

K