QUESTIONS FROM A 53 YEAR SURVIVOR????

[Guest guest]

Hi everyone,

I'm Glen B Schallman, new to the group and a 53 year survivor of PMG and a

HYPOTHALAMIC HAMARTOMA which is inoperable....looks like I'm the oldest living

survivor. do any of the children and young adults that have PMG experience the

symptoms that I have??? tingling on right side of head/face, TIA's, numbness

hands and feet, headaches, and chronic cough????? I live in the Seattle area and

can be contacted at or cell . and by the way I am

involved with the NBTS (NATIONAL BRAIN TUMOR SOCIETY), the ABTA (AMERICAN BRAIN

TUMOR ASSOCIATION and HOPEFORHH.ORG . I for 6 days have been in Washington D.C.

participation in the RACE FOR HOPE and have been on Capital Hill talking,

advocating to congress about brain tumors, brain deformities, conditions (PMG)

and I think they are going to start recognizing us all now!!! WOW!!!! gave them

our site www.pmgawareness.org<http://www.pmgawareness.org/> so let us see what

happen here on Capital Hill in the near future. I do travel the U.S. meeting

brain tumor survivors for HOPEFORHH.ORG and would like to meet PMG survivors.

plus I participate in the epilepsy walks, and brain tumor walks.. I am

participating in 13 walks this year. you can follow me on facebook or email me

at turtlebrain@...

GLEN B SCHALLMAN

53 YEAR SURVIVOR OF PMG and a HYPOTHALAMIC HAMARTOMA.