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jjudy,

from what i have understood most dementia work for about one year and then begin

to taper off, dad had good reprieve with exelon and later namenda was added but

his bp became unstable so we had to take him off all dmentia meds, and exelon

has a caregiver program which i recomment that is available for you to get info

and help with meds and other info, very good program the number is

1-877-memory4, try calling them, hugs sharon m

Date: 2005/10/18 Tue PM 02:58:46 EDT

To: LBDcaregivers

Subject: meeting

Hi everyone.I just came from a family meeting at the hospital where my

dad is staying. This was the first time that I heard that his

diagnosis on their record is Parkinsons. I was so upset. I was

actually with him at the neurologist when he was diagnosed with LBD.

He also isn't on any meds at all for dimentia now. He was on aracept

and it stopped working for him...nothing else has ever been tried. The

head nurse said that at his stage it isn't worth the chance of side

effects. Could I please get some views on this.

I did tell them that I was going to print a list of meds that others

have tried with some success. I will look back through the postings to

find them.

Thanks,

Judy

Welcome to LBDcaregivers.

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